Anyone diagnosed with Bilateral IDC?

Hi Paisley, I did not have bilateral BC, but I did a search and there is a thread called Bilateral breast cancer. It is slow during the holidays so you might want to go to that thread and read about others with your diagnosis until someone responds on this one. Best wishes in your treatment and recovery!

Hi Paisley so sad you must join our little club...but yes I was diagnosed with synchronous bilateral bc at the age of 45....they say it is rare like 2 or 3 % at diagnosis I, like you have no family history or any of the other factors linked to a higher chance of incidence. I had genetic testing done that screened for about 42 different genes that were all negative. Reason for two cancers at once? Rotten luck! But that being said I would much rather deal with both at the same time rather than one now and one in two or three years. As you can see by my stats I will be five years out from diagnosis in a couple of weeks and doing well. You are in the scariest part of this whole ride...know that you are not alone and that you too will come through treatment. My treatment plan was based on the "worst" side. I did BMX, and chemo but no rads.... I will however be on hormone therapy for 10 years. I remember when I was dx that I kept focusing on what I did to cause my body to turn on me like that...I wanted a reason so I could fix it....I was just so mad!!! I stayed mad... probably for a year......I found it easier just to get through one day at a time at first and try not to worry about next week or next month. Once you get through all of the testing and start with your treatment plan you will have less anxiety and then will change over to fight mode. Hang in there! Please keep in touch and Please accept these (((HUGS))) You can do this!

Gully

Paisley, I'm a puker! I was terrified that chemo was going to kill me because I would puke to death, or from not eating for 6 months. Neither of those happened! I went in expecting the worst, and I did not get sick once. I was never even nauseous. They have so many meds that help that you will get through it and this board is full of tricks to help with side effects too. It is not fun by any means but it is doable. Once you have a plan in place you will feel a bit more in control. I too felt fine (physically) before starting chemo. Its hard to deliberately make life miserable. There is so much support in this community, you never need to feel alone. Hopefully, you will get your results and your team will determine the path forward soon.

I had a similar experience, but luckily had grade 1, low Oncotype tumors on both sides so escaped chemo. I didn't know anyone who had breast cancer, either, and I was very healthy.