Exchange City

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  • Shoregirl
    Shoregirl Member Posts: 375
    edited October 2017

    Good luck ladies having exchanges this week!!! Trmtab, I don't know about what is normal for post op visits with ps post exchange...I saw mine every month from exchange in April til August when I decided to go with a new ps (female), as the original ps doesn't do extensive FG. I did have complications though, or maybe he wouldn't have wanted to see me as often.

    What did I miss re "nose swabs"?

  • MinuteAtATime
    MinuteAtATime Member Posts: 76
    edited October 2017

    I've had to do Hibiclens washing (both night before and morning of surgery) for all my surgeries and they have me doing it for the Exchange too. Definitely a best practice. But hadn't heard of MSSA or nose swabs. It sounds like your team has things covered well!

    Good luck to everyone having exchanges this week. Mine is Friday and I cannot wait!!

  • MinuteAtATime
    MinuteAtATime Member Posts: 76
    edited October 2017

    Also, re: post-ops, not sure what is normal but I have one with the NP at 2 weeks and one with the PS at 4 weeks. He said there's usually not additional follow-up until a year later, presumably if everything is going well. I will have moved back to California by then though, so will probably get follow-up out there.

  • 2FUN
    2FUN Member Posts: 956
    edited October 2017

    OG56, sorry, I've never heard of that proceedure.


    Good luck to you all either u our exchanges

    What are the nose swabs for?

  • T-Sue
    T-Sue Member Posts: 217
    edited October 2017

    Thanks to everyone for the well wishes on surgery this week. I can't wait to have my Friday TE exchange behind me. I'll be thinking about those of you who also have surgery this week (Lynae, Minute, Scrafgal) and sending you positive energy.

    A few take-aways from my PS appt yesterday:

    - take Arnica supplement starting two days before surgery (this seemed to help immensely with bruising post-mastectomy, so I'll definitely follow this advice)

    - start stool softener the day before surgery to counteract the pain med and anesthesia effects

    - re post op appointments: my PS scheduled a NP follow-up 1 week post-op and a two-week follow-up with the PS

    - No drains expected (hooray!)

    - can shower one day after surgery, but avoid water hitting scars directly

    - walk around as much as I'm able in order to avoid blood clots and help breathe out the anesthesia from my system

    Thank you again for all the advice you all have provided in this forum. Onward!

  • Dafne
    Dafne Member Posts: 104
    edited October 2017

    Girls, I know this question might be silly, but I wanted to know if anyone has similar experience. My exchange surgery is next month. It's been 6 months since my bilateral mastectomy, and during those months I' ve gained some feeling back in my foobs area. Is there is a chance I will lose it again due to the new surgery? Also I have shoulder issues in my right hand (frozen shoulder), and slight swelling in both arms. How will I convince nurses not to use needles and not take blood pressure at least on my right arm? They get really agitated as I remember from my mastectomy when you give them directions :(

  • VegGal
    VegGal Member Posts: 507
    edited October 2017

    My sensation stayed OK with the exchange and revision, although you will have those awful nerve zaps as you heal. No escaping those. I also itched a lot.

    Good luck!

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited October 2017

    Dafne - I wrote all along my arms with a black magic market - no shots - no BP. My son thought I was nuts. Most hospitals have a plastic band they will give you for your arms (s) to alert the nurses & tecs not to use arms. But presumably you'll need anesthesia. I made sure I arranged with anesthesia before hand to access in my foot - not my arms.

    The following link is a great resource about lymphadema. Many of our BCO women contributed. I found a place to buy my own plastic arm bands. And there are good references about how to find a certified & trained LE therapist.

    https://stepup-speakout.org/


  • BBwithBC45
    BBwithBC45 Member Posts: 727
    edited November 2017

    MinusTwo, would you mind sharing where you found the place to buy your own bands?

    Thank you,

    BB


  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited November 2017

    I got them from Peninsula BioMedical, Inc. at the recommendation of someone on one of the LE threads on BCO 5 or 6 years ago. Looks like their website still offers a "free alert band". They have a snap and are re-usable. They say:

    ALERT:LYMPHEDEMA; No Blood Tests, Blood Pressure, No IV or Injections into this arm

    http://www.lymphedema.com/

    I have since saved several from different times I was in the hospital. Those say only LIMB ALERT but are very visable. Tell the nurses you want them.

  • LettyF
    LettyF Member Posts: 43
    edited November 2017

    Good Afternoon Minustwo,

    You said your scars were almost gone. What did you use if anything on them. For now I'm using organic coconut oil. Any suggestions? Thank you

  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited November 2017

    Letty:

    Mine are looking good as well. Lymph node scar you can almost not see (Feb). My derm recommended BioCorneum. She said lots of cosmetic derms use it (personally). Silicon based.

