Starting Taxotere

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  • Lynne
    Lynne Member Posts: 641
    edited October 2017

    Glad to hear that your side effects aren't too bad. I get the mouth sores too. I usually live on instant breakfast, bananas, yogurt, and ice cream for days. Usually, after a week, I start feeling better. I hope you had a great weekend, Wilma.

  • Groovywilma
    Groovywilma Member Posts: 450
    edited November 2017

    Hello! How are you treatments going, Lynne? I hope all is well. Tomorrow is my 3rd treatment. I just noticed some swelling in my ankles. It had not been that way before today, so I'll be reporting it to my doctor when I see him. I have noticed that I haven't been peeing as much and just thought I needed to drink more water. But then I weighed myself and I am 10lbs heavier than normal!!! So something is definitely going on. Glad it's the day before my treatment so I can talk to the doctor about it.

    My second treatment went OK overall. The side effects seemed a little less severe than the first one and my doctor prescribed the Magic Mouthwash for the mouth sores. Super fatigued and slept a lot. We will see how 3rd treatment goes.

    I hope all is well on your end! Let's hope these treatments work in our favor! Take it easy!

  • intothewoods
    intothewoods Member Posts: 449
    edited November 2017

    Hello ladies,

    I'm on Taxotere now too after Ibrance and Femara didn't work. A year ago I was also on Doxil which worked well for me. I had treatment #4 last Friday. Lost most of my hair. Grateful that I haven't developed neuropathy or swelling so far. I spent three nights in the hospital after my first treatment for neutropenic fever even though I give myself filgrastim shots starting the day after chemo (similar to Nuelasta) My dose was reduced and my tumor markers are better so hopefully is working well and I can stay on it. I take two doses of the steroid the day before, two the day of and on the day after. I have a scan tomorrow. Hopefully I can avoid neuropathy and stay on it- worst side effects for me is the weakness, dizziness, light-headedness and fatigue starting day 4, the changes in taste and acid reflux, which I also had with Doxil. The taste issue is frustrating and the only thing that is consistently good is ice cream, pudding, potato chips (full fat only) and gummies. And oatmeal. :-)

    Wishing all the best,

    Lisa

  • Lynne
    Lynne Member Posts: 641
    edited November 2017

    Wilma-my treatments are going well. Just had my every 3 month scans on Monday, and it has shrunk my liver lesions, the tumor in one lung disappeared, but there are new nodules in the other lung, and one lymph node enlarged. My oncologist decided after speaking with one of the radiologist, to continue with the Taxotere. I hardly have any peeling anymore, just around the edges of the bottom of my feet, and sometimes my finger tips. I'm still have dizziness, but have been trying to increase the water (they think it's from dehydration). I haven't fallen again, thank God! I'm sorry to hear about the swelling, I glad you are seeing the dr soon. I was supposed to have chemo on Tues, but after I complained I would not be able to eat Thanksgiving (due to the Thrush and mouth sores I always get), my oncologist got it changed to Friday. Yipee!

    Lisa-I too was on Ibrance and Femara (for 6 months), then Doxil (for 3 months) before starting Taxotere. They had to lower my dose too, after I had a bad reaction with the first one. My hands and feet swelled up and were almost purple. They peeled as well as my sides and my back. She never put me on Neulasta (I think she forgot), so I ended up in the hospital for 2 nights, a week after that first dose, due to being Neutropenic too. My hair is now just fuzz. I lost it 2 weeks after starting Taxotere in May. I have reflux too. I was put on Decadron (a steroid) 2 twice a day for 3 days before chemo and 3 days after (and they give me an iv steroid the day of chemo). The steroids though have given me Thrush and a yeast infection every time. Due to the thrush and mouth sores, I don't eat much the week following chemo. Yogurt, bananas, and ice cream (anything mushy and not acidic). I got the dizziness too, and fell 3 times 2 treatments ago, the last time I still got dizzy but not as much after they told me I was probably just getting dehydrated. I upped my water, I guess it helped.

    Good luck!

    Lynne

  • intothewoods
    intothewoods Member Posts: 449
    edited November 2017

    Lynne,

    Yes, hydration is so so important and helps with the fatigue too. I have found that drinking water that has been distilled and with electrolytes helps me drink enough because typically I am fine with tap water but tap doesn't taste good the week after chemo. I am curious now about steroid doses. I take Decadron too: two doses of 8 mg. the day before, two the day of and one dose the day after treatment. I wonder if you could take less.

