Just diagnosed AGAIN with IDC

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Gwinnettgirl
Gwinnettgirl Member Posts: 28
edited December 2017 in Triple-Negative Breast Cancer

Hello everyone!

This is my first ever post but I need some encouragement . I had bilat mastectomy 6 years ago for IDC and ILC/ neg nodes . DONE no treatment. oncotype scores 19 and 8. Took Tamoxifen for 4 years. now...found lump and biopsy says 1.7 cm IDC and trible neg!!!

Going back to Emory Monday for advice but really discouraged. really did not think I would be here :(

Do most triple negs get chemo?? Just looking for alittle support and advice.

Txs!!!

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  • kmajor
    kmajor Member Posts: 86
    edited November 2017

    Hey Gwinnettgirl~ I'm so sorry you're having to go through this again. I have stage 2 tnbc my tumor is 2.8 cm. I am now in chemo I finished up 4 rounds of AC and now I'm going in tomorrow for #6 of 12 weekly taxol. I will then have a lumpectomy and then 4 to 5 weeks of radiation. We're all different so I can only speak of my treatment.

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  • Moderators
    Moderators Member Posts: 25,912
    edited November 2017

    Gwinnettgirl-

    We're so sorry that you're going through this for the second time. We can't imagine how difficult it is to process a second time around. We hope that you find support here, we're all here for you.

    The Mods

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  • Nifer
    Nifer Member Posts: 31
    edited November 2017

    I'm so sorry you are facing this again. The good thing is that triple negative usually responds better to chemo then other types of bc. I had a 2.2 cm TN tumor. After 4 rounds of ac and 8 rounds of Taxol the dr says he can't feel it anymore. Chemo sticks but it was tolerable. Everyone is different. Check out the triple negative thread on here.

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  • Flynn
    Flynn Member Posts: 307
    edited November 2017

    I'm sorry that you are dealing with bc again! I have TNBC and I'm doing chemo but I think plans are very individualized. Hopefully you'll get a good plan at Emory. Keep us posted and let us know how your appointment goes.

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  • VL22
    VL22 Member Posts: 851
    edited November 2017

    Hi - chemo is definitely the standard of care for TN, because there are no targeted hormonal therapies. If you look at the NCCN website, recommended to me by my MO, it will show you charts that saywhen chemo is recommended, not recommended and to be considered. With TN 1cm or over, always recommended. Hope this helps and so sorry you're here.

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  • Gwinnettgirl
    Gwinnettgirl Member Posts: 28
    edited November 2017

    Txs for responding! Sorry u have this as well.

    I went to that site and could not find the chemo recommendations. Could you be more specif? Did u have to regester to access info?

    Txs for your help!

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  • Gwinnettgirl
    Gwinnettgirl Member Posts: 28
    edited November 2017

    Thank u!!

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  • Moderators
    Moderators Member Posts: 25,912
    edited November 2017

    Hi again Gwinnettgirl,

    For some more information, you could check out the main Breastcancer.org site's pages on Who Gets Chemotherapy? as well as Treatments for Triple Negative Breast Cancer.

    We hope this helps and we look forward to hearing more from you soon! We look forward to supporting you in your treatment journey.

    --The Mods

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  • VL22
    VL22 Member Posts: 851
    edited November 2017

    sorry so long to respond. If you go to their website and go to breast cancer section, there is a link for stage 1 and 2 - it s a booklet that goes through diagnosis etc - a few pages in are the charts for chemo.

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  • Gwinnettgirl
    Gwinnettgirl Member Posts: 28
    edited December 2017

    Txs all. I had my first AC chemo last Thursday

    . I am doing very well but the inside of my mouth is sensitive and my lips seem to be chapped Drinking tons of water so it’s not that what would you all suggest for inside of the mouth I eat something spicy today unfortunately . Txs!!!

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  • Libber
    Libber Member Posts: 86
    edited December 2017

    I’m so sorry. I was diagnosed Oct 2015 with TNBC IDC in right breast and ER/PR+ LBC in left. Both stage 1. I did A/C chemo. Bilateral mast. Radiation on right side and xeloda. Every day I am concerned about recurrence.

    Chemo is the only treatment that works for TNBC. You can get through it. I am NED 2 yrs later after the treatment. Back to living life and new granddaughter on the way. You can get past this. I was frantic when first diagnosed. Then realized after all was done that I am Ok and looking forward to new life experiences. Have great physicians and nurses caring for you. Rest when you need too and focus on healing

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  • Gwinnettgirl
    Gwinnettgirl Member Posts: 28
    edited December 2017

    I am happy for you!!! Did u have sore mouth?


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  • Libber
    Libber Member Posts: 86
    edited December 2017

    I did have sores in my mouth. My oncologist prescribed magic mouthwash and that healed it very quickly.

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  • Legomaster225
    Legomaster225 Member Posts: 672
    edited December 2017

    Biotene mouthwash and toothpaste worked well for me during chemo. You can get it at CVS,Target, or Walmart. Hope the rest of your chemo goes well.

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