PTSD-- does it ever stop

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PTSD-Hi ladies. Any suggestions for medications and therapies that have worked? I just started therapy, but it seems I will need an SSRI. I had to stop cymbalta a fseveral weeks ago due to horrible side effects. Also, my therapist is starting me on "tapping" has anyone done tapping with success?

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  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited November 2017

    Hi Jojo!

    I'm on Celexa, and I feel good. But, I'm one of those people who doesn't get a lot of side effects from medications, so I can't tell you whether you'll do well on it or not. Congrats for starting therapy! I haven't done therapy or "tapping" either. Hope it works for you!

    ((Hugs))

  • Jojo0529
    Jojo0529 Member Posts: 193
    edited November 2017

    thank you Elaine. I'm ok with some side effects.. has to be better than this anxiety

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited November 2017

    Hi Jojo - I've had the easiest time with Prozac 40mg. When I was on Tamoxifen I took Effexor and liked it. I didn't have any trouble weaning to Prozac.

    I had a couple false starts while trying to dig out of the well. I went off my antidepressant (Wellbutrin) because it thought it was causing my throat to burn. Turns out that was just the anxiety.

    Finally, finally, my PCP sat me down and ordered me on Prozac, and klonopin. He said I don't care if you get addicted, you need the klonopin. I took it faithfully that year, and when it came time to wean off I did with no issues.

    Do you have a trusted PCP? Mine said he sees the PTSD so often in BC ladies. His counsel helped me tremendously.

    Sometime the counselor is not the right fit either. I met a couple time with a psychologist, but had the best results with the weekly Stephen Minister meetings at my church. I really just needed a safe place to talk and someone to listen

    As the days get darker here, I can feel myself sliding toward the pit. I think I have SAD. I just ordered a light therapy box. I'm hoping the extra vitamin D will cheer me up.

    Jojo - I know it is a struggle. So hard. Plus the ooph throws even more “fun" in the mix. Hang in there. One day at a time.

  • Jojo0529
    Jojo0529 Member Posts: 193
    edited November 2017

    thank you Lucy. My PCP is fairly new; however, the therapist has experience with ptsd and BC patients. I'm hoping they will prescribe me Zoloft .. since it has worked in the past.

  • gardengypsy
    gardengypsy Member Posts: 769
    edited November 2017

    Jojo~ I've done well on Lexapro.

    farmer~ What kind of light box did you get? This might be a good idea for me.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited November 2017
  • Jojo0529
    Jojo0529 Member Posts: 193
    edited November 2017

    thank you. Gypsy

  • Meow13
    Meow13 Member Posts: 4,859
    edited November 2017

    I am taking generic paxil.

  • MTwoman
    MTwoman Member Posts: 2,704
    edited November 2017

    Jojo, has anyone discussed EMDR with you? It has been shown to be very effective with a high percentage of PTSD sufferers.

    Also, what meds (in addition to your SSRI) will be helpful depend on which symptoms are giving you the most problems. (for example, the best thing specifically for nightmares is prazosin, which is an antihypertensive). If your regular doc doesn't find the right med/cocktail then sometimes a consult with a psychiatrist is in order. Best of luck!

  • Jojo0529
    Jojo0529 Member Posts: 193
    edited November 2017

    thank you. MtI believe the tapping is emdr. Anxiety is my worst symptom.

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited November 2017

    I have bipolar disorder, so when my anxiety and depression started going off the charts my doctor is quick to get on top of that. I was first diagnosed with PTSD in 2010 after a serious car wreck (flipped our RV and tow vehicle three times. Yowza!)  I took Lexapro for about a year, until I had my symptoms under control.  I don't know why PTSD snuck up on my during BC treatment--having had it before, I knew I was at risk for having it again.  My DH developed PTSD after open heart surgery, so I was well aware that life-threatening illness could cause it.  DH was the one who actually recognized my symptoms first--anxiety, apathy, anhedonia. I was like a lump on a log, just staring off into space all day.  My doctor immediately put me back on Lexapro and this time I only needed it for 6-7 months.  I had no side effects from it and when it was time to go off it I had no withdrawal symptoms. I've been off the Lexapro for a little over a year now and I'm doing much better. 

  • azrescue
    azrescue Member Posts: 116
    edited November 2017

    I am interested in this topic as well. I was previously diagnosed with PTSD too. And, I have a long history of depression/anxiety. So, I shouldn't be surprised at all that I'd have this with breast cancer. My dr has twice now highly recommended that I try 10mg of Lexapro. I keep putting it off because I am SO scared of the possible side effects. Which in reality seems a bit silly to me since I've made it through chemo. Talk about possible side effects. However, my counselor explained it and it made much more sense to me. I know a big possible side effect is the lack of sex drive. However, can it really be any less then it already is with all of this anxiety, AND menopause (chemo induced)? I mean I can orgasm now so that would really suck if that went away. But what if the Lexapro makes me a better me?