  • Lynne
    Lynne Member Posts: 641
    edited November 2017

    Lisa, I took 2 Decadron for 3 days before when I was on Doxil, after having a bad reaction with my first dose (my throat started closing up,, headache, chest and back pain) 5 minutes after they started the iv. I didn't have to take any after. I think she had me take it after with the Taxotere because, the reaction started a few days after with it. She actually added on 2 extra days a couple of treatments ago. It did nothing for the side effects I was having (it just made me have 2 more nights of barely sleeping), so I went back down to 3 days. The last treatment I asked if I could take it less days, and she actually dropped to 2 days. I'll have to look for the distilled with electrolytes. Someone suggested Gatorade, because of the electrolytes. I'll have to get it soon. My treatment is this Friday, it was supposed to be tomorrow, but I asked if we could do it Fri instead, so I could eat at Thanksgiving. They got me in!

    Wilma, I forgot to tell you that I take 100 mg of vitamin B6 daily (I got the ok from my oncologist) for peeling. One of the women on these boards told me about it. It helps!

    Yesterday and today, it's very windy, but sunny! Maybe the leaves on my front oak tree will finally fall off. The trees are keeping their leaves longer this year. It will be a race to get them all raked up before it snows (although, we did already have a dusting a couple of weeks ago).

    Have a wonderful day!

    Lynne

  • Groovywilma
    Groovywilma Member Posts: 450
    edited November 2017

    Hey there! It will be an interesting challenge this week to see how well we will be able to enjoy our Thanksgiving meals with the taste buds issues. But either way, I am thankful for all that I have and people around me.

    My pre-meds of dexamethasone are 8 mg (pills) the day before chemo, plus 8 mg the day of chemo. At chemo they also give me 20 mg through the IV and then that's it. When I first started with Taxol my doc prescribed 12 mg instead of 8 mg, but lowered it because I was not having any other issues.

    Like you guys, I also was hospitalized due to neutropenia when I first started Taxol. Since then, I have been getting the Neulasta on-pro and that seems to keep my white blood cells in line.

    Lisa: How were your scan results?

    Lynne: Sounds like your results were mixed, but hopefully taxotere is doing it's job and wiping out more cancer than not! My doctor wants to do a new scan after my next cycle. That's great that your doctor changed your chemo day so you can enjoy Thanksgiving a little more! My doctor is also pretty open to altering the schedule if needed. It's hard with a lot of holiday activities going on (plus my birthday sneaks it's way right in the midst of it all!).

    I hope you all have some good energy this week and can enjoy the festivities you have planned!

  • intothewoods
    intothewoods Member Posts: 449
    edited November 2017

    Lynn: Yea for treatment after Thanksgiving! That is awesome. I found some inexpensive water with electrolytes at Ralphs. Some of the name brands are expensive. Now that I'm typing I realize I haven't had much water today! My dog jumps up with me and then I don't want to disturb his royal highness.

    Wilma: Thank you for inquiring about my scan. It's generally not to my MO for about 4 days which puts us at Thanksgiving. I'll be out of town as will Dr so I told him I was fine to wait until next week for results. I have a good feeling things are stable or improved. My TM are down for one and hey, this stuff is supposed to be good. Go figure why no scanxiety this time Hopefully it stays away.

    Here's to good scans for all, lots of gratitude and a happy Thanksgiving!

  • intothewoods
    intothewoods Member Posts: 449
    edited November 2017

    Lynne: When is your birthday? Mine is Dec 24

  • Lynne
    Lynne Member Posts: 641
    edited November 2017

    Lisa, mine is Dec 21st. I have 9 Dec birthdays in our family. We always said we should celebrate our half birthdays, in June! I hope your scans come back great!

    If I don't get back on here tomorrow, have a wonderful Thanksgiving! It's at my house this year (our younger daughter said she'd do all the cooking), with my immediate family. My husband, 4 adult kids, son-in-law, younger son's girlfriend, and our 3 grandkids. My sister is have our 2 sisters and their families, and our mother over there. She's only 3 houses away (2 houses from Mom's), so after we are done, we'll take a walk over there to see everyone.


