Mastectomy Sisters How did u celebrate/remember your breasts?

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sm627
sm627 Member Posts: 298

Hi Everyone,

I hope you all are doing well. I had a Mastectomy(right breast without reconstruction) 5 months ago at age 33, and I was wondering how you said goodbye to your breasts? Did anyone have their own personal memorial service?

I would like to do something to honor my breast but I am not sure what to do, so any ideas would be appreciated. When I had my Mastectomy back in June I only had a week to say goodbye before my surgery, but I spent most of that time grieving and crying. Now things are better, but I feel like I have lost a family member except it is a part of my body that died at a young age.

Thank you for helping me heal and remember all the good breast memories.

Hugs and Love,

Sara


DX 5/30/2017 Borderline Phyllodes Tumor 17cm

Surgery 6/27/2017 Mastectomy(right)

Hormonal Therapy 9/25/2017 Tamoxifen




Comments

  • swg
    swg Member Posts: 461
    edited November 2017

    My friends really wanted me to have a "goodbye boobie" party, but I have just been too busy preparing for surgery. I had so much to do. I don't know how to honor my breast. All I'm doing is hoping I don't look like a Frankenstein monster when they remove the right one and put in an implant :p

  • Meow13
    Meow13 Member Posts: 4,859
    edited November 2017

    I was so emotionally upset after mastectomy, literally sick about it. I celebrated after my DIEP by buying a new bathing suit with my new flat tummy and excellent match to my real breast and I went to Hawaii.

  • Castigame
    Castigame Member Posts: 752
    edited November 2017

    I had BMX wo recon. It was the case of Get them off now. DH took pics before BMX. I have not had courage to take a look at them yet. However, cancerversary is my birthday. I plan to get the prettiest swim suit to go back to swimming before bday. (No swimming due to total hyst expires about month before cancerversary.

  • ravzari
    ravzari Member Posts: 277
    edited November 2017

    Honestly, I did a "good riddance" instead of a "goodbye", but that was probably due to--aside from the high risk of developing cancer--I had pretty bad fibrocystic breasts that started with that nonsense when I was about 12 so they were always extremely painful to have.

    I wasn't the least bit sad to see them go, I was actually excited at the high possibility of not only cutting down a cancer risk but also a high chance that the chronic breast pain I'd had because of them would also be gone.

    My husband was, but it's not his body, so he didn't get a say in whether I reconstructed or not (I chose not to).
    I let him 'say goodbye' before I went into surgery, but I was glad to wake up with them (and the physical pain I'd always had from them, which ranged from a 7 on good days to a 10 on bad days before my period) completely gone.

    In all complete honesty, I'd been looking in to paying out of pocket for a mastectomy the pain was so bad and nothing touched it. I never thought I'd be glad to find out I was at high risk for breast cancer so insurance would cover their preventative removal as it's cheaper for them to pay for that than it is for them to potentially have to pay for cancer treatment down the line.

    My PS has before pictures that I'm sure I could get if I wanted them, and I have one nice 'before' I took saved that I don't share as they did look nice. I was a 34DD and they weren't saggy at all, and looked pretty great.

    They just weren't great to have.

  • Rrobin0200
    Rrobin0200 Member Posts: 433
    edited November 2017

    honestly, I was so happy to get them off. Since the lefty was misbehaving, she set the tone for both of them. I'm now in love with my newly reconstructed breasts. No goodbye parties for me... it was actually a good riddance!

  • Peacetoallcuzweneedit
    Peacetoallcuzweneedit Member Posts: 233
    edited November 2017

    yeah I am kind of the same as the other ladies that have posted...I didn't say goodbye I just said --> get them off me now! My double MX was a very easy decision with no regret and more relief vs missing the old girls who were "locked and loaded"

    You could have a "Ta Ta to the Ta Ta" dinner party, or you could bury a pic of your breast in the backyard/burn the pic with sage/drop it off the Golden Gate Bridge and have a service/funeral/ honoring your breast, you could stand in silence with the people you love and say "goodbye" in your mind...you could write a poem, write a story, journal about it, blog about it, attend a survivor group and share, there are so many ways that you could find some closure....which is what I think you want or are feeling you may want reflecting on your time since diagnosis?

  • sm627
    sm627 Member Posts: 298
    edited November 2017

    Thank you all for sharing what you did to send or breast off and how you treated yourself after the breasts were gone. Vacations and buying new swim wear sound like fun. Writing and taking pictures sounds like a wonderful way to start to find closer. Thank you for your support and ideas.

