How close should my hospital be for chemo treatments?

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frankiesf
frankiesf Member Posts: 9

Hello everyone, Happy Sunday

I am about to begin chemo for Stage IIIA IDC. I was diagnosed and have been working with an excellent hospital close to my home (UCSF), but sought a second opinion at another local hospital with an equally excellent reputation (Stanford). I loved Stanford, for a variety of reasons: the doctor was kinder and more engaged, and I got a lot more information and detail about my diagnosis and treatment. The treatment plan offered by both hospitals was identical. My question is, do I go with the hospital that is a little farther away (Stanford is about another 30 to 40 minutes away from my home than UCSF), or stay closer to home? My partner is driving me back and forth so I don't need to worry about fatigue behind the wheel, but I worry that I might not feel well after infusions and getting sick in the car would be worse on a longer drive.

Any information or advice that you can offer me will help me make my decision. I need to start chemo this week to put a stop to this aggressive triple positive IDC!

thank you,
Frances.

Comments

  • lovepugs77
    lovepugs77 Member Posts: 296
    edited November 2017

    Hi Frances! I say if you are able to, go with the one you liked best, and felt most comfortable with. My chemo and radiation are both about an hour away from my house. I could have gone to the local center that's only about 15 minutes from me, but I just really liked the medical oncologist and facilities further away. You will likely have a long relationship with your medical oncologist, so I think it is very important to find one you are very comfortable with.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited November 2017

    Frances,

    Welcome, but sorry that you find yourself having to deal with bc. I have never had chemo, but wanted to post a response until someone else comes along. From my perspective, and from what I know of other's experiences, you should be fine going to Stanford. More importantly, since you will be in a long term relationship with your mo, go with the doc you are more comfortable with. I switched mo's early on and am so glad I did. Wishing you the best.

    PS: I live in San Jose. Stanford was also my second opinion facility. My granddaughter's name is Frances. How could I not respond to your post ? 😊

  • frankiesf
    frankiesf Member Posts: 9
    edited November 2017

    lovepugs77, thank you so much for your reply, I appreciate your insight. Good to know that infusions won't make a longer drive intolerable.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited November 2017

    Your very welcome ! We also call my granddaughter Frankie

  • frankiesf
    frankiesf Member Posts: 9
    edited November 2017

    exbrnxgrl, thank you for your reply. Did you end up going with Stanford?

  • lovepugs77
    lovepugs77 Member Posts: 296
    edited November 2017

    Frances, other people (my fiance's mother and a few of my friends) drove me to my chemo infusions. I had one every other week, so it was pretty manageable. They are long days, though. We left my house between 7 and 8 am, and got home sometime in the afternoon. I honestly could have driven myself to all but one of the infusions, but people were worried, so I let them help. Do you know what kind of chemo you are getting?

    I am currently in radiation therapy, and I drive myself to that every day. Again, it isn't fun, but it is manageable. I work from home, so I typically work from about 8 -1:30, then go to radiation. My appointments are at 3 PM, and I usually get home around 5. I could work some more in the evening, but I usually don't.

  • frankiesf
    frankiesf Member Posts: 9
    edited November 2017

    Hi lovepugs77, I am getting TCHP (Taxotere, Carboplatin-Paraplatin, Herceptin, Perjeta). I get 6 cycles every three weeks, so I think it will be fairly manageable. I'm not sure how long the infusions are, though. Traffic where I live can be absolutely awful, so hopefully we can time things to avoid the rush hours. Thank you again, and I hope you're making a solid recovery and are in good spirits.

  • bravepoint
    bravepoint Member Posts: 404
    edited November 2017

    Frances - I don't think the distance is a big factor for chemo. You will likely just be sleepy on the way home. Go with the MO you liked best. When it comes to radiation if you need it, you will be going every day so closer to home might be an issue then. Good luck!

  • frankiesf
    frankiesf Member Posts: 9
    edited November 2017

    bravepoint, thank you very much, that's a great point and I will keep it in mind.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited November 2017

    No, I am a Kaiser patient (Santa Clara), so Stanford was not an option. My brother generously paid for my second opinions. My Kaiser mo and Stanford mo were in agreement regarding my tx. I love Kaiser and despite being stage IV, have pretty much lead a normal life for the past 6 years.

  • frankiesf
    frankiesf Member Posts: 9
    edited November 2017

    xbrnxgrl, I'm sorry to hear about the Stage IV but I hope your prognosis is good and that you are getting the care and attention you need—sounds like you are, I'm glad. Thank you again Heart

  • Jim427
    Jim427 Member Posts: 1
    edited November 2017

    Hi Frances,

    I am currently undergoing chemo for bc and on my 7th of 8 rounds this Wednesday; from my experience chemo day (infusion) is a normal day and the next day I am energized because of the many steroids you get during infusion then the next day is crash and burn day followed by a few days of trying to recuperate and go from there.

  • frankiesf
    frankiesf Member Posts: 9
    edited November 2017

    That's helpful, thank you Jim427.

