just diagnosed 2 wks ago...

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jgd78
jgd78 Member Posts: 11
edited December 2017 in Just Diagnosed

hello, i am 39 and was diagnosed 2 wks ago with BC in my right breast. i had wks of testing and was beyond stressed. i do not know grade or stage yet: did all my testing for spreading ct, bone scan and of course mri prior to my surgery dec 8. those tests came clear and i really hope that's the case. the mri told us the cancer is much more extensive then we thought and dr BS recommends mastectomy but left the decision up to me so i agreed and said let's do it. i am eventually removing other breast too even tho it's clear just to be safe but later on after some treatment and ill do reconstructive.i am so worried about spreading to lymph nodes now as my armpits feel funny just started recently. what symptoms did anyone have before finding out lymph nodes were involved or did anyone have symptoms and nodes weren't involved??? thanks everyone

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  • Leatherette
    Leatherette Member Posts: 448
    edited November 2017

    I'm sorry to hear about your new diagnosis, Jenny. I had no lymph node involvement, but my nodes also hurt after diagnosis. It may be the stress is causing you to come down with something. I think that's what was happening with me.

    I hope you get the best possible news regarding the details of your diagnosis.


    -Leatherette



  • samp7
    samp7 Member Posts: 17
    edited November 2017

    I also started to feel pain in my breasts and under my arms almost as soon as I heard I had breast cancer. Even after the MRI came back clean for the nodes. I think I get so focus on the cancer, I notice every little twinge and multiply it ten folds when I wouldn't have notice it otherwise.

  • GreenEyes81
    GreenEyes81 Member Posts: 389
    edited November 2017

    Hi JennyGD, welcome! Happy you posted and shared, you are not alone and later when things "slow down" we will still be here. :)

    I had 3 lumps after all my testing which was multi focal, I was not able to decide between lumpectomy or mastectomy at that point. Super glad to hear you got all testing done ahead of time specifically and MRI. It seems not all doctors do that sadly.

    Do you have an idea yet what you might do for reconstruction? Depending on what you are leaning towards, you may want to consider having both sides done at once. If you have questions feel free to ask or PM me. I am currently a uni, it has its own challenges I never thought of until after the fact.

    Good luck with surgery, rest up. Get the house in order, maybe some froozen meals in the freezer. :) Just don't over do it and surgery isn't too bad. :)

  • Peacetoallcuzweneedit
    Peacetoallcuzweneedit Member Posts: 233
    edited November 2017

    I did not have nodal involvement and I did not have any signs either....however while some ladies may feel pain, hardness, swelling, etc...cancer doesnt sometimes show any symptoms. At the same time, many symptoms one can feel in the nodes are signs of other problems BUT NOT cancer....so I know all of this is difficult, but hang in there....the funny feeling can be other things...

  • jgd78
    jgd78 Member Posts: 11
    edited November 2017

    thank you ladies! it did start after being diagnosed with the nodes now that i think about it. as for the reconstructive surgery yes i'm having them both done at same time. not sure what type of implant i'll be getting.

  • jgd78
    jgd78 Member Posts: 11
    edited November 2017

    hello, did any of you ladies do natural treatments while doing chemo or rads? i hear vitamin c iv is a great one and certain teas too but worried that it will mess with chemo or whatever treatment i'll need. confused on this.

  • swg
    swg Member Posts: 461
    edited November 2017

    welcome! So sorry you're here because I don't want any more ppl getting this disease but glad you are here because you'll get great info and support.

    Don't panic about your lymph nodes..I had pain that I think waa due to my biopsies. My left breast is clear and I still had pain under my left arm. I think biopsies trigger your immune response that may cause inflammation and pain.

    I don't know yet about lymph involvement because I only had surgery last night. But my oncologist said the MRI didn't show any.

  • chronicpain
    chronicpain Member Posts: 385
    edited November 2017

    Glad you came through ok yesterday! I was thinking about you around noon your time,

    My surgery was a week ago, preliminary path on the sentinel nodes is negative and I have clear marguns, , but I could swear as soon as I had my mammogram two months ago that I started feeling something in my armpit . Power of suggestion?

