Starting Radiation November 2017

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  • AngelsGal57
    AngelsGal57 Member Posts: 145
    edited November 2017

    Lifechoices

    I guess I am pretty lucky my RO gave me 2 large bottles of Aloe Vera and handfuls of samples of Calendula cream and Aquaphor which they want me to use twice a day after every treatment. Seems to be working as my skin isn't hot to the touch or pink or tender after 5 treatments. I guess every RO has their own regiments.

    AngelsGal57

  • AngelsGal57
    AngelsGal57 Member Posts: 145
    edited November 2017

    Congratulations NikiJ on finishing your treatments. May it be a great new beginning for 2018!

    AngelsGal57

  • Ellyn27
    Ellyn27 Member Posts: 147
    edited November 2017

    Had my mapping session last week and got the call today that I'll be starting RADs next Monday. They said the first time takes longer for setup, which I understand but then they said I'll be meeting with the RO and nurse for about a half hour as well. What's that about?

  • 53nancy
    53nancy Member Posts: 497
    edited November 2017

    NikJ, wishing you all the best with your hormone therapy. I hope it works well for you. Keeping you in my prayers

  • sunnyjay
    sunnyjay Member Posts: 238
    edited November 2017

    AngelsGal57, Yes, you are lucky that they gave you aloe... I think I mentioned in a prior update that I had a hard time finding a bottle. Even Whole Foods didn't have what I needed... My local drugstores have their own version of aloe vera, but I was instructed to get 98% or higher "pure" aloe vera. ,I found one at Sprouts, which is a grocery store selling natural foods and has a health & beauty section. I would like to find a travel size to carry around with me. I just finished rads #10, and I think the aloe is helping because I don't have any pink areas or warm areas either. I had a little peeling a few days ago, but it has subsided.

    One SE that just started noticing is a pinching feeling under my armpit. It's like a light twinge that comes and goes. I meet with my RO tomorrow so I'll ask him about it.

    Ellyn27, I think the meeting with the nurses is to get your scheduling set up, and to go over any do's and don'ts during the treatment. At least that's what my meeting with the nurse was about...

  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited November 2017

    sumnyjay I saw an earlier post for the Fruit of the Heart aloe... I just purchased that today. I've been lotioning with Eucerin in the morning and Aquaphor at night. I'll try to keep the gel or the miaderm cool for after rads... and a cotton t to sleep in.

  • sunnyjay
    sunnyjay Member Posts: 238
    edited November 2017

    Lifechoices2017, That's the same brand my rads center uses. I actually had a travel size of that, that I bought year ago or so. But it's no longer sold at the same place I got it before at least now that it's fall. Did you purchase it online?

  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited November 2017

    sunnyjay the Fruit of the Heart aloe, I got from Wal-Mart! It was less than $2....

    The Aquaphor I got from a local pharmacy and the Miaderm I purchased offline; Amazon.

  • Georgia1
    Georgia1 Member Posts: 1,321
    edited November 2017

    Hi all. I just came back from my "practice run" and thought I would share some info. for women like me who haven't started radiation treatment yet. I am going to be in the prone position, lying down on my stomach with one breast dangling through a lovely little slot. Today was all about getting me in the right position and taking pictures, which took 25 minutes. But the tech said an actual treatment would take less than 15 minutes. They let me keep my pants, socks and shoes on, which is great, and covered me with a nice blanket. They also showed me how the machine works and how much of my chest will be irradiated. Warning: it is a lot! I was glad to get the details because I will now be applying my calendula cream all the way up to my collarbone, over to the middle of my chest, and two inches around the side of my breast. I don't know why I thought it would be a small circle but it is actually a larger square.

    I start Monday and am scheduled for all late-afternoon sessions, so will be stopping on my way home from work. I see my RO every Wednesday after that day's treatment.

  • 53nancy
    53nancy Member Posts: 497
    edited November 2017

    Georgia1, I was told to cover the same area, plus two inches below the breast and all of the armpit. Tomorrow, they will show me pictures of the whole area to be irradiated and then I will cover more, just to be safe. My Alkaline diet got thrown out the window. They want more carbs like whole grain bread rather than flatbread, more fruits, potatoes and way more protein. Lots of dairy or soy milk and low sugar juices. They said it doesn't matter if my sugars and weight go up, but it must not come down. So I am glad I am on a short course of treatments. Three down, thirteen to go.

