December 2017 Surgery Group

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  • ps0705
    ps0705 Member Posts: 122
    edited December 2017

    MNR - Glad things are going good! To clarify....you accidentally pull off the bandage not the nipple reconstruction?

    Who did your nipple reconstruction? Plastic surgeon?

    I just had my bilateral mastectomy 8 days ago but plan on having nipple reconstruction down the line and/or tattoo.

    Ghionik - My surgeon called at 7:00 tonight. My pathology report was clean, No invasive cancer. I was so nervous with it being grade 3, cribiform with necrosis, and 1/4 cm, ER-/PR-. Still so glad I did the BMX as I would always worry that something could have been missed. Thank you for being so supportive. The wait was so difficult.

  • Ghionik
    Ghionik Member Posts: 101
    edited December 2017

    Congratulations ps0705! Yes, being on the other side of surgery has been so much better than the other side. Happy New Year! X

  • Mnr
    Mnr Member Posts: 9
    edited December 2017

    yes PS I meant I pull off the bandage. Sorry for the typo... Yes I had a PS do the reconstruction.. congrats on getting threw the mastectomy... For me that was tough... I see the Tattoo artist on January 3rd. to have my consolation .... Still have my follow ups...

  • ps0705
    ps0705 Member Posts: 122
    edited December 2017

    Lexica - did they end up taking a node? How are you feeling? You are 2 days ahead of my on healing. I had a burst of energy today and actually did my hair then ended up taking a 3 hour power nap...so much for my fancy hair!

    Happy New Year Everyone!

  • Sopho
    Sopho Member Posts: 41
    edited December 2017

    Ugh. Wound dehiscence, popped stiches, and a tiny amount of necrosis. I see my surgeon on Tues and they said it will just be a minor, in office procedure to fix but still...

  • Ghionik
    Ghionik Member Posts: 101
    edited December 2017

    Sopho, I’m surprised they are making you wait until Tuesday! My PS has an on call doctor 24/7 for emergency issues. I hope you’re not in pain.

  • ps0705
    ps0705 Member Posts: 122
    edited December 2017

    Sopho - Call them back and tell them that is unacceptable. They need to call whoever is on call and get you in to get you cleaned out and stitched back up, not to mention more or stronger antibiotics. Tell them you are not waiting 3 days in pain for the infection to spread and possibly turn into sepsis.

    Good luck and be strong.

  • Sopho
    Sopho Member Posts: 41
    edited December 2017

    Thanks, everyone, for your concern. I already made a trip to the local ER at the request of the on call surgeon and they said it looked okay, the cultures for infection came back negative, so they said it would be ok to wait. They put me back on a round of antibiotics just in case. My surgeon offered to get me in earlier, but we asked to wait until the Tuesday appt because we would have had to leave right then and drive all night on already very little sleep (my medical team is 8.5 hrs away and I don't trust the Dr.s here). It freaks me out to have a hole in my chest, but every doctor who has seen it says that it is okay. Sorry to rile everyone up!

  • Mnr
    Mnr Member Posts: 9
    edited December 2017

    wow sopho glad it is not infected... Got my fingers and toes crossed for you.. sorry you have to wait till Tuesday... I can understand about only wanting to see your normal PS. The area I live in there is not many Dr.s I would want touching me... Keep your chin up and enjoy the New Year.. Tuesday is not too far away...

  • ps0705
    ps0705 Member Posts: 122
    edited January 2018

    Sopho- so glad you got it checked out. Now you have peace of mind about waiting. 8.5 hours is a loooooong drive. Now you can rest up. thanks for updating us. We're rooting for you!!

  • Lexica
    Lexica Member Posts: 259
    edited January 2018

    Sopho, so glad you are getting that worked out! Sounds not fun. Ps0705, I did get nodes out - 5/11 came back positive so off to rads I go! Recovery has been pretty easy for me, thankfully.

  • ps0705
    ps0705 Member Posts: 122
    edited January 2018

    Lexico - my MIL did rad tx with her lumpectomy and swore by tumeric. She read a lot of studies and it helped her continue working full time as an attorney. She is really a dynamo, so when she recommends something, I usually follow up. You may want to ask your dr about taking tumeric pills and see. She had no drop in energy and is 12 years post lumpectomy and rad and clear.

  • Lexica
    Lexica Member Posts: 259
    edited January 2018

    thanks for the tip - I'll check it out!

