Very very scared

Miranda, if by “Type 1” they meant Grade 1,that would be very good news, slow growing and well-differentiated with good prognosis,though need to wait for full surgical path to know for sure.

I stongly suggest you call your primary care doc ASAP today to get some anxiety meds to pick up, as this anxiety will likely go on for a while.

Miranda:

So sorry that you've found yourself here. But know that this part of your journey is the hardest -- and I promise as a relative newbie myself -- that it DOES get easier as you develop a treatment plan and gain knowledge and information. You may already know that from your families' fight with this disease.

Please ask any and all questions and someone will try to answer or guide you. You're not alone -- we get it.

{hugs}

Thank you so much. Had an MRI today and have to have another ultrasound tomorrow before the surgeon appointment. This is a good place of support.

Thank you everyone. Today I had to have another ultrasound, there is another suspicious spot in the same (right) breast, will need another biopsy. I then met with the surgeon, and I am less terrified than I was as a result. I have a copy of my report, but am still processing the information. The cancer type is lobular. Bottom line is that because the tumor is going into the muscle, they will have to remove some pectoral muscle as well, which she said will be painful (recovering from). It looks like it will be a mastectomy, then chemo and radiation, though that may change after consult with the oncologist (could be chemo, then surgery). There was positive news relating to my "biology," hormonal markers.

Because there is so much breast cancer in my immediate family (three out of three girls!), it was recommended to get the BRCA test. I didn't think of it before, the ramifications for cancer in the other breast and ovaries.

This is a lot to take in, but my initial response was elation. That is because I was convinced that I was going to die soon. All I wanted was to know that there is hope I can keep living. I also have a lot of confidence in the hospital where I am being treated.

Pamela (real name)

Oh I'm so glad that you feel better. Having a doctor and hospital you can communicate with and trust is a huge first step. I have ILC as well so do keep in touch with us. All best wishes to you.

Thank you all. Having a community is so important to me. After my initial relief that it wasn't the worst news, I was sleepless most of last night with all kinds of dread and fear. I will visit the ILC boards.

My sister has lobular BC too. Her oncologist told her since it tends to travel she might want to consider a double MX. She said no. She had a single MX and is taking Arimidex. No chemo or radiation.

I agree Type 1 means Grade 1. I had IDC Stage 1a, Grade 1. Lumpectomy and 33 radiation treatments. Low Oncotype score. 5 years of Tamoxifen. 6 years out last August.

You can do this. We are testaments to that.

Diane

Miranda2060,

My initial lump was invasive ductal; follow up testing found invasive lobular. After tests on the cancer, lots of reading, talking and thinking, I decided single mastectomy. I knew it was the right decision for me as I felt relief once I made it. 18 months later (and 4 weeks post DIEP flap reconstruction), I have no second thoughts.

Continue to ask questions, talk to your oncologist and plastic surgeon (more than one if necessary) until you are comfortable making a decision.

Good luck

How would I find my Oncotype score? What does it mean? There is so much to learn.

I am just starting my journey and wanted to let you know I am here also in Support for you and I am going through the anxiety and trying to work full time and being a single parent it’s a very scary thing. There is a lot of great info here which does help with some of the anxiety. I have only had one surgery before and that was an emergency

Jt3-Everything is scary but these ladies are so wonderful with sharing their experiences. It's been a month since I've been diagnosed and I still have some anxiety attacks. Fortunately they don't last more than a few minutes now. It's scary but the support out there is such a tremendous help in dealing wuth anxiety. The waiting is so frustrating and anxiety provoking. Power walking and walking my dogs has helped my mind focus on fun things. One of the ladies suggested I binge watch television. LOL I rarely ever watch TV. But I'm trying to follow my old routine as much as possible. Which means working playing with the dogs cleaning and most of all utilizing my network of friends for support. With you Being a single mom with two small children is difficult enough without this BC diagnosis. But based on the information you provided it appears that cancer is in the early stage and small. Hang in there.