INSOMNIACS place to talk in the wee hours
Comments
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I love that all of you got to meet up. Wishing you all a very Happy New Year.
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Enjoying my morning coffee while watching the morning news. Got a bit of snow heading my way today
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Hey there - I lost a short post to this thread yesterday. Will try to remember all of it.
Sas - that is so cool you got to get together, the memories you must have to carry forward in life!
Have found a new oncologist and I am very content and getting stronger. Aromasin only for time being.
Sleeping better and getting to bed around 11 or midnight and up around 9 or 10. Basically 10 hrs average.
Sas - the cough and copious phlegm stopped once I got off Xeloda. saying .... 80% better from cough. Though it had been there before due to lymph nodes all along bronchial tubes, I wonder if the clearing of those cancer masses would have made cough stop by but the Xeloda caused a different type of cough. Plus there was the pneumonitis from radiation SEs and that has cleared. Anyway, I am so much better. Though I have been told and that is by 2 MOs that I can explore hospice now. So I am while well enough, but am working to be stronger and keep on trying to get cancer back in a cage.
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Bluebird, Happy your cough has improved. Coughing is so tiring. I was up last night every hour coughing and emptying my bladder so coughing didn't cause a bigger problem. Don't know if it's a cold or flu, but I'm hoping for cold.
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Sensi so happy to see you here, Hope Chance is good. Loverly & Junie got to see Shatzi & Dini. That was important to me. Oh yeah, they got to meet Donnie too hahaha Happy New Year and the best one yet
Mommy you are such a calming influence. Coffee, ckecking the news, and a bit of the weather report
Happy New Year and all the best
Blue why are they suggestion Hospice. Isn't there something else. Sending PM. Happy New YEAR, may everything get better
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Sas - Yes, I got home. Flight was full, but we got home safe. I walked into my front door at 6:00 p.m., texted Loverly at 6:09 and was asleep by 6:15 p.m. I slept until 10:30 a.m. this morning, only getting up to potty and take pain meds. I loved meeting Dini & Schatzi. I'll call soon.
Happy New Year to Everyone!
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Whooohoo Junie, sleep of long hours. I have done that too!.
I couldn't call anyone b/c I took my ring binder in the car. It's been off at work with Donnie.I just talked with Shep. One of the fun things about a trip is to relive each moment by talking about it. We have done that for a time.
I used to ask Stephen "What was the best and what was the worst?". I was always amazed at the answers. I did learn to ask what the worst was first, and end with the best i.e end on a high note.
With this trip, my worst was the "idiot" Gps. But I now understand the idiot. No matter what, it was going to get us back to I95, by whatever route, Without any consideration of direction. Had we allowed it to control us more than it did, it would have been hours more in traveling. In reality, it performed it's programming. As an artificial intelligence, It showed it's flaws. That's a positive when recognized. Machines are fallible. Only as good as the internal programming. Makes me into a believer of paper maps. Reason? When electronics fail, and you have no clue in the hinterland, and reception is bad, the paper map is a treasure.
But this is from a woman that believes in and developed disaster plans..............I have a different view. To be relevant I should learn the cell phone. I admit, this last few days, I saw and experienced many reasons it has relevance. I will dwell on that.
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Beatmom where are you, you should be here...............I know things have changed for you, but being here was once good
PDGragham is a friend here, hasn't posted forever , but she is very valued here. Wish sh would reconnect. But whatever her choice.
Wenchie is another one that I wished would reconnect. I sent her aphone message no response.
Susan3---------------tooooooooo. My fault she disconnected
Marlanab, disconnected, we have no clue why
Eeeyore pops in when she see's she is needed, but you're presence would be appreciated much more.
PattyPeppermint..............baby you are loved, follow whatever road.
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Sassy, you are right, I will pop my head in when I am called. Still work full time because my business partners will not let me retire yet. One of them gave me a bear hug last Friday and told me glad you are staying. I guess I am glad too. Before the cancer hit me, I used to plan to work until 75. For more than 7 years, I still am not prepared for retirement. I am lucky not to have pains.
Loverly, Junie & ShepK, share some of your get together time with us.
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"We can make our plans, but the LORD directs our steps.
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Our cruise ship. Capacity: 5000+ passengers.
Norwegian Escape
Hallway to our room. Notice how all the fish are swimming one way towards the front of the ship. I thought it was a pretty cool way to help direct you to the front or back of ship.
Map of ship.
Obstacle course for the kids (and adults😃)
Faced my fear and went on this rope course 17 decks above sea.
