Starting Radiation November 2017

Options
145791018

Comments

  • Loza1
    Loza1 Member Posts: 3
    edited November 2017

    I will start mine Nov 20. How was yours so far?

  • Linwentz
    Linwentz Member Posts: 133
    edited November 2017

    I hit the halfway mark today...17/34. 17 more treatments still sounds like a lot but i can't get over how quickly it has gone. So far I am just beginning to get pink and the fatigue is minimal. Miaderm, Calendula Cream & Aquaphor are my go to lotions. I also use green tea and Aloe. My RO said that whatever I am doing is working... so I guess I will keep it up and hope for the best during these next 17 treatments.

  • Lorrainenj
    Lorrainenj Member Posts: 39
    edited November 2017

    hello friend. I hope your radiation went well and you are healing and getting stronger every day. I was diagnosed recently with dcis stage 0 grade 2 just like you. Right breast. My lumpectomy is scheduled for dec 12. I am beginning my journey and would appreciate any info you could share. All of this is frightening for me. As I am sure it was for you.

  • tlfrank
    tlfrank Member Posts: 199
    edited November 2017

    First dose today - Anyone feel slightly nauseated after treatment? I also got an instant headache......Or was it just my nerves? 20 more to go.

  • Linwentz
    Linwentz Member Posts: 133
    edited November 2017

    TLFrank--I feel nausea off and on after treatment. I always pack a snack for the ride home and that seems to help. Good luck and well wishes for round 2 tomorrow

  • Loza1
    Loza1 Member Posts: 3
    edited November 2017

    I am like you, I have to control everything around me, even my job title is "controller"!! I guess this journey so far taught me to leave the control to God and let him manage my life. At first I was so devastated, crying non stop, waking up in the middle of the night freaking out. I was trying to wake up from this nightmare. I thought that I can change things but turned to be that I can't. I am not the super women I thought I am. After the initial shock, I started praying, going to church with a different attitude. I found my peace when I realized that I can't change what I have but I need to deal with it. I knew that God is with me holding my hands during this journey. I did my surgery and will start radiation next week but I am accepting what is happening now and cheerful. I do have my sad moments but it is more of normal. Hang in there and let God control what happens next. He knows best.

  • 53nancy
    53nancy Member Posts: 497
    edited November 2017

    Linwentz, are you using Aloe Vera directly from a plant? And are you using it fresh every day? Or have you put the gel in a jar? Glad that these things are helping you.

    Loza1, I feel the same way; leave it in God's hands. We will do better by having a positive attitude about I than a begative one. It gives us something to hang on to

  • Brightness456
    Brightness456 Member Posts: 340
    edited November 2017

    I’ve done 2 of 16 so far. I’m not red or sore yet, and I’m hoping I won’t have any problems. Chemo was a challenge for me even though I was on an easy dose. Apparently I’m not as tough as I thought I was. My ROs nurse gave me a cream with aloe in it, but told me not to start using it yet because if I have a reaction they want to know what it’s too, the rads ormthe cream, so I’ll start the cream in a few days. They said what they recommend works for their patients, but if I have problems we can discuss alternative ideas. I hope it works and is overwith soon.

    I’ve been tired, but I don’t sleep well anymore so I can’t say it’s from the radiation for sure.

  • Linwentz
    Linwentz Member Posts: 133
    edited November 2017

    53 Nancy, the Aloe Vera I use is "Fruit of the Earth" purchased from Amazon. I keep it in th fridge and it feels very refreshing when I apply it.

  • 53nancy
    53nancy Member Posts: 497
    edited November 2017

    Linwentz, thanks much

  • Ellyn27
    Ellyn27 Member Posts: 147
    edited November 2017

    Met with RO yesterday. Going tomorrow for mapping session which will include at CT scan. They said I'll start radiation just after Thanksgiving and then go 4 weeks/20 sessions. Great, right during the holidays. I usually host Christmas day so there won't be as much decorating going on. They told me that I will be lying on my stomach for rads with my breast hanging over the table (or whatever I'll be laying on). I hadn't heard of this, but made sense. I'm rather busty so that's the reason for it. The cancer ctr has a 6 month nutrition program that starts in January and I signed up for that. I'm actually very excited about that, especially because I'll be starting an aromatase inhibitor then also (not sure which one yet). I just want to thank everyone for sharing here. It helps to know what to expect.