    I see the oncolonist today who will likely try and talk me into radiation anyway despite my low grade tumor and risks for radiation. My surgeon took my drain out yesterday and could not understand why I still have so much pain, 7-9/10, despite my discussion with her before that I have chronic pain sensitization from RSD, PMR, and fibromyalgia. Some docs do not listen very well and want to fit people into a box

    I will do my best to offer all information, listen carefully, and balance risks and benefits, without fear of asking questions, politely but assertively. We have the right to be involved in decision-making



  • chronicpain
    chronicpain Member Posts: 385
    edited November 2017

    Always check with your oncologist before adding supplements, some can interfere, depending on what cocktail of care you are on

  • msphil
    msphil Member Posts: 1,536
    edited December 2017

    hello sweetie I was diagnosed at 42 while making plans for Our 2nd marriages idc stage2 0/3nodes Lmast 3 months chemo before and after got married then 7wks radiation to Inspire u and others to have Hope I am now a 23yr Survivor Praise God.Hang in there. msphil

  • DxAt37
    DxAt37 Member Posts: 52
    edited December 2017

    hi, I just got diagnosed 10days ago as well.

    My surgery is scheduled for dec 13th.

    Did you have BRCA test done?

    I am beyond scared my nodes will be involved even though US and MRI shiwed they’re o

  • bevin
    bevin Member Posts: 1,902
    edited December 2017

    Hi there, I was diagnosed very young too. The impact this diagnosis has on our psyche is amazing. I had many symptoms after diagnosis that I surely felt were mets signs..  I'm doing fine. Praying your surgery goes well.

  • DxAt37
    DxAt37 Member Posts: 52
    edited December 2017

    SWG, I really hope your nodes are clear

  • pupmom
    pupmom Member Posts: 5,068
    edited December 2017

    I had no pain in breast or lymph nodes before and after being diagnosed. MRIs and ultrasounds indicated no lymph node involvement. After surgery it was found I had 2 with micromets. You really won't know anything until they examine all the tissue. Best wishes. You are way too young to be dealing with this.

  • jgd78
    jgd78 Member Posts: 11
    edited December 2017

    thank you all so much. my US and mri indicated no node involvement as well. i am still scared. should i have gotten both breast removed at same time or is it ok that for now i'm removing just infected breast? i was told by BS that due to the surgeon being busy and recovery will take longer with full mastectomy for both breasts it's better to just focus on removing the infected breast so i could start treatment asap. what are ur thoughts? th

  • swg
    swg Member Posts: 461
    edited December 2017

    My nodes WERE clear! Yay! so relieved :)

    My tumors were smaller than the biopsies indicated,too, which puts me at Stage 1A :)

  • swg
    swg Member Posts: 461
    edited December 2017

    jgd28 --I only had a unilateral mastectomy and am so glad I did. other than pain that is to be expected and discomfort from the awful drain, I'm doing ok. Very mobile..can still go out and do stuff a week later.

    If I'd removed both breasts I'd be way more incapacitated. When I did research, I saw no benefit to removing my healthy breast, tbh. It doesn't cut down risk of recurrence to do a bilateral and remove a healthy breast but many women do it anyway.

    I'm happy I still have a breast with feeling. Hard to get used to the numbness of my cancer breast. I did nipple and skin sparing. Very glad I did although the TE's are just as uncomfortable as everyone says they are. Ugh.

  • swg
    swg Member Posts: 461
    edited December 2017

    and btw BRCA test might change your opinion on removing the healthy breast.

    My genetic tests were all NEGATIVE. Had they been positive, I probably would've done a bilateral.

  • GreenEyes81
    GreenEyes81 Member Posts: 389
    edited December 2017

    That is awesome!

  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited December 2017

    Jgd78:

    Such a personal choice (if given multiple options from your surgeons) and one debated greatly on this site. (Search and you'll see many discussions you can read through from recent past).

    My decision on BMX and why.

    (1) Initially, lumpectomy was discussed with my BS. (They were okay with UMX/BMX as well. Up to me but I'm sure they favored lump.)

    (2) When I had my MRI, another area of concern was noted. My choice at about 2 weeks out from surgery was another biopsy or UMX. So -- that made that choice. No more biopsies.

    (3) Now, I talked to three PSs and ALL warned me away from lumpectomy but only due to my very small breast size. Cosmetic, nothing to do with cancer, that advice. Lumpectomy would have taken most of my breast.

    So, I struggled with taking one versus both. Exactly as SWG says, it's more surgery and more recovery. Both arms involved at the same time. More chance for complications, I guess. Loss of sensation (numbness). All that. True to various extents depending upon the person.

