Starting Radiation November 2017

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  • 53nancy
    53nancy Member Posts: 497
    edited November 2017

    So, I have had my first treatment. Not as fearful as I expected. BUT I have been told they would prefer no green tea, no cabbage leaves, no Aquaphor, no calendula cream, no aloe Vera.They told me the only thing they want me using is Glaxol or Lubriderm.

  • PauletteK
    PauletteK Member Posts: 2,205
    edited November 2017

    DodgersGirl- I found your old post regarding green tea and I have couple questions......

    “the green tea concept was posted by someone from the May 2017 Rads group and posted again in the Aug 2017 group. I boil water and use 5 ounces of it to make green tea. Add 2 bags green tea to the water and steep at least 30 mins. I do steep longer. Then squeeze the tea bags to get all the liquid out. I make this tea on Sundays, Tuesdays, and Thursdays I keep the tea in a container in the refrigerator. When I go to rads I take a ziplock bag with 3 cotton pads and a really small container with tea. After rads (mine are in the morning) I take a cotton pad and get it wet from the tea and apply that to the radi“

    * You keep the tea in the container in the refrigerator.... with NO Tea Bag?

    * you take your tea inside a small container and cotton pads to rads so you can use it right after radiation?

    How many times do you do this ?

    Sorry I ask so many questions I guess I just want to be clear.

    Thank you.

  • Ellyn27
    Ellyn27 Member Posts: 147
    edited November 2017

    Linwentz - Thanks for the cabbage info. I'm wondering also about a particular brand of green tea.

    tlfrank - I'm going to attempt going without deodorant and see how that goes. I just had my mapping and the drs and nurses didn't say too much about side effects. I think they are down playing it and won't bring it up unless I start to have issues. Feel better.

  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited November 2017

    paulettek-- I steep 3 green tea bags in 6 oz of boiling water for a min of 40 mins. Then I squeeze all the liquid from the tea bags into the 6 oz of tea and throw out the tea bags.

    I place the green tea in the refrigerator.

    Since my rad sessions are in the morning, the first green tea regiment of the day is right after rads. In the changing room I use a cotton pad dipped in green tea (I bring small container with small amount of tea for each rad session leaving the rest of the tea at home in the refrigerator) and wipe it over the radiated area. Then I do the same thing with 2 other pads. So in the changing room I have wiped the raduated area a total of 3 times after rads. Then around mid afternoon, I do the same thing with 3 new cotton pads and after dinner do the same thing again for a total of 3 times a day

    Every 2-3 days I make fresh green tea and throw out any that I had left over.

    After a couple of treatments I could feel the cotton pads were getting warm after wiping on my skin. It does seem to pull out some heat from treatments.

    I cleared this with my RO and hope you will, too, if going to try the green tea concept. Green tea, as you know, is an anti-oxidant and not all ROs approve this usage

  • OCDAmy
    OCDAmy Member Posts: 873
    edited November 2017

    53nancy, It is interesting how every RO has different protocol for creams, etc. I was given a prescription for Topicort to use at night before bed. I am to put that on followed by a thin layer of Vanicream. During the day I am supposed to put corn starch on the breast.

    I asked about deodorant and the RO had no restrictions. I switched to Native Deodorant which I really like.

  • PauletteK
    PauletteK Member Posts: 2,205
    edited November 2017

    DodgersGirl - thank you glad I checked the post before I leave my house. Will check with RO first.


  • sunnyjay
    sunnyjay Member Posts: 238
    edited November 2017

    Paulettek, I don't know if you're already at your appointment, but one question to ask your RO is what are they doing to make sure your heart and other organs are not affected. I know technology is sophisticated nowadays, but it doesn't hurt to ask. Especially if they are radiating your left breast, you want to make sure that care is taken around your heart. Good luck today! It should be uneventful compared to chemo... :)


  • PauletteK
    PauletteK Member Posts: 2,205
    edited November 2017

    Thanks Sunny I’m at the office waiting now that’s a good question !

  • sunnyjay
    sunnyjay Member Posts: 238
    edited November 2017

    53nancy, my rads nurses were the same way. They also told me not to use anything other than aloe vera. Since it's hard to find now that summer is over, our clinic's pharmacy stocks it. Even my local Whole Foods did not have pure aloe vera. They didn't want me to go buying all these creams that I may not need, so they have sample sizes of creams that they would give me if I have skin issues. I just had rads #9 and my skin is holding up fine... So just go with your RO's recommendations.

    OCDAmy, I use Native deodorant also. I like it better than Tom's. The only issue I have with Native is that the fragrance (lavender) has lessened. I'm about 3/4 of the way through and the scent is very faint. I don't mind it, but I like to catch a whiff of the scent throughout the day. :P


  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited November 2017

    553Nancy any sunnyjay...

