Starting Radiation November 2017

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  • Ellyn27
    Ellyn27 Member Posts: 147
    edited December 2017

    Georgia1 - That's interesting about them taking a pic. Were you standing when they took it or while lying down? They didn't say anything about pics to me. I meet with my RO Monday and will see, maybe then. 

    I wasn't sure if we were staying here or moving over to the new december thread. 

  • 53nancy
    53nancy Member Posts: 497
    edited December 2017

    Angela, so glad you don't have to have more treatments tacked on at the end. It's almost like an early Xmas present. 2017 has certainly been a year of experiences for all of us. Here's to a better year in 2018.

  • 53nancy
    53nancy Member Posts: 497
    edited December 2017

    I have already moved over to the new December thread but I will keep checking this one as well.

  • Linwentz
    Linwentz Member Posts: 133
    edited December 2017

    Another Rads treatment done...30/34! Four more boosts to go and this chapter is done. I hope everyone is doing well and seeing that light at the end of the tunnel. Hugs and well wishes toall

  • tlfrank
    tlfrank Member Posts: 199
    edited December 2017

    Georgia1 - my technicians have taken pictures of me twice. Once at the initial mapping session and once at the mapping session for the boost. They took mine while I was still lying on the table - and although this experience has made me loose most of my modesty, it was a little awkward feeling both times.

  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited December 2017

    Linwentz-- you are almost finished!!! That is great news

    Today is my 2nd day without a rad appointment but it feels like ages ago. Funny how time can be fast or slow

  • AngelaJL
    AngelaJL Member Posts: 94
    edited December 2017

    Nancy, I don’t think you had to move to the December thread, since this one was for those starting in November, no matter how long it takes to complete!

    Today was session 16 of 16 whole breast treatments; tomorrow I will have treatment 1 of 5 for partial breast boosts. And Saturday will be my final treatment. It feels like this has been going on forever. I can’t imagine what it’s like for those of you who had 30-40 treatments (or more)!

    My skin is quite pink, though an area in the armpit is dark reddish brown and the skin around the outside of the areola is, too. My RO said today that he gives it a 50-50 chance of the skin breaking down, which he calls desquamation. So he prescribed me some silvadene antibacterial ointment to use instead of Calendula cream, if it does break down. Has anyone else used that ointment? Anyone dealing with open sores?

    Also, how about fatigue? It suddenly hit me mid-week last week, and it’s seems I can’t get *not* tired no matter how much sleep I get!

  • tlfrank
    tlfrank Member Posts: 199
    edited December 2017

    AngelaJL - I have a small open sore on my chest just above the breast and my armpit is getting there. I was prescribed silvadine today but haven't picked it up yet. I have two more full treatments and 5 boosts to go. I'm also experiencing fatigue.

  • Linwentz
    Linwentz Member Posts: 133
    edited December 2017

    TLFrank and AngelaJL--you're almost there! Whoop! Whoop! I had a long treatment plan-- 28 whole breast treatments and 6 boosts. I whined about it for awhile, but it all goes by (rather) quickly. I will be finished Friday... there will be a lot of bell ringing this week!

    I didn't blister or have any sores but my RO (at my request) prescribed a cortisone cream to help with the itching. I have heard good things about Silvadene.


  • AngelsGal57
    AngelsGal57 Member Posts: 145
    edited December 2017

    AngelaJ,

    I am nearly done only 7 treatments left. 2 full breast and 5 boosts. When did your skin begin to show signs of breaking down. I have had no pink skin yet and just some twinges and no itching or peeling.

    Angelsgal57

  • Linwentz
    Linwentz Member Posts: 133
    edited December 2017

    AngelsGal57--after 28 whole breast treatments and 3 boosts my skin has not broken down. I am a tadpink and my areola is discolored & I itched a bit but no blistering or peeling. My RO expects me not to worsen.--I have 3 more boosts to go. I think you have done amazingly well and are in the home stretch woo hoo!

  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited December 2017

    You ladies are giving me hope! Congrats on your countdown and doing so well. I'm just finished my 5th rad of 16 whole breast and then 4 boost. No SEs so far. Every now and then I get the internal twinges but no pain. Im lathering and lotioning like nobodies business sooooo prayerful that all continues well.

  • 53nancy
    53nancy Member Posts: 497
    edited December 2017

    AngelaJL, the December thread I was referring to was the one DodgersGirl started - 2017 Diagnosed. I am so happy for those who are close to finishing or have. I had my 12th treatment of 16 today and now my skin is pink, but patchy rather than solid in colour. No skin issues and I hope I can get through the last four without any. But yes, the fatigue is hard. I have done some of the driving up until yesterday, but now my husband feels he should do the rest. Poor guy; I know he is tired, too, but at least he manages a good sleep at night.

    Lifechoices2017, I think the lotions make a huge difference; I am doing four times a day now. They may be overdoing it, but better safe than sorry.

    Linwentz, how are the boosts going? Three more and you are done! Yaay

  • AngelsGal57
    AngelsGal57 Member Posts: 145
    edited December 2017

    Linwentz,

    That is such good news to hear. I only am doing 20 total. and not even pink skin...been praying.

