Looking for your long term issues w bmx without recon
Comments
-
mama- the bottom line is live your life - if you can. I wish there was more help in teaching that Since it is hard to do. Anyway given the prognosis i retired ( my mom died while i was on chemo so i was deeply grieving also) DH was already retired, i applied for social security early . And we traveled. Cuba, Grand Canyon river rafting, Europe for 6 weeks, Japan for 4 weeks( trekked on the Nakasendo ) Australia and New Zealand- did the Milford Sound trek and followed it with the Rute-burn, Peru, Chile, and this year Montreal and Paris. We freaked our financial planner out a bit ( he doesn’t know i have cancer) but, created lots of wonderful memories while feeling good.
We all have dark clouds over our heads but ours are a bit bigger.
-
thanks nkb
I take Advil as well for the aches from arimidex
Do you take anything to prevent bone loss?
My dr wants me to take boniva but Im not doing it even though I have osteopenia
I've been anemic since chemo which ended in April and short of breath on exertion and stair climbing so thats interesting...my dr doesnt seem concerned..
ive been anemic for 9 months.. I ran it by my pcp just had blood work ip said my iron levels are ok. Its just the red cells have yet to recover... what other abnormalities?
I started back to work last week and its ok ...not quite full time yet
Snd leap. Thanks for yoir input as well
-
That's a good point you make Nkb. The reason I have frequent (3 to 4 monthly) scans is because I'm on a trial. I don't experience scanxiety as some do, so it's easy for me to say "have a scan, no worries". I get that. Personally, I like to know what's going on but I respect everyone's right to do it their way.
Some ladies on my trial have asked not to be told their TM results each month because it makes them anxious and I can understand that but I like to know that as well. Some of us do and some of us don't. We have to go with our own feelings and we either trust the oncologist or find another one. Mama if you trust your MO, it's your decision but, from what Nkb says I can understand Nkb's way of looking at it. I don't like to be too dogmatic but sometimes I find I am lately.
I think, to be honest, 200mgm of Tramadol is doing things to my head at times and I'm more outspoken than I normally would be but my MO wants me to stay on it because otherwise I'm almost bedridden with pain.
-
Mama-I had these symptoms 5 years later. It took me almost a year after chemo and radiation and bilateral mastectomy to get back to normal energy and lab work. Yoga really really helps with the arimidex side effects and the post radiation side effects. I highly recommend it. I did not have osteopenia so no meds were recommended for me. Later they did a study that showed that in high risk people taking Zometa might prevent bone mets- I did that- it may have staved them off for awhile-but, ultimately I did get bone mets (and further studies did not support taking the Zometa for prevention of bone mets.)
Leap-I think you misinterpreted what I said - I was referring to why people don't have scans every 6 months after successful treatment to see if recurrent has happened. They are not recommended because they don't increase survival- just anxiety. That doesn't mean that you wouldn't catch something a little sooner if you scanned asymptomatic people- it just wouldn't change the long term survival and would cause a lot of anxiety. It has nothing to do with my choice- it has to do with evidence based medicine. This of course does not apply to people who are already stage 4-They get lots of scans.
Mama if you are working that is great recovery!
-
Thanks nkb
It does feel good to be doing something normal again
Very surreal though, after all the emotional and physical trauma of chemo, bmx, and radiation.. and now wahla! Im supposed to be fine..
I still get tired easily and the arimidex is causing bone and joint pains but once Im moving around its not so bad yet
My obgyn has me taking CBD oil each night I only take 2 drops which is very minimal , it helps me sleep and is supposed to have lots of other benefits (anxiety, pain, and even lessening cancer risk) if I took more than the 2 drops, so ill see...there is alot of data and research , he gave me ..
But all in all your advise to live our lives fully is wise
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team