Met with my plastic surgeon today..
I've been pretty emotional today. Crying a lot. I keep going through..ok, I've made my decision, it's the right thing to do..to questioning myself..and then the confusion just depresses me and makes me cry.
I let my breast surgeon choose the plastic surgeon, and I checked her ratings. They're very good. I like her.
Here's the thing. I had gotten so set in my mind that I was just going to do the lumpectomy on the breast with the tumor, and radiation, and hormone therapy, and be done.
Now I have this second tumor in the same breast, and the surgeon is saying, I can't have breast conserving surgery in that breast. I HAVE to get a mastectomy.
Now, I'm not 100 pct sure the other breast doesn't have a tumor..a spot showed up on the MRI; the dr who did my 2nd biopsy didn't think it was anything to worry about..but if I decide to save that breast. I have to get ANOTHER BIOPSY. These biopsies are so painful.
I'm not saying that, my dread of another biopsy is a reason to remove that breast. The reason, I'm thinking,to remove the "good breast" is to make sure my breasts look symmetrical.
Then I think..maybe I should keep the "good" breast. I'm not BRCA1/BRCA 2 positive. Assuming that MRI spot was nothing, maybe my chance of a tumor in that breast is low.
Maybe they could make my right breast look enough like my left breast, that I could keep modeling.
Or maybe I should just give up on wanting to continue modeling.
I don't know what to do.
I am really scared of complications. If I go with a bilateral mastectomy, I prefer immediate reconstruction. THe plastic surgeon showed me the implants, as well as photos of patients who got reconstruction with the implants. They looked fine. Not as good as my natural breasts, but..good enough.
I just worry about down the road, needing more surgeries...or dealing with a longer recovery time (how am I gonna pay my bills?) ..or an infection..capsular contracture..etc
I hate this. I really hate this disease.
Comments
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I'm sorry that you have to make this very difficult decision. I actually had many of your same concerns (except the modeling ;-) ). I, too, had originally thought I'd do the least surgery and move on but ended up deciding on a BMX.
I didn't want to continue to watch some things in the good breast. I didn't want to have surgery on the good one to try to match the cancerous one. And I really didn't want to subject my body to radiation.
I agree that the results are generally much better for symmetry if you do both. I'm not sure if the recovery is really any harder. I guess the possible complications could be increased. But all of the scary things you listed are not as scary as cancer.
In the end - peace of mind is worth quite a bit. There is no right or wrong decision, but just what seems right to you. It is a horribly emotional time. I feel for you.
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swg- I second everything notverybrave stated. And yes, this disease sucks! On the recon- unless you have some underlying issues, there's likely no reason you couldn't have breasts that look nearly identical to the originals when all this is said and done. Implants are not the only option. I went with skin& nipple sparing bmx with immediate DIEP flap recon. My new breasts look, feel and move just like my originals. I'm 8 months out from the initial procedure and you can't even see the scars on my breasts. The tummy scar is very low-well hidden in a low cut bikini even- and I will have scar revision on it in about a week during stage 2 to clean it up. If you're going to a regular or even a breast plastic surgeon odds are they don't do this type of surgery (called a flap recon) and so they just discuss implants with you. Flap recon requires a microsurgeon. Yes it's a bigger surgery in 1 day than bmx with implants but there's no TEs, no weekly fills, no unbearable tightness after each fill, no implant contracture, no chest wall vs implant issues afterward, no implants flipping over, etc to deal with and the results are soooo worth it. Here's a link to one of the top groups in the country that do flap recons. They explain the different types of flap recon and show you before & after examples.
www.breastcenter.com
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My other concern is downtime..having to get future surgeries..complications...etc
My plastic surgeon said she can do the flap surgery but she doesn't like cutting into other parts of the body unless it's necessary.
She also said she didn't think I had any areas to take fat from.
Maybe I need to get a second opinion, I don't know.
I just don't know how I'm gonna pay my bills if I have significant down time from this, or have to go get more surgery down the road, or have to keep running to drs about complications..