  • BellasMomToo
    BellasMomToo Member Posts: 305
    edited November 2017

    frankiesf: I agree that you should be able to tolerate the ride. Keep in mind that your 1st infusion will probably take about 7 hours, then subsequent infusions may be shorter. (Your 1st infusion will probably have a higher dose of H & P, and they will run the drip slowly. That's why it takes so long.) My subsequent infusions were at the fastest drip rate and took about 3 1/2 hours each. If you have issues then they will slow the drip rate, which would, of course, take longer.

    Commuting to Stanford on 101 can be a nightmare. Good luck!

  • Kicks
    Kicks Member Posts: 4,131
    edited November 2017

    If I had had another option of wbere to go, I would have gone to the one I felt the most comfortable with. I was very pleased with the Facility (and definitely my Drs).

    I drove myself to and from all infusions (4 DD A/C neoadjuvant and 12 weekly Taxol adjuvant. On average, it took me about 30 mins. to drive there but being winter then, it could take a lot longer when we had a lot of snow. Luckily, there were a few days when 'no travel allowed' during those months but none of those days were days I had infusions scheduled. Hubby or adult Son would have driven me but it was my choice to do as it was just a piece of 'normality' to retain control.

  • LeesaD
    LeesaD Member Posts: 383
    edited November 2017
    Not sure if it was mentioned to you by doctors or by others, are you going to get a neulasta shot day after chemo? If you are then you go back to center 24 hours after your infusion ends to get the shot. The neulasta shot increases your white blood cell count to compensate for the chemo lowering them. Some people get the neulasta onpro which is set to give you injection next day so you don't have to go back next day. My cancer center for some reason doesn't use the onpro so I had to go back day after each treatment. So just be aware you might have to go back day after as well.
  • Beatmon
    Beatmon Member Posts: 1,562
    edited November 2017

    I was only on taxotere, Herceptin and Perjeta...but the bad days didn’t hit for at least 2 days. We actually had chemo nite...my friends came over, fixed dinner and drank wine after every 3 week treatment. I didn’t feel normal but a lot of that can be blamed on the steroids, Benadryl, Zofran pre treatment.

    And by the way....the tradition condition to this day over 3 years later. Now I do most of the meal prep, make assignments if necessary...because I’m retired and my 3 bffs are all working. We have drop ins from time to time also, so we can have 3-6 extra for dinner.

    So long story...go where you feel the best connection. You will feel ok on the drive home. The first 6 months I did not drive myself due to the IV drugs given pre treatment/ versus liability issues if I was in a car wreck after receiving IV Benadryl and Zofran.

    Best of luck. This is all hard, but it is doable

  • ksusan
    ksusan Member Posts: 4,505
    edited November 2017

    My chemo was 2 to 2.5 hours from my house, depending on traffic. My partner drove, and we stayed overnight at a hotel so I could get my Neulasta in the morning. In the 2nd half of chemo, my MO offered to give me the Neulasta early so we wouldn't need to stay overnight (they didn't have the on-body injectors yet), but I preferred to go in the next morning and get it on schedule.

  • Kiwi-in-Thailand
    Kiwi-in-Thailand Member Posts: 26
    edited November 2017

    I live in Thailand and am getting my chemo in Singapore. The infusions take about 5 hours; I then go straight to the airport and fly back to Thailand the same night. It’s fine... I feel a bit dizzy and sleepy but that’s about it.

    As others have said the first 2-3 days are usually Ok until the lack of steroids hit and you’re in a black hole for a while :-(. I have a Neulasta shot the day after chemo, but my husband gives me that and we’ve had no problems at all.

    I’d definitely go with the folks that you like best as they’re part of your sanity back up never mind the medical help they give you.

    Good Luck!!

  • octogirl
    octogirl Member Posts: 2,804
    edited November 2017

    My chemo location was in the same center where MO has his offices, which was convenient for a lot of reasons; it was a sixty mile drive from my home. Little traffic though. Hubby drove me to infusions and there were no issues.

    However, I agree that neulesta would likely have been an issue: I usually felt worse the day after chemo than the day of. In my case, MO addressed the issue by prescribing neuprogen instead: it is basically the same or a very similar drug, but is given through a series of five shots one gives oneself starting the day after infusion. Hubby gave me the shots, in my stomach, and it was easy. Would not have been happy having to drive back....

    I'd address that issue directly with the MO, and then choose the one you are more comfortable with. Since both are world class facilities I'd make the choice based on the MO, not on the hospital (although as has been pointed out, traffic in that area can be a nightmare!).

    Good luck!
    Octogirl

  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited November 2017

    I chose a cancer center farther from home. I asked for something to prevent nausea on the car ride home because I am prone to motion sickness to begin with. The nurse told me that instead of having zofran in my IV, I should take a zofran pill at a certain time in the infusion room, because then the drug would be working at the right time and not already be done. (IV drugs work faster.) My onc gave me a prescription, and I brought the pills with me.

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