Biopsies the week after Thanksgiving anyone?
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Hi all - my biopsy is Thursday but I feel like it's not the week after thanksgiving anymore. Can I post here or no?
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NSwrites, you are absolutely welcome to join us here!! Welcome.
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I'm thinking of all you. They have ruled out Breast Cancer so I will say good bye to you all. Wishing you all the best.
Quick update - I called in a favor my cousins xgirlfriend is a PA got me into see an oncologist surgeon this morning did a exam including another ultrasound of lymph node. I will have my lymph node removed & further genetic testing next Wednesday due to size & symptoms he thinks it is best to remove vs another core biopsy. Core biopsy didn't do much testing except for breast cancer even in my lymph node. Have a lab slip to get a ton more blood work done, week following I will see Hematologist to rule out lymphoma. Sad that isn't what you know but who you know. I feel much better with a game plan & no longer waiting (I still haven't heard from Dr. in my home town).
Thoughts & prayers for each & everyone one of you, solid game plan & full recovery. Best wishes
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hi alll got the call this is what I was told my nurse she stayed “tissue tested was negative” yauyyyy then there was a but... she said that she is waiting for radiologist to speak to my Nurse practitioner I was so relieved I didn’t even have time to ask questions so I sent an email once I gathered my thoughts got a reply stating it’s not a fibroadenoma/cyst may need additonal testing surrounding area for I don’t know what and will most likely require excisional..... soooooo I’m grateful and thank you for alll your support so again happy but now confused your all wonderful and I’ll continue to pray and keep you posted by Friday I should get phone Call regarding f/u recommendati
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NS...you are welcome to join us in waiting any week of the year. Welcome!
Deb and cycling...so happy to hear your results! Take care to the both of you. We are here should you ever need us (I hope you dont)
Dagny looks like it's just us dcis sisters...I'll be heading over to the just diagnosed side soon. I just can't go there yet until I know what I'm dealing with. Tonight's a rough night. Not sure why tonight. I was doing mentally very well over the weekend and yesterday. Today's rough.
Didn't see anyone getting results tomorrow, I don't think. Looks like we are all Thursday and Friday. Sending warm thoughts to everyone for patience and strength
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DagntT: thank you for you kind words will keep you updated.
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breastintentions...hang in there! This waiting game is torturous. We are here for you while you wait and when you get results which will hopefully be b9.
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Deb and ShyAnn and Cycling - did I just read that all of you are in the clear?? Hallelujah!
I'll check back in tomorrow to see if anyone else has heard results. Thursday is my surgery - depending on results of the MRI done today, that is, so I'll be signing off for a few days while I heal and reflect. And then I'll be on to the next phase...
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Hi everyone, I've been following this post for a long time. You have so much strength, and I am sending thoughts and prayers (if you accept them!) to each and every one of you!
