Worried- wife to start chemo 1/11/18

Options

We have a second opinion scheduled for 1/8/18, unless something happens she will start chemo.

Six sessions, one every three weeks.

Docetaxel-Taxotere

Cyclophosphamide-Procytox-Cytoxan

Doxorubicin

I am concerned about the taxotere, I see there are lawsuits involving permanent baldness. Is there anything else about the drugs that should concern us?

She cut most of her hair this weekend, I tried to post a photo but the system wouldn’t let me.

Comments

  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited January 2018

    Hmm.....

    Taxotere can cause gastrointestinal distress -- I had its gentler cousin, Taxol, and it gave me diarrhea. I treated it with imodium. Taxotere can cause permanent hair loss, but it's pretty rare.

    Doxorubicin (Adriamycin) can affect the heart. Your wife should have a baseline heart scan (e.g. MUGA) to check her ejection fraction, and she should be checked every few months or so to make sure that her heart is doing OK.

    My oncologist refused to do AC (Adriamycin + Cytoxan) without a port because this combo can damage your veins. So, your wife's oncologist may recommend that she get a port inserted.

    Hope this helps!


  • OCDAmy
    OCDAmy Member Posts: 873
    edited January 2018

    I had taxotere/cytoxan and did not lose all my hair completely and it is coming back in with no problems. The only side effects I had were achy joints, constipation, some mild nausea and I got thrush every treatment. Plus nothing tastes very good, your tongue feels sort of burned. I did ice my fingers and toes during taxotere to avoid nail problems and neuropathy and chewed on ice to avoid mouth sores. Tell her to drink tons of water and stay away from people who are sick! Best of luck to her.

  • AgathaNYC
    AgathaNYC Member Posts: 473
    edited January 2018

    Here's a link to a good website from the Cleveland Clinic about different chemo treatments: Taxotere

    Like many others I had its cousin, Taxol, so can't really speak to Taxotere's SE. From what I've read on these board neuropathy can be a problem.

    I'll also add that I had Cytoxan and Doxorubicin without a port so it might not be necessary for your wife. My hospital prefers not to use them unless absolutely necessary.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2018

    Hopeful Husband, have you and your wife considered cold capping? I just completed #3 of 4 rounds of Taxotere/Cytoxan and have been using the Dignicap. I have most of my hair, just some thinning. When we found out that I needed chemo, my husband is the one who found a hospital with the cold cap. There is also Paxman system. And, some people rent caps monthly and change them out during the infusion. Just a thought if you are concerned about the possibility of permanent baldness.

  • Hopeful_Husband
    Hopeful_Husband Member Posts: 12
    edited January 2018

    Thanks Elaine. Wife has had the scan, we are still investigating the various drugs and will have a lot of questions for the doctors.

  • Hopeful_Husband
    Hopeful_Husband Member Posts: 12
    edited January 2018

    Amy that does not sound pleasant! You women are warriors! I am trying to keep a binder of tips. Thanks for your suggestions.

  • Hopeful_Husband
    Hopeful_Husband Member Posts: 12
    edited January 2018

    Agatha great website , thanks for the resource.

    Lizabeth, we are looking into the cold capping. Her initial response to the idea was not positive. She had me cut about 13-15 inches if her hair this past weekend.

  • Hopeful_Husband
    Hopeful_Husband Member Posts: 12
    edited January 2018

    second opinion rendered. My wife is proceeding with chemo. Is there a checklist of things she needs? I don’t want her to suffer any unnecessary side effects. I will sit through every minute of every session with her. I wish it was me instead.

  • octogirl
    octogirl Member Posts: 2,804
    edited January 2018

    Dear HH;

    Your wife is lucky to have a caring husband....I just wanted to encourage her to join in on a thread of women undergoing chemo in January:

    https://community.breastcancer.org/forum/69/topics...

    Lots of support and help to be had from women undergoing the same experiences...

    My thoughts about chemo: it wasn't fun, but it was bearable and doable. I didn't have much nausea (honestly, the meds these days are pretty darn good!) and I worked all through it, just taking off a few days when I was at my worst each cycle. I even took two business trips during chemo! For me, losing my hair was the worst part, and it did seem to take FOREVER to come back, but come back it has, and it looks good now. As I think others have mentioned, food did start to taste cruddy: there were some days when the only thing I wanted to eat was mashed potatoes and gravy, because the texture was nice and it didn't taste awful...oh, and ice cream. ice cream never tasted bad.

    Best of luck to you both. Hugs.

    Octogirl

  • Jackster51
    Jackster51 Member Posts: 357
    edited January 2018

    Hopeful, Your wife is lucky to have to in her corner! I had Taxotere 6 years ago and did not get my hair back. I also still have crippling neuopathy in my feet, which makes wearing shoes difficult. I found it to be really tough, not during treatment, but afterwards. What is your wife's age and stage of diagnosis? I would suggest cold capping and icing hands and feet during treatment if she is doing Taxotere.. Best of luck!

  • Hopeful_Husband
    Hopeful_Husband Member Posts: 12
    edited January 2018

    thanks. She is 59. Stage 3 triple negative.

  • buttonsmachine
    buttonsmachine Member Posts: 930
    edited January 2018

    The thing about chemo is that each drug does affect everyone differently. Keep an open mind, but if you do start to have any alarming symptoms be sure you alert your MO. The biggest trouble I've had in chemo (so far) was with neuropathy and taxotere. My hair did come back in thick and full. Best wishes to you both, and I hope your wife sails though chemo!

  • scaligirl
    scaligirl Member Posts: 74
    edited January 2018

    hi Hopeful, I did both Taxotere and Cytoxan for my chemotherapy. I had 4 sessions 3 weeks apart. Hair loss is pretty much a given but the risk of permanent hair loss is very low. I think I read it was between 1 and 2 percent. Scary stuff for sure, but the odds are with her. Some people mentioned cold capping. I decided to just to with losing my hair and not trying to save partial hair. I lost my hair around day 17 and then had some growth pretty immediately of random hairs all over my head. Now that I am post-chemo my hair is starting to grow back in all over.

    As for the "stuff" you need, I looked at that recommended list at the top of this Chemo forum list (there's a Shopping List post) and pretty much bought everything I read. Biotene, immodium, pepcid, senekot, wet wipes, tylenol, omg you name it and I got it. I ended up using pepcid twice after my third chemo. The rest remain untouched and unopened in a (also-new) bag I bought to take with me to chemo. Honestly I would probably just wait if I had to do it all over again. You can always go out that day to get anything you really need and don't have at home already. It will all depend on how your wife reacts to the chemo, and everyone on this board has had different side-effects hti them. Probably the only thing I would absolutely recommend you get is pepcid, because that and any anti-nausea medication you get from the Oncologist will help keep nausea at bay.

    Best of luck to your wife!

Categories