  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited November 2017

    Ellyn27: Hellloooooo... I will be doing the exact same! I have my mapping tomorrow as well and will start my sessions Nov 27th; face down (with the booby hanging) and will also be doing 20 sessions (ending Dec 22nd)! I too am rather busty (42DD). The doctor said this position was best for me and prayerfully it will lessen the SEs (in reference to it ONLY targeting the boob) and not the underarm; ribs; etc...

    Ive already set up my lotion and creams station (Eucerin, Aquaphor and Miaderm)... will look for the spray Aquaphor that was mentioned in an earlier post.

    I don't have alot of preparing to do for the holidays per say; but I will be putting up my tree Thanksgiving weekend; my tree at work (in my office) probably the week after Thanksgiving...and I usually put up my mom/dads mid-December. Im hoping that w/me being just 2 weeks in I'll still be feeling pretty good and will then just start counting down.

    Once my rads are done; I'll be on tamoxifen...

    Keep me posted on how your session goes tomorrow and I'll do the same. My appt is at 230...BEST OF LUCK with your session and on our 'last lap'!

  • Ellyn27
    Ellyn27 Member Posts: 147
    edited November 2017

    lifechoices - Yes, we'll have to stay in touch and let each other know how it's going .... we can compare notes!! They said they'll talk to me about lotions and whatever else at the mapping session. They said they'd be giving me lots of samples. I noticed in her office a basket full of Aquaphor and I took one on my way out. I opened it at home and it was like vaseline in a tube. My skin is very dry so I put some on my hands and it soaked it right up. My appt is at the same time as yours .... what a coincidence!!! Talk tomorrow.

  • AngelsGal57
    AngelsGal57 Member Posts: 145
    edited November 2017

    Hi there AngelaJL,

    Day two of treatment and doing pretty well. How about you? I think that I have been so preoccupied with the what if's that I have imagined all the worst case scenarios and played them like videos in my head. Comes from my acting/directing theater background. I can visualize a lot and that is great when writing a script or directing an actor in a scene but not so good when facing things like this. I have to active an imagination for my own good.

    I hope that you have found it easy so far too.

    AngelsGal57

  • AngelsGal57
    AngelsGal57 Member Posts: 145
    edited November 2017

    I want to encourage you to not be afraid of the unknown. I have gone through 6 rounds of chemo, and the lumpectomy, and now doing 20 rounds of radiation of which I have done 2 so far. Fear only robs you of the peace you need for healing. Fear banks on the unknown and uses it to entangle us and get us all bound up. Talk to your friends and family about your concerns and anxiousness about treatment and this blog will help you too. We can be an encouragement to you and a light to you in a dark place that is trying to overwhelm and overshadow you. I read a post from someone right before starting treatment that said she found it was a battle of relinquishing control of her life and being obedient and laying her will down. that spoke volumes to me before my first treatment.

    I have found my faith increased and my spirit uplifted because I have talked about what I am going through.

  • AngelsGal57
    AngelsGal57 Member Posts: 145
    edited November 2017

    So encouraged by your words. We always want to be in control of our destiny. The hardest thing is to let that go and trust God. You are right. Continue to share your light and be a witness to others about what you are going through. I know my faith has been strengthened and spirit encouraged by other faithful servants of God like you who are willing to be vulnerable and transparent about what we are all going through. We are traveling an unknown road with unknown outcomes in our breast cancer journeys.

    Keep shining your light.

