Starting Chemo in JAN 2007
Comments
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Damn!! Here's my big fat whine..
As I was taking my shower this morning, I recognized I was losing my hair. AHHH! I have very thick hair, so I shed anyway, but this is more than just a few hairs. It sucks. I have been crying on and off all day. I really thought I was ready for it. I imagine it won't take but a few more days and it will all be gone. I go to A/C #2 tomorrow, so today was my last day at work until next week. I know it's only hair, and it will grow back, but it's lousy!! I gotta get it together and stop crying about this. It just makes all this so real and visable.
On a positive note, I do have a few hats, a few wigs, and my best friend is coming over to help my DH shave my head (and this is good!!???!!) It is nice to have the support, and I will get over this.
Thanks for letting me cry on your shoulders..
tlc -
Oh my. I am cringing for the two of you. I am just dreading that part too. Actually, I think I'm over the initial horror of losing my hair but once it starts to fall out, I'm sure it'll really hit.
How are you feeling physically? Okay? Tired? Nauseous? Have you had to take many of the drugs prescribed/suggested?
Hang in there gals. You can do this! I'm with ya, and sending good wig/scarf/hat vibes your way.
Amera -
I'm feeling OK physically - just getting over this rotten cold. It made me feel better though, that it stayed just a cold - no infections yet! I took the anti-naseau meds as prescribed. They have their side effects too though, mainly constipation, the "jitters", moodiness ( although I have a reason to be "moody"). But, better than throwing up.
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Ok ladies, I'll be joining the January girls next week. I just came from my Onco visit and I'm to get a port this week and start chemo (Tamoxifen and Herceptin) next week.
He said I shouldn't have to worry too much about nausea. They treat for that before the chemo, but I will lose my hair.
I don't think it's going to be a big deal for me, but he did recommend a buzz cut about 2 weeks after the first treatment.
He also gave a script for a wig, although I don't think I'll use it.
So, it' seems good to get on with my treatment, but I'm not sure why it also seems depressing? -
Hi,
I had my last chemo on Jan 2 and already my hair is making a defiant stab at coming back. I did as most of you have done, a buzz cut before I lost it naturally and woke up with it on my pillow. I had a head-shaving party with some close friends and it helped lighten it somehow. I still felt down when I caught myself in the mirror - I knew why it had fallen out.
Fill the script for the wig. You don't want to find yourself invited out at short notice to a must-go event and have to try and get something sorted asap. Much better to have something chosen at leisure and that you like. I still want to rip it off when I get home and run free!
And don't forget the water. Sometimes it's really hard to get it down but it's the difference between a bad experience and a better one. WATER and more water. I used to love the carbonated flavoured waters but as the chemo progressed I found I just wanted plain old still water.
Good luck all you January ladies. I did not believe that it would ever be over and I did not allow myself to think beyond the now, but that is in the past and I have come out of the last woolly weeks to where I am now ready for the next stage. Like you I didn't think I'd get here, but I have and you will too. I have just bought myself a baby hairbrush for my new baby hair.
Big hugs to you all and remember - water, water, water.
Valsul -
Hi Nemille,
I was scheduled to start AC tomorrow, but after a lot of worrying about my heart, I managed to get the regimen changed. I am now taking Taxotere + Cytoxan, starting tomorrow. They told me I'll be sleeping through most of the infusion because they'll have been on benadryl. I had had weeks to learn about AC, but now just one day to learn about Taxotere. You've taken both. How do they compare?
Thanx,
Mizsissy -
Got my Oncotype score today: 33. Looks like I'll be joining you in the next week. I'm probably doing a clinical trial so I don't know right away if it's AC or not.
My background - I had a lumpectomy in Nov. for DCIS. Found IDC in path report. Had mastectomy in Dec. with SNB. Clear nodes. Path report showed 3 different types of tumors. ER/PR+, Her neg. -
Hey Guys,
YOU CAN DO IT!!!!
Fists up! -
Hi Jem,
Love your dog (& that's quite a compliment coming from a cat person).
My oncotype was 36! I was hoping for 9. I also had 3 different types of tumors, a 2.2 quite visible tumor, a small invisible tumor and some DCIS, but they were able to get it all out with one incision and I had clean nodes.
I think my regimen is a bit unusual. I will have 4 infusions only, and it is going to be taxotere + cyotoxan, and they're going to give me so much benadryl I'll probably be asleep for most it. Doesn't sound too bad. But I did fill out my living will.
