Please help me wrap my head around that

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DxAt37
DxAt37 Member Posts: 52
edited December 2017 in Just Diagnosed

hi,

I am new to this board and new to cancer.

I was just Dx a day before Thanksgiving. My surgery us scheduled fir Dec 13th.

Left 2.3cm IDC, mri and us show no nodal involvement, grade 2, KI-67 50-60% and er+/pr+ her2 equiv. Waiting on brca test result. I am 37.

Dr said it doesn’t look too bad at all but all I can think of is that I won’t live long enough. That I will die in a year or two and I will drag my whole family thru the mud of chemo, no hair and slow dying at the hospital. Maybe it’s the stygma of the word cancer but I am beyond freaked out.

My younger child is only 2 years old...

I cannot pull myself together i am almost afraid to breath.

If anybody went thru similar state if mind-hiw did you work thru that?

Can you go back to your before life?

I am sorry for being such a downer but all my strengh goes to showing a brave face to my family


Comments

  • gb2115
    gb2115 Member Posts: 1,894
    edited December 2017

    You will work through it but it will take time. It's normal to feel overwhelmed and sad, and worried. Allow yourself the grace to process what's going on. It's ok to be upset and I honestly don't think there's anything wrong with being upset in front of family. It will sap more of your energy to pretend that you are strong and ok. It's cancer, it's ok to not be ok.

    Eventually you will be on the other side looking back on this, though it's hard to believe. You will probably have a rough year, but you will get through it. Chances are pretty good that you won't be gone in two years like you are imagining!!!

    I was 38 at diagnosis (39 now) and my daughter had just turned 4. I also work full time. I didn't think I would get through the last year but I did. Life has a way of moving forward. You will go back to the way it was in many ways probably but will also be very changed in other ways. If anything you don't worry as much about the small stuff.

    Take a deep breath, cry, and hug that little one tight. It's going to be ok.



  • DxAt37
    DxAt37 Member Posts: 52
    edited December 2017

    Gb2115, thank you very much for your kind words.

    I wish you all the best. Taking this deep breath now

  • Georgia1
    Georgia1 Member Posts: 1,321
    edited December 2017

    Oh I am so sorry. Yes, all of us go through the same feelings; a breast cancer diagnosis is so surprising and scary. You will work through this, you will be sad and emotional at times, but you won't die. As GB wrote, soon you will be looking at this in the rear view mirror although that may seem impossible now.

    No nodal involvement is great, being ER + and PR + means Tamoxifen or an AI drug will do a lot for you. When you are feeling stronger, let us know what your next step is and meanwhile I like your doctor's attitude. Hugs and best wishes to you.

  • gigibee
    gigibee Member Posts: 192
    edited December 2017

    You will go through many highs and lows, you're scared and uncertain and that's normal. Once you have a treatment plan and test results you will feel better.

    Welcome & sorry you have to join us but there is a wealth of information and helpful people here.

  • Michelle_in_cornland
    Michelle_in_cornland Member Posts: 1,689
    edited December 2017

    Facing this diagnosis, has a way of making you take a hard look at your lifestyle and choices. If anything, I am living a better life, taking in every moment and not just going through motions. I feel emotions on a deeper level and have a greater appreciation for the life I have.

  • Countrygirl80
    Countrygirl80 Member Posts: 26
    edited December 2017

    My heart goes out to you. I was diagnosed at 35 with three young kiddos (youngest 4 1/2 months at the time). It takes so much time to work through the emotionsfor sure. Ask for help (from social workers and/or antidepressants to help you throughout - I had to) and be kind to yourself. Since you are so young, please seek out a major cancer center for treatment (or at least a second opinion) if you haven't already.

    You *will* get through this. You *will* come out on the other side of it a changed person. You *will* be okay. It will just take time to get to the "okay."

    Hug to you...

  • DxAt37
    DxAt37 Member Posts: 52
    edited December 2017

    thank you so much for your encouragement. It made me feel much better. Countrygirl80- I can only inagine how gard it was for you with 3 little kids!

    Michelle in Cornland-you’re right about looking into your life style and choices. And I sure hope I will be able to find a silver lining-just as you did-after.

    Gigibee and Georgia1 -thank you both for your words. It helps me “de-demonize” (I an sure it’s not a real word) cancer.

    If you can do it I can do it too!

    Every day I wake up with less and less shock - that yes, in fact, it is me who got cancer.

    As for a second or third opinion-I am all for it but I think I first need to wait for brca results abd surgery itself-just so everything is a 100% accurate, right?

    So far it seems to me there is a lot of guessing-yes, there was biobsy and lab done on that-but it may change once they will test the whole tumor?

    What us your opinion/experience

  • OCDAmy
    OCDAmy Member Posts: 873
    edited December 2017

    So sorry you have to join this club. When I was first diagnosed I couldn't say "cancer" without crying. Having a plan really helped me focus on doing all I could to beat this. My MO was great and prescribed anxiety meds which have really helped. This is a great place to ask questions and get understanding from those who know what you are going through

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2017

    I searched for long-term survivor stories from as many post BC'ers as I could on this website, especially those who had a worse dx than what I thought I had. I remembered that Dr. Google isn't much of a doctor, and that the best research is going to come from .gov, .org and other non-profit sites, and that there's a wealth of credible information and research links here. If you do run across scary stats, think of this: many of them are from a small sample of women and or are many years old. Since I'm an academic, I couldn't not research my dx, but I did remember how long it takes for real research to be completed, the results analyzed, the stats published. I looked for the most current, credible research, and when necessary printed out the article and took it to my oncologist.

    In the meantime I knew I could keep taking care of myself by choosing actions I knew would help me, which were mainly lifestyle choices-diet, exercise, some supplements that seem to help protect us. I looked at my excisional biopsy as getting all of the cancer out of me, and that chemo was just an extra sweep. There are millions of women who have had a b.c. dx and are living years, decades, after that dx. Many of them aren't even visiting these boards anymore because they are well, and have moved on with their lives.

    I was able to work through 5 months of chemo because of my schedule. It wasn't that bad although I was scared just like you at first. Just try to get through each appt, chemo or otherwise, take someone with you who can take notes, ask the doctors to speak slowly to you and to remember you aren't a medical person. And remember you have hired all of your medical team to take care of you. They are working for you, not the other way around. Don't ever let them rush you or if your intuition tells you that you need something answered, then ask them--push if necessary.

    I feel most of where our fears come from are because of complete loss of control over our bodies and our lives (that's how we feel). Doing the above helped me take back a lot of my power.

    Hugs

    Claire in AZ


  • gigibee
    gigibee Member Posts: 192
    edited December 2017

    yes things could change with pathology results after your surgery , you could also get a second opinion on the surgery itself. Glad you had BRCA test , those results take 2-3 weeks so its good to that going.

  • DxAt37
    DxAt37 Member Posts: 52
    edited December 2017

    Claire in AZ, thank you very much for all your information. You are completely right-the fear of losing control over your body and life is the worst part. I find your insight very usuful.

    Best wishes

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