  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited November 2017

    AngelsGal57, I love your post! Much agreed that although this is a path not chosen; God knew this journey before we did. My faith is strong and I trust Him! You know, I really havent shared my story with alot of people in my community because I wanted my family and those on my journey with me to stay lifted. I didn't want anyone comparing other stories with mine and making it worse than what it is. Nor did I want negativity in the air. I keep a journal and I write out my feelings. My prayer warriors omg...they are like God's army! I say to myself I am healed, my body is restored; whole and I lack nothing. Lord remove what should not be and fill me to your restoration.

  • AngelsGal57
    AngelsGal57 Member Posts: 145
    edited November 2017

    Dear Life Choices,

    I have found it really liberating to share my story. Just today I encouraged someone when I walked out of the treatment room and into the patient waiting area. There was a women there that had this look of terror on her face. At first I walked by and went to change and the Lord stirred my heart to just go and ask if she was ok. Which I did. She was ok but I think comforted knowing that someone cared enough to ask her. My support groups are all over the country. So many touched by BC and my Facebook posts about how I am doing. So glad to hear you have mighty prayer warriors too. While going through chemo I made Paracord bracelets for all of the people who were praying for me with a charm on them that said Pray or Faith on them to thank them for praying. Even our entire youth group was praying. Gave them permission to share my story with whomever asked them about their bracelet.

    I pray that God fills you with all that you are desiring from him.

  • PauletteK
    PauletteK Member Posts: 2,205
    edited November 2017

    Hi ladies,

    I will be going to my rad consultation next Monday I guess RO will go over what he is going to do? What kind of questions should I ask?

    Loza1 - I’m the same way and with the same title, I learned nothing I can control, God is the one who control my life and future. I put my life on his hands and pray everyday. I’m not strong enough to go to church yet since I’m wbc still low, in couple weeks I think I’m ready to go for my Sunday service,


  • Georgia1
    Georgia1 Member Posts: 1,321
    edited November 2017

    Hi Paulette. At my first appointment I got a tour of the facility, a physical exam, and a good long talk with the RO. She told me her recommendation: 15 sessions that I will start after Thanksgiving. I asked a ton of questions about options (prone vs supine, partial breast vs full breast) and why she was recommending that number of sessions. I also got a take-home sheet on preparations and creams. It's a busy hospital so I haven't gotten my schedule yet; i'm supposed to get that Wednesday at the dry run.

    Best of luck.

  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited November 2017

    AngelsGal57, thank you for that testament. And I'm sure that as my journey continues I'll be doing the same. I think as I made my personal vows to God I just wanted a close and tight circle. My family has endured much over the years and I already know this testimony will be great..my dad almost suffering an aneurysm, my mom DCIS when she was 60 and my nephew was in an accident at 18; now a quadriplegic... But God! My dad is 79, healthy ... mom 72 and her body healed and my nephew is a graphic designer/architect for our state office...and he drives in his wheelchair...so Lord knows we have a story to tell. Thank you for your blessings and prayers; I pray for your continued restoration and healing.

  • EmmyEdward
    EmmyEdward Member Posts: 15
    edited November 2017

    Hi everyone, I haven't had a chance to read everyone's post but I did want to give my report of my first week before I forget:

    Interesting first week for me. I had two boluses (Tuesday and Thursday). Next week I'll get a bolus each day (Monday, Tuesday, Wednesday), then no treatments on Thursday & Friday because of the holiday.

    I had some skin itchiness in one area after the second treatment (first bolus) which immediately had me worried because I wasn't expecting to have any reactions so early. I brought it up with my RO and he said that because there's a chance I had/have Inflammatory BC that they are deliberately treating my skin heavily (that's what the boluses are doing in my case) and that his "goal" is actually to have me blistering by the end of treatment… so there will be adjustments made week to week depending on my symptoms. Yesterday they "took films" to make sure that everything was still matching up and said they would do this extra step once a week. It took less than 5 minutes.