Mizsissy -
Hi Mizsissy,
There are at least three of us that are starting the taxotere/cytoxan this week. I'm starting mine on Friday. I have 6 treatments three weeks apart. I don't know if I'll have benadryl, but do have a script for steriods that I'm supposed to take the night before and the morning of treatment to ward off alergic reaction. My onc scheduled this treatment so I wouldn't have to worry about heart problems as well.
Best of luck to you tomorrow.
Lynn -
I started Taxotere/carbo/herc on Jan 3, and on monday the 14th my hair started. so I am having a "head shaving" party for all my friends to take a shot at cutting or shaving my head. they are already planning a "bowlcut", mohawk (both a long and short one) and I have the camera ready. Why not?!? I've done this before 6 yrs ago and I know it grows back (although i never wear my hair above shoulder length). Might as well make this as "fun" and humorous as possible.
Life gives you lemons, make lemonade.. well I might just run out of all the sugar to mix with it one day, at the rate I'm going. -
Hi girls....I guess I can join here as I will get my port in Jan 23 and my first TCH (of 6) Jan 26. Then Herceptin for the rest of year due to that darn Her2neu! Stage 1, clean nodes and ER/PR+, post-menopausal tho.
Brenda: you are so awesome! I have read your story since you joined...I admire your grace.
tlc and Amera: I agree with the hair thing .. I think when it's gone I'll actually feel better than I do right now and why is it that for 54 years I never had a good hair day and I get bc...and ALL my days are good hair days??? Go figure!
Wendy -
Hi Girls,
Well, I had my first Taxotere, Andyamycin, and cytoxin yest. I was really surprised at all of the pre-meds that they gave me right into my port before the chemo drugs. There was Aloxi, more decadron, benedryl by mouth and ativan. The nursed said that the most important thing to do was drink fluids so that I should urinate every two hours. It really wasn't bad. Just tired and went to sleep. I had some bone pain but tylenol got rid of it. I am waiting for the other shoe to drop because I have read about the very possible side effects to come. I went for the neulasta shot and more decadron and IV fluids this am, but went out for a sort of big breakfast after and now am a little queasy. All told so far, so good. ilene -
Hi Everyone,
I posted this in the general chemo thread too but want to get involved with this group also. I had my first of four a/c treatements yesterday.It went fine. I was nervous, don't like new situations (unless it's a party), but the nurses were very kind and attentive. They gave me decodren, amazat,and a saline drip, then pushed in the a, then dripped in the c. They had given me ice and a heated blanket. It all took about 2 hours and I drove myself home.
I took an ativan and a compazine last night; they recommended the ativan b/c of the decodren, and I was worried about waking up sick. Needless to say, I slept like a brick. I don't have much appetite (had toast last nite, oatmeal this morning, chicken soup and a banana for lunch. I took an amazet this morning and feel no nausea at all.
I do feel a little spacey and lightheaded, but am working and am doing fine. I am going to pick up my wig after work so I have it when I get my hair cut on Jan 26; I want to wear it home, and then on the 27th I go back to the wig shop to have it styled. Because I am doing it over the weekend, I am hoping it won't be noticable at work on Monday (I am trying to keep it quiet at work and just rely on family and a few close friends for support).
So that's it ... let me know if you have any questions, and thanks so much for all the sweet support. There is so much kindness in this world. -
Wendy. I finished 6 cycles of TCH on Dec 27th and just started rads this week. Didn't lose all my hair,just most of it (*smile*). But taste changes were the worst of it. Just be prepared for problems with food, stock up on Biotene mouthwash (helps a LOT with "yuck mouth"), and good luck!
Janet -
Hello Girls,
Had my first chemo today and it was a piece of cake. Took the decadron yesterday, followed by an ativan. The decadron really got me energized, but the ativan slowed me right down. I slept like a log.
This morning when my husband & I arrived at the onc clinic we were ushered in a pleasant private room with a bed and a chair. They put me there in case of allergic reaction (there wasn't any). Didn't even have benadryl. I had a wonderful oncology nurse to myself who pampered me, instructed me, and we talked about two of my favorites subjects, cats and movies.
No side effects at all yet! In fact they told me to go ahead with running and strength training and that will boost my energy level while this is going on. Only 3 more treatments and I don't really need a port.
So glad I switched to taxotere+cytoxan from AC!!!!!
Mizsissy -
Hi Janet (and everybody)...
I already have the Biotene and am getting my past-the-shoulder hair cut in a few hours...I'm a chicken so shorter yes and layered. I am easing into it...and boy I hope it doesn't look good and then I lose it in a few weeks. Now that would be my luck!
