Myofacia Release
Y'all, I have no idea why I was lucky enough to stumble on this, but...WOW!! I was told to look for a PT who would do myofacia release to help with post mastectomy tightness when I had my TE then after my implants were put in. I saw two different ladies at two different facilities and they were night and day different. The one I ended up staying has treated me twice (6-8 sessions each time) and it has been life changing. It sure wouldn't hurt to look in to it if you have had any type of surgery, especially for BC.
Comments
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I second this. I had cording after my mastectomy and my skin had adhered to my ribcage. I couldn't extend my arm fully and I had constant pain in my right chest. My massage therapist did myocardial release. The pain in my ribs went away with the first treatment. It was like a miracle! I went to her twice a week for 8 weeks and got my full extension back.
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WHoo ho and whop de dooooooooooooooo. Both of you have brought a topic that is seriously important for members. Though you may not get a whopping long term response discussion. I suggest that you bump this if it is quiet for awhile. Keep it on the first page of the forum.
Edit: I have a bad computer missing buttons.
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I agree whole hardheartedly that there is a difference in MFR among practitioners, and that if one doesn't experience success with one practitioner, to not be afraid to seek out someone else. Same with cupping and acupuncture. All of these techniques are really art forms.
One MFR technique that I like that seems to practitioner dependent is therapeutic endermologie. It was originally developed to help burn patients with scar tissue, but is now primarily used for cosmetic cellulite treatment. But I was able to find a chiropractor who did it as a therapeutic MRF technique, and it helped me after LD flap reconstruction on my back. I still have a lot of discomfort issue almost three years out, but the endermologie gave me my torso twisting ROM back. It's basically like a hand-held vacuum that sucks up one's fascia. It's also good for lymphatic drainage.
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wow.I am so glad to find this information. My ribs feel like they are on fire and bruised had to breathe even. Last surgery was march 2017. I hope I can find someone to do those procedures. Im desperate to get rid of this constant pain! Honestly if I had known how debilitating it was I would have just had mastectomy with no reconstruction. Had four bad infections had to have four extra surgeries the last infection neerly killed me. Systemic. So now to have this pain. I no longer have an implant on the right but still have pain. So its not just the implant.
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Doodles, I haven't had reconstruction but I certainly had all the post-op pain. It was awful. Not the mastectomy itself--that was a piece of cake. No, it was that searing, burning pain in the ribcage and running down my arm all day, all night. Myocardial release was the only thing that worked.
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Nash~Unhappy to hear that you have discomfort from LD flap reconstruction three years later, although it is of some comfort to know I am not alone...and you aren't either. I have an acupuncture session scheduled this week which may help. My ROM has always been good through my PT, but discomfort has not been helped much by massage or PT. MFR sounds intriguing. First, I have heard of it! Keep me in the loop if you find some relief.

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Hi, feliciascintillation--yeah, this LD flap stuff is pretty miserable. I've tried acupunture, cupping, all sort of massage, graston, everything under the sun, and all it does is either make things worse or just take the edge off for a few hours. At least the MFR helped me with movement issues I was having. I'm a competitive adult figure skater, and I use my lat for a lot of what I do on the ice, plus my fascia got all screwed up from the surgery and was basically plastered down so I couldn't move my torso. Totally the wrong surgery for me, but it's too late now.
I unfortunately have developed a new primary on the "good" side, so am in the throws of dealing with that now.
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Doodle I don't want to freak you out, but I had the same rib pain symptoms and found out I had rib fractures.. I don't remember doing anything that could have broken them either. I also found out I had severe osteopenia and started Prolia. It might be worth looking into because fractures seem to be a common occurrence for survivors. The fractures I had didn't show on xrays, but they showed on CT's and bone scans. They weren't particularly dangerous, such as puncturing a lung, so please don't be scared! I just want to tell you my experience. I'm also not a medical professional, but you could talk to your doc about it.
Also, my PT used ASTYM to break up my scar tissue for a frozen shoulder.
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Also, my PT used ASTYM to break up the scar tissue for a frozen shoulder. It's painless and they have a lot of success with it. It really improved my range of motion.
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After my double mastectomy (no reconstruction) I awoke to necrosis all across my chest. After releasing me from the hospital the next day with a prescription for nitroglycerin creme, I then had to undergo surgery for them to do debridement of the remaining dead skin. That left open wounds across my chest, which required the application of wet bandages, covered by dry bandages and Ace bandages around all that to hold them in place. Needless to say, in spite of healing beyond my dr saying I would need skin grafts, I have had a lot of pain. Not just from the nerve damage, but also from the scars. I have had several sessions with a myofacial release therapist, who was very good, but it didn't do a whole lot for me. This is not to say that it may work for many. My brother has been a physical therapist for over 40 years and he has told me that this type of therapy is wonderful for many of his patients and many of them actually experience emotional release as well as physical relief.
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Lilypond, that sounds like a nighmare! As if cancer isn't bad enough by itself.
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Lily, not to bring up old PAINFUL memories, but why did they explain that you had such necrosis?
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