    (4) Main reason I chose BMX is that mammography never, not even with me telling the radiologist exactly where my tumor was, found anything. I had very small, dense breasts. US almost missed it. SO -- I could not see leaving myself with annual mammograms or begging for MRIs, which was all I felt safe having in the future. Mammograms were not my friend. (And I'd been having diagnostic for almost ten years due to family history -- starting at 39 -- with nothing seen.)

    (5) I'm BRCA-, however, my mom and I both have ILC. So...I think they haven't found my genetic connector yet. I don't know -- I just wasn't sure I trusted my breast tissue anymore, which I know is not a scientific way to think about it. ;)

    POST: When I went to an MO recently, head of the breast center, focuses on younger women, she said very nonchalantly, "oh, good you got BMX because you have LCIS and that is greater predictor for cancer in the other breast". Which I'd frankly never heard before. Maybe only her opinion. Idk.

    So even though BMX was not the easiest experience in the world (but it was doable), I don't regret it. But it's a terribly personal decision and you'll find folks who have done all three options (lump/UMX, BMX) and they will all tell you why and why they are glad they chose __. However, I will say that I personally would go BMX rather than endure another surgery in the future with another breast. But that's just me. If I had to do it again, the only thing I might push for is direct-to-implant without tissue expanders. I had nipple/skin-sparing and did not go very large. I might have been able to skip those damn tissue expanders. (Which are doable, too, but not the most fun.)

    GOOD luck and know we're here for you! Ask any and all questions.

  • DxAt37
    DxAt37 Member Posts: 52
    edited December 2017

    awesome news! I am happy for you

  • pttymc
    pttymc Member Posts: 1
    edited December 2017

    anyone hear of magee (spelling ?) equations. Waiting for my oncotype to come back...path report: ER + > 95%, PR + >95%, her2 neg, 2.3 cm, clear margins, 0/6 nodes, Ki 10-15% intermediate. Had surgery Nov 9 now waiting to see if chemo needed. all depends on Onco score,

    Magee equation link requires H scores for ER and PR..H score is different than the raw percentage values...anyone no if high ER/PR percentage = high H score?

    you can google to get equation link..cannot include link here (I am new)

  • GreenEyes81
    GreenEyes81 Member Posts: 389
    edited December 2017

    Intereting, I have never seen that pttymc. I searched and searched for something like this when I was waiting for my DX score. lol

    I'm not so sure about its accuracy though. It gave me two scores of 26 and one of 28. My Onco was 15.


    Link for others- http://path.upmc.edu/onlineTools/mageeequations.ht...

  • DxAt37
    DxAt37 Member Posts: 52
    edited December 2017

    EastCoast, thank you so much for your informative post! I found a lot of usuful info for me. As a newbie, I really appreciate you sharing your experienc

  • kLYN1459
    kLYN1459 Member Posts: 2
    edited December 2017

    I was diagnosed in August 2017. I have had the surgery and it was a lumpectomy on my right side with 2 nodes removed. All came back with no leads and no cancer in the nodes. It was my decision to just have the lumpectomy. I could not see doing anything else with my results. I am sorry you are so young and going through this. It will be fine though I am sure , you sound positive and sure of your choices. I had swelling under my arm where the nodes were but there was nothing there. I think they feel weird after you learn it is a positive. I would not worry as of now because it may just totally be because of the stress waiting to find out. Be positive and never let it take you down! I will be praying for healing, peace and comfort for you.

  • Abby4G
    Abby4G Member Posts: 11
    edited December 2017


    I can relate to all you are saying here. It's so good to know am not alone. Have just been diagnosed with IDC two days ago after a lumpectomy and duct excision. Mnwhle, the mammogram and ultrasound came out as fibtoadenoma but I insisted my doc remove the lump and do a biopsy. Don't know the staging yet but have been scheduled for scans to check for metastasis. Have been really depressed and sick since I got the news but thank God for this support group. It's really helping me pick up my courage. T

  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited December 2017

    Abby4G:

    So sorry you've had to join this group -- but you found the best place for support/advice/encouragement/knowledge.

    Ask anything you can think of and someone will answer. We're here for you. I'm a relative newbie, too, and can tell you (pretty much promise) that this journey gets easier. When you have a plan in place and more understanding of what your situation is.

    Warm thoughts and a virtual hug going out to you from me.

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