Just found out yesterday (I switched oncs within the group for reasons much too crazy to explain here) and I am soooo happy that he doesn't want to do AC...so I will do the same as you Janet, 6 cycles of TCH and then Herceptin to finish out my lucky year.
Congrats on being done with the chemo part, Janet. Lucky you, but I'll get there too.
Wendy -
Just got back from my first A/C and feel pretty good. Kinda spacey and out of it but nothing really yet. I got the anti-nausea meds in pill form right after the push of the A. They sent me home with the same meds to use at home. The onc said no need for the shots unless/until my counts drop of if I have an infection coming on. She was very laid back which helped me tremendously.
The funniest thing is that one of the elderly volunteers kept coming by about every 15 minutes to flirt with my husband. It was a hoot. She was a sweetheart. They kept us very well fed with a full lunch and drinks if we wanted.
Not hungry at all now but I suppose I should try to eat something. Glad everyone else's first day went well. One down!!!
Amera -
I'm bracing for tomorrow's AC round two. I did have significant nausea on days 3 and 4 then it eased and was quite manageable as long as I kept some food in my stomach. That was hard, my appetite didn't come back for about 10 days. I'll speak to the MD about the nausea. I want to find out about my lab results too - when I had my lab last Friday my WBC was only 3.9 after having Neulasta injection on Sunday. The nurse was surprised, she said "I would have thought it would be 10 after your shot."
My hair started to fall out yesterday. My daughter will come over with her husband's big clippers tomorrow night or Saturday and we'll just buzz it off.
I've been reading everyone's posts and cheering from the sidelines. I've been tired and couldn't think of anything more to add than what everyone's already written. Trying to work (not able to start until day 6)although still haven't managed a full day. I think that may be the norm through this. At least I'm working enough to maintain my insurance.
Moving forward, chemo buddies. On to Spring. -
Ladies...please don't feel you have to wait for your next doctor visit to address nausea. You need to call them immediately if your nausea meds are not working so they can try something else! Also, they may want you to come in for fluids so you don't get dehydrated.
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Hi girls,
I'm bracing for my 1st TC tomorrow. I'm pretty scared. The mastectomy seemed a piece of cake compared to how I'm feeling for this. I know that every says it's easier than you think, but I guess I'll find that out for myself tomorrow. Got my bag packed, bought a portable DVD player and a couple chic flicks. DH set up my puzzle table for me, I'll do my Patriots puzzle I got for Christmas. Go Pats!
Lynn -
hi guys had my first chemo 1\02 felt crappy for about 4 days and then started to feel betterI am okay with the chemo knowing that I will feel better in a few days ,but I am just now losing my hair and losing it fast. I noticed in the shower yesterday a clump of hair and now tonite I can run my fingers thru it and come up with alot and it is itching me to death..Iam also gaining alot of weight(probaby because I try to make myself feel better by snacking and snacking)I was overweight to begin with ..and lord now I will end up looking like a big old buddha..Oh well maybe I can make money by letting people rub my belly for luck...hang in there ladies we can get this done ..Prayers for you all love woolie
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Hi all:
I had A/C #2 yeserday, and so far so good! My hair is going fast, and it's VERY depressing for me. I will be getting it shaved off tomorrow or saturday. It just makes me cry every time I think about it. I thought the chemo was going to be awful, but for meit's the hair thing.
Hopefully I'll be better when it's all gone. And it will grow back 8-)
Overall, things are not that bad!
2 down, 6 to go!!
tlc -
Hello New Friends
I will start chemo 1/19/2007...HER2+,2.6cm mass,L-Br. Will do chemo first to reduce mass..I was concern about this treatment process but have much satisfaction with it now.Words can not explain what you go through just with the initial test..the waiting for results. I had an outer body experience..had to come outside of myself to really see that it is me with breast cancer!!! I am so glad I know GOD! Thanks to God, scientist and doctors this is no longer a death sentence... Its a bump in the road and we just happen to find ourselves having to press forward to overcome it! We can not go around it or under it..we must go over it! We can do the chemo because its is a part of our boost we need to continue our journey in life! -
Well I m off today to the big cancer clinic in Toronto, Sunnybrook Med Center to meet my radiologist . Feeling normal back to my old self . Its been 10 days since my first chemo and no hair loss or mouth sores.