    I had an appointment with my BS today and she said I can have reconstructive surgery. What do you like most about your new breasts?

    I guess what I miss the most is my right breast when it was healthy not the one that was "misbehaving" with a huge Phyllodes tumor that hurt so much! I will always be glad that the part was chopped off. I Hope my PS can get my new right girl to look like lefty does.

    Thank you again for sharing your experiences they have helped me heal and made me laugh too, which is something I need to do more often.

    Hugs,

    Sara


    DX 5/30/2017 Borderline Phyllodes Tumor 17cm

    Surgery 6/27/2017 Mastectomy(right)

    Hormonal Therapy 9/25/2017 Tamoxifen
  • Meow13
    Meow13 Member Posts: 4,859
    edited November 2017

    I had just left side, I had DIEP and feel pretty good about the way it looks. I don't think of it as fake just a little rearrangement.

  • Peacetoallcuzweneedit
    Peacetoallcuzweneedit Member Posts: 233
    edited November 2017

    I had tissue expanders and implants - infact I just went through my final implant surgery two weeks ago...what do I like about them....well first - at this point - they dont contain cancer....second....um I think that I like that I dont have to wear a bra....they are smaller than my real ones were and smaller than my tissue expanders...I like the size a lot -

  • sm627
    sm627 Member Posts: 298
    edited November 2017

    Mewo13 I like your thinking about the rearrangement I will have to remember that when I get my new right put in.

    Peacetoallcuzweneedit:

    Wow you don't have to wear a bra that sounds wonderful! I haven't been wearing one for the past 5 months due to chest tightness. It has been nice not having to wear one.

    One general question I have is do you have any sensation in your new girls? How do they feel on the inside is it somewhat natural feeling wise?

    Thank you! Hugs,

    Sara

  • Peacetoallcuzweneedit
    Peacetoallcuzweneedit Member Posts: 233
    edited November 2017

    Hi Sara -

    I should say during initial my permanent initial healing that I am wearing a bra like 24/7 except to shower....however no bra after healing and I didn't wear one either after my tissue expander placement and healing completed from my DMX. How do they feel.??...ok well I feel everything....I was expecting no feeling after my DMX, because I discussed this topic with other survivors that I met. They all told me "you might feel something after time, but initially you won't feel anything." They had skin sparing, to no skin sparing, nipple sparing, to no nipple sparing. I had nips removed but kept my skin.

    I woke up from my DMX and I feel everything - I was VERY surprised and so are other survivors who poke me on my chest and ask "do you feel that?" Now - the nips are gone so there is no sexual arousal feeling to ever return period. I say this because other ladies have asked me about that subject, but I explain kinda bluntly --> "look nips are gone there is no way I'm going to get any sensation that I used to have." They (permanent implants) are much more comfortable vs tissue expanders. They feel like a part of me. However, there are certain movements and positions that I "FEEL" and get the flashback of everything I have been through and think "God when is this going to end, and maybe it won't" --- I am still healing and will just go with it.

    My PS is who I listen to for healing instructions, and I would say to always follow your PS directions. She/he is the one in charge of the reconstruction. I say "let them do their specialty" and of course I ask a lot of questions, and explain all my lifestyle habits completely...to make sure I am not screwing up anything.


  • wrenn
    wrenn Member Posts: 2,707
    edited November 2017

    Nope. Didn't say goodbye to my gallbladder either. :-)

  • sm627
    sm627 Member Posts: 298
    edited December 2017

    Hi Peacetoallcuzweneedit,

    Thank you for the bra clarification and for all of your helpful tips about what to expect. Reading your story makes me feel better! These last few months have been such a learning experiences for me. How long did you PS say it would take to heal from the implant surgery? What kind of adjustments have you had to make in your life since all of the surgeries you have had? I understand about not wanting to screw anything up. I have been feeling the same way I don't want to mess up anything that my BS did.

    Sometimes I think that there will never be an end to the BC journey.

    Thank you! You have helped me so much.

    Hugs,

    Sara

  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited December 2017

    sm627:

    There is an fairly active list for Exchange surgery that has lots of people commenting on implant exchange surgery. You can ask and many will give recent examples, tips for surgery, bras used after surgery. I went back and read some older posts even (last year, etc.) and this really helped me prepare.

    Exchange City:

    https://community.breastcancer.org/forum/44/topics...

    Good luck!

  • sm627
    sm627 Member Posts: 298
    edited December 2017

    Hi EastcoastTS,

    Thank you so much for the exchange link I look forward to reading it. The more I learn I think the better I will start to feel about this whole process. What was your experiences like for you?