    Lynne

  • Micmel
    Micmel Member Posts: 9,450
    edited November 2017

    Lynne~ Hi honey! I am not on taxotere, but I wanted to say hello to you beautiful, and give your thread some support. Great topic. I had heard many women mention the hair issue. But when I went into the infusion center, many women had been on it, their hair came back fine. I am so sorry if anyone ever EVER has to go through that. It's one of those things. Life, hair ? What choice do you make ? I had always said to my DH, if the oral lines run out for me, and since I have been through the heavy guns already, I will not be going through anymore AC, abraxane, or anything of that nature again. You're one of my favorite ladies Lynne, you're part of my thread family. So I am here to lend you support while you go through this in unchartered territory! Much love ~M~

  • intothewoods
    intothewoods Member Posts: 449
    edited November 2017

    Lynne,

    How perfect that you have everyone so close! Have a wonderful day.

  • Groovywilma
    Groovywilma Member Posts: 450
    edited November 2017

    Hey there! We have a few December birthday ladies here! It's our month to celebrate! Woo hoo!

    I am feeling the cumulative effects of the treatment and started noticing some tenderness in my skin on my hands and around my eyes. Makes me think of a sunburn from the inside (mainly the skin on my hands). My eyes have been watering so much and I think it's causing the skin around my eyes to be very thin and sensitive. I got some cuts around my eyes and have been putting neosporin on it. Such strange side effects. I'll be reporting them to my doc next week.

    Did you guys enjoy Thanksgiving? How were your taste buds? My taste buds weren't the best on Thanksgiving Day but I tried to keep that to myself and just enjoy being with family. The taste buds have improved this week.

    I hope you're all doing well and managing any weird side effects. =) Take care!

  • Lynne
    Lynne Member Posts: 641
    edited November 2017

    Wilma- Thanksgiving was good. My daughters did the cooking. My husband deep fried the turkey outside. It wasn't bad. It was still moist inside. I could taste everything. Thankfully, it was right before my chemo (had it Friday). If it was this week, I wouldn't have tasted a thing (I call it my "Hell" week. Thrush, diarrhea, stomach cramps)! Are you using a good moisturizer daily for your face? I put it on my eyes and all over my face, ears, and neck. I noticed my skin got a lot drier with the chemos. I also use Udderly Smooth lotion for my feet and hands, right after my morning shower, and put socks right on. At night I use Aquafor (an ointment) on my hands and feet and put socks and cotton gloves on. I wear them to bed, but usually take them off in the middle of the night, once the ointment is absorbed. I also take 100mg of B6, which helps with the hands and feet.

    Happy Birthday to all of us December Babes!

    Hope everyone has a wonderful day!!

    Lynne


  • intothewoods
    intothewoods Member Posts: 449
    edited November 2017

    Hello ladies!

    Thanksgiving was great for me! My onc called on Tuesday with good scan news- smaller and less active mets. To celebrate my recent medical leave leading to retirement early next year my sister treated us to a holiday in Cambria. We have never traveled together and it was lovely! We want to make it a tradition (but not her treating ha ha) Taste buds were so-so and I was wiped out when we returned but feeling better now. Chemo #5 tomorrow.

    Wilma- my eyes water like crazy too and I am also feeling cumulative side effects (fatigue and acid reflux)

    Lynne- my week after chemo is "hell week" too. Practically the entire week is not good. Hopefully I will feel okay by next Friday afternoon because my staff is doing a retirement party for me.

    Happy birthday month to all Dec babies!

    Lisa

  • Groovywilma
    Groovywilma Member Posts: 450
    edited November 2017

    Lisa: Awesome news about your scan! And what a great way to celebrate by visiting Cambria!

    Lynne: I thought I was moisturizing enough, but apparently not! I need to make more of an effort to be consistent with slathering my feet and hands in lotion (I use and like Bag Balm, but I'll get more Udderly Smooth Cream as well). Thanks for the recommendations. It's always helpful to check in here and get great feedback from people going through similar experiences. Oh yeah, I've been taking B6 and B12. I think it helps a little with the neuropathy.

    My week after treatment is also hell week. Unfortunately it lasts more than 7 days so that is frustrating, but I do feel better as time goes by and can enjoy things again until it's time to start all over.

