IDC + DCIS. And Thyroids nodes?

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ToniTaglia
ToniTaglia Member Posts: 12
edited December 2017 in IDC (Invasive Ductal Carcinoma)

Hi everyone. I was wondering if someone else have Thyroid nodes like me. I have it on my neck (left like my cancer) how you treated it? Im afraid about this because I couldn't find a specialist yet. (Im looking) but my gynecologist said this has nothing to do with cancer.. I don't know if believe this... What u said?

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  • GreenEyes81
    GreenEyes81 Member Posts: 389
    edited November 2017

    Hi, not sure what you mean by thyroid nodes. Are you having issues with your thyroid as well as you breast cancer dx?

    I am meeting with a specialist next week as it turns out I have hyperparathyroid disease as well. It has had links with breast cancer and several other cancer types. Right now, I am working to have this treated seperate from the cancer dx. I will know more next week though.

    Have you had your PTH, Calcium or Vit D checked?

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  • ToniTaglia
    ToniTaglia Member Posts: 12
    edited November 2017

    Hi yes I'm having problems with my thyroid and with my breast cancer .. this is how my neck breast and lymph node showed up on my PET CT.

    imagemy PTH, Calcium or Vit D wasn't checked yet. I have a ecography and pet ct only

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  • marijen
    marijen Member Posts: 3,731
    edited November 2017

    I have two 4mm thyroid nodules (nodes) since my bc radiation. They are too small to biopsy. Have to be one cm. Evryone thinks thyroid cancer is easily treated but it can spread to the esophagus, the chest area, the lungs etc. it’s important to follow-up. I’m having a second US in Jan (six month follow-up. Nodes are common with age, only a small percentage are malignant

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  • frozentoes
    frozentoes Member Posts: 58
    edited November 2017

    My PET CT just showed a 5mm nodule on my thyroid. My thyroid hormones are elevated. My TSH jumped from 1.88 to 4.07 in 6 months. But since my cancer was just diagnosed a month ago and chemo starts next week, my oncologist wants to revisit the thyroid issues in 12 weeks. I'm not sure if I should push it or not

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  • marijen
    marijen Member Posts: 3,731
    edited November 2017

    frozentoes, you should at least have your thyroid medicine adjusted. Maybe you have what I’ve got, your autoimmune system attacking your thyroid. My thyroid specialist said my thyroid is being absorbed back into my body

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  • frozentoes
    frozentoes Member Posts: 58
    edited November 2017

    Marijen, what autoimmune issue do you have? have you had thyroid issues prior to your BC? So, my TSH was tested again just before my first chemo treatment last Tuesday and it was 1.58 so I am really confused. I've not spoken to my doc yet but I see the PA next Tuesday and I'll be asking about it then. It just seems odd to me that it would be bouncing around like that. Unless there was a lab error. And, I've never been treated for thyroid issues prior or on meds so this is all new

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  • marijen
    marijen Member Posts: 3,731
    edited November 2017

    Labs are capable of error. Mine has jumped around recently too. Used to be .98 then 3.07 then 1.2 or something. I took a pill on the third test morning before the test. my PCP says it doesn't matter. I usually wait to take the med to after to get a better idea. I could have forgotten one or two on the second reading, I couldn't remember. Anyways, yes I've had hypothyroid for twenty years and more than that if you count the symptoms before they dx'd me. I dx'd myself ten years before that. So last time with the nodules the specialist said he could see my thyroid was dissolving.

    If it's back to 1.58 I wouldn't push it.


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  • frozentoes
    frozentoes Member Posts: 58
    edited November 2017

    Thanks, Marijen. :). I think I'll just hang tight for now and focus on the bc fight. Best of luck with your thyroid! I hope they can help you get it figured out

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  • marijen
    marijen Member Posts: 3,731
    edited November 2017

    Went to the endocrinologist today. He said my thyroid is “dead”. Now what am I supposed to do? Didn’t think to ask him. He also said the thyroid surgeon is a control freak and the bone density workers are dopes. But he said it so nicely! When I said I was having trouble losing weight he said join the club. WTF

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  • GreenEyes81
    GreenEyes81 Member Posts: 389
    edited November 2017

    WTF!!! New doctor maybe???? Where are you located? Close to Salt Lake by chance?


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  • marijen
    marijen Member Posts: 3,731
    edited November 2017

    He is the only endocrinologist that specializes in osteorosis where I go - in the Northwest. He says 3 reclasts are enough. I think he’s just sticking to the rules but the infusions are good for keeping mets out of the bones, so I am disappointed. And I always felt better after the infusions. Placebo effect? Right now I have no mets so I’ll just leave it alone until later. Off the letrozole now so maybe my density will get better. I’ve been seeing him since 2013. Funny guy right?


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  • GreenEyes81
    GreenEyes81 Member Posts: 389
    edited November 2017

    maybe it’s a have to be there kinda thing. :) he must be comfortable with you. ;

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  • marijen
    marijen Member Posts: 3,731
    edited November 2017

    Well I would never repeat what he said to those involved. You may be right, he gets that.


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  • stexas
    stexas Member Posts: 52
    edited December 2017

    I have had Hashimotos ( Hypothyroidism) for almost 31 years and the thyroid is so much fun to get it just right. Hashis is a lumpy thryoid. My endo I have now is great I been seeing her for about 6 years. She said we are more than our labs just because a TSH lab suggest a normal range does not mean that is where we feel the best. My TSH has to be below a 2.0 but prefers a 1.5 for me to feel right. Right now its high 3.5 but I have not made it to her for an appt with all this other going on primary care did lab work of course they said it was fine. It is common for a Endo to use the words your thyroids dead what they are saying it not longer functions correctly and you will need to be on meds for the rest of your life. They rarely take them out. They always start you out low and tweak until the meds are just right. I have been on as much as 200mcg right now I am on 150mcg. I think I am needing the 200 again time will tell. Atleast 12 years ago my legs & armpits quit growing hair so YEA to no shaving this is also a sign of thyroid issues.

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  • marijen
    marijen Member Posts: 3,731
    edited December 2017

    stexas, thanks for that. But if it’s not working correctly then how do I get away with onlu 75mcg? I’m not able to lose weight so I’m trying 1 1/2 to see if I feel better. I really can’t tell the difference. And why won’t he give me the whole thyroid panel test? All I get is TSH and T4 from my PCP. Endo does nothing

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  • stexas
    stexas Member Posts: 52
    edited December 2017

    You need a different Endo and let them manage your thyroid. Do not up your dosage on your own because then when you do blood work it will show it is fine.

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  • marijen
    marijen Member Posts: 3,731
    edited December 2017

    There is a long wait for a new endo. There seems to be a shortage of them. I’m only trying it out for now. No bloodwork until Jan or March. But thanks.

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