  • FaithWalker22
    FaithWalker22 Member Posts: 46
    edited January 2018

    Good morning and happy new year! I just wanted to check in and let you all know how I’m doing. I’m three weeks after DIEP surgery and recovery is still going amazingly well! I’m walking more, I started OT last week and I am excited about my future. I still can’t lay down all the way but that’s OK. I tell myself every day I’m getting stronger and stronger.

    Having said that, I still have every day concerns. The DIEP scars on the hip and boobs—My body has always held scars for a long time so I’m not sure if these will ever go away. My new boobs are smaller than my original ones and I miss my old girls. However I will not dwell on those things and let cancer take away my confidence and enthusiasm for a living life. If I do that, cancer wins.

    I’m hoping I will begin regular exercise in a couple of weeks but until then I will continue doing my stretches and take time to love my new body!

  • ps0705
    ps0705 Member Posts: 122
    edited January 2018

    Faithwalker - Happy New Year to you too! So glad to hear you are healing and looking forward to the new year and returning to exercising. I'm doing TE's and right now I'm actually enjoying the smaller size A girls. Not sure I want to return to a C. Of course if I try on a summer top with a V neck or scoop neck, I'm pretty sure I'd change my mind...maybe.

    Congratulations on making it through the initial tough part of healing after surgery.

  • houmom
    houmom Member Posts: 162
    edited January 2018

    Faithwalker your update posts are much appreciated. I'm also getting a considerable size reduction, from a DD to a B but I'm excited about it. I've hated having large boobs pretty much since they showed up! Of course I would have preferred to have no need to lose them in the first place but that's not happening.

  • 45andafighter
    45andafighter Member Posts: 3
    edited January 2018

    I know exactly what you mean. Had my L nipple sparring Mastectomy on 12/4, R lumpectomy and sentinel node extraction. Very sore after 23hr hospital stay, took 11 days off work now back to the grind. Had 2 expansion visits w/ plastic surgeon, radiation oncologist appt., none recommended Med onco apt 1/12, one Dr says chemo one says maybe and according to everything I have found so far its all a mixed bag weather to chemo or not. 

  • Ghionik
    Ghionik Member Posts: 101
    edited January 2018

    45andafight, did you get an oncotype test score? I see my medical oncologist on Wednesday. I’m told (per general surgeon) I’m only having to get medication to take. Not looking forward to this appointment. Looks like we had surgery on same 12/4 date. Can’t believe it’s been 4 weeks ago!

  • PrincessButtercup
    PrincessButtercup Member Posts: 200
    edited January 2018

    I met with my oncologist today to review my oncotype score. It came in at 26, and my PR+ was changed to PR- (we knew already that it was on the border). So it's IA, grade 3, ER+, PR-, HER2- and will have chemo. Still processing this.

  • moth
    moth Member Posts: 4,800
    edited January 2018

    Hi PrincessButtercup - that sucks that you'll have to have chemo.

  • Hope2018
    Hope2018 Member Posts: 45
    edited January 2018

    Hi Faithwalker,

    I read your story and it sounds like you were very well taken care of at the Pennsylvania Hospital.  Who were your surgeons at what hospital? 

  • PrincessButtercup
    PrincessButtercup Member Posts: 200
    edited January 2018

    Thanks, Moth. I had not prepared myself for the possibility of chemo, because everything else was so positive. But 17% chance of the disease returning in 10 years is enough to convince me that this is a good idea.

  • moth
    moth Member Posts: 4,800
    edited January 2018

    PrincessButtercup, totally agree about the 17%! Salt the fields, stomp on any stragglers and then burn that sucker. I hope chemo goes well for you. Do you know yet when you're starting & how long your protocol will be? I was reading just recently on another thread about some people who kept exercising through chemo; some had enough energy to run etc through it. I hope you sail through easily!

    I'm still waiting to hear what's next for me. Ugh. I hate the waiting..... I just wanna know now!

  • PrincessButtercup
    PrincessButtercup Member Posts: 200
    edited January 2018

    Moth, Thank you for your kind thoughts and I hope you hear good news soon!

    I'm waiting right now for appointments to be set up for a session with a nurse practitioner prior to starting chemo, and then hopefully starting by the week of 1/22. Going to get Taxotere/Cytoxan, and Neulasta to go with.