    Yay December tomorrow!

  • Lynne
    Lynne Member Posts: 641
    edited December 2017

    Lisa-great news on your scans! Glad you had a nice trip with your sister! Hope your chemo went well today!

    So sorry we all have that "hell" week after chemo, but it's nice to know I'm not alone!

    Tomorrow, my 3 sisters and I are having an 80th birthday party for our Mom (Dad passed away almost 13 years ago at 68). It's at my youngest sister's house (I'm number 1), which is only a few houses away from mine (and she's a few houses away, in the other direction, from our Mom's). It's a surprise, and hopefully she will be! My husband and I are in charge of picking her up. We told her we are taking her out to her favorite restaurant. I'm going to say I forgot my purse at home, and we'll head back towards my house, and then stop at my sister's on the way. Once she sees all the cars (there are about 60 people coming), the surprise will be over though. My cousin sent flowers to the house yesterday. Luckily, I was there going through pictures, and Mom was playing cards at one of her girlfriend's. Her birthday is actually Wednesday (one of 9 family birthdays this month). Hopefully, the party goes well.

    Enjoy your weekend everyone!

    Lynne

  • intothewoods
    intothewoods Member Posts: 449
    edited December 2017

    I love love love surprise parties! It will be hard to keep mom in dark until you enter sis's house but she will still be surprised and delighted. I'll look forward to hearing how it goes.

    I also feel better knowing I'm not the only one with an entire week of hell!!!

    I had chemo today so my week will kick in full gear on Monday. Tonight I fixed a wonderful dinner if I do say so myself and taste buds cooperating so it was a good start to weekend and hell week :-)

    Hope your weekends are good ones, ladies.

    Lisa

  • Groovywilma
    Groovywilma Member Posts: 450
    edited December 2017

    Lynne: How was the surprise party over the weekend? I hope it was a lot of fun and hope you took lots of pictures! I hope your mom had a blast and that you all had some delicious food to celebrate! Sounds exciting and fun! How was your energy for the party?

    I have been exhausted this cycle and I think I might be more anemic than usual. This happened to me in August and after I got a blood transfusion I felt soooo much better. I sent an email to the doctor to see about checking my blood tomorrow, although I am scheduled to see him and get treatment on Tuesday. I was trying to have too much fun (visited my sister in LA last week) that I wasn't paying attention to my side effects. But I am definitely more tired than I usually am at this point in my cycle.

    Lisa: How are you feeling today since getting your last treatment on Friday? What cycle is this and have you taken any breaks on Taxotere?

    Let's have some December fun! (but still pay attention to our side effects!)

  • intothewoods
    intothewoods Member Posts: 449
    edited December 2017

    Good morning/afternoon ladies,

    I'm doing about as usual after treatment Friday but the fatigue hit me hard yesterday Day 3 which surprised me because it hasn't before. I guess it's the cumulative effect. It worries me a lot that the side effects get progressively worse. I go to some very dark places during hell week. This was my 5th treatment which I think might be just ahead of you? Funny you should ask about a break because I was thinking about that this morning. I haven't had one. And I completely get the having-fun-and-balancing-side-effects thing. I was wiped out this last cycle after Cambria. But I'm still planning some December fun just before my next treatment on the 22nd. Sis and spouse and I are going for three nights to Palm Springs. At least that's the plan so far.

    Wilma, I hope your treatment tomorrow goes well and the week isn't too bad. Let us know what doc says about another infusion. Where in LA is your sister? I'm also in LA.

    Lynne, how was the party? I hope it was all you hoped for.

    Yes! Fun for all with an eye to side effects!

