Nipples ....

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  • NancyD
    NancyD Member Posts: 3,562
    edited July 2017

    I had CV nipples created (I think they've been called origami style on here) a few months after my bilateral DIEP flaps were done in 2010. I've been toying with the idea of tattoo areolas since then, but in the mean time I have used temporary tattoos from https://shop.breasthealing.com/. My GYN dr was quite impressed with them on me.

    As a fair-skinned redhead, I found many of the other temp tattoos were too dark and too large. I get the "Light-Peachy Tan" ones and use them sparingly—only when my bare breast might be exposed, like at the doctor's or if I'm shopping for clothing. I don't have a spouse, and I've gotten used to seeing my breast without coloration, but I'm sensitive to how it might freak out other people.

    I don't wear a bra in warm weather. The very slight protrusion of the "nipple" isn't any more than I would get through a soft bra, so I'm comfortable they don't offend anyone.

    Permanent tattoos are somewhere down on my list, but as of now, hardwood floors are at the top, lol.

  • Lookforward
    Lookforward Member Posts: 392
    edited July 2017

    I am having a 3D areole tattoo at the end end of August. The procedure is covered by my provincial health care and done at a local hospital. I decided I didn't want more surgery and the tattoo artist portfolio is impressive. She has her own studio and is employed one day a week at the hospital.

    I have also been toying with having tattoos to cover a few of my scars, especially the one on my back . Has anyone gone this route?

    Nancy I agree hardwood floors are the way to go .


  • aquilegia
    aquilegia Member Posts: 83
    edited July 2017

    One of the options my PS offered was "nipple sharing", which I guess means using part of my remaining nipple for the UMX reconstruction. Has anyone heard of or gone through that procedure? Does what's left of the original nipple retain sensation?

    The other option offered besides the "origami method" was to have a 3D tattoo done by a Kaiser physician's assistant. I would have to pay for an appointment to visit her to see her portfolio. This does not instill confidence in the quality of the results.

    I don't know that I'm up for a trip to Maryland to get a Vinny tattoo - anyone know of any good tattoo artists in California that do nipples?

  • Tara17
    Tara17 Member Posts: 386
    edited July 2017

    Hi aquilegia -- i havent read of anyone on these boards using the remaining nipple for constuiction --i would be concerned about losing sensation on the original nipple. From my friends who have undergone bilateral nipple sparing mastectomy--although they are happy with the quality of the reconsutrciton from a cosmetic standpoint, they do miss the nipple sensation ---so if you have one original nipple , it may be best to not touch that and not risk losing nipple sensation

    Just my thoughts . My PS PA said that he uses skin from the groin to reconsutrct the nipple and then the PA will tattoo it


    I think the exchange city forum had mentioned a good tattoo artist in California--i will see if i can find the link ( it might be from a few pages ago )

  • Falconer
    Falconer Member Posts: 1,192
    edited July 2017

    NancyD- thank you so much for the advice and the link. Much appreciated!

  • coachvicky
    coachvicky Member Posts: 1,057
    edited September 2017

    Thank you Janet. I have more to consider.

    Vicky



  • OG56
    OG56 Member Posts: 897
    edited September 2017

    Hi ladies, I accidentally posted a fairly long post over on Exchange City on the very last page and I can't seem to copy it and paste it over here without dragging the whole page so I'm going to let you know that I have found out that there is going to be a third type of nipple available to us it's going through the FDA shortly and a tattoo artist down in St Louis invented it and it's a microdermal nipple which basically means they create a nipple and aureola just for you and it snaps onto a post, it could be removed by a Dr. If necessary, similar to what is done for people who have snap on ears and noses! so you can go on to this tattoo artist website his name is Eric Catalano and look at the pictures and I know that they would love to hear any questions from anybody who might be interested in doing the phase I part of the trial and I've been inveatigating because 3DS are awesome but I wanted Vinny and he was so expensive plus the travel so this would be free and I wanted a more realistic looking nipple . Just encouraging you all to go look. Kind of like implants you never know what's going to come around the corner. If after looking at the video and the pictures you have questions for Eric or matt email them at nipplereconstruction@gmail.com

  • coachvicky
    coachvicky Member Posts: 1,057
    edited September 2017

    So does this microdermal nipple stay adhered to the breast or do you remove it? Is is like skin or something else?

    Sorry, I don't understand.