Here is DD1 on the zip line from the rope course. She looks so calm. You wouldn't want to see my face. Ha!
Food was good, surprisingly. Entertaining was great also.
My favorite hiding spot to read.
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One of my favorite islands in the Caribbean is Cayman Island. The water is so clear.
Was disappointed we couldn't stop at St. Thomas because parts of the island was destroyed by the hurricane. Oops got to go. Plane is taking off soon. Hopefully, BBL.
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The Great Stirup Cay...private island owned by Norwegian Cruise Line.
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Lover - I liked that reading spot on the ship. It looks like a huge floating honeycomb then you get inside and it is like a 5* hotel. Considering a cruise ship or regular ship to go from west coast around WA up to Alaska instead of driving.
Sas - hospice was out of left field for me. But I was very sick for a long time and quite weak. Am getting stronger by not being on Xeloda. I think the liver lesions is mostly why they said hospice. Then the pain hit 9 days ago and I took it seriously. But better now.
Lovely snow here. Danny Boy goes out and POUNCES in it, he loves snow so much.
Hubby got a new charger cord for my ipad, mint green, ick. But it works.
This week a cookie swallow test, a scope to record visually and sound wise the vocal chords and maybe they can see thyroid w it, I don't know. And a CT w contrast of throat, chest, abdomen and pelvis. No doctors this week, just prep tests for next appts. This means 3 trips to Goshen. Thyroid specialist is there. New onc is the other direction.
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Lover, my SIL had gotten sent down to St. Thomas after Hurricane Maria went through.
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I need to get out of bed first. If only everyday is vacation day.... Why did Adam and Eve disobey?
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Loverly - Beautiful pics of your trip and the cruise ship. Thanks for sharing. I hope you were able to rest up a bit to get ready for work on Tuesday.
Bluebird - How many miles is Goshen from your home? Three times in one week can be quite taxing on you. Glad to hear you are feeling stronger now though.
M0mmy - Hope your cold is better.
I am still trying to recoup from the trip back east. I've been anchoring my recliner down for the last three days. Tomorrow I go for bloodwork at MO's, then I hope to be able to get an appt. with chiropractor. I sure miss my Kirby. He is still at the trainer's and she says he's learning a lot. Now she just has to give me my refresher course so I can keep him headed in the right direction. I hope I can take him for his "canine good citizen" certification in the next few months.
Kathindc - I hope your pies and cakes came out like you wanted and everyone enjoyed them greatly.
The "Super Moon" is out tonight and I hope you all get a great view of it.
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Junie, desserts came out 👍 Took my basic cheesecake recipe used lemon extract instead of vanilla, left out the milk, and added limoncello and a tad more cream cheese. Used vanilla wafers instead of graham crackers for the crust. Topped it with a thin coating of lemon curd. Would love to see a picture of Kirby when he gets home.
Shep, Sas, Junie, and Liver sounds like you had a great time together. Nothing like bad directions for a bonding experience. They do have you take a round robin route
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Dear Sas and all! I’m still here reading everyother day or so. Just not much new going on. I did interesting enough have a Herceptin reaction after more than 50 doses! We know it can happen at any time, but it took me a few minutes to realize what was going on and call for my Nurse. I was very involved in a movie and at first thought I was having a touch of asthma! Pretty dense for a retired RN! Lol...duh unfortunately now back on IV Benadryl and steroids for the Herceptin and Perjeta. He hasn’t made me restart the oral steroids Thank God for that.
It has really helped the incessant itching...to pre treat.
I stay in touch with our Phyllis by PM. She is on caring bridge also. Somehow she keeps her wonderful self if humor.
Thanks for checking up on me....I’m her
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Blue, which state are you in? We did the cruise to Alaska many years ago. I was amazed how blue the glaciers were. I still remember the only sound I could hear was of the soft engine of the ship while we were cruising on the fjords. Everyone was quiet as each was inhaling in the pure air and in awe of the majestic beauty of the wonderland. Hope you get to see it. Yeah, work to keep the beast in the cage. May you be granted strength to fight.
Mommy, is your SIL with FEMA? Bless her heart.
Junieb, beautiful picture of the wolf moon. Hope your stomach cooperates soon. Still on jello and broth? I don't need to report to work until Thursday, but have plenty to do at home. Need to declutter
Kath, your cheesecake sounds yummy. Love cheesecake, but it doesn't love me.
Queenie, how do you like your new laptop. Which one did you get?
Hi Eeyore and Beatmon!
