DCIS diagnosis while still on HRT
Hello,
I started HRT (ES patch w/ Progesterone) for the first time approximately two weeks ago (same day I had my routine mammogram). However, my tests came back abnormal, and one biopsy later I’ve been told I have DCIS. Now I wait... for the call to find out when I go in for surgery. That’s it. It’s been two days and nothing has been scheduled yet. I’m literally having anxiety every few hours. I’m confused as to why a surgery hasn’t been scheduled yet and confused that I haven’t heard whether or not I should stop taking the HRT. This is all so confusing. BC doesn’t run on either side of my family.
Has anyone else taken HRT while diagnosed with DCIS?
Thank you -Riby
Comments
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Most likely you will have to give up the HRT. Your doctors have to figure out if you are Estrogen and Progesterone positive through tissue samples of the dcis once removed. Sometimes, with dcis things move a little bit slower - that is what I have heard. If you are ER/PR positive, most likely you will be prescribed an anti hormonal, such as Tamoxifen. Most women that are diagnosed have no family history of breast cancer. Before surgery can commence, you will have an MRI (maybe), heart test, lung xray and blood tests. Those tests take several days to complete. Depending on your surgeon's schedule, you might be planning for a Thanksgiving time frame for surgery. This will give you time to build up your strength through exercise. Get your nutritional house in order. Cook meals and freeze for the days you are not mobile. Take in some of this nice fall weather. I totally understand the anxiety, but tell yourself that it is early, non invasive, and they will take it out. You are going to be fine, if I can do this then you can do this. Every day women are diagnosed with breast cancer, dcis, lcis and other forms of breast issues. Over 60,000 women per year are diagnosed with the dcis lcis, and 250,000 with invasive type of cancer. Take some deep breaths and if things get too tough, ask your doctor for some anti anxiety meds to get you through this hump. Hang in there.
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Thank you so verymuch! I haven’t heard from my doctor about the HRT yet, but most likely, as you’ve said, I’ll have to give it up. Just when I was beginning to feel balanced.
Again, thank you for taking time to write. This helps so much with understanding the overall process.
My best to you-
Ruby
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Ruby, I had ER/PR/HER2- DCIS and every provider I've had after that has adamantly stated I can take no hormonal meds. Another reason that you may not be scheduled for surgery yet is that they may want to do some additional imaging before your surgery. Unfortunately, I was in a bit of a hurry to get my lump removed, so I got a lx scheduled as soon as I could. Afterwards, my second opinion pathologist recommended an mri, as the architecture pattern of my dcis commonly presents as multi-focal. The mri did, in fact, find 2 more areas that were biopsied and shown to be more dcis. I then had to have mx. So, had I had the imaging before my surgery, I might have reduced the number of surgeries I had to have. Why don't you call your doctor's office and ask what is going on. You also might ask if they have a nurse navigator, these people can be amazingly helpful in understanding (and explaining) the process and helping you advocate for yourself. My nurse navigator was the one who suggested the second opinion on my pathology. Let us know what else we can do to support you! ((hugs))
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I was diagnosed with DCIS back in April of 2017. My surgery ended up being in early June. Radiation Mid-August through Mid-September. Now I have started Tamoxifen in October. DCIS is not invasive so I think the process can move a little slower. I actually have had a good experience going through all this. I have learned a lot! I really felt like my body was out of sorts with hormones before the diagnosis......so once the surprise from the mammogram hit I just wanted to get the help I needed. I have 3 doctors (surgeon, radiation oncologist and oncologist). They are fantastic. All 3 have said the same thing....."mind over matter". Think positively and your body does well. I truly believe that. So, to anyone walking into this situation now......research and then after you have read all the awful stuff online do a search on positive results of DCIS, radiation, tamoxifen, etc. You will start to uncover people who have gotten through the same ordeal as you and you will realize it can be done with less anxiety. Good luck!
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