BMX w/o adult assistance

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  • sm627
    sm627 Member Posts: 298
    edited December 2017

    Hi Ceci!,

    How are you doing? I hope your recovery is going well.

    Wishing you all the best!

    Hugs,

    Sara

  • Ceci-246
    Ceci-246 Member Posts: 50
    edited December 2017

    Hi Sara, thanks for thinking of me. I've been doing okay. The surgery went very well. At the last minute the BS and PS got on the same page to do a nipple sparing, skin sparing BMX, with the tissue expanders on top of the muscle, so my range of motion, pain and recovery should be easier. Honestly, my new breasts didn't look too bad right afterwards.

    But I really needed strong pain meds in the hospital and after - like Dilaudid.

    I had 2 drains on each side plus vacuum thingies that were bulky and annoying and couldn't get wet. I hope to have the last 2 drains out on Monday and begin discussion of expansion. I can do it at home with these controls that release CO2. All so new to me.

    Best part: no cancer. I had had 2 biopsies that showed LCIS and ALH, and an MRI that showed more suspicious stuff in the right- and after mastectomy there was yet another ALH radial scar in the left. So the BMX was the right thing to do. And yet, sometimes I feel like I don't qualify to post on this site because I don't have invasive cancer.

    So there's a bunch of weird emotions and it was definitely hard not to have an adult to care for me - the kids were heroes for 3-4 days then returned to being forgetful self-centered teenagers which is normal, I guess. Church and work friends brought food almost every day. And my 84 year old Dad called just about every day, but no family showed up - my brother, his wife and adult son and wife never offered. So, I know I am super lucky and cared for, but I am tired of asking for rides or helpand tired of being tired. I guess that's a long response that I had been putting off. I feel like I have a beautiful wonderful happy story and then a really difficult lonely story. I'm sure the loss of hormones (I stopped taking HRT before surgery and had surgical menopause 10 years ago), the lack of exercise that I'm used to, and maybe just the whole experience is hard. I've had to see my primary doc for pain meds and various issues and her nurse asked a basic check in question as to how I was feeling emotionally. I said I thought I was doing great. I cried a few times like when I had to spend 8 hours restoring the kids health insurance, had to pick up their slack with chores, the teenager was nasty and rude and when the cat bit me - those all seem okay reasons to cry under the circumstances to me. But I'm guessing there's more to this.

    Ceci

  • sm627
    sm627 Member Posts: 298
    edited December 2017

    Dear Ceci,

    I Want to give you a BIG HUG and send you all my LOVE!

    You have every right to be apart of the BC sisterhood on these forums. Weather you have had BC or at high risk of getting it both are very scary in there own way. We are all here to help support each other through these life changing events. I am so sorry that you have not been able to get consistent support from your family and cat during your recovery. If I lived near you I would be over to see you everyday! Please let your feeling out and cry as much as you need to it is a part of the healing process. You have been through a traumatic event in your life you have lost a part of your body and that takes time to recover both physically and emotionally. It has been almost 6 months since my MX and I still find myself crying.

    Be kind to yourself and let the house cleaning go and focus on you rest and don't lift a finger. let the teenagers clean up when they get around to it. Do you think they understand what a difficult time this is for you? I hope they step up at some point and start to take better care of you! If they don't let me talk to them. I understand how you feel about tired of feeling tired I felt the same way for over a month. It is a long road to fully recover but we will get there at some point it will just take time.

    I am here for you if you need to talk I will listen and send you lots of hugs!

    Love,

    Sara



  • chronicpain
    chronicpain Member Posts: 385
    edited December 2017

    Ceci-246, I am glad you are doing well. My surgery was 11/22 and my DH was helpful then, but he is out of town now and as my arm and chest still hurt, I wish one of my three lazy felines would get off the bed I am lying in and go get me some crackers, cheese, and a glass of Sonoma merlot, but it seems all I am going to get from them is a bunch of purring, sleeping, and self-indulgent yawning.

    If I had a 16-year-old around, however, ( I was in college and also working part-time at that age)she would be expected to do a bit more than the ungrateful cats.

  • Ceci-246
    Ceci-246 Member Posts: 50
    edited December 2017
    Oh Sara, that is sweet and comforting. Thank you. Other aspects of the wonderful story I can tell is that despite getting kicked off insurance for an erroneous reason, the kids’ counselor came to the house and talked to them for 2 hours pro bono. He performed magic- at the beginning, the kids were cranky and overwhelmed- I left to take a shower and talk to a friend - when I returned they told me they want to help me because they love me and I need to give them room to help. And we’ve been better since. Also the cat who bit me is suffering. She has diabetes and kidney failure and approaching her 17th birthday. I cried because we don’t have much time left with her - and I was afraid that if she punctured skin I’d have to get another antibiotic. The bite was actually more like a warning to leave her alone, but still scary. I have 4 others (its a long story), who are young and spunky. All 4 have stayed very close to me but away from my chest and tubes and there is always one by my side. It’s so amazing what pets seem to know.

    But I need to heed your words about acknowledging BMX as a traumatic event. My heart goes out to all the women who experience it and then more with chemo etc. There’s a whole other level of fear there, and I am grateful to be spared that right now. I’m in awe of all the women on this site.

    Thank you for being so supportive.
  • sm627
    sm627 Member Posts: 298
    edited December 2017

    Ceci,

    That is wonderful to hear that you have such good things happen to you during this process. So happy for you! I know cats are wonderful healers. I remember my cat sleep with me for a whole month after my MX she was a great comfort. I hope your cat can stay in good spirits and enjoy her 17th Birthday with you all. Glad she just gave you a love bite and it wasn't to bad.

    Glad the teenagers got a good talking to and a taste of reality!

    Wishing you more good sorties and all the other ones in between.

    Keep in touch

    Hugs and Love,

    Sara


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