Please bring me back to reality
I found out on Nov 30 that I needed a biopsy after a routine and then diagnostic mammogram. (Always had yearly mammograms with no abnormal findings, until now.) Had the biopsy done on Dec 6 and found out on Dec 8 that I have DCIS. Since Nov 30, I have lost 5 pounds. Granted that I am not sleeping well and have a constant feeling of dread. However, I have been eating what seems like enough so that I should not be losing weight. The weight loss is coupled with a very mild anemia that showed up on my physical and was also on last year’s physical. I was told to take a daily iron pill. I have now convinced myself that I have another type of cancer, in addition to breast cancer, because of the weight loss and anemia. Please tell me that I am being crazy. Has anyone else experienced weight loss from stress. Thank you and God bless each and every one of you.
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Yes, in the past two years i have lost 25-lbs due to the stress of my breast cancer treatment, DHs advanced prostate cancer, my mother's end-stage kidney failure and subsequent death from stage 4 kidney cancer, and my MILs death from sepsis. Thankfully, my health is stable and there are no signs of any sort of cancer in me now.
You're not crazy. Finding out you have cancer, even at stage 0, is a life-altering moment. The anxiety alone can produce multiple somatic symptoms, such as headache, body aches, sore throat, tightness in the chest, fatigue, listlessness, insomnia, and sleeping too much. If your symptoms are overwhelming your ability to function I'd suggest talking with a counselor and asking your doctor for some anti-anxiety meds. Many of us have needed meds to get through this, at least in the short term. Good luck.
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thank you so much for taking the time to respond.
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Hi Debcesq,
As mustlovepoodles said, you're not crazy; anxiety is very common and completely normal, and the waiting periods before results or treatment is truly the worst. I lost about 5 pounds in a week prior to my mastectomy because of severe anxiety. That anxiety almost completely disappeared as soon as the surgery was over. Don't hesitate to talk to your doctor about this as they can prescribe medication to alleviate severe anxiety symptoms.
((Hugs))
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Deb,
As others have said, weight loss often occurs with the stress of cancer diagnosis
However, the "mild anemia" also seen last year is more troubling ( unclear if you were non-anemic on prior tests) coupled with an iron prescription. I believe you have posted you are 63, and were given iron. Note generally in post-menopausal women and men, unless they are vegans, or have abnormal GI absorption anatomy (like post bypass for obesity) or celiac disease, they should not be iron deficient from diet. Iron deficiency at those ages is a sign of occult bleeding somewhere until proven otherwise ( usually GI), though it could be benign, (like from polyps) or from prior blood loss from a major surgery.
Did your doctor say he actually worked up your anemia and found a pattern of iron deficiency, or did he just say "take iron" without more work-up? Iron deficiency has a specific pattern ( microcytic, hypochromic cells, low blood iron and high TIBC, or at least low ferritin in early stages) If you are iron deficient, you may need a GI workup for blood loss. If you are not iron deficient, and are "normocytic normochromic" on your cell sizes, differential is broad and can include cancer, low thyroid, marrow infiltration, and in early stages low b12, easily treatable, plus a long list of other things.
I suggest finding out more from your doc about what kind of anemia you have, how long, and why he thinks you are iron deficient, with specifics
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Yes!! I lost almost 30 pounds - went from 146 to 118 lbs - in 8 months. I was sure the cancer had spread and that this was cachexia but nothing ever showed up on scans. It was all stress.
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I lost almost 10 lbs in 2 months but mine was before my DX. I had heard quick weight loss can be a sign of cancer. I had stopped eating sugary foods so I thought that was the reason. It wasn’t. Several months later I went in for my annual mammogram. One breast was larger than the other. I knew it was probably BC. It was.
My mother had BC. Now my sister and I both have it. High risk but the truth is the majority of BC cases are not genetically connected.
A lot of women take anxiety meds. It’s normal and understandable. We have been dealt a DX we certainly didn’t ask for but have it just the same. We have all been blindsided by it and forced into surgeries and treatments as part of the process.
I am cautiously optimistic. Early stage, low Oncotype score, Grade 1 IDC and an 8% chance of a recurrence. No guarantees of course. 6 years out last August
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You are absolutely not crazy. I thought I had brain cancer..lung cancer..I even got an MRI to make sure...then when I had my mastectomy, I had zero cancerous lymph nodes. I feel so much better having gotten the cancer out.
Please keep in mind DCIS is about the best diagnosis you could ask for. It is very very early and not even invasive.
Some doctors even question these days whether it even needs to be removed. Some DCIS might never even become invasive. Doctors just want to avoid liability by making sure they treat everything.
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Hi edwards..your stats sound the same as mine. I did that life math calculator which said 8 pct chance of recurrence. Just curious what treatment you went with?
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fyi, your death rate after 20 yrs is basically the same as the general population. 3.3 percent.
https://www.cancer.gov/news-events/cancer-currents...
I hope you find that reassuring!
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I lost 5-10 lbs between first diagnosis and surgery (@ 5 weeks). Surgery and chemo took some more off me. Your weight loss seems normal to me, considering.
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Me too. 7 lbs right after dx because of worry (I can't eat when I'm worried/anxious/grieving). Then 8 more lbs because of chemo. I've never seen anemia as a sign of cancer, so I hope that relieves your fears too. If you aren't eating it makes sense your nutrients would be lower than normal.
Hugs,
Claire
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Anemia can appear as a symptom of certain cancers (lymphoma and breast for example), called "anemia of inflammatory/chronic disease":
"Anemia of cancer may also be evident at initial diagnosis. Activation of the immune system appears to be the driving force for a global diminution of erythropoiesis, analogous to chronic inflammatory conditions observed in anemia of chronic disease.3,5 It is postulated that the immune system may be mobilized to stimulate production of inflammatory cytokines that can impede erythropoiesis. Consequently, there is insufficient differentiation and proliferation of erythroid precursors, leading to anemia.3 Inflammatory cytokines can also impair iron metabolism which can result in reduced serum iron levels and iron retention within the reticuloendothelial system.3Tumors can also produce cytokines, which induce iron sequestration, thereby decreasing RBC production."
https://www.healio.com/hematology-oncology/news/on...
So Deb, your anemia is not unheard of if you have breast cancer. When I was first diagnosed with lymphoma I had also severe anemia, which went away when I got into remission.
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Hi, I was recently diagnosed myself on Dec 06 of this month with ILC. I too have lost weight, I can’t sleep. I just feel so angry and fearful! I have an appointment this Friday with an oncologist and a surgeon and I am anxious about what they will have to say. I am wanting a bilateral mastectomy for sure. I’m 38 and I want to live many more years!
I am sorry that you are going through this and I hope you find a way to deal with this monster. Don’t hesitate to send me a message at anytime!
Steph
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StephK, we have an ILC discussion board here too. It was invaluable to me because as you know we are a smaller group than the IDC'rs and ILC tends to behave in a bit of a different way than IDC.
Post your questions and concerns you might have there, too!
Hugs.
Claire in AZ
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