    Coach Vicky



  • OG56
    OG56 Member Posts: 897
    edited September 2017

    they stay on but could be removed by a plastic surgeon if necessary at least this is how I understand it for now it is still under development by the prosthesis company. I'm pretty sure it will be made out of silicon but it will be more permanent than not. What they previously were doing if you go on the website you can see the entire process and they're hoping to make the nipple and areola one thing instead of putting the nipple in and then tattooing around it. Go to Eric Catalano tattoo on Google and it will take you to the site. If you have questions please feel free to email Matt at nipplereconstruction@gmail.com, he always answers my emails and seems to be a very nice man.

  • coachvicky
    coachvicky Member Posts: 1,057
    edited September 2017

    Thank you! I understand now.

    Coach Vicky


  • coachvicky
    coachvicky Member Posts: 1,057
    edited October 2017

    Hello All,

    Looking for advice.

    I decided to get skin nipples. Surgery was yesterday using my reconstructed breast skin. I still had some extra after my implants.

    Any tips and techniques for a speedy healing would be appreciated.

    Coach Vicky


  • Leslienva
    Leslienva Member Posts: 489
    edited October 2017

    VIcky, I had mine done in April and the tattoo artist says I still need to wait to get the tattoosuntil the redness goes away. I use Bio Oil, which is supposed to help.

  • OG56
    OG56 Member Posts: 897
    edited October 2017

    I am waiting on new nipples however I wish you the best and hope you love yours!!

  • coachvicky
    coachvicky Member Posts: 1,057
    edited October 2017

    I do like my nipples. They are still stitched and a little unshapely but that is OK. My original ones were a little unshapely too.

    I feel normal when I shower. There is something to touch.

    I am glad I did this.

    I will look for the bio oil.

    Vicky


  • mahimarina
    mahimarina Member Posts: 4
    edited November 2017

    are 3-d nipple tattoos covered by insurance? what would a tattoo artist have to to to be able to accept insurance for 3-d nipple tattoos?

  • coachvicky
    coachvicky Member Posts: 1,057
    edited November 2017

    My insurance will cover with a referral. I will pay and then get reimbursed.

    Coach Vicky

  • mormor1
    mormor1 Member Posts: 136
    edited November 2017

    Hey Coach Judy,
    How fun to read your questions and then see what you ended up choosing (surgical nip recon, right). Glad it seems like a good choice for you. Congrats and happy healing!!

    I had a uni mastectomy and didn't like the look of just one nipple. I've been using Naturally Impressive nipples for awhile now. I really like having the dimension, can't really imagine a tattoo looking right next to a natural nipple....or even a surgical nip really wouldn't match that well. It's a challenge for us unis! These do look very real! It's my new body image, for sure. It helps that they stay on for a couple weeks. If I have them off a few days between wearings, I feel like it's a stranger in the mirror with just one nip. They are super affordable for how great they look, it's been a great choice for me.

    Interesting article about the microdermal implant nipples, will be interested in seeing how that develops.

  • mormor1
    mormor1 Member Posts: 136
    edited November 2017

    Mahimarina, on insurance, seems like most times you need to pay for 3D tattoos and maybe get some reimbursement, depending on your company. From what I've heard it's easier getting reimbursement if tats are done in MD office, but then they have to use FDA approved medical grade inks that tend to fade. So my question is, are the inks that are more permanent safe? Would love to hear what anyone knows about this. I haven't been able to find that answer.

  • coachvicky
    coachvicky Member Posts: 1,057
    edited November 2017

    Momor1 ... I had no idea such temp nipples existed!

    Coach Vicky


  • mormor1
    mormor1 Member Posts: 136
    edited November 2017

    oops...too late now! Hope you are very happy with your new nipples though.

    LOTS of women never even think about prosthetic nipples...the ones that are just stick on look fake and fall off easily so are pretty frustrating, but there are several companies now that make quality prosthetic nipples that are worth considering. Pink Perfect advertises a lot, but I think the quality of Naturally Impressive is better. Feeling Whole Again is a good company, but expensive.

  • coachvicky
    coachvicky Member Posts: 1,057
    edited November 2017

    Momor1

    I only thought of the tattoos. One day a friend said she got skin nipples because she wanted them. I thought, me too!

    I saw another friend last night that I have knows for decades. It was her first time to see me since reconstruction. She took one look and said finally, you got boobs that fit you.

    She was right.

    I think since I have nipples it is easier to focus on what I have NOW and not what I have lost.