    Got it on Amazon. Not super cheap but seems to go a long way.

  • Sitti
    Sitti Member Posts: 230
    edited November 2017

    LettyF, my PS recommended BioCorneum as well. I've only just started using it within the last couple weeks so can't give any results yet. As EastcoastTS said, it's pricey but seems to go a long way.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited November 2017

    I didn't use anything special. Just the regular thick CeraVe cream. My BMX & exchange surgery were both in 2011 right across the front of my breasts from side to side - so 6 years ago. You have to really look hard to see any lines at all. The only scar still visible is from my port removal just one year ago. I think a practicing intern or resident did that removal.

    My son recommended Mederma & I did use that occasionally when I remembered.

  • lynae23
    lynae23 Member Posts: 85
    edited November 2017

    Hello ladies... I had my surgery today & went well. I am at home resting. Got implants & he did fat grafting from my hips and a little bit from my stomach instead of using my thighs. So I am very sore from that other than that I am doing OK. Breasts feel much better getting those tissue expanders out !! Much much better!! You girls will be happy!! Lots of bruising already on hips but thats to be exoected! Breasts look a bit smaller and not very swollen so that is good too! Overall I am happy with results so far 😎👍

  • BBwithBC45
    BBwithBC45 Member Posts: 727
    edited November 2017

    Many thanks, MinusTwo!


  • Scrafgal
    Scrafgal Member Posts: 631
    edited November 2017


    Thanks!  Glad it went well.  I need to check in at 5:30AM tomorrow!  Watching my Houston Astros now!!!!

    I am having fat grafting from my hip area too.  They told me to wear Spanx for a few weeks...

    Will check in with you gals tomorrow night!



  • lynae23
    lynae23 Member Posts: 85
    edited November 2017

    good luck scrafgal! I too am watching my astros WIN!! WOOHOO! Are you from Houston? I live in Woodlands! I hope all goes well! It was so much easier than the BMX surgery!! Hugs & Best wishes

  • Scrafgal
    Scrafgal Member Posts: 631
    edited November 2017

    Thanks Lynae!  Yes, I live in Houston (for the past 6 years)...in the Montrose area! Getting treated at MD Anderson...

  • Scrafgal
    Scrafgal Member Posts: 631
    edited November 2017

    Greetings!

    I had my surgery this morning and all went well. I am at home resting. I stayed up too late watching Astros celebrationso on TV!

    I got plenty of pain meds via IV and they sent me home with a painkiller prescription that is filling now. So, far the pain is much less than the mastectomy/tissue expander, so that is good. I have to wear a compression bra and spanx for several weeks. Right now, I can't tell how it feels without the bra since I've not taken i ttotally off since coming home. However, I know that the surgical pain is a LOT less than for the other surgery even with the bra on. However, I DID open the front-velcro bra at the hopsital and thinks look pretty good with both breasts, although there is some swelling. I got recontruction on the right and a lift on the left. The donor sight for fat grafting was my outer hip/upper thigh. There is managable pain there.

    My post-op with the PS is in about three weeks, just after Thanksgiving holiday.

    Let's keep each other posted!

  • T-Sue
    T-Sue Member Posts: 217
    edited November 2017

    Lynae and Scrafgal, So glad your surgeries went well! I so surprised that you both wrote coherent posts the day of your surgery! I remember so doped up after my BMX. What a relief to hear that you are feeling well and that the implants are comfy. You give me lots of hope for my exchange surgery tomorrow! Thank you for checking in. Rest up!!!

    Good luck to you too Minuteatatime - let's do this!

  • Shoregirl
    Shoregirl Member Posts: 375
    edited November 2017

    Scrafgal & Lynae, you are amazing! Your bubbly, upbeat posts the day of surgery are very positive and encouraging to those that are waiting for their procedures. Thank you for sharing!! Scrafgal, I am confused though, I had read other posts saying compression to newly fat grafted areas was a no-no as it could inhibit the blood supply but that compression for the areas the fat was taken from was definitley a good thing. I am having quite a bit of fg at the end of the month, will have to research some more!!

    T-Sue and Minute, best wishes today!! I am praying for a great outcome!! AsT-Sue said, rest up ladies...don't do to much just because you feel like you can!


