Starting Radiation October 2017
Comments
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Congrats Dodgersgirl! So very happy for you...!!!
My last rad is Monday! It will be so nice to go home for longer than the weekend.
I, too, have had the bolus every other treatment...I haven't had any terrible issues, peeling underneath, itching, really red and tender in the armpit area now...I expect it to peel, too.
I think back to February when I was dx'd and my biggest fear was chemo, as far as treatments...I know many of us had no clue what lay in store...what a crazy ride, yet, we rode it out. Life is so precious. So fleeting. I have so much to be grateful for and this year has shined a light on the beauty of it all...even in sorrow, there is beauty.
Love to all! Hang in there and 'hustle kindness'!
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Congratulations and thank you for all of the advice and support!
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rea@DodgersGirl: Sorry it's taken me so long to get back here to say CONGRATS for being done and here's to some FAST healing! Your attitude in this post particularly is the same way I feel:
This trip has shown me to be grateful for the blessings received each and every day. No one knows their future so going to try to live each day to the fullest. And when the what if's creep in my thoughts, I hope to look around and be happy for life at that moment. My DH had a heart attack and open heart surgery while I was going thru chemo. He is still here with me. Many, many blessings in my life for sure. Have to just keep "seeing" those blessings to push away the fearsI have to say the last few days have had me teetering on some kind of anxiety that hopefully will stay away. My mom suffered from depression throughout her cancer years and I am hoping to not go through what she went through because it was so difficult to watch. Like many of you here, it's definitely strange to seem somewhat done with the every day appointments right now, though I still have plenty on the horizon. This week I saw my oncologist Tuesday, RO Wednesday (who is leaving the practice and going out of state...very sad but happy for her new opportunity), and breast surgeon yesterday. I also met with another person at the hospital yesterday doing a study on people going through clinical studies and we had a nice chat, but it had some emotional moments as I told my story to her. She was very sweet though. My surgeon didn't feel a need to do too much poking around my breast since it still looks a bit "angry" but she said it was expected based on my treatment and she felt it was fine. It's weird that I have treatment from so many different doctors but so far they all seem to be good about providing reports to each other so when I see one of them, despite being associated with different hospital systems and practices, the others seem to have updates. The only downside is that I can't view all of my records online at one place because there are 3 different online medical records systems to view.
I'm going to try to find the new thread DodgersGirl so we can all keep track of each other. That sounds great!
For those still going through treatment, hang in there. It really does get better and quickly. Even though I still have a pretty extensive morning routine of many lotions and oils to keep my skin going in the right direction, it really hasn't taken that long for me to be so much better despite some severe pain at one point. I'm even planning to hit the tennis courts Sunday morning!
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utjoy-- so nice to hear from you. I think of you often hoping you were getting through rads without a lot of SEs. Wow, Monday will be your last treatment, way to go!!!
I don't know if you are interested but I started a topic for all of us on this train in 2017. Thought it would be nice to have the support from all those we encountered in various threads. If you are interested, I will look up topic name and post it. Would llike to hear from you in 2018
I would paste the link now but struggle with adding links with the link button from my phone.
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Congratulations Dodgers Girl!!!!!
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i_brain-- nice to hear from you!!
Glad to have finished rads now going thru the skin healing process. Hope this passes quickly!
How are you doing??
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Congrats to all of you! Now What? Your daily routine has come to a screeching halt, just like that. Now you will have time to let it all sink in. " Did I really just do all that". Some of you will start going through some ptsd. It is very common. Take the time to grieve the loss of breast. Take this time to look after yourself mentally & physically. Your swelling will not go down for about 6 months. You will also get some sharp pains (zingers), this is nerves healing. For those of you taking a trip to somewhere sunny, use high spf or sunblock, stay in shade. I took my vaca 1 yr out, stayed in shade, used high spf but ended up with very rare condition called RRD (radiation Recall dermatitis). Because of this I now have to wear 100% uv blocking clothing when I'm outside in the sun, Always long clothing. Along with sunblock. Don't be afraid to ask for help as your emotions take over. Good luck to all of you, you did a great job.
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70charger-- thanks for the tips--especially about the suscreen.I love the beach and being out of doors. I haven't been very diligent about the sunscreen but will be in the future. I also appreciated being aware of pstd and the importance of taking care of oneself. Your post was encouraging as well as informative
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Dodgers girl - I'm doing well. Didn't have any major issues from radiation. My energy and strength from the whole ordeal gets better all the time. Not feeling normal, but getting closer. Hope you have a speedy recovery!
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70charger-- let me echo Linwentz's reply to your post! Thanks for the post! I knew to be careful about sun exposure after rads but had no idea there was something called "RRD (radiation Recall dermatitis)" Wow. Sorry you encountered this but thank you for sharing!
