Bottle 'o Tamoxifen

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  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited December 2017

    jpBCfree:

    Look into a functional MD. I'm set to meet with one next week. Google to find out what it's about. I think you'll find that may be what you're looking for with regard to bloodwork, etc.

    Mine is female and very thorough. They usually do a lot of bloodwork, etc., etc. Vit C infusions. All kinds of options.

  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited December 2017

    I should say that I also have an integrative MD (two time BC survivor) that I see -- but she's very easygoing and lovely but does not run much bloodwork, etc. Good for supplement and nutrition advice.

  • SuzyFL
    SuzyFL Member Posts: 29
    edited December 2017

    Hi ladies! I have been taking the Tamoxifen for about 6 weeks, and so far my only side effect that I notice are some mild hot flashes once in a while. I expected to be miserable, but honestly it's going very well (so far, but know things can change as time goes on)!

  • Kechla
    Kechla Member Posts: 231
    edited December 2017

    Anyone else on tamoxifen after having had a hysterectomy? I had my hyst about 3 months ago and am still exhausted. My iron is back to normal, but can't shake this fatigue and my stamina is bad. I finished up chemo about 1 full year ago, so I suppose it could be lingering effects from that. Just want to have energy again...

    My 2 cents on tamoxifen. For me, the hot flashes are the worst of it. Especially because they interrupt my sleep. But they are not severe (my lower back gets a little sweaty and I feel as though I'm inside a car that's been sitting in the sun on a hot afternoon.) They last about 4-5 minutes usually. I occasionally get a little crabby, but not sure if that is due to the tamoxifen, but I still feel like the same person. Also, since my hysterectomy, my hot flashes are more intense and more frequent than when I was on just tamoxifen. Overall, I would say my experience is pretty good.

  • lala1
    lala1 Member Posts: 1,147
    edited December 2017

    Kechla---I had a hysterectomy and chose to stay on Tamoxifen. I do pretty good on it and my BS said I'd only get a 1-2% improvement in my reduction risk so he thought the increased SEs weren't worth it. My biggest issue has been the bone and joint pain which I manage with ginger and turmeric. I didn't have hot flashes on Tamoxifen till I had my hysterectomy 2 years into it but again, I manage mine with iCool and a fan. Mine aren't too bad either. Mostly at night and then it's just a clammy thing for a couple of minutes. And with the iCool I usually only get 2-3 a night. I will say that your exhaustion is probably from your surgery...and all the rest all catching up. My dad is a doctor and told me before I started all this that even thought doctors will tell you that you recover within a couple of months, he thinks the exhaustion takes about a year to recover from. His recommendation was to sleep whenever I felt like it and could and just wait it all out. For me things didn't start getting better in the energy department till I started working out regularly. Just walking every day for 30-45 min shook out the cobwebs and made my night time sleep easier by reducing the hot flashes intensity. Once I was sleeping good at night, my days got better. I've just found out that I get no benefit from continuing Tamoxifen for another 5 years so I'll be stopping it in Feb. Can't wait to see how much of a difference there is.....or if there is a difference at all!!

  • Kechla
    Kechla Member Posts: 231
    edited December 2017

    Thanks lala1. That is so helpful! I have my first appointment with my MO nurse since my hysterectomy this week, so I can see what her thoughts are for the tamoxifen as well. Originally, they said they'd switch me to an AI if I had the hysterectomy, but once I had it, said to stay on the tamoxifen. I think they said due to bone health, but I don't quite remember all they said in the hospital...

    I have attempted to start an exercise program several times over the past few weeks and it just wipes me out each time. I think I'll start some yoga and try to get back on a regular schedule with that.

  • Goofycat
    Goofycat Member Posts: 39
    edited December 2017

    I have not had a hysterectomy but am on Tamoxifen. I am just wondering if those feeling exhausted have had your Vitamin D levels checked. Mine were way low and I had 8 weeks of high dosages and now on 2000 mg per day. I was really tired before and now am doing so much better. Just a thought.

  • Kechla
    Kechla Member Posts: 231
    edited December 2017

    Good thought Goofycat. I tend to be low on vit Dand am on 2000mg/day. Maybe need to get checked to see if it’s enough..

  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited December 2017

    Kechla:

    I was on 2000 maybe and Vit D level better but not high enough. Went to 5000 and that did the trick. I think that much is not harmful -- but have it checked and see what they say. (In the event it's really low or something.)