    Lifechoices,

    it goes by so fast. I was dreading this rad treatment and now I am nearly done. Whew. God is good. Keeping me at peace.

    We are all doing great. Keep encouraging each other. We can do this.

    AngelsGal57


  • AngelaJL
    AngelaJL Member Posts: 94
    edited December 2017

    Linwentz, so glad it's gone so well for you! And you're almost done!!

    Tlfrank, sorry to hear about the open sore and chafing. My RO wants me to use the silvadene immediately if my skin does break down, in an effort to stave off any infection.

    Angelsgal57 (and others who are curious), here's the breakdown on when side effects showed up for me (I've been updating a Google doc every step of the way!):

    • 3rd treatment - Skin becomes sensitive.
    • 7th treatment - Skin turns slightly pink.
    • 11th treatment - Skin is now quite pink and tender, and breast is achy inside.
    • 13th treatment - My armpit is starting to chafe and darken, and the skin around the areola is dark and starting to flake.
    • (After 13th treatment, the radiation machine broke down and so I had an unplanned 9-day pause. No idea if/how this affected things.)
    • 15th treatment - Whole breast is very achy and tender inside. The skin is very pink and sensitive and looks like a bad sunburn. The skin in my armpit is dark and chafing a lot. That's the site where the RO thinks the skin is most likely to break down.


    I'm now up to #17/21. I've heard that side effects can worsen for up to two weeks after the last treatment. We'll see!

  • 53nancy
    53nancy Member Posts: 497
    edited December 2017

    AngelaJL, I am sorry you have had such early side effects. I hope ut doesn't get any worse and that you heal quickly.

    Tlfrank, I hope that open sore heals quickly, and that you have no more issues. For myself, I have had none so far exceot pink skin yesterday, and an so thankful they pushed the high protein. Am pink and sore today - treatments today and tomorrow and am thankful for a three day weekend. The last two treatments are Monday and Tuesday. I will keep lotioning and folliw the high protein regime to the end of the year to avoid any skin breakdown after end of treatments.

    AngelaGal57, thanks for all you have written. I love the way everyone encourages each other.

    Linwentz, counting down to Friday with you. :)

  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited December 2017

    Linwentz, AngelsGal57 and AngelaJL; thanks for the info on the SEs.

    Today I go in for my #6 (of 20); I feel like Im counting up to the 12 days of Christmas. But Im a 1/4 of the way in and no real SEs to report. Swelling and random twinges but not sure if thats the rads or still healing from the surgery. But still no pain. Last night (on a personal note) I had hot flashes (49yrs old) and i literally had to come out of my tshirt; slept like a baby til this morning. Im still lotioning througout the day. Im african american so I think I see a bit of skin darkening just under my breast but nothing itchy, cracking or patchy. The joy of my afternoon rads is I get to leave my sessions with OR WITHOUT a bra (the little things)!

    In my mind Im like; 2 more days and Im 8 down and really 9 to go (whole breast) w/4 boost. So Im prayerful that my SE's are few and as lessened as possible (thanking your Lord in advance for your cover and protection).

    For all those w/SEs I'll keep you in prayer for comfort and a quickened healing!

    Every Wednesday at 6am my church does a conference call; Wednesday Morning Inspiration. This morning it was 2 Corinthians; 9-10 (And he said unto me, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me. Therefore I take pleasure in infirmities, in reproaches, in necessities, in persecutions, in distresses for Christ's sake: for when I am weak, then am I strong.)...

    With that being said; we are the STRONGEST at our weakest point! We got this ladies. Truth be told we were strong before all of this; THIS has only made us stronger! My continued prayers for all for strength, peace and healing!

  • 53nancy
    53nancy Member Posts: 497
    edited December 2017

    Lifechoices2017, thank you for your post just now and those verses; I just love them. When I was trying to decide about chemo, I prayed for a sign that if all my tests came back negative for cancer, I would decide not to do it, and my prayer was answered. To me, Faith is that whatever happens to me is either God planned or God permitted; therefore, it is the best thing for me. My future is in His hands.

  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited December 2017

    53Nancy; you are so right! When I was first diagnosed I think I thought of 100+ things to say yes or no to. I prayed to God to 'remove this cup' from me and if not that whatever my path that Id be blessed w/less is more...lessened pain, SEs, treatments, time from work etc...BUT more than enough to heal and restore me; physically, mentally and emotionally! And He's doing (He's done) just that. I can't be anything more than thankful and blessed for His grace and favor shown. I told my mom yesterday that God saw all of this before I did so I have to believe that if he can allow birds to fly, me to rise each morning with peace of mind, then surely HE can handle this!

  • AngelsGal57
    AngelsGal57 Member Posts: 145
    edited December 2017

    Lifechoices: Thank you for sharing those verses. They are an encouraging comfort. Whatever we face we can face with God on our side. He will give us what ever we need.

    Keep sharing I have only one more full breast treatment to go and 5 boosts. Still no pink skin though I do have a pin prickly feeling off and on. Praying every day that the SE are minimal and that I can meet the challenges whatever they may be.