    I've seen post where ppl say use nothing until you see an SE... others say lotion up a week before...others are lotioning 2-3xs a day.... uggghh....what to do, what to do?!?..

    Like you don't wanna lotion and not needed. But then you don't want early SEs and wished you had.

    I start next Wed for 20sessions, and I don't know what to do. My RO was like, don't worry about getting anything because we have creams to help. But in my head I'm hearing, girl go buy everything because you're gonna need it. Lol.

  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited November 2017

    lifechoices2017-- I would follow what your RO says to do

    Mine said to use Calendula oil as it was the only thing clinically proven to help the skin while other ROs said something different.

    My RO's office provides aquaphor, radiacare, special care lotions, deodorants to use on radiated side, and skin coverings like Cool Magic as my skin is shedding dead skin. Only thing I had to purchase was the calendula oil as my RO is only one one the group of ROs who recommend it

    I figure each RO knows the outcomes they get from their rads equipment and rad plans so they recommend items based on their experience.


  • Linwentz
    Linwentz Member Posts: 133
    edited November 2017

    The only samples my RO gave was for Aquaphor. Her advise was to use a light cream (Calendula, Lindi Lotion, Aveeno, Cetaphil, Eucerin, or Vaseline Intensive Care) after treatment & through out the day & Aquaphor at bedtime. At each weekly visit, she would ask what I am using... & since I had minimal SE would say to keep doing what I was doing. I am pinker & more tender now..(22/34) .it will be interesting what she says tomorrow. Because of the 4 day break, I am thinking of asking her for a prescription ointment...just in case. I like being prepared

  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited November 2017

    I've been using Eucerin each morning and Aquaphor at night; that was just for the scar and healing from my surgery. The Eucerin is light enough under my bra to not feel like gunk during the day...and at night so that my skin stays soft and not dry out I'll use the Aquaphor; and I shower with Dove. Again I don't know what will work until my rads start, as you said I guess I just want to be prepared.

  • 53nancy
    53nancy Member Posts: 497
    edited November 2017

    Linwentz, I will not see the radiation oncologist again until six to eight weeks after treatment is finished. The radiation therapist did say that the concern is that there would be something like oil on the skin that would prevent the radiation from getting through. But since I will be showering every day and not putting anything on my skin between then and my treatment, I can't see that being a problem; there would be nothing left from the previous day. I am taking my ointments in with me tomorrow so that they can look at them, and they said they can also have someone run them over to the oncologist for him to see. They did say they didn't want anything with vaseline in it used, so maybe I will forget about the Aquaphor. I honestly don't see what the problem with Aloe Vera and Cabbage Leaves are; they just said those are old ways of dealing with radiation that are no longer in use.

  • Georgia1
    Georgia1 Member Posts: 1,321
    edited November 2017

    Hi BonMon! I haven't started yet but my RO said it will be three weeks of radiation, so 15 sessions. Since I had clean margins with my lumpectomy she is not recommending a subsequent "boost." I go in on Wednesday for a practice run then the radiation treatments start in a week: the Monday after Thanksgiving.

    And to all: my RO recommends calendula cream so that's what I'm going with, and she said deodorant was fine to apply in the morning as long as I remove it prior to the afternoon session. (Maybe because I am not having radiation to the lymph nodes?) I have applied the calendula cream daily in advance because what the heck! And I will have to ask her about vitamins and tumeric, which I take.

  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited November 2017

    Georgia1, I too had a lumpectomy; clear nodes and margins...BRCA neg and low MammaPrint, but I have 20sessions... 16 with 4 boost... I start next Wed;) are you doing yours the morning or afternoon? My first 5 are between 11-1230... the rest are at 230. I'll go to work; leave and go back the first 5... the 230 sessions I go to work, rads and then home:) thinking by the 2nd and 3rd week I won't have to wear a bra when I leave. Lol

  • Linwentz
    Linwentz Member Posts: 133
    edited November 2017

    I am bemoaning the fact that my treatment seems so long...28 treatments plus 6 boosts. I have completed 22 and am just now getting pinker & more irritated. At our initial consult I practically begged for a shorter treatment. If this were the beginning of my journey, I most likely would have gotten a second opinion elsewhere... but I sort of thought it was important to stay as a team (not to mention was getting weary of the whole ordeal & just wanted to get things over & done with.) So not only does an RO differ on lotions, they varyon length of treatment as well. For you that have shorter treatments, I am so jealous!