  • Lynne
    Lynne Member Posts: 641
    edited December 2017

    My sister brought the flowers from our cousin (who has never even sent my mother a card before) to our mother that night. I told my mother that we made a reservation at her favorite restaurant for Sat at 2:30, she said they are only open in the afternoon on Sunday, I said they must have extended their hours because of Christmastime. She told me both of these gave her an inkling that something was going on. We picked her up to go to the "restaurant", and when we got to the corner, I said I forgot my purse. We went around the block and she saw all the cars, and commented on it, I said someone must be having a party. She asked why I had to pick my purse up at Amy's, I said I was there before we went to her house, she asked why. I got out of the car, then opened her door, and told her she had to get out too. She asked why, I said surprise. Our neighbor who was outside was raking and I told her to come in too (she didn't). Mom was almost crying as we walked up the steps. I had her go in first. My younger grandson ran right up to her and said happy birthday GG (for great grammy) as soon as she walked in the door. It was wall to wall people in the house (it's a small cape). Everyone seemed to have a good time. Mom told us that was her very first birthday party for her. Sad that she had to wait 80 years! She had cake and her family growing up, and later we had cake with her and Dad, but she was never given a party. The party was very tiring for me though. I'm fighting a cold, and lost most of my voice from all the coughing. I'm holding out going to the doctor's until my blood work/dr appointment on Friday (I hate having to go anymore than I'm already scheduled for). I don't have a fever, so I'm not worried about it. My voice is slowly getting better.

    I hope both of your "hell" weeks aren't to bad this time around. (Treatment number 8 for me, a week from Friday).

    Lynne

  • intothewoods
    intothewoods Member Posts: 449
    edited December 2017

    Lynne I can relate to how your mom felt. Having a Christmas Eve birthday (among other things) meant my birthday was always felt rushed, squeezed in and like an obligation. When I was in my early 20's my family gave me a little family surprised party and it meant the world. So happy for you and mom and sorry to hear you are under the weather. Good that you don't have a fever and I certainly know the feeling of living at our doctors' offices/centers although take it from one who minimizes everything, be watchful and careful.

    My week has been less "hellish." I'm partially crediting lip gloss and blush. Seriously though, I've been getting dressed and a bit made up. Putting a wig hat on (no high heel sneakers though) and forcing myself to walk the dog even though I really don't feel like it, and drinking tons of water. I think it's making a difference!

    Wilma, I hope you do well this week. I think you are having treatment today?

  • Groovywilma
    Groovywilma Member Posts: 450
    edited December 2017

    Hey December Birthday People!

    I had treatment yesterday. Although I had a new list of side effects that I think are an accumulation of treatment, my doctor was not too worried about them and said they were all to be expected. New fun fact I learned from my doctor: the horizontal ridges in my finger nail beds show the past cycles of treatment. I have had 3 prior treatments of taxotere and you can see the lines from those treatments. This is my 4th treatment. The doc ordered a scan to see how things are going and then said we can look at taking a break, lowering the dosage, or removing one of the chemos (I am taking both taxotere and carboplatin right now). I really really hope this is working!

    Lisa: I totally get the putting on some make up making things feel better. I always tell myself I need to draw on my eyebrows, but often I am too lazy if I am not seeing anyone. But the days that I make that effort, I feel so much better. It falls into the look good/ feel good thing. My sister is in Burbank. I just took it easy when I was there, just going out to eat a couple of times. I was suffering from weird new side effects at the time so really just felt like staying in while I was there. We did go out to see Coco. Great movie!

    How's everyone's hair? Any new growth? Me, I got nothing. It's been smoothly bald since May when I started Taxol. I watched a lot of youtube videos on tying cute scarves, so that's been working for me. For the first time in our lives, my dad and I are twinning with the bald look! It's awesome! Our heads are shaped the same! I'm his mini-me!

    Lynne: So happy the party went well! Sounds like some great memories for everyone! What a special celebration! I hope you're recuperating well and feeling lots better.

    I'm prepping for my hell week ahead... just in time for my birthday on the 11th! We'll see how I feel, but I've already decided I'm celebrating the whole month, and into January. That's just the way it'll have to be this time! =)

    Take care and keep me posted on new side effects and new FUN things going on in your lives!

