Starting chemo August 2017 - would love some moral support!

Willow I have been told in my clinic that there is no scientific that either icing or any supplements can prevent neuropathy, but the nurse said that their own experience was that adding B6 during the infusion helped. But mine was not considered any severe and not I has btw stopped, knock on wood. I have though done both mittens and socks, the clinic offers branded Taxotere stuff. By the end of the infusion they were not very cold so for an infusion that lasts few hours one had to change several times. About being in my age, well, we all deserve to live, nobody wants to go like this at any age but having small children makes it not difficult, you get devastated at a bear thought, that is true. I have one in university and even if I know she is still young I feel that I am done here at least with bringing her up, she is even though still young but already an adult, the youngest is just my heart bleeds, I wish she could be older. Before I always told to myself when I looked at her please stop growing up, no I am only saying do grow up. Thank you for your kind words. I am not alone, as much as I hate this, there plenty of us out there having to deal with it meanwhile also having small children to think about.

Cherry

Thank you, Paulette

Hi Susan, I didn’t know your neuropathy was that bad before until now. I hope you will get better soon. It’s great that you have reached to the end of the tunnel.

I noticed after my #5 infusion. The first 4 I got a little numbness but not bad at all.

Everyone are different you might not have any. Think positive. Cherry and other don’t have any neuropathy.

Ok I’m hoping I have good luck on the neuropathy, like Cherry. I’m not icing because my doctor said there was no point and I also wasn’t dure I could manage it for the whole hour of the infusion. So far so good, but I have 9 to go

It’s been a week since my finalTC treatment. I expected to be feeling much better by now but I’m pretty weak and tired. I think I conveniently forgot that side effects are cumulative. So maybe I’ll have another week of feeling like this. I’m obviously feeling somewhat better because I find myself being bored but not having enough energy to do anything to relieve my boredom. And I’m super cranky! I know this will be short-lived but I’m not being very patient at all. My appetite is still non-existent so I’m sure that is making everything a little harder. I’ve lost about 20 pounds throught treatment. Honestly, I hope I can keep it off once I get back to normal and perhaps lose about 20 more before my mastectomy in April

I hope everyone is hanging in here—and the good news is that we’re all moving closer to saying goodbye to all this cancer stuff!

Karen

I have been sleeping through the whole day today. I slept during the day even yesterday but I did not sleep at night after the infusion due to cortisone. Today even though I slept the whole night after a couple of hours I just crushed. Last week was the same, the effect is cumulative, no signs of numbness in my hands though. I have only one infusion left and my hair is growing but I believe I will go on with three infusions of EC which means additional eight weeks to the last infusion and they are much more intense than weekly Taxol. You all be done by then, I will be the last one in the group to finish chemo. Cherry

Cherry - one of my favorite pastimes is sleeping with my cat!

Honestly, I am glad AC is over / I seemed to have more of a nausea issue than most. But in hindsight I can't believe it is over and I am glad I did it - anything to fight this beast. I truly understand your hesitation - it is so much harder of a decision when the doctors are not saying "you should do this". So much pressure.

And I understand the fear with every ache and pain. Last week I was seriously concerned that I had liver mets, my right side was aching so much. It's just this vicious cycle of fear, depression, then positive thoughts and determination to live each day to the fullest, then back to the fear again.

I hope you feel better soon Hugs

Stage - welcome back, sorry that you had so many problems, we still have many people here doing chemo. I’m doing taxol and I found taxol was easy in the beginning then it got harder for me. But that’s only me, many people found it’s easier for them.

Cherry - glad you made up your mind, I know it was hard decision for you with a young child. I still have weeks of taxol to do, and my clinic will be closed on day after thanksgiving so I will be off a week. As long as you stay on top of the nausea you will be ok on AC. I think some of us found that we have mouth sore during AC. There were days I just didn’t feel like to do anything but rest, now I have some of these days with taxol also.

VL, cats are the best, I get sleepy just looking at mine, here comes the pic. About the cycle, you couldn’t describe it better, I do not know where I would have been without my meds snd still everything just sets me off. Hugs! Cherry

im scheduled for 4 taxol, dose dense every 2 weeks. My son has a food allergy and I know taxol seems to cause allergic reactions, maybe that's why its freaking me out

Cherry, I just finished AC. I didn't eat or drink enough day of my first dose and the nausea floored me. For me getting in lots of fluids and eating before the infusion really helped. Taking anti nausea meds before any nausea started helped too. Carbs and eating little and often. After that first dose I was able to keep ahead of the nausea and it was doable. I had awful morning sickness on my youngest and just kept telling myself it wasn't as bad as that.

How old is your youngest? My kids are 4.5 and 22 months. I keep thinking if I can stay ahead of cancer long enough to raise them I'll be happy. Though I hope this is the only time I have to dance with the devil and that treatment works!

Stage - your kids are young, I give you a lot of credit, you’re doing chemo on top of taking care two kids. 🙏🙏🙏

Honestly I think taxol is hard on the older ladies like me (61) most of the younger ladies are doing much better. Hope you won’t have much problem so you can spend your energy with your kids.

Good looking cats, I only have dog in the house.

I also didn't get serious neuropathy until my 5th infusion. The middle three toes on each foot went numb. It's getting a little better as time marches on.I just had a thought that maybe when I tell my doctor about the neuropathy, he'll say, "You know what, lets just stop now. You don't need to do this last infusion."

Highly unlikely, but it was a nice thought!

And, like the cat pics! I used to have cats, but can't anymore due to allergies.😥