Just got my biopsy results. So mad at VA doctor right now!
i had my biopsy done yesterday and got result today. Good they were fast but bad that the dr who called me at 5:30 pm couldn’t or wouldn’t tell me anything other than i have Ductal cancer. I ask her for more info and she said she wasn’t a cancer specialist. She can’t read a path report? I’d like to know if it’s invasive or not ect. Now i have to wait till Tuesday to go pick up report and find out myself. She said she was referring me to oncologist and surgeon but she didn’t know when I would get in. This is dealing with the Veterans Hospital. I’m so unsure abt going there or MDA. I’m still in shock and scared to death. Whatare my first steps to think about?
Comments
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That's almost worse than not knowing. I think the waiting for diagnosis and then for treatment plan was the hardest for me. Having a plan helps me to focus on what's next rather than worst-case scenarios. I'm lucky to have a great team of specialists who all talk to each other (and an online system where I can view my pathology and other results). Try not to expect the worst, though I'm sure it's difficult. First step for me would be to get that pathology report so you know what you're dealing with. And try not to worry, if you can.
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Ductal cancer, is probably malignant ductal carcinoma infiltrating, otherwise it would be called insitu. How long have you gone in between mammograms? Yearly, 6months at a time? If you go yearly, and have a non aggressive type of cancer, you are probably stage 1 or 2 (early detection.) Most cancers found on a screen detected basis are lower grade and lower stage. Hopefully, you have been doing regular mammograms and this is early. I would set your sights on early stage, low grade, hopefully easier surgery and recovery.
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Quiltingnut,
What a horrible way to handle your biopsy result. I would definitely use MDA as a second opinion. I wish you much success in treating your cancer. And I hope you find the Dr's that are treating you well.
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It's a VA hospital.....HOPE, you can go to another place...Liz
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It may well be that additional info such as the ER/PR/HER2 results weren't reported on the pathology report. I know that I did not receive my ER/PR/HER2 results for several additional days after the biopsy results. However, I'd bet that it at least indicated whether it was IDC or DCIS (probably the former, is my guess) and of course that would have been valuable information to have, especially heading into a holiday weekend.
My PCP pulled a similar stunt (also on a Friday afternoon). I finally drove to her office and insisted on a complete copy of the report. That was the last time I ever set foot in that provider's office. I simply don't understand how MDs can treat patients that way. I'm sorry you have to wait yet again. I will that that waiting and wondering is the name of the game early in the diagnosis/staging process. And yes, it is hell. (hugs)
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Quiltingnut~~ First let me say that I am sorry you were given this result in this way. My first step would be to get a copy of the path report on Tuesday. That will at least give you a bit more info. Plus I think it is important to have copies of all of my records. It does take the VA a few days for referrals to go through. I would follow up with calls to the VA to find out the status of these referrals.
Do you have to pay for your VA health care? My husband does not pay a dime due to his rating. This makes a difference in choosing where to go at this point. If the VA can get you follow up or plan of care in a timely manner, then I would at least let them give you their opinion. If you don't like their care you can always go somewhere else based on your insurance and financial situation.
I will add that my husband has been given excellent care by the Atlanta VA system, especially for a heart condition that sprung up this year. I am a retired cardiac nurse and he could not have been given better care. They did not skimp on anything. If you do go with the VA, I would love to hear your experience, so please keep us updated with your progress.
I hope your path report is the best that it can be
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Thank you for your suggestions. At the Va i don’t have to pay anything. I do have champva insurance that I could use somewhere else. I am going to see the VA doctors first and get their opinion if i can get in to see them in a timely manner. My husband goes there also and seems to get good care. This is just so scary and stressful. I want answers now. Lol.
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Do you know if the pathology report was done at the VA or elsewhere? I just found your other posts. For what it's worth, my tumor hurt as well. A lot! And it was on board for nearly 3 years before diagnosis. When it was removed a few weeks ago, the relief was immediate. Bottom line is that some cancer hurts. Does not mean, however, that it is a catastrophe. My tumor is a grade one with a good prognosis. Don't get too worried until you have a good reason to... Cancer is a bit of a marathon and you need to pace yourself. Here's hoping for excellent follow up care and treatment.
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And you can always get a second opinion and see how they compare
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Quiltingnut, a basic primary care doctor will typically not understand the full meaning of all the jargon on the path when it comes to BC management plans. Typically such a doc wants time to find out from oncologists what a report means prognostically and treatmentwise, so she can call the patient with results and be armed with some comments about realistic hope for good outcome. She called you within a very short time after the biopsy was done and before a weekend, which is excellent for VA and you are mad because you want to know more. If she had given you a complete report read without knowing what it means for your prognosis and treatment, e.g., if no oncologist was around to give a curbside phone consult to her to prepare, would you not still have been mad that you would have to wait to find out more meaningful info, as the doc did not know?
To timely facilitate future VA communication issues and information , see if they have My Healthevet for email and a variant of it called Blue Dot (available at some VAs) where you can from your home log on and see all final reports, progress notes, lab, appointments etc. about you just like a doc would see, often sooner than your primary may get to it.
Some VAs have great oncology care for BC , others contract out the management to a place near them that treats more women. Also note If your care is free there under ChampVA, as a career military lady you would be ok to get care at 63 and beyond, but if you are only the wife of a career vet and not a vet yourself, at 65 you will no longer be eligible for VA (they send you to private sector forMedicare) so interruption of care potential would be another consideration.
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Agreed, Chronicpain. My lumpectomy surgeon was the one to share the initial path with me. He said, quote, "your cancer is rare" (not: it's ILC, the second most common subtype) and followed that with "it's agressive" (not: it was a high grade one when I learned about nottingham scale and added up the #s). So he terrified me unnecessarily. However, he was NOT an oncological surgeon, either--just a general one. He referred me to a good oncologist, and she shared the complete pathology with me, and even said "here's some good news: it's ER+/PR+ and HER2-neg", which really encouraged me. But I had to wait for a week or so to get those complete results.
He did tell me that I had 6+ nodes and the size the tumor was. But I immediately reframed that news: began to believe he got it all with that surgery, and that there was nothing left; I just had to do chemo for a clean up. I was relieved when my PET scan was clear.
Claire in AZ
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Jumping in to say my husband's grandfather had top of the line care at the Boston VA. He was a WWII vet with many health issues related to the war but lived well into his 90s. Doctors and nurses at VA were always on top of things. I like the idea of second opinions if you are unsure. It really made me feel better even though they did not agree on my treatment plan. The cancer research hospital and tumor board was the one I followed since this is their specialty and my case was a bit more complicated. Yes, cancer is a craps shoot.
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