  • TaRenee
    TaRenee Member Posts: 464
    edited December 2017

    Someone tell me it’s okay to go get rip roaring drunk this weekend even if I am on Tamoxifen. I am so ready to cut loose

  • molliefish
    molliefish Member Posts: 723
    edited December 2017
  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited December 2017

    TaRenee:

    We still have to have QOL. So much is restricted or we feel guilty doing.

    ENJOY your weekend!

  • beach2beach
    beach2beach Member Posts: 996
    edited December 2017

    @TaRenee, I have not gotten rip roaring but close enough the night after Thanksgiving. I think once in a while is not a bad thing. I explained it to myself that it was my night to not have to worry and feel like everyone else. So I had quite a few. Paid for it the next day but doubled up on the water drinking and advil. I say enjoy....

  • superius
    superius Member Posts: 340
    edited December 2017

    TaRenee: LOL!  I don't drink, but now I even skip the Communion wine . -- due to the fact that I have about 5 doctors / oncology researchers right behind me in choir! 


  • TaRenee
    TaRenee Member Posts: 464
    edited December 2017

    Have mercy, I have my 3 mo follow up with my MO scheduled for Dec 29. Have had it set for 3 months. Made holiday plans around that date. You know the drill. Then yesterday they call and want to reschedule for Jan 1 or 2. I asked if we were doing blood work and the girl said “it’s your 3 month check. Yes blood work will certainly be a part of that appointment” I told her that no, he doesn’t want to see me New Years Day for blood work. Nope not changing that one. These two parties are the only two I’m giving myself permission to cut loose at. No way am I going to the doctor the next day! lol. I also explained I had arranged all my travel plans months ago around that appointment so I really couldn’t change it unless we push it to the end of Jan. No, that’s okay. Keep it that day and we will set it for earlier in the day. Ok. That’s fine. But really? 3 months ago you knew the schedule just like I did.

  • Blownaway
    Blownaway Member Posts: 760
    edited December 2017

    Tarenee-I do it about once every 6 months or so. Things just get out of hand sometimes.

  • Michelle_in_cornland
    Michelle_in_cornland Member Posts: 1,689
    edited December 2017

    A pun, girls, TAMOXIFUN - 2 MOXI FUN - TAMO XI FUN - T'FUN - TA' FUN. Always remember to keep the "fun" in your life, while taking Tamoxifun. TaRenee, you are our poster child for the "fun" part. :)

  • TaRenee
    TaRenee Member Posts: 464
    edited December 2017

    In the spirit of fun... image

  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited December 2017

    Hilarious! Thanks!

  • Michelle_in_cornland
    Michelle_in_cornland Member Posts: 1,689
    edited December 2017

    TaRenee, so on point!!! :)

  • TaRenee
    TaRenee Member Posts: 464
    edited December 2017
  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited December 2017
  • Michelle_in_cornland
    Michelle_in_cornland Member Posts: 1,689
    edited December 2017
  • TaRenee
    TaRenee Member Posts: 464
    edited December 2017

    Tonight was a big night for me. I went to my old school and was the MC for their Christmas Music Program. To explain what a big deal this was... I taught at that elementary school for 14 years. I found out at the end of the school year that I was being moved up to middle school. So I haven’t seen these kids since June. When I got there I got mobbed! It was one giant group hug. So before the program started whenever they went to line up, I went to see the kids in the program so that’s the first time they saw me wouldn’t be on stage. Good plan. They were so excited to see me. It made me feel so good. I really do love where I am now, but’s I sure do miss MY kids. (I had them from preK through 5th grade... they will always be mine!) 250 kids IN the program. And 1 girl who Cameron NOT to be in the program, but to see me. Made her mom bring her because she knew I would be there.

    What a great night

  • TaRenee
    TaRenee Member Posts: 464
    edited December 2017

    I type too fast for the screen to keep up. 1 girl came NOT to be in the program. Not Cameron. No clue who that might be. lol

  • Trvler
    Trvler Member Posts: 3,159
    edited December 2017

    TaRenee: Love the cat comic and so glad you had a wonderful night. Thanks for sharing.

  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited December 2017

    Yeah, TaRenee. What a rewarding career you have!

  • Tpralph
    Tpralph Member Posts: 487
    edited December 2017

    Well day one of tamoxifen for me!  

    Nice cat....lol

  • TaRenee
    TaRenee Member Posts: 464
    edited December 2017

    KB870 I got it from my cousin who had gotten it from a friend, share away!

  • TaRenee
    TaRenee Member Posts: 464
    edited December 2017

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