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thanks ladies. RRD is EXTREMELY rare. It can even appear many years down the road. Most Drs know of it but have never seen it. I had to have a punch biopsy done to confirm that it was not IBC. That's a story in itself. My lumpectomy scar & all around my areola is bright red. The warmer my body the brighter it gets. On a hot day if I don't stay cool it gets to a point where sharp pain starts. Then I know I have to cool it down. It sucks as I love Mexico & being in the sun. Having to always be covered sucks in hot weather. I thought I did everything right when I was on holidays, but the luck of the cards was not with me. Take care Fran
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70charger - Thanks for the tips and warnings about sun exposure post-radiation. Never heard of RRD before. My DH and I are headed to Mexico in 2 weeks for 5 days of R&R, Playa del Carmen, and I will bring long-sleeved tops and cover-ups and SPF 100.
The good news is that I am finally starting to feel more like myself. No sharp stabbing pains in almost a week, and today we actually went out and had a fun day at a holiday crafts festival. Fun hadn't been on my agenda in months. My nipple and areola are no longer bright red, and the radiation burn is fading. And yes, the awareness of what I have been through is finally hitting me, like PTSD. Before, I did exactly what I had to do, went to every doctor, every appointment and surrendered my life to their requirements. Now at times, I feel so grateful that my eyes just well up... and I never felt that I was dealing with a life-threatening situation, either.
Thanks to all of you out there who have shared this ride... dodgersgirl, catlady, utjoy, 70charger, among others, who have inspired me and amazed me with your courage and insight. Good luck to all of us in our future journeys.
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Thanks for your message 70charger! My RO actually gave me a similar talk on my last day of rads (which was the end of my active treatment). She told me to give myself the next month or two to let what I just went through sink in. To be okay with some of the emotions I may experience, and to be easy on myself when I still have days that are hard from side effects that may still show up (like fatigue).
I have started hiking again and I slather on the high SPF sunscreen. I had major hives due to an allergic reaction to my first chemo cocktail, and am still sensitive in heat and the sun, so take serious precautions. I wear long sleeve sun shirts while hiking and long pants. I love the sun shirts, I actually stay cool, even on a warmer day, because they stop the rays from hitting my skin and are nice and breathable. I highly recommend them to anyone being active outdoors!
I'm now three weeks out from my final radiation, and the skin is looking very good, almost back to normal color, and it feels like new baby skin (seriously smooth). I went flat after my mastectomy, and the scars are healing well. The radiation side actually looks a little better than the non radiated side now (closer to skin color). I didn't expect that! I still find myself getting tired some days. Last week I had a very full week, and by Friday I crashed. I hiked yesterday and came back and promptly took a one hour nap. Took another nap today. But, besides that, I'm feeling quite good. Thankfully!
I hope all of you are doing well and that SE's are minimal.
-LoJo
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3 days out from rads being over. Thanksgiving break was longer! Seems like much longer since last treatment. Funny how time flies and slows down. I have a skin care meeting tomorrow at ROs office tomorrow. May have more this week, just don't know yet. Skin skin is still RED. Seems like less dead skin and more new skin so hoping healing really has started!
Felt off yesterday. And last night actually threw up (which I didn't do at all during chemo). Feel ok today, just sore. Probably over did it today. Got my Christmas tree up and 5 ornaments on it (so far), wrapped more gifts, and added more outdoor lights (we typically have lots of outdoor decorations but decided this year to just do a fe light strands) oh, and watched Christmas movies all afternoon
Hope everyone is doing well
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this is where I get my tops from http://www.sunprecautions.com/shop
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tomorrow will be the first day I don't have to drive to rad center since 10/22/17. Rads wer finished last Thursday but still seeing RO staff for skin care but going to go a couple of times a week instead of everyday and see how I do.
Still raw, red skin but DH and I are learning how to clean and dress it. We are almost pros!
Hope you everyone is healing quickly and moving on!
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Dodgersgirl--Sorry you have to deal with skin issues☹️
Your attitude has always been so positive despite setbacks! And just think of the memories you've sharing with your DH
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Linwentz-- thanks! I see new skin almost filling in the area under my arm. Clearly, this stage will pass. Should be in great shape by Christmas.
I gave my skin care nurse a necklace with angel wings hanging from it to remind her in her down days that she makes a difference in my like, helped me over the hump, and to remind her that even small gestures make a big difference to others. I have tried to turn a ducky diagnosis into something that gives joy to others by small smiles, thank yous, and paying things forward. I won't know if it makes a difference in other people's lives or not but I want that to be my guiding path-- time is precious and short, don't sweat the small stuff, and help other shoe when and where you can. I have gotten so much from people here.... fills me with goodness and I want to pass that to others
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Dodgersgirl... very powerful words and I couldn't agree with you more. Love the idea of the angel's wings necklace. I have encountered several angels on my journey and it would belovely gesture to bestow upon them!
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had my last Skin Care appointment today. RO said the area looks great. All new skin, no areas where skin is breaking down. Still need to apply Calendula and Aquaphor to the new skin but no more Tefla pads or weeping dead skin!!
I have some pain deeper than skin level. RO said it could be chondritis. So I have a script for pain when it gets really painful.
See the RO again next week. Then I might be able to say I am finished with rads!!
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