  • Lynne
    Lynne Member Posts: 641
    edited December 2017

    Happy Belated Birthday, Wilma! I hope you felt ok, being your "hell" week and all. I'm getting my chemo on Friday, I'll be having my "hell" week for my birthday on the 21st too. At least I should feel better for Christmas, with my hosting my husband's family on Christmas Eve and my family Christmas Day. Last Fri when I saw my oncologist, she put me on Zithromax (took my last pill yesterday) and Robitussin with codeine so I can sleep at night. The cough has gotten a little better. It's not keeping me up at night (although I started my pre-chemo steroids yesterday, and I got 3 hours sleep last night, hopefully a little more tonight!). I have nail problems too, they were breaking all the time and I've lost about 6 of them (there was a smaller nail underneath though, both finger and toenails), as well as the ridges. My oncologist told me to put tea tree oil on them. I try to do it daily, but do not always have time, if I'm going someplace early. I put it on after my shower and before my daily udderly smooth lotion. My hair is about 1/4 inch long. I thought it was growing back about a month ago, but I seem to have a bald spot at the crown now, just like my husband. I do have one longer hair near my left ear, it even sometimes gets in my face, LOL! I cut my waist length hair and dyed it (for the first time at 55!),2 weeks before my chemo, most fell out 2 weeks later, and more about a month later. My eyebrows have been gone for a few months, and most of my eyelashes have been gone for about a month. I did get a rash from the salon shampoo and conditioner about a month ago (that I had been using all along with no problem, I wash it every other day). The oncologist told me to switch to baby shampoo. I have a wig, that I hate (it doesn't look like me). I've worn it 5 times. Most were funerals, and I wore it for Mom's birthday party. My husband doesn't mind it, but I do. I wear mostly scarves. I have a couple of summer hats. I wear winter hats, as long as I'm not going to be shopping, too hot (as is the wig). I can't really take a winter hat off though without a scarf underneath. At home, I hang around bald. If I know one of my adult kids are coming over, I'll put on a scarf. The grandkids don't mind. This is just Nana's new look. My older daughter cut her long hair very short so I won't be alone (even though I told her not to). It suits her though, and she's received many compliments. My youngest grandson wanted his hair short like mine (he just turned 5). My son-in-law brought him to the barber's. He red curls were all gone. It was a marine cut, high and tight. They shaved the back of his neck. It's grown back some, and his curls are coming in. He looks so old though. His mother (my 27 year old daughter) kept her long hair for me though (she was going to cut it short too). My 2 sons kept there longer cuts too. My husband's is short anyhow.

    I hope everyone is doing ok today!


    Lynne

  • intothewoods
    intothewoods Member Posts: 449
    edited December 2017

    Hello ladies,

    I hope your birthday was good Lynne. Happy belated! It looks like we are all having our birthdays during hell week. My next treatment is Dec 22nd and my birthday is the 24th. I told my sister who is hosting Christmas I would be there even if for a shorter time. I can always nap. My hell week started off good but lasted longer. I can't believe you have the energy to host two celebrations Lynne! Good for you. I hope you have lots of help. Now that I'm not working I've started cooking again which used to be something I loved so that's good but so far I haven't had any parties.

    The nail thing! Ughh! My fingernails are trying to lift off. One in particular. I thought it was from the new Essie stuff that lasts almost like a gel but now I'm thinking it's the chemo. I never had problems with the polish before. So glad you mentioned the tree tree oil. I have some some so I'll try that. Hate the smell though. So far the one is holding on but it catches.

    Hair is weird too, isn't it? Mine also is about a quarter inch and it has grown in some places and not others. Most of it cam out so there are bald patches all over. I look like Pig Pen. Eyebrows and lashes are trying to hold on but there are bald spots.

    Let us know how you are doing Wilma.

    Love to all!

  • Lynne
    Lynne Member Posts: 641
    edited December 2017

    Lisa, my birthday is the 21st. I am getting my chemo today at 10:30. Put my numbing cream and saran wrap (I use press n seal, sticks better). I'm hoping I'm feeling better by next Sunday. I have my husband (who does most of it), and 4 adult kids, and a son-in-law who can help. My younger daughter helped a lot Thanksgiving, the older daughter got shamed into it. Our sons will do something if you ask, sometimes we have to ask twice. LOL I'm doing both this year because we do it once every 4 years (my husband has 3 siblings too), with his side on Christmas Eve, and it's our year (he's the youngest). My youngest sister and I are the only ones with houses of us 4 sisters, and she did it last year. Our mother used to do it at her house every year, but it was getting to be too much for her, even with our help. I'm the oldest of the 4, and felt it was my turn. At least next year I won't have to do it for either side. Done in one year! I actually don't mind doing it at my house. We don't have to drive anywhere.

    The nail thing is a pain. I had a couple of weeks of nails pulling off. It has gotten better. I just had one toe nail come off yesterday, second time for that one (the left big toe). I haven't worn nail polish since I started Taxotere because of the nail issues.