  • Sopho
    Sopho Member Posts: 41
    edited January 2018

    Hi all. Anyone else feel tired of playing good news/bad news? I guess I am just glad it is not bad news/bad news.

    Good news first. Once I am all healed up I am done. With my mastectomy, good margins, early stage, and clear lymph nodes the likelihood of recurrance is lower than the risks of further treatment. I will just be having frequent screenings (with extra testing, since the cancer only showed up on an MBI and catching the cancer was a fluke). Since I am 37 I am thankful to not have to do the hormonal therapy that my original team insisted was nessesary with my 90% ER+ PR+ tumor.

    Bad news (skip to the next paragraph if you are squeamish) So, there is now a quarter sized hole at the front of my surgery site which has about a two inch canal traveling from the opening, along the incision site, towards my armpit. Twice a day we have to pack it with saline soaked gauze. It is painful and freaks me out every time. Since I was a kid I have always been sqweged out by things with holes and a fear of things tunneling into my skin. I also absolutely hate the feeling of gauze when it dries and pulls off your skin. So this is a less than pleasant experience. It's also a lot more painful.

    On top of it I am going on my third round of antibiotics since my surgery and it is starting to wreak havock on my body. I am taking probiotics, but it is only doing so much. Worst of it is won't let me go back to my regular work until it heals because it is in a high risk environment. I am meeting with my work on Monday, but they said they don't think they have enough work to sustain me for a month until I am allowed to go back, which means even more time off without pay. Since I make a little less than 2/3rds of our income we are really struggling. We will make it through but I am so frustrated...we had planned to move and adopt our second kid this year. I am starting to worry that those will never come to be...

    Princessbuttercup: I hope that Chemo is as easy on you as it can be. That sucks...but at least you will know that it is being taken care of.


  • houmom
    houmom Member Posts: 162
    edited January 2018

    Sopho I'm sorry about your job. These are the times when I miss living in Europe.

  • DanceSmartly
    DanceSmartly Member Posts: 69
    edited January 2018

    Sopho, so sorry to hear about your healing and work complications. Hoping things look up for u from here on out!

    Dance

  • ps0705
    ps0705 Member Posts: 122
    edited January 2018

    Sopho - I'm so sorry that sounds miserable. I'm sure there was a good reason but WHY did they NOT close you up at surgery? Did they give you a time line for when they expect everything to heal?

    Glad you got good news too!

    Hugs!

  • Fembot
    Fembot Member Posts: 86
    edited January 2018

    MsP, about breasts hurting:

    I have DCIS in 1 breast but they both have been hurting and nipples too for several months. I haven't had surgery yet. My general surgeon says it may be because I'm pre-menopausal (age 47), and the breasts are undergoing changes. That makes sense because the timing of my period has changed

  • jjsmom1221
    jjsmom1221 Member Posts: 8
    edited January 2018

    Hi all ! I've been reading all your blogs for weeks and thought I'd finally jump in. Hoping that my experience may help someone with a really hard decision, I'll try to keep it as short as I can.

    Family background of all types of Cancers, mom with breast cancer, sister had renal cell carcinoma, fathers side of the family..1st cousin breast cancer, 2 uncles lung cancer. I hadbeen putting off having a mammogram way too long and decided it was finally time. Mammogram showed suspicious microcalcifications in the right breast, nothing in the left. Biopsy showed LCIS. My doctor felt a lumpectomy was warranted and ordered a MRI with contrast of both breasts just to be sure that nothing else was missed. MRI showed 3 masses in the left breast, biopsies were done and came back as negative but there was a papilloma under the nipple. I was ready to schedule surgery but found out that my doctor was leaving the practice and I would need to find a new surgeon. Found a new surgeon who recommended BRACA testing, which came back negative.

    I put a lot of thought into my surgery options and decided for bilateral mastectomy, I didn't want to stress about it for the rest of my life, didn't trust mammograms anymore and certainly didn't want to go through all of the testing again. My BS completely agreed and supported my decision. I had my surgery on 12/15/17 and opted for immediate reconstruction with tissue expanders. Got my pathology report back and here's the kicker, the right breast showed no LCIS ( maybe they got it all out with the biopsy?) and DCIS in the left breast ( all the biopsies on that side were negative). I'm slightly confused by this but so happy that I made the decision that I did.

    3 weeks post op, going this week for my 2nd fill up and starting back to work part time! Stay strong ladies we are so much stronger then any of us know

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