    Happy Thanksgiving to all our American counterparts

  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited November 2017

    53nancy-- increased protein is really important in your diet while going thru rads.

  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited November 2017

    53Nancy and Georgia1 are you both doing prone, because I am too...

    When I did my simulation, only my boob was in the hole (lol), I was actually laying on some of area above my boob... it felt like just the boob was exposed. Even the little fold under my breast was barely exposed. Like my nurses hands were right at my breast, no under breast was in the beam area.. I asked my RO if my underarm area would be affected and he said no because I had clear nodes/margins that it would be just whole breast ... but now that you've been diagrammed a square, I too start next week, Wed..so I better lotion up and ask to see my exact area so that I don't get any early SEs..

    Thanks for that info...and here's wishing you happy and healing rads!:)

  • Ellyn27
    Ellyn27 Member Posts: 147
    edited November 2017

    I start RADS next Monday as well. They said I would also be meeting with the RO and a nurse for about half an hour, not sure why. I will definitely ask them to show me the exact area getting radiation. I'm so happy this was brought up. Now I have to plan healthy meals for next week and be sure to include more protein. I'm so bad at planning meals. I wish they'd just give me a grocery list and a meal plan for the week!!!

  • 53nancy
    53nancy Member Posts: 497
    edited November 2017

    DodgersGirl, lifechoices2017 - thanks for the information about the purpose of protein, I will up as much as I can, having it confirm today that it is only during treatment. From what I understand I was at an acceptable level already for those who don’t have cancer. As far as the position I am in, I am lying on my back and today they showed me the area that will be covered by the radiation And it will take in part of my armpit. It seems like they like you to Cover it with your cream to a good size margin outside of that area. Treatment number four completed, with 12 to go. It’s a nice thing that we have a couple of days to not have to go anywhere.

    Ellyn27, luck with your treatment course. Hope it goes very well for you.



  • PauletteK
    PauletteK Member Posts: 2,205
    edited November 2017

    So we need to eat more meat to get our protein during rads? How about eggs, is that good enough?


  • 53nancy
    53nancy Member Posts: 497
    edited November 2017

    PauletteK, we saw nutritionist yesterday and she told us no more than 30 percent proteins from animal sources. I tokd her I do smoothes with protein powder and she was okay with that. I don't eat hread but she says 3-4 slices of whole grain bread a day. You get 2 g of protein fom one slice qnd she says I must have 70-90 g protein a day. I just finished a smoothie with 2 per cent milk, spinach, blueberries, ground flax, chia, quinoa and figured it at about 33 g protein. They don't want me to lose weight, even though my sugars might rise. Smoothies help me to control that. And she said that during rads I can eat lots of eggs. So two slices toast and two eggs make 16 proteins, and eggs offset carbs to keep my sugars down. Eggs are 6 g each

  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited November 2017

    paulettek-- I have been eating eggs for breakfast each morning during my rads

    As 53nancy wrote, I was told to try to eat 90 grams of protein a day during rads.


  • 53nancy
    53nancy Member Posts: 497
    edited November 2017

    DodgersGirl, what types of protein are you using?

  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited November 2017

    53nancy-- I am eating eggs and meat for proteins

    I am optimistic in that RO told me the new skin is coming in very well. He said I appear to be healing at the same time as getting the last few rad treatments.

    And maybe (?) keeping proteins up is why I am not fatigued during rads. Energy level is nearly back to pre-diagnosis

  • PauletteK
    PauletteK Member Posts: 2,205
    edited November 2017

    70-90 G protein a day is a lot I need to figure out what to eat.

    Nancy - what kind of smoothie do you prepare?

    DodgersGirl- how many eggs do you eat a day?


  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited November 2017

    paulettek-- for breakfast I have a 3 egg o

  • Georgia1
    Georgia1 Member Posts: 1,321
    edited November 2017

    Good morning all. I just found this on an oncology website:

    • Meat - beef, pork, lamb 3 oz = 21 grams
    • Poultry - chicken, turkey 3 oz = 21 grams
    • Fish 3 oz = 21 grams
    • Milk 1 cup = 8 grams
    • Yogurt 1 cup = 10 grams
    • Cottage or ricotta cheese 1/2 cup = 12 grams
    • Hard cheese 1 oz = 8 grams
    • Dried beans and legumes ½ cup = 8 grams
    • Tofu ½ cup = 14 grams
    • Nuts ¼ cup = 7 grams
    • Peanut butter 2 Tbs = 7 grams
    • Vegetables ½ cup cooked = 2 grams
    • Starches -1 sl bread, ½ cup rice or pasta, 1 serving cereal = 2 grams
    • Fruit 0
  • Georgia1
    Georgia1 Member Posts: 1,321
    edited November 2017

    And this was interesting:

    During radiation you will need appropriate amounts of protein for cellular regeneration. After all, if you don't make enough red blood cells you will feel weak and tire easily and if you don't make enough white blood cells you will have a tough time fighting off even the mildest of colds.

