Did you have a PET scan?

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Nifer
Nifer Member Posts: 31
edited November 2017 in Triple-Negative Breast Cancer

Hello! Do most people get pet scans? I was diagnosed on June 24th. I was stage lla, triple negative, grade 3, nodes look clear. I had CT of chest. Due to back and headache also CT of brain and spine. I had an abdominal CT about a month or two prior to diagnosis because of some other issues. My dr never ordered a pet scan. I am four week away from finishing taxol, my tumor has responed well to chemo. But still every ache and pain has me worried. Did anyone else not get a pet scan?

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  • kmajor
    kmajor Member Posts: 86
    edited November 2017

    Hello Nifer, I was diagnosed as Stage 2B tn. I started out on AC and will be having my #6 weekly taxol Tues. The only thing I've had is an MRI in the beginning. I am going to talk to my MO about scans because I to worry about every little pain. I have a lot of bone pain and I know it's a SE of taxol but I still worry.

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  • Nifer
    Nifer Member Posts: 31
    edited November 2017

    Hi kmajor, we are very similar in diagnosis and where we are in treatment. I too have the bone pain but it is usually only days 3-5 and it only started with taxol.

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  • VL22
    VL22 Member Posts: 851
    edited November 2017

    All centers are different - mine is not into doing scans. I had a bone scan only because of something seen on my MRI - it was clear. However, I know that they will not suggest a pet scan. I believe the are symptom driven for scans.

    Kmajor - I get your panic with Taxol pains. After the first three treatments I had very localized pain - my right side at the ribs and side - I was convinced it was liver mets. After a few days in would spread to my left and back, but not as painful as the right side. After #4, I had no bone pain at all.

    It is so scary and I just don't think we will feel "safe" for a long while. I spend way too much time fretting about pains, treatment, did it spread because I had a delay getting chemo - it can be exhausting

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  • kmajor
    kmajor Member Posts: 86
    edited November 2017

    Nifer--I never had bone pain either till Taxol. Is your bone pain usually in just one place or does it seem to hit all over sometimes? Mine is usually mostly in my back but I get it other places to. I also started experiencing some tingling in my fingers. And the hot flashes are insane. I will have a lumpectomy after chemo is done. I know some people had surgery before chemo. Have you had surgery yet

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  • kmajor
    kmajor Member Posts: 86
    edited November 2017

    Hey VL22, it is very exhausting. My first few taxols I had no side effects at all I felt great. Then came some bone pain and other pains where I've never even felt a pain before in my life. I even have what my MO thinks is ovary pain from being thrown into menopause. The hot flashes are insane. Our poor bodies really go threw the ringer chemo messes with everything. Good news is my hair is growing. I have also learned to stay off of google.

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  • Nifer
    Nifer Member Posts: 31
    edited November 2017

    Kmajor-My bone pain moves around. I am seeing a naturapathetic dr. He suggested L-glutimine powder for the neuropathy. I have not had surgery yet. I have a double mx scheduled for Dec. But it might get pushed back. I have to postpone chemo a week due to low blood count. I am experiencing the hot flashes too, mostly at night. No fun!

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