    Thank you for your help

    Sara

  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited December 2017

    sm627:

    My experience was good. Exchange surgery -- as you'll read from almost everyone on the Exchange forum -- is SO much easier than UMX/BMX. So much easier. Now, that said, I had lots of pocket work completed due to my tissue expanders being very far apart. And one dropped during the process. All typical stuff but you have to correct at Exchange. But even with that, it's just completely so much easier. I was home that afternoon (morning surgery) -- reading newspaper with coffee next morning.

    I tried to be very careful about not lifting and doing more than I should for a few weeks. I'm three months post almost now. Because you'll feel better and feel like you can do those things. That was hard a bit. But other than that, really, you'll do great. Some ladies without pocket work are like, did not even feel it really.

    ;)

  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited December 2017

    Also not sure if you have tissue expander(s) but implants are AWESOME in comparison.

  • Lula73
    Lula73 Member Posts: 1,824
    edited December 2017

    no party, no ceremony. Just a phrase...new boobs for Valentines Day! BMX with immediate DIEP done on Feb 14. Very happy with the decision and do not mourn the old ones or regret the decision.

  • sm627
    sm627 Member Posts: 298
    edited December 2017

    Hi EastcoastTS,

    Thank you! I feel less nervous, and so glad to hear that I won't feel sleepy for a whole month. So you just can't left anything heavy for a while? How was your range of motion? After my UMX it took me about 3 months of PT to get my range of motion back. Glad the implants feel better then the TE. My BS was not able to put in TE for me due to my large 17cm tumor. She had to take a lot of tissue and skin away, but she was able to leave a little that can be used for recon.

    Thank you for sharing your story with me and for putting my mind at ease.

    Hugs,

    Sara

  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited December 2017

    Sara:

    Definitely check out the Exchange forum and ask lots of questions there, too.

    My ROM was good after Exchange -- after BMX, it took some time. Your PS should give you detailed instructions about lifting, exercise, etc., but mine was to "not do anything" for 2 weeks (I know, how detailed, LOL) and for 6 weeks or so, nothing over 5 lbs. Everyone gets different advice but I'd say, take great care of yourself in those initial weeks after. You want to preserve the pocket that has been created. I was also told not to lift arms over the shoulder for the first two weeks as well.

    I may have been a little sleepy from anesthesia the week or so after Exchange but the length of the surgery is shorter (guessing), so this should be less for you this time, too. Although mine was around 3 hours due to the pocket work. The first 24 hours I was a little groggy but just nothing like BMX.

    You'll do great, I bet!!! Try not to worry.

  • sm627
    sm627 Member Posts: 298
    edited December 2017

    Hi EastcoastTS,,

    Thank you! You have given me so much hope and that everything will be alright. Do nothing sounds great to me I will have my friends and family do all the house cleaning for a few weeks.LOL! Glad that your range of motion was pretty good afterwards. Did your PS say when you could return to work after the surgery? I am a preschool teacher, and when I had my UMX I was out for over a month. Even though it has been almost 6 months since my MX surgery I still feel like I need to take it easy at times. I guess I am still adjusting to my "New Normal" and I haven't figured out what my normal is yet.

    Thank You again for all of your advice and help I appreciate you so much!

    I hope you are having a good week!

    Hugs,

    Sara

  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited December 2017

    Sara:

    I was out for three weeks but I could have gone back sooner. (This was disability and doctor agreement, I was not invovled in timing decision.) However, your job is more active than mine at a desk! You don't want to get sick, though, from the kiddos. So take what you can that work will allow. To rest and be healthy.

    Some that I read about on the Exchange forum were out way less than me (no pocket work)! Depends a little on how much your PS is going to have to do. At least you're only one side. That should make everything easier. But just remember to limit yourself. You'll feel better, so you may want to do more. Just take it easy. That is what I tried to do. It was great how much better I felt than after BMX.

    ;)


  • sm627
    sm627 Member Posts: 298
    edited December 2017

    Thank you EastcoastTS

    I will see how things will go with work. Hopefully I will be able to take a good amount of time off to allow myself to heal again. I am just so glad that it won't be like recovering from the MX. In a way I feel like I am still recovering from it even though it has been almost 6 months.

    Thank you again for all of your advice and sharing what you have gone through. I am glad you are doing well after all of your surgeries. You have helped me see that there is light at the end of the long tunnel!

    Wishing you a wonderful weekend.

    Hugs,

    Sara

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