Waiting room fish bowl
I had my planning session for radiation and arrived to find a small waiting area, one bathroom, and changing room. When I returned from the planning session I found the waiting room packed and two others persons clothes in my locker. There is no lock to the locker. I felt overwhelmed and exposed as my private journey to this point was no longer private.
While I’ve never had this reaction to other patient waiting rooms this one feels different and reminds me of being in a fish bowl where everyone can see. Wish I had a private place to wait
Comments
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I'm sorry your experience has not been good. my waiting room is for women only and has a bathroom and changing area with locks on the lockers. There has never been more than one other woman waiting. They only have one rads machine there. I enjoy talking to the other women about their experience. It's mostly the same people there each day.
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I think this kind of thing is a violation of HIPAA - sitting undressed with other patients,although in gowns and robes. Everyone KNOWS why you’re there. So much for medical privacy which they make worse by calling out your name!
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My rads waiting room had locks on the lockers (Thank goodness: not sure I would have tolerated it otherwise...so I would speak up about that aspect in particular. Let them know you are concerned about theft as well as privacy.)...but otherwise, my experience was much like yours. Small waiting room, one bathroom. You did see the same people every day, for the most part, and some of those people seemed to enjoy chatting and sharing stories with others waiting. I've also heard of folks here on the Boards who enjoyed that aspect. I most definitely DID NOT. I am not generally a fan of chatting with strangers (though I find it to be easier on the internet :-)) and I REALLY DID NOT want to hear someone else's 'story' as it increased my own anxiety. My solution was to always bring a book and always bury my head in it while waiting. If someone tried to chat, I'd smile absently and as if I was distracted, maybe say a word or two (or not) and go back to the book...
Fortunately, there was only one day when there was much of a wait (due to some equipment failure); otherwise I didn't spend much time in the waiting room. Also fortunately, I loved the staff, which made the entire experience a bit less dreadful.
I am sorry you have lost your sense of privacy.
Octogirl
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Tigger, my RO waiting room is just like that too. It is super tiny, I think it had 2 chairs, 2 curtained changing areas, with a couple of unlocked lockers available. For my simulation I just put my clothes in my purse and kept them with me. There wasn't anyone else there the entire time I was there but I'm not sure how it will be when I have my actual treatments. I'm not much of a talk-to-others-about-my-cancer person, so I feel your concern. Hang in there!
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My waiting room had changing cubicals with locks, two restrooms, and several sitting areas. (There were also beverages and snacks available as well as (muted) t.v. screens and an ongoing jigsaw puzzle. The techs NEVER called out names - they would come up to us to let us quietly know when they were ready for us and only used our first names when they addressed us in that space. I never felt exposed or uncomfortable. I guess I was one of the lucky ones!
However, anytime there's a question of this nature the only way the concern will be addressed is by speaking up. Talk to one of the staff and find out who can assist with the concern. Sure - come here to vent but don't let it stop there. Usually there is something that can be done for you but you'll only find out by asking.
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I made some awesome friends at Radiation. There were 2 machines so there were usually anywhere from 2-6 ladies. Every day for 6 weeks is a long time. We checked up on each other and welcomed any newcomers. I keep in touch with 3 ladies I had radiation with. I finished on the same day as one of the ladies and our families went to dinner together. We did have a restroom and 2 changing rooms and lockers that's locked so that was nice. I think it would bother me too if my stuff was messed with. Good luck with your radiation
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I really appreciate everyone’s support and suggestions. I will go in early so hope to avoid lots of people. I probably won’t mind all women patients so much but their are males their to as well as male spouses. My first session is monday, I’ll see how it goes. Going to bring a pack back for my stuff. And I’ll bring a book avoiding conversation. Talking on this site does not bother me as does talking to others
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Good luck tigger. Yes, I found radiation to be the only "coed" space in my whole breast cancer journey,. Since there are male patients getting radiation there are also male techs, which took come getting used to. I rarely had to wait long and when I did I had a book and my phone with me. Maybe take a small purse and keep it with you when you go in the treatment room. Best of luck.
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Oh wow. I did not see the coed part. Our area was for patients only. We did not have any male patients at the times I was there. I went to the Speilman at Ohio State and it is for breast cancer patients only. I can understand you even discomfort
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I am uncomfortable walking into a building under a huge sign that says ____ ____ CANCER CENTER! Even though there are other types of offices there as well. It seems it's the cancer industry people that like to advertise the most- to hell with patient privacy! I got some forms sent to me in a large envelope half covered with the fancy logo of the Cancer Center too - like they have to advertise my health issues to the postal workers? Some are my neighbors. I did complain about that. The person I talked too defended it by saying, "not everyone who comes here has cancer." but they did send plain envelopes after that.
On the other hand, once I'm in there I figure any male patients or husbands don't want to be there either and are focused on their own problems. The male techs have been very kind and sensitive people. This just isn't a sexy situation. So far I haven't run into anyone I know but have actually considered going in disguise...
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