  • AngelsGal57
    AngelsGal57 Member Posts: 145
    edited December 2017

    Hi Ladies,

    I have finally begun to get some skin changes on my 14th treatment. My areola is darkening now. and compared to my left breast is starting to get pink. Going to start slathering Aloe Vera gen 3 times a day and Calendula cream also.

    The hardest thing I am dealing with now is the fatigue. I am dog tired after sleeping all night and have to work an 8 hour day every day. We are slow and there isn't a whole lot of work to do during the month of December at the label printing company I work for. Trying to not focus on the clock cuz it feels like time is standing still. in 10 minutes I go to lunch with a friend and that will take a huge chunk out of the day.

    Praying that it gets better this afternoon.

    Angelsgal

  • tlfrank
    tlfrank Member Posts: 199
    edited December 2017

    One of the lymph nodes in my armpit has become quite tender. Also, my pectoral muscle and breast are very achy. Any one else experiencing this? Today will be my last full breast treatment, will have 5 boosts beginning tomorrow. Eating protein at every meal, lathering on every substance known to man....trying to minimize these side effects but I feel like I'm starting to lose the battle.

  • EmmyEdward
    EmmyEdward Member Posts: 15
    edited December 2017

    I'm a third of the way through my treatment and I definitely notice fatigue. I guess my RO is the only one who is trying to damage my skin!... because I wasn't having enough reaction they've increased my dosage... instead of 3 boluses per week I now get them every day.

  • EmmyEdward
    EmmyEdward Member Posts: 15
    edited December 2017

    Oh I also asked why I wasn't being instructed to do breath holds. The RO said in my case it's because I use my diaphragm to use breathe (I thought everyone did, but apparently not). One of the techs also said breath holds are more often used for intact breasts (I've had a single mastectomy).

  • tlfrank
    tlfrank Member Posts: 199
    edited December 2017

    EmmyEdward - I'm not doing a breath hold either, although I'm finding that I do it anyway out of sheer nerves.

  • Brightness456
    Brightness456 Member Posts: 340
    edited December 2017

    I finished today! My skin is a little pinkish but not bad at all, but I’m supposed to be prepared for it to get bad over the next 2 weeks. I want to get some calendula cream just in case since I haven’t used anything up to this point.

    I’d planned to celebrate being done, but now I’m having heart palpitations and neither my MO or RO seems to think it has anything to do with chemo, herceptin or rads. If I have one more thing wrong with me (that’s apparently unrelated to treatment), I think I might finally break and give up. I was healthy and vibrant earlier this year. Now I feel like I just move from one health issue to the next. This is not me..

  • AngelsGal57
    AngelsGal57 Member Posts: 145
    edited December 2017

    Brightness,

    Don't be discouraged. Our bodies are going through a tramatic stress with this RAD treatment and it can affect our emotions and make us feel like we are being manipulated by this disease and that is just not true. We must allow ourselves to have some bad days where we feel like its all dark clouds and dreary fatigue, but that should not define us or control us and make us think that is all that there is for us from here on out.

    We are going through one moment in our life and we will see it come to an end. It has been tough yet we are growing stronger because of it. I just want to be a light and an encouragement to others and give them hope.

    If you are a praying person, pray for courage and strength and hope through what ever you have to face. And you are not alone in any of it. We are here for you.

    Angelsgal57

  • Linwentz
    Linwentz Member Posts: 133
    edited December 2017

    AngelsGal57--your words were very encouraging & uplifting. I agree that our bodies are going through traumatic stress and our emotions at times can be erratic. We are going to have bad days and that is okay. Here are some of my coping strategies: journal, exercise, meditate, do yoga, pray, take long walks, nap if I want to, avoid people when I want to, and share my thoughts feelings and experiences on this site!

    Brightness36--congratulations on finishing! Woohoo! I know how you feel about wondering how you'll cope if there is one more thing wrong with you. I have a colonoscopy scheduled for February & shoud schedule a skin check..there is a little pink skin bump on my thigh that is slightly irritating. Dreading them both. But I have faced this whole breast cancer ordeal better than expected...so I guess I will have no choice than to deal with whatever else comes my way. Fingers crossed that both are nothing!

    Anyway,, 2 more rads and this chapter is done!


  • AngelaJL
    AngelaJL Member Posts: 94
    edited December 2017

    Brightness, congratulations on finishing radiation! I hope you can get your other health issues sorted quickly and painlessly.

    Tlfrank, yes, I’ve got the sore pectoral muscle, too, and the achy breast.

    19 down, 2 to fo

  • 53nancy
    53nancy Member Posts: 497
    edited December 2017

    Brightness, congratulations on finishing rads. May you heal well and quickly.

    AngelaJL, the end is in sight for both of us. Will you finish Monday? The machine here is having maintenance done tomorrow, so I won't finish until Tuesday. Will also see RO that day., for the first time since initial consult. Very sore and tired tonight; will hold off until bedtime to take something for pain, as I hope it will help me to sleep.

    Linwentz, thanks for suggestions for coping. Good luck tomorrow on your last session, and with healing.

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