Any long time liver metsters?

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SandiBeach57
SandiBeach57 Member Posts: 1,617
edited January 2018 in Stage IV/Metastatic Breast Cancer ONLY

I just finished my 1st year anniversary with widespread mets to liver. Currently NEAD. Feeling hopeful

Any long time liver metsters still lurking on these boards? Just needing some support right now.

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  • Moderators
    Moderators Member Posts: 25,912
    edited December 2017

    Hi Sandi,

    You may want to check out the How are people with liver mets doing? thread to find some inspirational members managing long-term liver mets. Make sure to say hi and share your story!

    We hope this helps!

    --The Mods

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  • SandiBeach57
    SandiBeach57 Member Posts: 1,617
    edited December 2017

    Thanks!. I follow that thread. Was just hoping to get folks to respond who don't post there.

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  • Lauriesh
    Lauriesh Member Posts: 692
    edited December 2017

    I was diagnosed with liver mets 7/2010. I have been Ned since 2/11. I have been off all treatments for 3 years

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  • SandiBeach57
    SandiBeach57 Member Posts: 1,617
    edited December 2017

    Thank you Lauriesh.

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  • intothewoods
    intothewoods Member Posts: 449
    edited December 2017

    I've wondered the same thing. Thanks for the post, SandiBeach

    Lauriesh, your story is very encouraging. I hope you keep that going a long, long time!


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  • jeni1970
    jeni1970 Member Posts: 2
    edited January 2018

    Hi there. Disregard my medical history below, as I started entering it and the dropdowns wouldn't work for me. It shows I am stage 0 - I am actually stage IV with mets to bones and liver. There is so much information I need to enter and decided to just do it later. I too, just finished up a year with mets to liver and am on Xeloda. Have been doing super and just had appointment this past Friday and markers are a tad up. I am not sure what meds you are on right now, but Xeloda hasn't really given me any terrible side effects. My oncologist is looking at Aromasin/Afinator for next treatment if Xeloda decides to stop working. There is another one he mentioned called Doce.... something. That would require a port again and I am just not feeling that!! I told him he would have to talk me into intravenous meds, because I said never again. We'll see.

    A word of encouragement- we are all so different and people with mets to liver can do well and live well with faith and the rightmedication.

    Eight years and three dx and this is my first post. Happy New Year to you and yours!


    Jen

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  • SandiBeach57
    SandiBeach57 Member Posts: 1,617
    edited January 2018

    I love to hear these stories. With all the new treatnents, I am hoping that liver mets will lose that dreaded feeling.

    Thanks for posting. So looking forward to 2018. Afterall, we are still here and learning to live again!

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  • BabyRuth
    BabyRuth Member Posts: 264
    edited January 2018

    I was diagnosed with liver mets in June 2015. After chemo and the Y90 procedure I am currently NEAD. I hope to continue my good run for a long time!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2018

    I was diagnosed with liver mets in 10/12, and became NEAD in 4/13. I did get a recurrence last November (16) but it is in just a couple lymph nodes near the liver. Tried faslodex/ibrance for 10 months, but recently changed due to minor progression (1 more lymph node, but some lighting up in liver though it wasn't an organized tumor). At least according to tumor markers, the exemestane/everolimus (Aromasin/Afinitor) seems to be working. We'll do a scan in a few months.

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  • SandiBeach57
    SandiBeach57 Member Posts: 1,617
    edited January 2018

    Thanks everyone for posting. Hopefully these positive postings will help all of us who currently have or have NEAD liver mets.

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  • Kjones13
    Kjones13 Member Posts: 1,520
    edited January 2018

    hey! Just adding myself to the long time liver metsters! Dx 9/12 and have been Ned since finishing up taxol 2/13! Only had 3 tumors in liver and they actually continued to shrink to nothing after finishing taxol. Thank God for good meds and good luck! May it continue for us all!

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