Reconstruction-How many revisions did it take to get it right?
I had DIEP recon. I expected one revision and nipple surgery. After 2 revisions, one foob was still shaped funny, but PS said it was as good as he could get it. That PS moved, so I got someone else in the practice for the nipple recon. He wanted to do one more revision, said he could make things look better. Wow, was he right! Both look great now, plus he did areola and nipples at the same time.
I don't know what to attribute this to, surgical skill or it just takes a few tries to get it right? I wonder if my new PS would have been able to get this result with the first revision.
Guess I'll never know, but would like to hear about other's experience.
Comments
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Gosh maybe I should reconsider, I've had my stage 2 and I think one of mine looks deformed. And my surgeon was so excited about taking me back in there, he just couldn't wait. And this is his best work......I don't think so. I hate one of mine and sort of like the other considering they aren't my natural boobs. I'm really glad for you that you finally have what pleases you, this cancer crap sucks and we women go through hell. God bless all of us.
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Chiefswife, is you PS offering another revision? Maybe you should get a second opinion. I know what it is to hate one, that's how I felt after my first revision. My righty was a wonky shape plus it was much larger than lefty. My original PS tried to talk me into being happy with it, but I insisted he try again. After the second revision, the size was closer, but the shape was still funny, plus I had a roll of side boob that the new PS eliminated. My boobs no longer look like they begin under my arm.
At my last visit I said something to the nurse about how happy I was that the new PS was able to get such a great result while the last PS did two revisions and it still wasn't right. I was insinuating that the new guy is better, but she didn't agree, she just said "sometimes it takes 3 times". So I don't know if its just that difficult or what. I do know that my first PS had no intention of doing another revision and his nipple procedure was not going to include the areolas.
When I met the new PS he was the one who suggested one more revision, saying "I think I can improve this" so many they are kind of competitive. I love the areolas. I'm not sure what I think of the nipples, its not quite two weeks out. They still look like bicycle value stems. They are gradually shrinking. The nurse said they will eventually look like button candy. I don't know how long "eventually" is. Also, I'm one seems bigger in diameter than the other. I don't know if there is a fix for that, but my natural nipples didn't match either, I had one round one and one square one. Now I'll have one big one and one little one, lol.
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Hi debiann, my ps was more than willing to let me have another go around but it was me that felt like "why bother" I mean if he couldn't get it right the other time what makes him think he can fix it this time. Iam sick of dealing with all this...part of me wants the bigger and better breast and the other part of me says "just be happy and let it all go", At least I'm alive. I am the youngest of 4 sisters and all 4 of us have had breast cancer, and one of the middle girls passed away from this crap years ago. I feel like I'm one of the lucky ones and should be thankful and all. Yeah I'm more than likely just going to get myself in a position mentally where it's behind me and this is what I have to live with until I no longer do. Thanks anyway and again I really am happy for you.
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I had 3 revisions before nipple reconstruction. This included 2 lifts and fat grafting. Now they are perfect DDDs. Prior to surgery I had droopy pancakes. Now I have cleavage. I think the amount of revisions needed can be affected by the amount of complications from the first surgery as well as the condition of the breast skin. In addition, you cannot control how much fat remains after grafting. I just had nipple reconstruction from a different PS and he was very pleased with the work done by my former PS. My first one left the practice. The nipples still have stitches so I will reserve judgement for a couple of months.
There was a period before my last revision when I was seriously considering to accept them as they were because I was tired of surgeries. I am one of 5 girls and have also lost a sister and mother to BC. I was diagnosed a lot earlier than they were. When my PS offered to do one last lift and touchup I agreed because I realized that I deserved to have breasts that I could look at without feeling sad.
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It is so hard to keep going through surgery. I was really torn about having this last one done and put it off for months. My husband really didn't want me to do it.
I am so happy I finally did it not only for the appearance, but more importantly the pain and swelling I've had in the left one is finally gone! My first PS and my BS kept telling me it was "normal" healing pain, but it was getting worse and felt far from normal. My family doctor sent me to a lymphedema specialist, which helped, but didn't resolve the problem completely.
From the moment I woke up from surgery I could feel a difference. The PS "cleaned the capsule" and removed some necrosis. I joked that he found the last surgeons watch in there. I feel 100% better and my PT said the area is so much softer, if it stays this way for a few weeks she is discharging me. This last surgery has been a blessing for me.
I had the stitches around the areola removed today. They are looking good, but the nipples are still bicycle valve stems, lol. They said they will go down and their shape can be tweaked in the office if they don't look right.Time to start thinking about tats.