    I'm finding being still for 30 minutes is easy but having these appointments every day, even though I live near the hospital, is making it much more challenging to get my PT exercises and lymph drainage massage done every day. I only remembered and had time to put my compression sleeve on two out of five days. I've put lotion on the ares 3 times only. But I have been eating lots of protein. Getting some water, but not enough.

    Sending best healing vibes to everyone.

  • Linwentz
    Linwentz Member Posts: 133
    edited November 2017

    20/34 treatments completed-- I keep thinking that if I were getting a shortened treatment i would almost be done. Oh wellI, it has gone by rather quickly & hopefully the treatment I am receiving is what is best for me--positive attitude, right?! I will go on Sunday to make-up for the center being closed for the 4 day Holiday break & am looking forward to a little reprieve. Still just a little pink and rashy looking and I tingle some but so far so good. I am still waiting for that other shoe to drop...I have 8 more regular treatments and then 6 boosts. Does anyone know what the boosts are like? I know they target where the cancer was, but I don't know much more...just happy to be more than half way done!

  • AngelaJL
    AngelaJL Member Posts: 94
    edited November 2017

    LInwentz, I asked them about the boost yesterday! They said that from my perspective as a patient on the table, there will be no difference between the regular whole-breast radiation and the boosts. The only difference is the size of the area being treated.

    I don't know if that helps answer your question

  • NikJ
    NikJ Member Posts: 24
    edited November 2017

    Hi Linwentz, I had 16 whole breast and I just had 3 of 4 boosts. The boosts are no big deal at all. Lasts about 40 seconds and I feel fine. I'm definitely red but that was from all of the sessions. Don't worry you'll do fine! I'm looking forward to finishing this out on Monday! Best wishes

  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited November 2017

    NikJ I'm glad to see this post. I'll be having the same. 16 and then 4 boost.. What lotions did you use? And what time were your sessions?

  • NikJ
    NikJ Member Posts: 24
    edited November 2017

    lifechoices2017 My schedule varied every week but I mostly went in the mornings around 10. Last week I had night appointments because my son had no school and I liked that better as I wasn't getting so tired. The lotion I'm using is Cervae. My RO told me to use whatever I wanted as long as it didn't have lanolin in it. I do have some itching going on and she said to use hydrocortisone creme for that. Overall, it wasn't as bad as I thought it would be and it definitely went fast.

  • lifechoices2017
    lifechoices2017 Member Posts: 242
    edited November 2017

    NikJ ok... my first 5 are around 11-1230...the rest are at 230; I leave work, go there and then home. My first boost will be 1130, then the last 3 @ 230...i requested the afternoon so that I could to work, go there...lotion up and go home braless. Lolololol... I'm praying for good results as well. It's like the fear of the unknown... but I've made it this far so I'm ready!!!!

  • 53nancy
    53nancy Member Posts: 497
    edited November 2017

    Hi, everyone. I am pleased to say that I found Calendul cream in the city today, so now have that, Aquaphor, another lotion with Calendula oil in it, and my Aloe Vera plant, I figure if I rotate them, my skin should be okay. My first treatment will be Monday. I am not getting any boosts. I was told they are not necessary. Maybe because the tumor was so small??

    Linwentz, two more weeks! Hope you get through with no side effects worse than what you've had already. And I hope everyone gets through their rads okay. I am dreading getting through the first one, but after that I will know what to expect. Have a great weekend

  • Linwentz
    Linwentz Member Posts: 133
    edited November 2017

    Nikj--Yea for almost being done! What a sweet feeling that must be! And thanks for the Info on the boosts.

    53 Nancy-- No reason to dread the first session. The treatments themselves are painless & go rather quickly. The longest part is the techs getting you in position. And as far as SE go-- no one can predict how your body will react; so slather on the creams, eat a lot of protein & Whole Foods, exercise, and when your skin eventually becomes sore & irritated... follow your RO's orders. You'll get through this. We all eventually do.

    Hugs and blessings to all!

Categories