  • MTwoman
    MTwoman Member Posts: 2,704
    edited November 2017

    azrescue,

    " But what if the Lexapro makes me a better me?" I'd say, what if Lexapro allowed you to be more yourself (less the horrible anxiety/depression)? Taking any medication should be for a reason (medically necessary) and we, as patients, should be fully aware of possible side effects. Two great things about this particular medication is a) it is a second generation med, which means that they reduced the likelihood of many of the common symptoms of the first generation (Celexa) and b) if you do find that you have side effects, you can stop it without risking your future health (unlike chemo, as you mentioned). I am glad that your counselor talked about how the medicine works, and would likely be a good candidate for helping you monitor for possible side effects/benefits (which is a very useful process). Best of luck!

  • Tri-lady7
    Tri-lady7 Member Posts: 133
    edited November 2017

    Hello- I am suffering with major anxiety and drepression as well. I am still in the middle of treatment so I am hoping it will ease when completed. I did start seeing a therapist and she put me on lexapro as well. I just started so don't know how it has really effected me yet. What is tapping? Thank you!

  • MTwoman
    MTwoman Member Posts: 2,704
    edited November 2017

    Tri-lady, if tapping refers to EMDR, that is a type of intervention that is practiced by specially trained therapists. EMDR stands for Eye Movement Desensitization and Reprocessing, which is a very helpful treatment for people who have suffered trauma. (http://www.emdr.com/) The (very basic) gist is that a light bar (where there is a light that travels across the bar) that you follow with your eyes, or buzzers you can hold in your hands that alternate buzzing between left and right, or head phones where a low sound alternates from left to right is used (I think some practitioners may do more "low tech" things like tap alternately on right or left - although I've never seen this approach in practice). The premise is that experiences that are stored in our amygdala (traumatic memories) can be moved to long term memory where they belong, so that they aren't intrusive any longer, but more like other memories. It does seem to be quite effective in a certain percentage of people and can be used without the person having to actually TALK about their traumatic experience - which for some people can actually be retraumatizing.

  • Tri-lady7
    Tri-lady7 Member Posts: 133
    edited December 2017

    Thank you so much MTwoman- I will mention this to my therapist

  • Peregrinelady
    Peregrinelady Member Posts: 1,019
    edited December 2017

    EMDR worked wonders for me. I was with my twin sister in ICU when she passed from a reaction to chemo and I had difficulty not going there in my mind. After EMDR, my mind goes there and then flits away immediately. It also helped my daughter when her boyfriend passed away suddenly from an asthma attack. Thanks for the explanation, Montana woman.
  • TaRenee
    TaRenee Member Posts: 464
    edited December 2017

    I don’t know how much of my anxiety is PTSD related, but I’m not taking anything right now. I’ve taken Ambien in the past to help me sleep but it got to where it didn’t help. Insomnia and anxiety. I try not to show it, but I think it’s starting to get to me. I may call my PCP and see if he can get me something. Ugh I hate cance

  • MTwoman
    MTwoman Member Posts: 2,704
    edited December 2017

    TaRenee, I think that if your anxiety started with your diagnostic process, it does not have to be PTSD to be awful. Anxiety can be truly debilitating. I would encourage you to seek a therapist who can work with you to reduce your anxiety. If you want to check out a thread I have that goes through different (more natural) options for anxiety and sleep, read this thread here: https://community.breastcancer.org/forum/83/topics/855477?page=4#idx_113


  • Sweet_Pea
    Sweet_Pea Member Posts: 178
    edited May 2018

    Hi all,

    I've noticed that my PTSD has been somehow re-activated by the breast cancer. And since my primary coping mechanism has always been eating, I've steadily gained weight since I was diagnosed last year.

    I'm in therapy and on meds, but it just doesn't seem to be enough. I'm thinking of trying acupunture but will have a hard time fitting it in to my schedule unless someplace will treat me on the weekends, I'm afraid.

    Any other ideas? @FarmerLucy, any better with the light box?

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited May 2018

    it is summer here now in Ok, so I get plenty of sunshine. I think it does help in the winter months. My PCP had a total hissy fit about my weight. He gave me a book called “ Younger next year”. I’m on an all out assault to get fit. In fact I’m on the treadmill right now. Also listening to podcasts by Cookie Rosenbaum. Little room for depression when I’m exercising. Big hug.

  • Sweet_Pea
    Sweet_Pea Member Posts: 178
    edited May 2018

    FarmerLucy, thanks for replying. I'd get lots of sunlight except I'm at work all day. I think I get enough anyway, however, because Madrid has more sunny days per year than most places -- we're pretty lucky in that sense. :)

    I like the "little room for depression while exercising" idea, let me see how I can work more into my schedule. I'm sure it would help me in lots of ways. Another thing I'm doing is trying to get 8 hours of sleep a night. It might sound idiotic, but I wasn't gettiing enough sleep and I think that can mess up lots of body processes, including weight and emotional issues.

    Anyway, we'll see what the doctor says next week about my depression.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited May 2018

    Ah yes - sleep. A good night’s sleep. Best. Thing. Ever. Puts everything else in its place.

  • pupmom
    pupmom Member Posts: 5,068
    edited May 2018

    Jojo, my daughter has done tapping and says it absolutely works! I'm on Effexor, which has helped my mood and hot flashes a lot. I agree with others that finding someone you can open up to is so important. It's been many years since my dx, but therapy at my cancer center helped a lot in the beginning. That said, time really is the best healer. Best wishes!

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