Just that yucky taste in my mouth which I relieve by rinsing with club soda . When does the hair go ? can you tell does your head feel funny ? I have a thick head of hair too so when it starts I plan on using a cap to sleep in . I am going to a "look good feel better workshop next Thursday . My next treatment is Jan 29th .
I have all my scarfs and hats ready to go...... Only time will tell i guess .....
If I can get the nausea under control for nxt chemo I might be lucky .........and manage..... ( HATE the nausea)
Also to keep my brain healthy I have started a blog . Check it out if you like
http://shortiscabin.blogspot.com/ -
I'm off to my first chemo treatment (TC) this morning. I'm pretty calm. Took the steriods last night, but also took an Ativan and the Ativan won, I slept all night!
It occurred to me this morning that this will be the last time I dry my hair before a chemo treatment (my next is in 3 weeks). Will I be doing the 'this is the last time...' til my hair falls out?
I wanted to thank all you sisters for sharing your experiences as you have, it has really helped me have a handle on this before I go. I did break down 2 nights ago, but have been feeling better since. Like my dh says 'Now we're going to go attack the cancer'. I keep repeating to myself 'think of what this chemo is doing FOR me, not TO me'
Onc says I'll be there for about 4.5 hours today. Be back home later today!
Hugs to everyone!
Lynn -
Hello All,
It seems like an eternity since I was diagnosed with breast cancer, yet the surgery was only a month ago. Since then I have been doing a lot of research on the topic and I've visited my mother, with whom I can discuss anything. So, I am ready to start the battle. I got my bag with goodies, I've made an appointment with my hairstylist to get a haircut - if you can call it a cut, I've got a good collection of hats and turbans and I've got an air mattress ready to go in my office. I haven't worked much, because of an infection in my breast after the surgery and a nice vacation to Europe, but this week I've started work, and it was sooooo good to think of something else besides breasts. I have made it a point to make my battle a public one. If I can inspire women to go in for a regular mammogram, it is worth it. Because she heard about my situation, my friend decided to have a mammogram, after 3 years of not having one, and she ended up having a biopsy. Luckily the cells were benign.
Anyway, 10 more days to go before the marination. Am I ready? Yes! Am I scared? Absolutely. But I am going to make the best of it, and I know things will turn out for the better. Hang in there all of you. We're in for a fight, but we're going to win! -
So good to read all your posts this morning and see that for the most part all are well. Shorty, I saw the "dense breast" spot on Canada AM too. I asked the dr. who did the biopsy and my surgeon if my dense breasts were a risk factor and they both said no. Guess they will have to rethink that! Perhaps if this would have been considered as a real risk factor, I would have been having ultrasounds/MRIs every year and this would have been caught sooner. But, I can't go there for too long - it could have been caught later as well and mine was found in a regular mammogram. I hope that this "upgrades" screening for women with dense breasts though. Next chemo is on Wednesday. I'm part dreading it, part anxious that my CBC is OK to go ahead. Also have the abdominal ultrasound on Tuesday - very stressful, I'll be glad when it's over. I hate all this medical attention. But, I'm feeling good today - cold is gone (both in my nose and outside, here on the prairies!) We're going to Edmonton to see my son/daugher-in-laws new home. Have a good weekend chemo-sisters.
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Good luck Lynne and shorti. The actual infusion was a non-event, really. I sucked ice during the Adriomycin drip until my tongue got numb. Of course thought I was having a reaction to the meds. The nurse laughed and told me to spit out the ice. Problem solved! I feel great today. Am sort of waiting for the sh-t to hit the fan but so far so good. Took an Atavan last night and mostly slept through the mild nausea I was feeling. The nurse today said that I might feel a little woozy after I stop with the day 2 and 3 anti-nausea meds but that if it were going to hit big, I'd know it by now. Let's hope she's right. We can do this. I'm thinking of you and sending strength and no nausea vibes your way.
Amera -
I'll join this post. I have a question about wigs.
I had my lumpectomy 2 weeks ago. The tumor was larger than expected (u/s and mamogram put it at 2.5, but it was 3.7cm). The margins were not clear in multiple spots. ER+ and Her+. Fortunately clear nodes. So off to chemo very soon and then mastectomy later.
My question: Any of you in eastern Massachusetts? Do you have a wig shop you have used? I have seen multiple places online, but I don't think I could order without seeing it on me. I know that Dana Farber has a wig shop, I could go there but was wondering if anyone knew of any places north of Boston.
Does everyone lose their hair more or less at the 2 week mark?
I have to say I was much more nervous about commencing chemo until I started reading this discussion board. Having so many of your experiences to read about has helped immensely.
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