STAGE IV with mets to Lung, Liver and Bone! Feeling scared...

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thereishope4us
thereishope4us Member Posts: 74
edited December 2017 in Stage IV/Metastatic Breast Cancer ONLY

Hi Everyone,

I am new to the forum. Unfortunately, I have just been diagnosed with mets to the lung, bones and liver. I was told that there are multiple (I think quite a number of them) nodules in the lining of the lung. The biggest one, as of a month ago, was 1.8 cm on the right lung and 1.5 cm on the left. Liver mets are less than 5mm. There is one notable spot and 4 suspicious ones. Bones mets at the ribs are less than 1mm at 2 spots. I am ER+, PR+, HER-. I will be going on the Ibrance drug very soon. Not sure if anyone have a similar experience with multiple mets and any successful treatment/survival stories. I am 41 years old and feeling very scared about what's to come. However, I am feeling hopeful as I have read amazing survival stories from many of you and I am building the courage to beat the disease!

Thanks in advance for sharing your thoughts and stories.

thereishope4us

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  • Chicagoan
    Chicagoan Member Posts: 728
    edited December 2017

    Hi thereishope4us,

    I know how you feel. In September 2016 I was diagnosed as "grossly metastatic" with mets to the lymphodes, all along the spine, ribs, liver and a few in the lungs-also had pleural efflusion. Ibrance has worked miracles for me so far-many of the mets have disappeared. I feel 100% better. So get on Ibrance as quickly as you can. Rest, exercise, get rid of as much stress in your life as you can and drink lots of water. I'm pulling for you and hope that you also have great results. There is an Ibrance thread in the Stage 4 Forum that has lots of great information and support. There is hope for us-believe it!

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  • cive
    cive Member Posts: 709
    edited December 2017

    Thereis, here is the link to the Ibrance thread mentioned by Chicagoan.  Ibrance thread

    There are also fairly active bone, and liver threads.  Many of us have mets to more than one place.


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  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited December 2017

    Dear hope, sorry about your diagnosis, but glad you found us. This forum can provide good support and understanding. We are all scared upon diagnosis. Many of us find antidepressants or antianxiety meds help. There are some threads on this forum for newbies of stage iv, so look for them, you will get lots of good coping tips. We are living with mbc, not dying from it. Many good thoughts to you.


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  • thereishope4us
    thereishope4us Member Posts: 74
    edited December 2017

    Thanks so much for your feedback. Your words are like guiding light to me. I had a consult with an oncologist today for a second opinion. Her approach, as many of you mentioned, that this will be a chronic disease that I will have to manage over time. There seems to be a lot of treatment options, so I am feeling much more optimistic. Thanks to you all for the support!

    Thereishope4us

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