Do most TNBC'ers get ki-67 scores?

TNBC is linked to high KI - 67 scores, so for us it is not a useful information. KI67 scores are a helpful tool to decide between Luminal A and B tumours when hormone receptors are positive. Luminal A mostly is fine without chemo, Luminal B mostly has to undergo chemo. To decide between these two categories, it makes sense to define KI67 scores.

I am a good example how subjective it is to define KI67scores: My core biopsy said 80%, my second opinion said 60% and when my tumour got genetically tested, the report stated 20%.

I do not think that there are lower scores than 20% for TNBC. And all scores about 14 % are considered high.

I am also diagnosed in September of this year. I have not started treatment yet. In fact Dr. called this morning and left message that he has treatment plan to discuss with me. I have recently switched drs...so the time frame is my doing.

But my Ki67 is 5%. My docs have told me this is significant as Chemo works on fast growing cells and mine are indicating slow. I keep googling and seem to only find sites for fast growing or high Ki67. Not much on low at all.

I have had different stagings by different docs. 1st doc said 3A second doc says 2B.

Its a lot of information and well, I just tell everyone I have blender brain now because it all just gets thrown in and im dizzy with it and its all mixed up.

I am also not very good at just being an obedient I want to know who what where when and why.

overwhelming to say the least.

So, I have to say, this website and my lack of computer skills are kind of confusing and just now figured out my way back here.

Yep...blender brain, I tell ya.

So, for an update, i ended up having a 'metobolic profile' test. (Dr. said this test was not available 3 months before we did it- is it true? IDK) Not all results are back in even yet. (A month later)

But the part we did get back basically told what chemo drugs were likely and unlikely to work on my specific cancer.

I am on carboplatin and abraxane once a week for 12 weeks. So far, I have had 3 doses my 4th will be Wednesday Feb 7. I started with 3 large tumors. 2 in my right breast and one in the armpit. The 2 in the breast were so large it was almost impossible to tell there wasn't just one taking up half my breast. basically the upper right half.

The chemo has been different in side effects from week to week. second week I was in tears ready to quit. I have NOT had much problem with neasea and vomiting. Stomach cramps...more like knives and needles. body pain. brain fog. fatigue. neuropathy pain. dizziness. ugh. (Oh, I also have chiari malformation and syringomyelia...SO NOT fun!)

I dont know if I will make it through the whole 12 weeks. The bad weeks are bad. This past week has been tolerable. sort of.

However, after only 3 treatments...by feel, I would say my tumors are only half the size. the one in the armpit..probably even less.

I've heard these particular drugs are effective on TNBC. but that often ppl drop out of treatment and it tends to lower white cells. My test have been good so far.

Hair started falling out last week. Not bald yet. I have fine hair to begin will so, my hair just looks stringy and sloppy now. Just never stops loosing hair. Irritating really...on clothes, gets caught on fingers, caught in glasses, leave some wherever I go. lol oh and little bumps on head. Kinda looking forward to being bald so i can put some darn benedryl cream or something on there. stop the itch! And go hat shopping! Well, online.

9 more infusions to go. Then the next phase.

...if i didnt post this is the right place, feel free to instruct me as I am lost.

I have recently learned there is a subtype of TNBC that has low ki-67 scores and these do not respond well to chemo typically. I did not have ki-67 score, but I have asked for it.