    Coach Vicky



  • mormor1
    mormor1 Member Posts: 136
    edited November 2017

    That is SO great, Vicky!! Really, really happy for you!!
    I think focusing on what we have is important for all of us, no matter when, but I agree having nipples just makes it easier (for me too, at least!).

  • LowcountryJudi
    LowcountryJudi Member Posts: 1
    edited November 2017

    I had a double mastectomy with reconstruction 3 years ago and my nipples could not be saved. I opted out of nipple reconstruction. but as time went on, it really bothered me looking in the mirror with scarred breasts and no nipples. I ordered Naturally Impressive Nipple prosthetics recently and I love them! The first ones that I ever ordered were from Pink, they were very expensive and I ended up losing one in the first month. I tried others that looked awful and fake, they would fall off too. I am so impressed with Naturally Impressive Nipples, they stay on so well and look and feel natural. I just can't brag on them enough and how whole they make me look and feel again. Any of you that have chosen this option need to try them, they are wonderful people to deal with and the communication is awesome.

  • coachvicky
    coachvicky Member Posts: 1,057
    edited November 2017

    Happy for you LowCountry!

    Coach Vicky

  • Falconer
    Falconer Member Posts: 1,192
    edited November 2017
    Hi CoachVicky,
    How are you doing now that it's been a few weeks? I liked what you said about having something to touch in the shower. It seems strange to me how I didn't think that the sensation of a normal body would be what I'd desire. Visually the scars don't bother me. It's the tactile sensation that is strange. Not that I have feeling in my reconstructed breast, but my hands seem to want the memory of before.
  • coachvicky
    coachvicky Member Posts: 1,057
    edited November 2017

    Falconer,

    Thank you for asking. The nipple reconstruction was 19 0ctober. I got 1/2 the stitches out 1 November. The remainder come out on 15 November.

    I am very lucky in that I have sensation everywhere but the sides of each breast. My PS cuts on the same scar line each time. I can feel sensation when I touch the nipples which I never thought would be. It isn't like my original nipples but I am very happy with the outcome.

    I used a peppermint or coffee scrub under my breasts and on the sides of my arms to restore sensation. I did not get the same outcome on the sides of my breasts with these scrubs.

    Again, the worse part has been the tape. I can handle tape for about nine days and then I break out. I have one sore spot that is taking forever to heal.

    I will also share the I was not fully prepared for this surgery. I somewhat made the decision in the PS's office. I think I have come to trust my PS so much that I did not consider the recoperating time as well the lifting and weight restrictins. These were not as severe as after the mastectomies but still there have been restrictions.

    The best part ... The nipples are visible under my bra. They don't poke out but they can be seen.

    This all started 7 June 2016 with the first diagnosis. Today, I am finally feeling whole.

    Vicky


  • mormor1
    mormor1 Member Posts: 136
    edited November 2017

    don't want to get off topic too much, but I find it so interesting to hear that you do have some sensation on your breasts (and nipples!). Sounds like your surgeon was sensitive to finding ways to minimize sensation loss. Love that! This article talks about surgery with reconnecting nerves to promote retaining sensation. https://prma-enhance.com/breast-reconstruction/res...

  • Falconer
    Falconer Member Posts: 1,192
    edited November 2017
    Vicky, so happy for you. ❤️
  • coachvicky
    coachvicky Member Posts: 1,057
    edited November 2017

    Thank you all for your kind and supportive comments.

    The article for gaining sensation is hopeful. I will pass it on to others.

    My Surgeon was young, funny, and awesome. He just honored my body. When he did the first lumpectomy, he cut at the areole border so, overtime, there would be no scar. Of course, that isn't an issue now! When he checked my lymphs, he cut at the lowest hair line.

    As a side note, the first lumpectomy was wire guided to a leison. There was no marker in the removed leison. I know it was there because I saw it on screen as did the Radiologist who inserted the wire. My Surgeon removed 2 other masses looking for the marker. He brought in a portable X-ray machine looking for the marker. There was no marker. The other 2 masses were invasive cancer with no clear margins. My Surgeon's tenacity to do his best saved my life. Because he found invasive cancer in the left breast, my insurance paid for a breast MRI where a 4cm lobular carcinoma lurked undetected by 2 physician's physical exams and mammogram.

    I have only gratitude on this journey. Sure, I miss my real nipples. But I am alive and that is what matters.

    Vicky


  • TWills
    TWills Member Posts: 679
    edited November 2017

    Coachvicky, may I ask if you have "sensation" or feeling in the skin?

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