    My hair is weird too. Sounds just like your's. Eyebrows are gone. I have some lashes left on the top lid only. I'll wear mascara for the Christmases if I still have lashes left. I draw in my eyebrows if I leave the house. I wear nothing on my head when I'm home too. I'm wearing my Christmas bandana today for my chemo day. I won't be back there for 2 weeks.

    I'll be thinking of you on the 22nd! I hope your hell week isn't too bad, and you're feeling ok at Christmas!

    Lynne

  • intothewoods
    intothewoods Member Posts: 449
    edited December 2017

    Happy birthday, Lynne. I realize you are probably sleeping now but know that you are in my thoughts today and hope your chemo week wasn't too bad.

  • Groovywilma
    Groovywilma Member Posts: 450
    edited December 2017

    Lynne and Lisa: Belated happy birthday to you December babies! I hope you were able to enjoy your special day with some cake or ice cream, or something yummy!

    I have really been struggling with my side effects lately. I had what I call the "fire hands" where I get that burning feeling in my hands and they turn pink, like a severe sunburn, then a few days later start to peel. I also am having some major swelling in my feet, calves, and thighs. I've never had such swelling and it is very uncomfortable, tight skin, hard to walk, and 20 lbs of fluid in my legs since starting on taxotere. Just a few days ago the doctor prescribed lasix, but I think the dose is so low, it hasn't made a big difference. I am seeing him on Thursday to further discuss this concern. I've also been very low energy, which wasn't so fun for Christmas because I didn't have the energy to go to my cousin's house to see all the relatives like I usually do (I did get to see other cousins who came to visit at my parent's house, so that was still good). My "hell week" didn't let up this time around and I didn't bounce back the way I usually do before my next treatment. I think it's the cumulative effect? I also think my low hemoglobins don't help. I kind of feel the way I did before I had a blood transfusion and after I got the new blood I felt soooo much better. So it's been pretty yucky for me lately. Also, my taste buds just aren't cooperating and I haven't been able to enjoy a lot of the food that I know is delicious.

    To top it all off, my transition to cobra has not been smooth, and still hasn't been approved. This has been extremely frustrating and I call every day to find out the status and if they can expedite the process. I had to pay out of pocket for my pain medication and have not been able to schedule the PET scan my doc ordered. It's been terrible. And I don't have the energy to fight them and yell at them the way that needs to be done.

    I am hoping things improve soon. In the meantime I am trying to conserve my energy and have been enjoying family time and holiday time as much as I can. My birthday was mellow but I got to enjoy some cake and ice cream. I'm hoping the new year brings some stability and improved health. This is the hardest it's been for me. Soon it will be my 7 year cancerversary. Gotta keep on keeping on!

    I'm hoping you guys are doing much better and enjoying the holidays, the food, the family, and everything else! Thanks for the updates and for checking in!


  • Iwrite
    Iwrite Member Posts: 870
    edited December 2017

    Lisa, Lynne and Wilma- Just visiting this thread,but remembering you from other conversations on BCO. Hope you feel well enough to celebrate some more during your birthday month! Sounds like getting taxotere for your gift should require a different party and a different present. Sending you all energy, nice fingernails, normal tastebuds and minimal SEs in 2018! Plus great friend and family times!

  • Lynne
    Lynne Member Posts: 641
    edited December 2017

    Happy Belated birthday, Lisa! I hope you had a wonderful day and a great Christmas!

    Wilma, I hope you had a great birthday too. I too had the hand and feet thing, it's become better, as I go along. Do they have you taking steroids to avoid it from happening next time. I too could not walk for a few weeks without being in extreme pain. At the time it happened with the first dose, they told me there was nothing they could give me. The lowered my dose (from 1 1/2 hrs to1) and had me take 2 Decadron twice a day, for 3 days before and 3 days after chemo. I haven't had the swelling at all, and the peeling got less and less with each treatment I had. I just get it along the edges of my feet now, and the tips of my fingers, no redness either. I hope it gets better for you! No fun at all!

    Iwrite-Thanks for your kind words!

    I hope everyone is having a good day! It's in the single digits here, with wind chills in the negative numbers. It is suppose to be like that for the next week. BRRRR!

    Lynne


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