Was just told that I have breast cancer

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  • bluepearl
    bluepearl Member Posts: 961
    edited November 2017

    1.6 cm is under 2cm and is NOT a large tumour. There may be dcis in that 1.6 cm too....(mind was 2.5 cm but surgically, only 1 cm was invasive). A star-like formation usually indicates cancer....that is a visual certainly of about 80%...iften called spiculated or stellite. Swollen lymph nodes can be a bad sign but uninvolved usually don't show up as anything on ultrasound. But one can still have small invasions...which is still better than big ones. Hang in there. This is always the worst part. (((HUGS))))

  • waytooanxiousmommy
    waytooanxiousmommy Member Posts: 144
    edited November 2017

    Was the tumor size from US accurate? I am glad yours tuned out to not all be invasive! I believe my biggest issue right now is the uncertainty. I've been told I have cancer but nothing else is certain. I have a tendency to catastrophize and I think the outcome will be the worst possible

  • GreenEyes81
    GreenEyes81 Member Posts: 389
    edited November 2017

    In all honestly, you do not know for certain you have cancer either. :) I am dumbfounded by all the recent posts that doctors are telling people they have cancer with no solid proof. A biopsy is the ONLY way to know for sure. When do you expect to hear back on yours?

  • waytooanxiousmommy
    waytooanxiousmommy Member Posts: 144
    edited November 2017

    I will know more next wednesday. I will see the same doctor and also another dr for a second opinion that day and my results should be back by then

  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited November 2017

    GreenEyes,

    Some radiologists are very experienced and are pretty sure when they see cancer on a mammogram/ultrasound. After my diagnostic mammogram, my radiologist said that what he found was "consistent" with cancer and he was right. But, it's true that only a biopsy can say for sure.

  • waytooanxiousmommy
    waytooanxiousmommy Member Posts: 144
    edited November 2017

    The radiologist looking at my scans didn't flag them as suspicious but the oncologist (not specialized in breast) said he was sure it was cancer. Its a bit confusing but I assume he looks at a lot of cancer and knows what he is talking about. I will be getting a couple of second opinions


  • GreenEyes81
    GreenEyes81 Member Posts: 389
    edited November 2017

    I don't disagree they get to know what they are looking at. Mine as well as the doctor made it clear that is "a concerning" lump. They would not let me wait a couple of weeks to get a biopsy.

    My concern is the fact that the doctors are saying it is cancer for sure and possibly causing undue stress and axiety. I later asked my the first doctor that did the first set of biopsies when she preformed the 2nd set if she knew then. As she put it, she thought so but she had been wrong and they never say for sure becuase until the results comes back, nothing is for sure.

    I could not imagine being told I have cancer only to be told a few days "opps, I was wrong".

  • waytooanxiousmommy
    waytooanxiousmommy Member Posts: 144
    edited November 2017

    I really hope my doctor turns out to be wrong. His words have certainly caused an enormous amount of anxiety for me and I am mentally ready to be told that I have cancer and just hoping that it either won't be cancer and if it is that it has not spread too much

  • Shellsatthebeach
    Shellsatthebeach Member Posts: 316
    edited November 2017

    It is a good sign they didn't feel or see any indication of lymph node involvement. I had lymph node involvement which was both seen and felt during ultrasound visit. Hang in there waytooanxious. Sending positive vibes your way!

  • Leapfrog
    Leapfrog Member Posts: 464
    edited November 2017

    waytooanxiousmommy.... if your mass is cancer and it's 1.6cm that is early stage cancer. Up to 2cm is called early stage. If your lymph nodes don't look enlarged it's unlikely to have spread to the nodes. I know it's easy for me to say from where I'm at one year later but my cancer, when it was eventually picked up (a long story of maltreatment by a breast surgeon which I won't go into) was already Stage IV. I had a 10cm primary tumour and the right breast and a 2cm primary tumour in the left breast. The important point for you to hold onto is that, at ultrasound, I was told the lymph nodes looked active. At my BMX it was found that I had 29 out of 29 cancerous lymph nodes and after a bone scan the next day I was told I had extensive mets to the bones, in fact my entire torso is taken up with tumours. I'm not telling you this to get sympathy. I'm telling you because it shows you that even a diagnosis like mine doesn't mean I'm on the way out. In fact, once I'd had the operation and was put onto treatment, I immediately started to feel better. My cancer is hormone receptor positive which means that my treatments consist of ridding my body of oestrogen entirely for the rest of my life by taking hormone inhibitors. I've been told that with this treatment I can still live for many years, all going well. I'm sharing this with you so that you can understand that a diagnosis of breast cancer is not a death sentence and there are many treatment options.

    This is some advice I posted some time ago on another thread for ladies newly diagnosed with breast cancer and I hope it relieves some of your anxiety to know that we can still live well with cancer if, in fact, you do have cancer, once we know a few tips.

    At first you'll be in shock and disbelief. The disbelief can be with you for a long time but this isn't a bad thing, it protects you from the frightening place you've found yourself in and, once that has worn off, you can begin to accept what's happened and work on how to create a good life in this new reality. Try not to analyse too much or think about the past and what might have caused your cancer as that is futile now. At first it's bewildering and there's a lot to learn in a short time but just take it one step at a time.