I had a lump in June and my OB referred me for a mammogram and ultrasound which were clear, however due to density I was given an MRI, which found an area about 2.5-3 cm of non-masslike enhancement and a 6mm mass, both in the right breast. I was given a BIRADS 4 and sent to a breast center for an MRI-guided biopsy, since the ultrasound didn't pick it up. In August, I was supposed to have the biopsy, but when I got there the Rad decided against the MRI, and tried to do an ultrasound-guided instead, for some strange reason. She said several times that she couldn't find the area, but still took 12 cores from an area in my breast, which then came back as normal breast tissue/fibroadenomatous changes. I saw the breast surgeon for my follow up where I was told that they didn't even look at the 6mm mass with irregular margins, because I was under forty and I couldn't have cancer. (I'm almost 38) He said that he, "Wouldn't worry about it because even if it was cancer it would take several years before it would be the size of my pinkie nail." I came home from that doctor crying and in disbelief, it was a four hour trip (they didn't even bind me, I got a huge hematoma and lymph issues as a result) and my primary was furious. She said that it wasn't supposed to be ultrasound, and that they had done half the job. Anyway, we decided to go to a different breast center, in a different state.. They had me do another MRI eight weeks after the first one to ensure that the lesions/ROIs were still there, before taking the time to travel there, etc, when we saw the MRI we were shocked to see that the nonmass like enhancement has not been changed at all, it doesn't look like any of the tissue has been removed, especially 12 cores worth of it. It is the same shape, same size, the report says that it is unchanged from the previous report. The biopsy clip is nowhere close to the region, although those can shift, taken with the fact that the area still is the exact same as it was before the biopsy, it looks like it still hasn't been biopsied. And they didn't even attempt the mass. So now, I am scheduled a week from today and I am full of anxiety. It's like this process is just never ending. I have just had to deal with one thing after another, I thought for a while it was over but then finding out that it wasn't even close it was like making it even worse. To add to it, come to find out, in the second MRI, they said that the left breast has an area of "unchanged" multifocal nodules and there are other nodules around the 6mm mass in the right, so it looks like the other ones are kind of in a grouping around that one main focus. Those are also unchanged, so they were there in the MRI eight weeks earlier, they just didn't note them in the report. So, in less than a week, I'll be having 2-3 biopsies, depending on if they decide to biopsy the left as well as the two areas in the right. And it's just really getting to me. Even though I've already "been there done that." Sorry this was so long, I just needed to vent I guess.
I really have enjoyed reading your stories, I've cried for you guys, and been so hopeful and crushed, alternately depending on what has been going on with your diagnoses. Now that I'm facing another round of biopsies, around another holiday, I thought i'd join your club for a little companionship. Much love to all of you.
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Thanks Pharmagirl, 2 more days of waiting then at least I will have an idea. It's like waiting outside the principals office:-) I thought reading these posts would give me a better indication of what result I could expect on Friday but it all seems so random and only the biopsy result will give any real answers. Birads 4 is like sitting on the fence..
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breast intentions, one thing I can share is that I had biopsies on both sides (yuck) and was BIRAD4 on each side. As you know, one side came back with problems. But the other one came back b9.... so the same issue (calcifications), pretty much the same size area of concern and the same BIRADS score came back with two totally different results. So stay strong and don’t consider BIRAD4 to be definitive about anything at this point. Two more days to go...you can make it!
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Welcome beachside. Sorry your journey has been even longer than most of us, yet you find yourself in a similar waiting pattern. Let us know your biopsy dates so we can send you our good wishes. I know you’ve already gone through unsuccessful biopsies, and so you know what that experience was like for you. I needed biopsies on both sides, and despite how difficult it was I am glad that I decided to do them all in the same appointment. So if it an option for you, I would do everything at once....you’ve already been waiting a long time! Good luck and keep us posted
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DagnyT, did you have lymph nodes involved? I think that's what is stressing me the most, a subclavacial and axillary node. Anyway as you say two more days....
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So I just got a call from the radiologist who said they have the final from Nashville which is positive for DCIS and then he said the final is Invasive ductal, Nottingham Grade 2. Negative for lympho invasion. None of the ER, PR or HER are back yet. I asked about IBC and he said that is a separate biopsy of the skin. So now I'm even more confused than I was earlier. Is IDC a progression of DCIS? Are they 2 different things? What about the IBC? And I have horrible swelling and skin changes and peu d'orange? If this was a separate biopsy of the skin why wasn't this done during the last week I've been waiting for these results??? And I tell patients to stay off the internet cause WebMD is not your friend and yet I get this call and I'm even more confused which is causing me to go search the web. UGHHHHHH SO FRUSTRATED!!!!
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PharmGirl: I’m so sorry to hear about the IBC. Even though they have said they do not believe my wife has IBC, they are treating it just as though it was IBC. It does indeed seem like our situations are similar. I hate that you’re dealing with a skin biopsy. That confuses me too. It may very well be that my wife has IBC then, since they didn’t biopsy the skin. Maybe it doesn’t matter since they’re treating it as though it is IBC.