  • 53nancy
    53nancy Member Posts: 497
    edited November 2017

    Linwentz, I understand your feeling about the shorter treatment course, but over my 16 treatments, I will have the same amount of radiation as those who are having six to seven weeks. They will just be at a higher dose. So, I am told 4,256 centigrays divided by 16 - 266 centigrays each treatment. I have no idea what it means or whether that is a huge amount; when I asked, I was told that that was what it would be. I have googled the term but still don't understand. My biggest concern is that, because my dose will be higher and the radiation accumulative, I will experience side effects quickly, especially the fatigue. Just one day at a time, as always.

  • Georgia1
    Georgia1 Member Posts: 1,321
    edited November 2017

    Lifechoices, I get my schedule on Wednesday; I requested late afternoon but it is a busy hospital so I will soon see if they can accommodate that. And you and I have the same plan! I'd love to work til 3, go to the hospital, then never see my bra til the next morning!

    Linwentz, hang in there. I see you have DCIS and grade 3 so that probably determined your treatment length. But you are almost done! Thinking good thoughts for you.

  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited November 2017

    Georgia1 will you be doing rads in the prone position? Face down? I will since they didn't have to do armpit or other areas. I did well in the simulation and getting my rad tats... I'm hoping I can check in and out with a breeze. The nurse did say that sometimes it's a waiting game just in case someone doesn't line up well... but we'll see how mine goes next week...crossing fingers:) Hooray for those of you completed or almost at the finish line.

  • Georgia1
    Georgia1 Member Posts: 1,321
    edited November 2017

    Yep, I'm in prone position too. Did my simulation, got my tattoos, and geez now I just want to get started and get it over with.

  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited November 2017

    Georgia1 same here! I got 2 tats on my back. One at the top of my back, the other almost midway...and one each near my bra strap under my arm. They won't rad there, but just to align me.

  • Linwentz
    Linwentz Member Posts: 133
    edited November 2017

    I asked my RO about length of treatment vs higher dose and she said that it was the length of treatment that caused the SE. So...um, duh!!!! That's why I wanted the shorter length of treatment! She seems very " by the scientific data" & kept referring to "standard gold star care." Big sigh! I am tired and cranky and wanting this whole thing to be over. But it Is all about attitude, right? So i am going to buck up and stop whining. Thanks for allowing me to vent & wallow in my self absorbed Frustration! Two more treatments then a much needed 4 day break. I can do this

  • NikJ
    NikJ Member Posts: 24
    edited November 2017

    I finished my treatment yesterday woo hoo! I'm happy it's over and am looking forward to moving on with my life. To those just starting, it goes fast and you will all do fine!!

  • tlfrank
    tlfrank Member Posts: 199
    edited November 2017

    Linwentz - I also have DCIS grade 3, but mine was 2.6 mm and ER/PR+, you'rs was a little bigger and negative, so maybe that is the reason for the different treatment length. As 53Nancy said, although the treatments are fewer, the rads dose at each treatment is higher. I'm 6 doses in, skin is already getting pink and have some irritation in my armpit....

  • 53nancy
    53nancy Member Posts: 497
    edited November 2017

    NikJ, so happy for you. From your info, you did not do chemo; are you taking hormone therapy, or are you using natural alternatives? I hope everything goes well for you and that you will be happy and healthy.

  • PauletteK
    PauletteK Member Posts: 2,205
    edited November 2017

    Good morning ladies,

    Went to my consultation yesterday, will do my CT scans/ mapping next Monday. Looks like I will start rads in mid December. RO said he will give me sample of cream so I can find which one I like. I will take suggestions here. You ladies know what’s good.


  • 53nancy
    53nancy Member Posts: 497
    edited November 2017

    Hi, everyone. I had my second rads today, and now they've backed-off on what they said yesterday about Lubiderm and Glaxol only, and I can use my Calendula ointment after all. :). :)

  • NikJ
    NikJ Member Posts: 24
    edited November 2017

    53nancy, thank you for your kind words. No I did not have chemo and my MO wants me to start Tamoxifen a month after radiation. I have other health issues so I'm going to the obgyn to talk about having my ovaries removed, then I will take Armidex instead. I know they both have SE's but I already have a circulation problem so I just can't take that gamble with Tamoxifen.

  • AngelsGal57
    AngelsGal57 Member Posts: 145
    edited November 2017

    Hi Linwentz,

    I am encouraged that you are only a little rashy and pink at the 20 mark. I have only been slightly pink at the 5th treatment and sometimes get twinges or pins and needles feelings which could be the nerves from surgery continuing to perk back up. I am praying that I don't have any of the oozing open wound type things like with blistering from a really bad sunburn. I am using aloe vera like crazy and the Calendula cream. Will keep you posted.

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