    Most healthy adults need between 45 and 60 grams of complete protein per day, which should account for 10 to 15 percent of their daily caloric intake. Adjustments may need to be made for specific disease states. Check with your nutritionist to see what your protein requirements are.

    Protein can be divided into two groups: complete and incomplete. Complete proteins have all essential amino acids in the correct proportion for growth. Sources of complete proteins include dairy products, eggs, fish, fowl and meats. Incomplete protein, otherwise known as low quality protein, lacks one or more of the essential amino acids or contains them in the wrong proportion for growth. Sources of incomplete proteins include beans, grains, fruits, nuts and vegetables.

    If you combine two types of incomplete proteins, they can become complementary to each other, creating a complete protein in the process. These complementary proteins are formed by combining legumes and grains, legumes and nuts or seeds and nuts or seeds and grains together.

    Should you choose to consume animal products for their protein content, try and purchase products derived from organically fed, hormone free animals. Plant based proteins should be organic as well.

    Along with being the only plant based complete protein, soy has many other cancer fighting characteristics, including being a good source of calcium, acting as a phytoestrogen and promoting antiangiogenesis. So, instead of ordering that steak, how about asking for a veggie burger?

  • PauletteK
    PauletteK Member Posts: 2,205
    edited November 2017

    Thank you DodgersGirl, and Georgia - I guess I need to eat, eat and eat. Fruit got no protein that’s not good, but we should eat fruit. I don’t think we can pack 3 eggs in the morning, will try to eat egg before my oatmeal for breakfast.


  • 53nancy
    53nancy Member Posts: 497
    edited November 2017

    PauletteK, yes the higher protein regimen is necessary to help the skin regenerate. My nutritionist told me that there is no limit on how many eggs I eat during radiation, so I will probably do two eggs for breakfast three times a week. My favourite smoothie is one cup water (with three tablespoons of skim milk powderadded for duration of radiation course), spinach and blueberries to taste, one scoop of protein powder (the one I use now is 17 proteins), and one tablespoon each of ground chia, flax and quinoa. My nutritionist says quinoa is a perfect protein.

  • 53nancy
    53nancy Member Posts: 497
    edited November 2017

    Georgia1, I love the list that you put on this website. I am also doing one smoothie a day, but if I find it difficult to keep my protein up I may change to two. I posted to Paulette what I use in smoothies, and now that I am using skim milk powder instead of just plain water, I figured the one I had yesterday was about 30 proteins. Is a third of what I need to do. And thanks for the other post about proteins; it is such useful information. I am so thankful for the support and information I have gotten from the ladies who post here.

    DodgersGirl, thanks for sharing that your proteins may have helped with fatigue. That is the thing that I am dreading the most. I am tired today, but I think that is just from a very busy week of driving back-and-forth and then, today as well, we went across to North Dakota for some shopping. I appreciate so much everyone’s input to this forum, It reminds me that I will get through this. First five rads behind me, with 11 to go. Forecast for next two weeks appears to be good, though we know that canchange so fast, but after that there will just be two treatments.

    Wishing everyone a great weekend.

  • 53nancy
    53nancy Member Posts: 497
    edited November 2017

    Hi again. I have been using creams/ointments three times a day and there is no pink skin yet. I am using Lubriderm, Base Glaxal (radiation oncologist was adamant about this), and Calendula ointment. now that it has been approved. First application is immediately after treatment in the morning, then mid-aft and bedtime. Does anyone apply more often, and how has it helped you? Thanks in advance.

  • 53nancy
    53nancy Member Posts: 497
    edited November 2017

    Can anyone tell me how to get my treatment on to my information? I set it a week ago and it still isn’t shiwing

  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited November 2017

    53nancy- did you mark your rad treatment as "public" when you added it to your profile

  • 53nancy
    53nancy Member Posts: 497
    edited November 2017

    Thanks, DodgersGirl. I just figured that out

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