Stage 2 Sisters Club
Comments
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When I first started on it, I was of the mindset that I wanted to stay on it forever. My oncologist and I talked about it a lot. If I had insisted, I think I could have talked him into seven years, but he said he would absolutely NOT recommend it for more than that (with my stats anyway). As I got closer to 5 years; I decided that since studies were saying it would not actually help (with my statistics anyway), and since my estrogen would be decreased naturally (since I was 5 years older), and since I wanted to protect my overall health......I quit. It was very scary but very liberating as well. I never had horrible SEs while on, but definitely just feel 'lighter' (hard to explain) since I've been done.
* I do want to point out that I'm just sharing my experience, not advocating that anyone do the same. Those decisions need to be made in consultation with your oncologist and with your own personal risk factors, age, other health concerns, feelings etc. etc. No easy decisions, for sure.
Tpralph, they will probably change their recommendations FIVE times in the next five years......drives me crazy!
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Thanks Ruth. I see my MO for a follow-up visit Nov 2 and to start some type of hormonal therapy. I'll be mentioning the study to see what they have to say. In the mean time, chemo is finished and radiation will start next week. Fingers crossed that this never comes back.
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If you are just starting, I wouldn't even worry about the end date. Hopefully, they will be able to give you much clearer guidelines by the time you need them.
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I think I missed my check-in last month, so here I am a day early
After several postponements, I finally had my fat grafting and oopharectomy on the 11th of this month. The fat grafting looks good, better than the first time, and I've decided that this is the end of surgeries for me. Time to move on!! The ooph was easy, and I was able to go on a 7 hour road trip 2 days after surgery.
Life is good. My daughter had a baby on Labor Day (LOL) so I'm now grandma4xI was also just offered a promotion at work, just out of the blue. I did not know I was even being considered. I like my current job though so I'm not sure if I want to get into something new at this point with retirement coming in a couple of years.
Hope you are all doing well and enjoying fall. -
I’m checking in , still doing my taxol got 5 more to go. Looks like it’s gojng to end before Christmas. I’m hooding my neuropathy won’t be too bad so I can finish my taxol. Or else I might have to stop early. I’m going to see my MO this Thursday we will see what happens.
Hope everyone are doing good, congrats grandma4. Prayers for all the pink sisters everything goes well.
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Grandma3X you'll have to change your nickname now to Grandma4X. Congrats! Aren't grandkids just the best.
Radiation has started. Still early though for any side effects with only 2 down and 17 to go. Lots of sharpie marker all over me.
Woke up to a winter wonderland today with heavy wet snow still falling. Oh well, I guess it was time. No chance that winter won't show up this year. Always seems to rain or snow on Halloween.
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Congratulations Gramma4X! I'm glad everything is going well your way. You'll have to let us know what you decide about the job (nice to be asked even if you don't decide to take it!).
Hope your MO can give you some insights on the Taxol, Paulette. Blah, chemo will be a good thing to have BEHIND you!
Pink, keep smearing on whatever ointment they recommend (not before radiation, but right afterward and then again before you go to bed at night; I brought a small tube into the changing room with me & used it right after I got zapped).
DH & I had a very fun trip to Washington, DC at the beginning of the month. I think we squeezed as much as humanly possible in the space of one week! We have been doing 'getting ready for winter' yard work ever since. We raked & raked & raked, put away patio furniture, hoses etc., cut back the perennials, and pulled the annuals..... it looks and feels like late fall around here, and we've already had some snow flurries. Burr.......but don't feel too sorry for me, because next week I will be in Florida on a Girlfriends Beach Vacation!
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Happy Halloween, hope everyone is doing well and moving forward. A few weeks ago I 'celebrated' two years since diagnosis and it seemed almost surreal how fast it went. I remember when I was diagnosed, my surgeon told me it was going to be the longest year of my life and I certainly couldn't see past all the treatments and surgeries.
I'm back on my Aromasin after Letrozole had my feet and ankles so swollen, I couldn't fit any of my shoes. Just weird. But other than that, I'm feeling pretty good.
I have another six month check-up/mammogram in December and praying for a continued 'no change'.
Peace and blessings
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I missed my check in. Congrats to you, Grandam3x! I am a grandma to one and he is the light of my life. I am doing well. Just crazy busy with work and home life.
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I haven't checked in for a while either...Congrats, Gma! hope radiation goes well, Pink...