  • grandma3X
    grandma3X Member Posts: 759
    edited November 2017
    Shore girl - I have had 2 FG procedures by the same PS. They were done about 6 months apart. The first time I was put in a compression bra. I was surprised since I did not have any kind of compression or wrap after my MX or after my exchange surgery. I was told to wear it for a few weeks. My second FG was just a few weeks ago and this time , nothing. I asked the PA at my postop why the difference and she said it depends on the OR nursing team. Some do compression and some don’t. But in her opinion, compression after FG doesn’t make much difference. Anyway, this time I’m trying to avoid compression by wearing a loose bra during the day and no bra at night. We’ll see if I retain more of the fat.
  • Sitti
    Sitti Member Posts: 230
    edited November 2017

    Shoregirl, I had fat grafting with my exchange and was told by PS nurse not to wear compression bra so as to give the grafted fat opportunity to create blood supply. I didn't have a lot of fat graphed but I do think I've retained a good amount so far (6 weeks post exchange). Seems there are different schools of thought.

    Glad everyone seems to be doing good after their exchange. I'm six weeks post exchange and feeling really good. The implants are starting to soften up some as well.

    Thoughts and prayers to those having their exchange today.

  • LettyF
    LettyF Member Posts: 43
    edited November 2017

    Congrats to all you ladies who had your surgeries. My hats off to you all too for posting and sharing your day of surgery. Glad everything went well for everyone. I have less than 2 weeks now!!! Thank you all for the information for the cream to help with scaring. I hope everyone has a great weekend.

  • Shoregirl
    Shoregirl Member Posts: 375
    edited November 2017

    Thanks Grandma3x and Sitti. I feel like no compression to the grafted area makes sense. Congrats Sitti on the fat surviving! Grandma3x, did you do more fg after 6 months because fat didn't survive or just needed more?

    LettyF, I know you are counting down the days!! :)

  • grandma3X
    grandma3X Member Posts: 759
    edited November 2017

    shoregirl - it was a combination of both - I needed more on one side and I would guess that I lost about 50% after the first round. I read somewhere that the second round has a better chance of surviving but not sure if that's really true

  • MinuteAtATime
    MinuteAtATime Member Posts: 76
    edited November 2017

    Scrafgal & Lynae, you amaze me that you posted on the day of your surgeries! I was so dopey from the anesthesia that I pretty much slept the entire day when I got home!

    T-Sue---looking forward to hearing your update and I'm trusting that everything went well with your exchange.

    My surgery went well, no drains and I am feeling good--I'm off the prescription painkillers except for one Oxycodone at night. I may not take it tonight.

    Instead of putting me in a bra, my PS wrapped my chest up with yards of ace bandage compressed pretty tightly. I am supposed to leave it that way until tomorrow (day 3) so I have no idea what I look like!!! As I said, I'm not having much pain at all at this point but the bandaging/tape is feeling itchy so I can't wait to take it off tomorrow.

    My PS didn't say anything about exercises like they did for the BMX. But I'm going to start taking walks today. Yesterday I was still a little too dizzy.

  • lynae23
    lynae23 Member Posts: 85
    edited November 2017

    Hello ladies,

    Sorry I was MIA for a few days. Still feeling pretty good, just sore in my lower stomach and some in my breasts but again it is soooo much easier than how I felt after my BMX. I have a lot of bruising in my hips. The tops of my breasts close to my chest and neck are very sensitive. I still feel like the implants are small but they have definitely changed a bit already just in the last 4 days. I am wearing my compression bandage around my hips and stomach and continue to wear a bra. Although I am not quite sure whey I am wearing a bra as I do not seem to need one since my breasts look almost similar to how they looked with my TE's ha. I see my PS in 2 days and he will let me know what I need to do going forward. I have not done any excercises either but have noticed my range of motion is not near as restricted as it was after BMX.

    Scrafgal-that is crazy you live in Houston too. I also go to MD Anderson but in the Woodlands since I live over here. They have been great! Do you go to the med center? I only had to go there once for my MRI biopsy and it was crazy town lol. I am so excited about our Astros winning the world series..very awesome :) I stayed up watching the game and after parties as I could not sleep anyways.

    I look forward to hearing from you all how your exchanges are going. I really feel like I am doing well and am so happy to have this part now behind me. I took another shower today and really looked at myself and while my breasts are not near like the old ones they are the new ladies so I just need to get used to them and be happy with them and happy I had the chance to be alive and reconstruct when others do not. I try to always be positive and upbeat through this entire process as it helps me get through it. I have an 8 year old son & great hubby that I love so much and want our lives to be as normal as possible with little worry about me. :)

    Wish you all the best and please keep posted as I read these blogs usually on a daily basis :) Hugs to you all!!

  • lynae23
    lynae23 Member Posts: 85
    edited November 2017

    oh and I did want to ask you ladies who had your exchange already if your breasts were round and full in the front around the old nipple/new scar area or still a bit flat? Mine are still a bit flat there...they haven’t filled out and never did with the TEs either. I also have a nice size gab between breasts so not much cleavage going on there. My PS told me he would fix & fill in during the exchange but it doesn’t seem to look much different. How are yalls? Is this normal for a time period

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