Our surgeon was very encouraging about the prognosis though. She said even it IS IBC the prognosis is “very good”. We know that two of the three ER, PR, HER tests are back and they’re not what we wanted them to be. Hopefully the other will work so we’re not dealing with a triple negative situation.
But even if we are, I have a co-worker who had triple negative 10 years ago. She said the chemo was rough, but she’s in perfect health today. It’s so hard to go through this. I can’t help, but I can be frustrated with you!
This site is amazingly helpful. Will you let us know once you get confirmation on IBC? Do you have any appointments lined up for a surgeon or oncologist yet
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DagnyT, thank you for the welcome, I really appreciate it. Yes, I've been through the biopsy process, although not the MRI-guided, which I'm a little nervous about now. I didn't have a great biopsy so I have a little bit of apprehension but I'm just glad to have it all done. I go in on the 12th, so a week from yesterday. I have to check in at 12:45 mountain time (Denver) and we are going to drive there in the morning and they said I could have a light lunch so I'm going to enjoy myself and hopefully have a nice lunch in the mountains with my husband beforehand and just try to relax. They will hopefully have the results by the end of the week they said, I'm guessing it could even be the beginning of the following. It's around a four-hour drive there, and back, so about eight hours travel time that day, so I'm trying to decide if I'll work the next day or if I'll be too sore, etc., but I'm just overthinking everything, I can't believe I don't remember how it was last time, even though it's only been a couple of months.
Have a great day, everyone, It's Wednesday, almost over the hump!
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Welcome beachsidesunset and nswrites! Nswrites my biopsy is not until next Thursday as our clinic is small and booked my wait has been long,
So happy for the b9 results we have had in our group and glad the positive results are treatable thus far sorry for positives waiting to see stage and hr status
I have had a surveillance on enlarged medastinal lymph nodes I have been seeing a pulmonary doc and this week was my 4 month follow up cat scan to see if nodes are still enlarged my appointment to see doc. Was next week
I can't wait got report made appt for tomorrow at least I can get that out of way there is a new nodule on lung that is very small 2 mm medastinal nodes are still enlarged of course I looked all this up and in my mind not only worried about bc but worried As my area of calcification is on the inner upper quadrant and if there is a tumour can drainto internal mammorry glands some will then drain to medastinal and bc in lung would start showing nodules so rather than another week of going crazy I at least can discuss that wth pulmonary doc who will probably want to scan again to see if node grows if my biopsy comes back positive depending on diagnose may change course for lung and lymph survelliance I have been strong and keep telling myself this is all incidental findings with all the scanning and screening but I hope these puzzle pieces are not involving each other uggggggg going crazy here way ahead of mysel I know I was upbeat and patient for 5 weeks of waiting now I am going nuts...
Sherry
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beachside....welcome! Hang in there for your biopsy. Positive thoughts coming your way. There is a great post (by I think Dagny) about enjoying moments. How the hot water feels in the shower, the simple things. Take the time with your husband and enjoy every moment.
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It is officially Thursday. I can't sleep because I know I should get results today. Anyone else getting theirs today?
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jdagr..I have appt with surgeon at 1pm. I have some results but not all so hopefully she will.be able.to tell.me.more. positive thoughts for us today. I'll check back in later and see how it went for you
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hi team. I’ll post a more detailed update later today. But just a quick note to say I am back in the waiting box with some of you (eyeball roll). Had my appt yesterday with the bs at Dana Farber...will share more details about that later today also and I’ll post before pharmgirl has her appt today so I can share tips. But they did the skin punch biopsy while I was at DF and have sent that out for Pagets testing....I should have results from that on Monday. That makes a huge difference in my treatment options....the waiting feels just as stressful this time around and I’m back with y’all on the train.
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dag, sorry to hear you are back in the waiting room with us. I have a feeling I will be spending a lot more time in this room as well. My PCP just called and told me to prepare for the surgeon to do more testing. It sounds like they are unsure if there is lymph node involvement and I suspect they will skin biopsy today as well to test now for ibc. Hurry up and wait seems like motto lately.
