Complex Sclerosing Lesion

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Agel
Agel Member Posts: 11
edited December 2017 in Waiting for Test Results

Hello.

I am very new to the community. I was recently diagnosed with complex sclerosing lesion, 3.5cm.

It's been about two months that I've been doing scans, mammograms, MRI, core biopsy... They keep telling me it's nothing to worry about, they just want to make sure it's not cancer. But every time I go in for an appointment, they seem to be still not sure. So, my next exam is a vacuum biopsy and now they have discovered something in my other breast as well. So, I'm having a scan and a core biopsy in the other one as well. Still, I'm told that it's nothing to worry about, just being thorough.

I'm freaking out here. Has anyone had similar experience? If it was something nasty, wouldn't they have seen it by now?

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  • marie5890
    marie5890 Member Posts: 3,594
    edited December 2017

    Yes, Agel, I have been thru something similar, though mine was not a CSL, mine was PASH.

    It started before Thanksgiving of '09. A new finding on Mammo.

    They tried for a US guided biopsy. Didn't work. Sent me for an MRI, etc etc etc. All the time they weren't really worried, they just were being thorough, like you are experience.

    I didn't get the results for biopsy until Feb'10

    So, from my exerpience, don't worry. They really are just being thorough, which is good.

    Enjoy your holiday how ever you deal with them. Don't worry.

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  • Agel
    Agel Member Posts: 11
    edited December 2017

    It's so nice hearing from other women who've been through similar ordeals and had good results! It kind of puts my mind at ease.

    I had my vacuum biopsy on the left breast today, by an actual doctor this time 👍 He was very reassuring-said he believes it's just hormonal change to the breast. He also scanned and did a core biopsy on the right breast and said it's probably a fibroadenoma. Still, not sure though. If the results still come out as inconclusive, next step is surgery to remove it all and biopsy it. This will cause a significant deformation of the left breast since the lesion is 3.5cm big (and I have small breasts) but that's the least of my worries right now

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  • marie5890
    marie5890 Member Posts: 3,594
    edited December 2017

    What do you mean by "an actual doctor?".....Only some form of doctor performs biopsies, (i.e. a radiologist, who is a doctor, or some kind of surgeon).

    Yes, 3.5cm is big, and having it removed will be the prudent thing to do :)

    Let us know how things go :)

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  • Agel
    Agel Member Posts: 11
    edited December 2017

    Sorry, I should have phrased it better. In the UK, where I live, it's the junior staff that does the first screenings. Radiologists, sonographers etc but their only job is to take the images and upload them for a senior doctor (ie oncologist, radiologist etc) to see and assess. So, during my first tests I either wasn't told anything or was given conflicting information.

    The -I hope- final screening that I had yesterday, was the first done by a senior doctor who explained things and talked me through all scenarios.

    I think taking them out will be needed at the end and I think it will affect me psychologically since I'm only 41 but right now all I'm concerned about is neither of the lesions being cancer..

    Thank you for the support


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