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I had my DMX and DIEP flap surgery on 11-13-17. It went well, all of my worries about being under anesthetic all those hours were wasted worry hours, I went to sleep, woke up assuring the nurses it was "okay" as I don't go under easily---ha---I had to be told it was 5:30 pm, and I had been out for 10 hours.
It went well, pain a bit more than I wanted to anticipate, pain medications have helped with that and made it possible for me to be able to do some mild family times over the Thanksgiving holiday. I have been able to be "on my own" at home since about day 10 post surgery. I was in hospital for six days, and felt well enough to handle my day by the end of Thanksgiving weekend.
Boring....no doubt. Still can't really lift so cleaning is out of the question. If I sleep all day I am not tired at night--hate most TV--anyway, going to do my first drive to my internist's office for a post-op check with him.
I am posting on this board because my PS (who did a stellar job of everything, seriously) feels he needs to go back and remove a 2.5x3.5 piece of spared skin from the cancer mastectomy side, it doesn't appear to be on a healing track, then he wants to put in a wound vac for a week??? Then go back and do a skin graft surgery from my thigh to two sites on breasts the following week?
The surgery was supposed to be scheduled this week, and I am freaking out because I am supposed to return to work on the 20th or 21st
if I don't, I lose all holiday pay for the year, begin to lose all of my vacation days on the 19th, and they will be used until they are gone. I also can't apply for STD insurance until Jan 1st, but of course if I am not present and able to work, I can't qualify for the STD insurance
I am sad, sad, sad today.
I know it is all stupid stuff, the cancer is GONE and it was a nasty early triple negative high grade (3) necrotic, in five ducts, showing beginning infiltration. It is GONE, yet I don't want my car to be gone and all my vacation days to be gone either!seems like small stuff, just hoped all would be without even this minor hitch.
Was just getting happy to be able to get out without drains coming from multiple holes in my body (haha, got good at concealing them) now I have to have a gross wound vac suction machine attached to both of my noobs for a week:( sick of being home, sick of being alone, older daughter had a plan to see me and get over to my Mom's today, I might just have to call that one in as a planLove this board. I did find some ultra comfortable Bali bras which provide excellent support and compression with extreme comfort! Pricey, but wonderful comfort and noobs/my new breasts seem quite content in their comfort wrapping. Zero pokey, scratchy, irritating stuff. That was a score I could make because I could go for short shopping this week.
boo hoo, I wanna go shopping. boo hoo, I don't want to call my loan company and extend my car payment, boo hoo, I wanna look nice, boo hoo, I wanna pick up my grand daughters, boo hoo--bull bull--I am alive, all indicators are my cancer is GONE. I have no lymph buildup, My new breasts have more cleavage than my natural born breasts, I have a job to go back to, I am alive while my cousin who is my same age within months died last weekend from end stage colon cancer--he has two teenagers while my daughters are raised and now have families of their own....I got to meet my five granddaughters, and love them, and it seems will be able to love them for a long time. I just wish none of this had to happen to me, I wish my daughters weren't pissed and scared of all of this--thinking of their own possible struggles down the road
on a stupid sad day for the little things....just a sad day for the little things as I am ever glad and grateful the big things have been handled well, it seems.
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Debiann - necrosis in the capsule? Wow, never heard that expression. I am 12+ weeks out from exchange and still have a dark shadow where there was bruising...now wonder if I actually have some necrosis inside?!?! Did you have any clue to the necrosis? TT
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Debbieann asked if it’s a PS’s better skill, mentioned competition between PSs and then we have the patient body’s reaction. I believe most of it is skill. Competition helps motivate these Microsurgeons to improve their skill. Predicting the outcome based on patient body is the next challenge to showcase their skill. Just a handful of these Microsurgeons do natural tissue recon, and from that handful only a small population actually do 1 or more per week. Practice plays into the skill level. Now, when a surgeon personally feels he is the best and advertises himself worldwide as such but his before and after photos show that the skill isn’t there...there is a problem. Many women look at less than stellar before & afters and assume that’s the best they can hope for and it’s better than being flat (for them) with scars that can’t be hidden. Many are seeing docs that tell them the problem is with their body not with his skill. Some of these docs like to do lots of repeat surgeries...easy money and patients who are desperate to be able to look in the mirror and be happy with what they see.
So here is a question: when you see other BCO posters offering up recommendations for a surgeon whose before & after photos online leave so much to be desired and the poster admits they just did a google search to find them, should you reply & if so what do you say?
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