About our trip to South Carolina, it was eventful at the beginning, middle, and end. Ha! Like I said, we can plan, but He directs. Wish we had more time with our Dear Shep. My other regrets was I didn't get a chance to drive to west Florida to visit Ms. Spookiesmom.
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WHOA NELLY, Haven't been this cold since ought '92. Three layers of clothes. 56 degrees, going into the 30's We may even have snow. So, sorry to all you folks that have this worse than us.
Loverly, those ships are mammoth. Also, beautiful. The ships that sail out of Cape Canaveral aren't as big. Your state room was beautiful. The food looked good too! The play things are better than CC ships too.
I have dwelled on the cell phones. I think I will get one. I'll start saving. When I have the money saved, I'll ask ya' all what's best.
Do you have that selfie in the hotel room?
Was Mitsy happy to see you? I was very happy that you and Junie got to meet Shatzi & Dini.
Blue, Happy dance that your cough is improved. I was on Lisinopril ace inhibitor for about two weeks. It's known for it's cough. My cough with it, was lean over the sink coughing so hard that I's puke. But it was gone real quick when I got off the drug. Everyone here is not in early treatment, so, I can give my opinion on radiation. It sucks, for all the complications it causes. It's a travesty.
Junie, hope the sickies go away soon. Thanks for the pic of the Wolf moon. We have been overcast, so we couldn't see it.
Kathy, I love how you cook. The dessert sounds scrumptious.
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Beatmom, I kinda thought you were still reading. Glad to see you. Great that you don't have to give up the Herceptin. Phylis went into another trial, but you likely know that. She's looking forward to her trip in April. As many times as we have talked about it, I can't think where she's going. She is funny funny funny.
EEyore, Blessings about continuing to work. Hope your drugs don't lay you low. I let my nursing license lapse in 2012 with the braintumor & crani thingy. The hoops to jump through wouldn't have been worth it. But I do miss it. Sounds like you have nice partners. Without specifying, what field of work?
Queenie, what Lap top did you get? I'm going to work on getting a cell phone. I'll save for it first, then I will ask for your help
Sensi, thanks, it was truly memorable. How's Chance?
I think I will put a 4th layer of clothes
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I'm back at working on the CO2 laser thingy. Hours of work, all dead ends.
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Got word from Dr. Retsky, the grant didn't fly. I told him I was very sorry about that, but I will never forget that he asked me to be involved. That it was "way cool i.e. 60's cool" I know I'm weird
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There is a thread for those who wish to post prayers and loving thoughts for MammaRay who is now no longer posting., Her DH has posted for her
It can be found here
https://community.breastcancer.org/forum/38/topics...
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Junie - lovely supermoon photo. I missed it, was so frigid we had drapes closed, darn. Thanks for the photo.
Goshen is 1 1/2 hrs one way. They have offered us a house that is for guests who travel somewhat to a lot far, but we have Danny Boy and have to go home for him. Though my sister and I have discussed us staying there if the need arises and Hubby stays home with the dog.
Lover - I am in NW Indiana near Lake Michigan. But way in country and no cities near us at all. To get to the cruise ship will be a trek across 2/3 of this country. That would be enough driving. And we would have Danny Boy, so driving is a must. I think some ships have kennels and some 'barges' are an option. If I go it will be to be treated by my primary oncologist who moved there end of May 2017. But my sister and daughter are like, ummm no, please don't. because they blame him for this getting so bad. I don't, I have my own blame in this if there is any blame at all. I own it so that makes it easy to forgive him for mistakes too.
Thank you for think link to MamaRay's thread, FeelingFeline.
Sas - cough still improving, I can go to bed and maybe cough once, used to be endless. Today had a scope of vocal chords. Ah yes, the dreaded scope. They sprayed my throat and I freaked! had that blast of chemicals that take my head off then I could not swallow, but I could breathe so I calmed down. Turned out the spray did no good for me, my GAG REFLEX is absolutely set on no one shoving anything in my mouth. So finally after multiple very loud and gaggy attempts that had both techs and Hubby giggling.... sigh..... I whispered, maybe if I hold the wand. It only had to go to the back of my tongue. And when I did that I was fine. Good pictures and sound recorded. She said she can tell from the way my left vocal chord remains a bit loose that there is probably some nerve damage, the coming CT w contrast will show where it is coming from. Answer is to get rid of cause. Then a botox injection which lasts 3 to 6 mo and repeat. Or an implant. Then it will close properly. Right now air is also escaping so that makes it hard to talk too. And turn head to left when I eat and keep chin down so as not to aggravate and cause cough. But of course, cancer first.
Today I pushed my own wheelchair for awhile.
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