Yearly MRI for ADH????

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pattimay22
pattimay22 Member Posts: 14
edited December 2017 in High Risk for Breast Cancer

Back in 2009 I had surgical biopsy for focally severe atypical ductal hyperplasia . Also had atypical lobular hyperplasia in right breast. Six months later another excision surgery for another area of irregular heterogeneous clumped enchancement suspicious for carcinoma. Each time biopsy tissue was sent out for second opinion if it was DCIS. Report said the cytologic and architectural changes are not felt to be severe enough to warrant a definitive diagnosis of DCIS. So just focally SEVERE atypia. There are no "clean" margins for ADH so an area remained. Surgeon said I need yearly mammo and Mri. I have been doing now for eight years and I don't understand why still need an mri. My last two mir's have stated that "Segmental clumped non mass enhancement with type I kinetics upper outer quadrant left breast continues to decrease in conspicuity since prior studies." So WHY does my breast surgeon make me feel guilty when i ask if i can stop having these horrible mri's every year. I have no history of breast cancer in family. Does anyone else have yearly MRI's's with just a history of ADH?

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  • Georgia1
    Georgia1 Member Posts: 1,321
    edited December 2017

    Hi Patti. I was found to have ALH along with my ILC and IDC, but no mention of annual MRIs. Hope someone more knowledgeable comes along to help.

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  • SharonRose2017
    SharonRose2017 Member Posts: 40
    edited December 2017

    Hi Patti,

    I have ALH (atypical lobular hyperplasia). I will get 3D mammograms for the rest of my life I guess, along with frequent clinical examinations, but an MRI is out for me since I’m 65+. Nurse practitioner told me that the contrast medium used is very hard on the kidneys of older people. I am fine with the 3D mammograms though. Of course I don’t know how old you are, but that is my experience. Would you consider a second opinion on whether you need to continue the MRIs? I wish you the very best with your health and in 2018!

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  • wallycat
    wallycat Member Posts: 3,227
    edited December 2017

    I had ILC; my twin had a breast reduction and incidental finding of ALH. I told my onco about it and she highly suggested routine MRIs. Mammograms rarely pick up lobular cancer and MRIs seem to be the gold standard. My lobular cancer was missed by mammo and by Ultrasound. MRI was the only thing that picked it up.


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  • pattimay22
    pattimay22 Member Posts: 14
    edited December 2017

    Hi ladies..Thank you all for replying. My surgeon is respected and always greets me with a hug. He took a lot of time explaining all these terms I was so unfamiliar with back then. But when it comes to explaining why I still need the Mri, he gets insulted and his words always are he's trying to save my life and then I feel like a fool. Besides being always on the verge of a panic attack being in that mri face down for so long, I have also recently read that the dye agent stays in your brain etc even without kidney problems. So going on nine years now I'm very worried about if research shows down the road that this gadolinium contrast dye causes all kinds of health problems. Mammo picked up the calcifications which became very clumped to warrant the biopsies. I will go get my mamma and MRI next month and this time make sure I have him hear my fears and convinces me why i am such high risk warranting these Mris . Wishing you all a Happy , healthy New Year.

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  • Georgia1
    Georgia1 Member Posts: 1,321
    edited December 2017

    Sounds like a solid plan. All best wishes to you!

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