Anyone have 9 areas of IDc, ranging from 2mm to 10mm?

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Stage2ire
Stage2ire Member Posts: 82
edited December 2017 in IDC (Invasive Ductal Carcinoma)

just got a copy of of my path report today. I'm currently half way through chemo but needed the report for some paperwork. Just read it and its scared me senseless

I had NINE foci of invasive cancer on a bed of high grade dcis.

Tumours were as follows:

2 x 4mm

5 x 2 mm

1 x 8mm

1 x 10mm

In addition I had 9mm of cancer with extracapsular invasion in my sentinel node

I'm staged as stage 2 because they use size of biggest tumour but I'm freaking out. That's a lot of cancerous tumours, albeit they were small. Add them together and its 4.5 cms in total (45mm)

I'm having 4 rounds of AC, followed by 4 rounds of taxol. I had a delay between first and second AC due to wound infection and it ended up being 5 weeks after first dose before I hot 2nd dose. I have small kids. I'm terrified this will come back.

I'm also so angry. My doctor told me last sept I had fibrocystic breasts but he'd refer me to breast clinic anyway as I'm 39. Then it took 6 months to be seen by breast doctor. Admin delay at gp's (I only discovered this after I was diagnosed) and then breast clinic told me I was fine, just lumpy boob. I wanted to be OK and they were the experts so I believed him. It was June before I got diagnosed. I have grade 3 cancer, and lots of it. I'm so angry and sad and frightened.

Has anyone ever seen that level of multi focal disease?


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  • Kimm992
    Kimm992 Member Posts: 135
    edited November 2017

    I had 7 and they were all considered small also. My largest was 17mm.

    I was freaked out by this too. My MO told me that the research is showing prognosis isn't any different if you have a single tumor vs multiple.

    I know it's scary. You're going to be okay...believe it!

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  • Stage2ire
    Stage2ire Member Posts: 82
    edited November 2017

    kimm922. Thanks for replying. I knew I was multifocal, just didn't realise there were do many. My lymph node was growing its own little tumour too! I think its just made me so angry again about my diagnoses being so delayed.

    How are you doing now? Thanks again, people who haven't been through this don't understand. I'd be lost without BCO!!

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  • houmom
    houmom Member Posts: 162
    edited November 2017

    I understand your frustration, my dr had referred me for a diagnostic mm and u/s in April when I had pain in my left breast but when I got to the clinic, they only did a screening mm and said they didn't think I needed an u/s, cut to 6 months later and the lump appearing on the other side (I actually have two masses). I definitely wish I'd pressed for them to do the correct test back in April.

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  • Stage2ire
    Stage2ire Member Posts: 82
    edited November 2017

    houmom, so sorry you've experienced this. Have they given you details on your pathology report or a treatment plan yet? Early days after diagnoses are very hard

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  • houmom
    houmom Member Posts: 162
    edited November 2017

    I have some of the path report back, IDC stage 1, grade 1, 2 separate masses (1.7cm and 0.5cm). Still waiting on the ER/PR/HER2 report and genetic testing.

    I am seeing the MO this week, PS and an MRI scheduled for next week and then meeting with the BS the week after that to finalize the treatment plan. Right now I am planning on a bilateral mastectomy with recon. I’m hoping I won’t need radiation or chemo but will do whatever is recommended.

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  • Meow13
    Meow13 Member Posts: 4,859
    edited November 2017

    yes my mo said the same thing I had 2 tumors really no different than one. One was ilc the other idc.

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  • Shellsatthebeach
    Shellsatthebeach Member Posts: 316
    edited November 2017

    I had four small tumors. One decided to get its own blood supply. I had both lymph node involvement and LVI. As others all ready stated, multiple tumors are no worst than one tumor.

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  • Stage2ire
    Stage2ire Member Posts: 82
    edited November 2017

    lymh node involvement and lvi here too. I found it very frightening when I realised how much cancer was in the node and how much invasive disease there was. I wouldn't wish this on anyone but thank you ladies who have replied so much. It gives me renewed hope that I can beat this. Wishing all of you good health!!

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  • GreenEyes81
    GreenEyes81 Member Posts: 389
    edited December 2017

    Wow, I would be stressed as well! I had multifocal- 3 lumps of IDC mixed in with DCIS all over. I have now found a new lump in my remaining breast....the one that actually sent me to the doctor in the first place for pain and brown/red discharge that was "not an issue" since nothing was found concerning. I feel like it is about to start all over again. At least I know what to expect and I won't share nearly as much.

    How are you doing? My doctor said all the same things yours and the other ladies said as well. They just go by the largest tumor. I wonder if that is the best thing and how much testing has really been done? It dosn't make sense to have the same treatment for one tumor vrs. 9. Hugs!

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