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Just a random thought while sitting in an actual (and virtual) waiting room with y’all. So much of what I’ve been mourning for my wife is for future pain and difficulty. Most of her pain is the IBC like symptoms and the emotional drain of information and test after test after test.
But a survivor friend of mine remineded me that not all of our days in the upcoming months will be bad days. Yes, some will be difficult, but some days will be good.
I need to remember that, and I hope you can too.
PharmGirl, you’re in my prayers, please keep us updated. In some ways I think this is the hardest part. Once we have a final analysis and plan moving forward we can focus on beating it, instead of wondering like we are now.
My wife has slept well, I have barely slept at all since the initial diagnosis. I reached out to my PCP for something mild to help me. If you’re struggling with getting your rest, don’t hesitate to ask for help.
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Happy Thursday everyone - I have my mammo/US/biopsy today and am dreading it like mad. Hope it will yield some answers. Holding hands and waiting with all of you...
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Hope it goes will NSWrites. We’re hoping for good news with you. Please let us know.
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Hi all,
Bowser, what a great perspective to share. You're right, every day is going to be different and not every day will be a bad one. Make sure to take care of yourself too. You are going to be a critical part of the team working with your wife, but you need support and caretaking too. What is the next step for you guys? Are you waiting for the last of the ER/PR/HER2 tests to come back? Are there further tests being ordered? Let us know your timing so we can keep you both in our thoughts.
NSWrites, good luck today and let us know when they think your results will be back. I'm waiting for my new biopsy results hopefully on Monday, maybe you'll be on a similar schedule.
PharmGirl, I know you're probably sitting in the real waiting room for your apt right now! I'm sending you hugs. Let us know how it goes.
Jdrager....any news yet?? We're hoping for b9 results for you today!
Beachside -- we're going to both be with docs on 12/12. That's the date of my second opinion with a bs at Sloan Kettering. So I'll be thinking about you on Tuesday. Hope you can do something enjoyable after such a long trip out there.
Breast intentions - sorry I didn't see your question earlier. Right now there isn't anything suggesting lymph node involvement. But yesterday the bs said that because i have an "invasive" cancer (not just DCIS) that they would do a sentinel node biopsy when i had my surgery and they would confirm if they were affected. Remind me how you found out that you might have a lymph node involvement (sorry mush brain today).
If I've forgotten anyone, very sorry, super tired today. But sending you all good wishes.
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Still waiting....
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Well I'm done with my tests... but they didn't biopsy anything. Just did the images. My test was ordered stat because of the dark discharge so I should have answers soon, but I'm really confused... I don't get how I could NOT need a biopsy with the whole dark discharge symptom.
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Hello everyone! I have been reading this thread for a while now and just want to say I appreciate you all. I myself am in the waiting for results group. I am 32 and found a lump on November 1st (feel it on the first). I had a diagnostic mammogram and ultrasound (Birads 3) and told to return in one month for a follow up ultrasound. I had that today and now have to go back tomorrow for an ultrasound guided biopsy. I know that the odds are in favor of it being b9. I just worry because I am taking estrogen as I had a complete hysterectomy for other problems. Thank you all. Thinking of you
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well, it' been an emotionally exhausting day. Im.out of the dcis and idc group and have entered the confirmed IBC diagnosis group. The exact diagnosis I didnt want to hear. However, there is no lymph node involvement which is good. I have appt with MO next Wednesday to discuss next steps. And I have an appt with genetic counselor next Wednesday as well since I'm "young" not sure how 48 is young but I'll take it. Most likely chemo every 2-3 weeks for 8 cycles, then surgery. I don't have any hormone stuff back yet but should be any day. That will determine my exact chemo.
We told my daughter' and parents tonight and it kinda made me relieved. I feel like we spent tonight rallying the troops for war and now that everyone has answered the call I'm ready to fight.
I'm praying for each of you. I will stop by tomorrow and read more how everyone' day went today. Hugs to each of you. I'm so glad i found this site.
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