Privacy about my breast cancer

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I went to a support meeting for breast cancer patients that have recently had surgery at the hospital last week. I only went because it is part of a program that offered PT. I would consider myself a private person whose shields are up except in front of my husband and children. One by one, each patient took their turn to tell their story about how they were diagnosed, where they were at with their cancer, etc. A few broke down and I thought to myself, that's not going to happen to me when it's my turn. Of course, I bawled my eyes out when it was my turn lol. When I told my story, the part that upset me the most was that I felt I have to hide the fact that I have breast cancer at work. I'm the boss of my family owned business, construction field (skilled trade), all male employees, around 16 employees in total. I told three of my employees before my surgery because I didn't know how out of it I would be, and I needed them to monitor my email and be prepared to take over some of my duties just in case.

The reason why I feel I need to keep my cancer under wraps at work is not because I have male employees, although that does color the situation. One of the reasons is I don't want them to feel they can take advantage while I take hours/days off to go through treatment and deal with my diagnosis. Another is I don't want them to feel the small business is in danger of closing, and spread rumors to our customers and have them overreact. We work in a small industry, many people may be uninformed about the topic. Word had got out that I had surgery, but other than the three employees I told, nobody knew what sort of surgery. I was back at work within three business days because already one or two employees were acting up and I felt they were doing it because I was busy having surgery. I felt I needed to be present physically and show everyone that I was up and about. Within those few days, rumors were already circulating and one of the nosy salespeople from one of my suppliers came by and said that he had heard that I was ill. It was about a week after my surgery, and I was running around the office like a bee they way I always do, all the while hiding my drain underneath a poncho; I looked at him square in the eye, and said, "Well, I'm on right now, am I not?"

Next week, I'll have my appointment with the oncologist, and I've heard that I could be having chemo as early as the week after. I've bought a wig at the first store I went to but I doubt it's going to fool anyone. I have thin graying hair and there is no way I'm going to find a wig that will look like it could be my natural hair. So, I think the gig will be up. Just not sure how I'm going to deal with it when the time comes. I'm not ashamed, and I think if people knew they would be floored that I've been going through this the entire time.

In my personal life, I don't like sharing my diagnosis with some of my extended family members. The jist is they are glad it's not them, and some of them think they give me medical advice because they know like three people with cancer. One family member "consulted" with her friend who had breast cancer and came back with a long text about her take on my pathology. Of course, the friend compared it to her own cancer and her take on my tumor was that it was large. I didn't ask for this and the family member is a close relative to my husband. I don't appreciate having my breast cancer to be a subject of conversation among strangers. My husband says that she was just trying to help which I get but still was upset by it. Another estranged male member of his family heard that I had a mastectomy from another family member. It got back to me that he said he would be upset if one of his testicles were removed and that he wanted to talk to my husband again, and was using the fact that I have breast cancer has an excuse. I love my husband dearly and his my rock. I understand that he is going through this just like me and needs to talk to his close family members about what we're going through

Sorry for the long rant. I guess the theme of this post is what we're going through on the inside vs. what we show people on the outside.



Comments

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited December 2017

    Hi sswp. Sorry about your diagnosis. I'm really glad to hear you were able to express yourself at the support group. I ran out of my first and only support group meeting, and I really needed it.

    This diagnosis brings up such interesting emotions. We all handle it differently. One of the really interesting things is that pre-BC I thought I had “control" over things. That all went out the window after diagnosis and I now know I have control over very little. In a wierd sense it is kind of freeing. Makes me live more in the moment.

    I was ashamed that I “got" BC. Somehow I felt it showed I was weak, I hadn't taken care of myself, my DH had chosen poorly, yada, yada, yada.

    To this I now say in my best Okie accent BULL SHEIT!

    I realized one time when was I sitting in church on Sunday that I'd be hard pressed to find a person in that crowd that had not been touched by BC in one way or another.

    I fell into a deep well of depression after dx. My lifeline was finding someone safe to talk to on a weekly basis. She had little advice, but boy she was a great listener. I could take that fear out weekly and take a look at it, shine the light on it. It was so cathartic, and I hope you find someone like this.

    I am so impressed about how you are processing all of this. Feel what you feel. You are forever changed, but that is ok. Sending you a gentle cyber hug.

  • Denise-G
    Denise-G Member Posts: 1,777
    edited December 2017

    sswp - I get what you said - I grew up in a small business construction family. Tears welled up and rolled down my cheeks as I read your post as you have to act so damn tough and try hide this - even though you are a private person. It hurts me for you. But I most definitely understand your reasoning.

    My only advice would be is to stay in that support group as you will definitely need support and understanding. One of the absolute hardest lessons of cancer for me was the "friends" who ran away from me, and the "strangers" who ran toward me.

    My mom, sister and I were all diagnosed with breast cancer within 3 years. That was one lot of cancer for friends and family to handle. They were over it long before we were! But most stayed for the entire ride.

    Sending all my best wishes to you.


  • chronicpain
    chronicpain Member Posts: 385
    edited December 2017

    SSwp, I hear you. You have unique privacy needs and responsibilities.

    I work in a scenario where most of my "clients" , so to speak, are men who rely on me to help them in their various and personal problems. Some even come from ethnic and cultural backgrounds where they have been taught that cancer is contagious. I go back to work, hopefully, in mid-January, as I am skipping radiation, no chemo, and plan to just be upfront about the diagnosis if anyone asks, and state that "I am fortunate to be doing much better, thank you for asking, now about your issues . . . " and move on. I will not get into my emotions. If I find myself breaking into tears, beyond control, it will be a problem.

    You will have trouble hiding your hair.

    Could you just say something in a memo like, "Some of you may have noticed I lost my hair. I have had chemo for a cancer, but things are going well, and if I am sometimes gone for treatments, so and so is around for questions and supervision. I look forward to all of us continuing to work hard to keep this company as great as it has been, and hope you all have (had, depending on time) a great holiday season!" Show you are still in charge, or someone is when you are gone, and explain the oddity of your appearance to qwell doubts


  • illimae
    illimae Member Posts: 5,710
    edited December 2017

    Our situations are different but I can tell you that if you choose to tell coworkers, you may silence some and ease concern by letting them know how treatable your cancer is and that you have no intention of this affecting the business. Also, while some reactions to chemo make working difficult or impossible, some others, like me, are lucky enough to have minimal/manageable side effects and can continue to work without issue, except for the actual chemo infusion day, of course. Personally, I made everyone I supervise aware and was pleasantly surprised at how many really stepped up and worked harder to take some of the pressure of me. Best of luck to you :)

  • edwards750
    edwards750 Member Posts: 3,761
    edited December 2017

    You are in a tough situation. It’s difficult enough dealing with the DX and chemo to follow without all the added stress with your job. It’s also shameful that employees take advantage of the situation. The fact that you have to be their watchdog is very telling.

    I have to admit I would be reluctant to spill my guts about it. If people speculate about what ails you let them. Only you can decide if you are asked point blank whether you should share or not.

    It’s your personal business. I get you run the company but it’s still private at least to me.

    It’s not the same situation but one of my neighbors became the town crier and told everyone in my cove about me. I was furious. Not her story to tell.

    Whatever you decide do what’s best for you.

    Diane

  • sswp
    sswp Member Posts: 69
    edited December 2017

    Thanks everyone for your responses, appreciate all of you who took the time to help. I’ll deal with it as it comes. When it becomes apparent that I’m going through treatment it’ll also be known that I’ve been dealing with this for months with no apparent interruption to the business. In other words, the sky hasn’t fallen and it’s been business as usual

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