I've been busy too, my big news being that I am having my knee replaced tomorrow, and am in escrow on a new condo that will be our retirement home once hubby retires...lots to report and catch up on,but so little time! Will check in after the knee replacement to let you all know how it went...
Hugs to all;
Octogirl
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Warms my heart to read you ladies are forgetting to check-in because you're living life.
Octo, Congrats on the new condo and new knees! Be blessed.
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Octogirl: My hubby had a knee replacement six years ago. He was in agony for years and refused to get one but says he wishes he'd done it earlier. Best thing he ever did.
Opt4Life: Am just beginning to start reliving again. Radiation is 5 down and 15 to go. Yesterday they put me on Letrozole. I had a choice between that or Tamoxifen. Yikes, the list of side effects for Tamoxifen was quite a bit longer than Letrozole. I see you're on the same drug. Have you experienced any side effects yet?
Ruthbru: Thanks for the heads up on lotions. So far I've stayed away from all deodorants, soaps, and lotions. They have me all stickered and lots of sharpie marks all over. Mostly, it's been soreness from having my arms above my head for 25 - 30 minutes. I've got some exercises to do to help with that part.
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Hi everybody! I'm in the "thought I was stage 1, but biopsy report was wrong and my MRI results now put me in Stage 2" category.
As you can see by my diagnosis, I have 2 ER+/PR+ HE2- tumors in my right breast, and that boob is going bye bye on Nov. 28th. I'm keeping the left, because she hasn't done me wrong.
Getting immediate reconstruction on the right, and my BS feels certain they can make it aesthetically pleasing and matching the left w/out having to do anything to the left, which is great (fingers crossed).
After surgery I might have to do rads, if I have any positive nodes, and will go on Tamoxifen.
Nice to meet everyone.
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swg, your PS with do reconstruction before rads(if needed)? I think that's kinda rare. My original PS wouldn't even put an expander in before rads.
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That's my BS's plan..I have to meet with the PS on Wednesday..I'm gonna ask him about that.
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Pink
I have been on Letrozole since March and have not had much if any issues, maybe my hands hurt more but really cant be sure if its that or just years of working with my hands and its all catching up with me . . I have been gaining weight but that could be because I cant keep a spoon out of my hand. Have started working out again so hopefully that will take care of the weight issue.
I wish you well and hope Letrrozole works good for you
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Thanks HoneyBeaw, good to know that. The weight gain could be from water retention. It's one of the side effects. I lost a little weight during chemo which I hope to keep off now that my clothes fit better. But as you said keeping that spoon out of my mouth is getting harder now that my appetite is back. I've started back in with walking on the treadmill twice a day for 20 minutes. I'm hoping it will help with any muscle or joint pain. I've got 6 out of 20 rads done.
This tropical storm called cancer is almost over.
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Hi all, My name is Jayme. I have had trouble getting on this site. I have read all the posts and I really like this forum. You ladies are wonderful and very knowledgeable, I love the support you give each other, and I would like to be part of this group
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Welcome, Jaymeb!
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Welcome Jay!
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Yesterday was my 1st cancer anniversary! I am very proud of myself that I can stay strong throughout this toughest year of my life. I am still under treatment, I just started second round of Xeloda yesterday (need to do 6 rounds).
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Yesterday was my anniversary as well, it's been a long year but I don't think I've ever accomplished as much before in 12 months.Lol
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Congratulations, ladies!
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Congratulations on the cancerversaries. Welcome swg and jaymeb.
Swg, I had my pre-pecimplants placed at the same time as my skin/nipple sparing BMX. Radiation followed about 8 weeks later. Seems to be working out fine so far and no more surgeries needed
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What date do you consider as your anniversary? The day your cancer was confirmed?
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Good question Amy! I was wondering the same thing. Is it the day I was diagnosed (obviously it was there prior to that)? first day of treatment? or the day of surgery (when hopefully all of it was removed)?
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For me it was the day I received my biopsy results, diagnoses day. I guess you could have a lot of Anniversary days concidering different treatments and surgeries. I don't want that many though. I don't think I'll concider or think about any of them at all actually.
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congrats ladies, this is such a hard path to go through. It took me down and I’m still trying to get up from the gutter.
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I am wondering if I am the only stage II to do Xeloda?
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I just remember at my appointment with the oncologist his NP said, in a year from now this will all be over. I thought...a year from now? I was hoping this would be over sooner than that. Now it looks like it will actually be longer than that by the time I finally get my implant surgery. Cancer sucks.
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