    There are a lot of stages to go through before you start to realise that life can be good. I know that from where you are right now that might seem strange but, for me, having Stage IV cancer with extensive bone mets has focussed my mind to what really matters in life and the following approach has worked for me:


    Write everything down....I keep a day sheet with my drugs, the time to take them and I tick them off when I take them. Make a note of any side effects. Note down everything you're told to do as at first it's too hard to remember what you're told while you're in a blur of new drugs and pain killers.


    Don't blame yourself.... you did nothing wrong, this is just rotten bad luck.


    Learn to be selfish.... and by that I mean learn to put yourself first....a lot of women go through life making themselves their last priority...for me getting sick has taught me that I was there for everyone but myself and that had to change.


    Take it one day at a time..... don't look at the future, just take your tablets, turn up for appointments and between those times find things that make you happy and concentrate on those.


    Live in the moment.... each moment is a gift.


    Appreciate what you have.... don't focus on what you've lost.


    If you need encouragement, call out for help. Support will come flooding in.

    This is a lot to process but, believe me, if you try to follow these steps you'll find that having cancer, frightening as the diagnosis is, doesn't have to scare you out of enjoying life.

  • TizzyLish
    TizzyLish Member Posts: 41
    edited November 2017

    Wait, the radiologist didn’t find anything suspicious in your scans but the oncologist said he’s sure you have cancer from the ultrasound? I would feel more confident in a radiologist’s interpretation of an ultrasound than an oncologist whose expertise lies elsewhere. Regardless, only the biopsy will tell for certain

  • ToughCookie101
    ToughCookie101 Member Posts: 191
    edited November 2017

    Was it your family doctor who told you it wasn't early stage? I was diagnosed last Wednesday at 33 by my family practitioner who made it sound like this was terrible. I have grade 2/3 IDC (no stage or hormone status yet). My family doctor made it seem aggressive (isn't that the definition of freaking cancer?), not small tumor but not big either, and "on the fence for having spread." How she knows that is beyond me. But then I saw my surgical oncologist the next day, and he walked in and said "I see you have a little cancer." He told me that at first glance it appears to be early stage. Night and day between the two doctor surgery and clearly it is the surgical oncologist who sees this all the time. For reference the US puts my lump around 1.5 x 1.4 x 0.8 cm.

    One step at a time. And as others say, it still might not be cancer!


  • edwards750
    edwards750 Member Posts: 3,761
    edited November 2017

    There is a reason why doctors are experts in their respective fields. While a GP might be able to detect cancer it’s not his expertise. I would definitely yield to a Radiologist and/or Oncologist.

    I had a PA tell me I needed to go back to the cancer clinic like yesterday because she spotted lung nodules on a chest X-ray. I wasn’t having any lung symptoms but did have chronic allergies but still had a 99% oxygen rate. I told her I would wait for the Radiologist report. She was miffed and told me he would agree with her. He didn’t. The report came back normal and the Radiologist determined the nodules were more than likely scar tissue from the radiation.

    Just saying leave the findings to the experts. Also my BS told me initially I would need chemo because of a micromet in my SN. My Oncologist said said not his call and ordered an Oncotype test. Score came back low, no chemo.

    Doctors need to avoid making determinations that are not totally skilled to do.

    Diane

  • waytooanxiousmommy
    waytooanxiousmommy Member Posts: 144
    edited November 2017

    Leapfrog. I am moved by the spirit of your post. You have been through so much and I am so glad you are feeling some relief. I am praying for more research breakthroughs and help with cancer especially stage iV. We all have to die sometimes and even with stage IV you don't know whats around the corner and how long you will live and what you will eventually die from. Whats hard is the quality of life and attitude and your caregiving team can make a huge difference there. My very best to you. Hugs and love

  • waytooanxiousmommy
    waytooanxiousmommy Member Posts: 144
    edited November 2017

    The person who who said it was cancer was not a GP but an oncology surgeon. I do think he probably is right. I never spoke to the radiologist and the report did not say highly suspicious. It seems to me that either the radiologist must have thought it wasn't cancer or else he/she was sloppy and did a poor job. The alarming thing was that my doctors office never called me. I was just concerned enough to ask for my results. I could easily have fallen between the cracks. I asked my doctor about that and she said that radiology didn't call her or mark it as something to be very concerned about. I will be moving my care from this hospital and doctor. I live in a place where there are two top cancer centers and I have second opinions scheduled at both.

    On the ultrasound the lump looked like a black hole surrounded by cloudy wisps. Not starburst or spiculated but the borders were certainly not clear and the surgeon explained that the tissue around it looked disturbed. One thing that confused me was that be said the only other thing it could possibly be was a phyllodes tumor and that it was a tiny chance it was that. With so many breast issues out there how could he know it could be absolutely nothing else? but what do I know, he is an oncologist so I have prepared myself for it to be cancer

  • msphil
    msphil Member Posts: 1,536
    edited November 2017

    hello sweetie when u hear those words I too thought it was the end,I was making wedding plans 4 Our 2nd marriages But I'm here to Inspire u and others that u can get thru this I am now a 23yr Survivor Praise God. Hope is what got me thru along with family n friends. Positive thinking I Will He Thru This.mail idc stage2 0/ 3nodes chemo 3 months before n after Lmast got married then radiation 7wks then Our Honeymoon. Believe

  • waytooanxiousmommy
    waytooanxiousmommy Member Posts: 144
    edited November 2017

    Thanks mcphil. I feel overwhelmed. Like I don't know what to do next. Your words are just what I needed right now. I am feeling loved by friends and family. I hope I can believe

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