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I’ve seen some good results with reconstruction of one breast, but I understand your indecisive ordeal. Symmetry is important to me too, but I’m much older and don’t care at my age how perfect they end up. I have a friend who went through the flap reconstruction when it was new 15 years ago and has had excellent results. She at age 42 had implants (and understand this was in early 1990s), and her body started to reject her implants. So flap was her only option. She’s doing great. My other understanding of implants is that depending how old you are, they require maintenance after several years, so that’s why I wouldn’t want them. It’s a choice you have to decide on. Depending where you live there might be a group of flap reconstruction doctors who specialize in this kind of surgery. I know too, insurance plays into it, but a cancer situation should open doors. Best of luck to you
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Exactly. The fact that implants can have tons of problems down the road, is part of my concern.
I'm in Philly. We have a lot of cutting edge research and treatments here.
I have an appointment with my BS next Friday to discuss all this. Maybe there is a PS she works with who does the flap.
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After much freaking out, crying, and consulting with friends and people knowledgeable about this stuff..I'm gonna meet with another plastic surgeon tomorrow, to discuss other options besides implants.
Also meeting with my breast surgeon next week. But if I change to this new PS (who actually SPECIALIZES in breast reconstruction and does the DIET flap), I will probably have to change BS's too, as this PS doesn't work with Einstein .He's with Jefferson.
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A couple of thoughts as I was considering this decision...
1) if you keep your breast, you will at least have a nipple for sexual arousal. That's an important pro to that side. because both my breasts were large and cystic I took both off. I miss my nipples, and would have liked to at least keep one for sex. Oh wells.2) Symmetry is important, agreed. I was going to get implants - but experienced issues with the TEs. I also realized that there can be complications from DIEP, TRAM, LAT, etc. Some of these fail and then I'd have scars on more than just my chest for nothing.
3) I ended up going flat after having the TEs removed and it was the right choice for me. I'm slender and feel like a ballerina.
4) As for modeling, currently, if you have some diversity you can use that to your advantage... I know of a Flat model ROCKING the world right now. People want something new and different and flat is in. You don't need internal implants to model, you can always use foobs if the outfit needs it, but you can also wear stuff flat that is a designers dream.
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Those are all good points. Thank you.
I've been trying to find a different plastic surgeon who might offer more options. But I'm hindered by my health insurance.
I have these Tiers. And so many of the surgeons affiliated with the top universities are Tier 3, which means, I'd have a deductible and higher copays
I can't afford that.
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In defense of implants - the notion that there is "maintenance" after a few years is not true. Most implants these days have warranties for their performance that are 10 years or more. And, unless there is a problem, there's no need to "replace" them or anything.
I went with implants because I wanted to have everything done as quickly as possible. I didn't want to subject another area if my body to surgery to create breasts. But that's just me.
Almost any surgery will possibly require other surgeries down the road. I was able to have nipple sparing, skin sparing surgery with direct to implants above the muscle. It was still hard. And fat grafting is recommended to me now.
It's a super hard decision. Probably the best thing is a PS that really listens to what you want and need and is realistic.
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If you go for the the DIEP flap and only need to remove one breast you may be able to get enough tissue to make it look very much like the other one. However, for this type of recon it's best if you have a decent amount of fat to transfer. I needed a double and couldn't do a DIEP. Well, the PS offered to try, but told me I would need to be "highly motivated" and be willing to have a minimum of 4 fat transfers over time in order to get a full A cup. If you're a model you might have an issue, even with one.
I have implant reconstruction and am very happy with it, I had no complications. My breasts look like fake breasts. Nice, but fake. I think you would be okay modeling with implants, barring major complications.
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THanks, SummerAngel. Maybe I am freaking out too much about the prospect of complications. The PS gave me this giant folder, and a book, and a 12 page consent form..going through it freaked me out
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Thanks, NotVeryBrave. Boy, do I feel "not very brave" right now, myself..
Thanks for the feedback! Yeah, the PS said the same thing..she doesn't like to subject people to surgery on TWO areas at once. She also wasn't sure I qualified because I didn't have enough fat.
What did you mean by, fat grafting is recommended to you?
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If you could do nipple sparing mastectomies, implant reconstruction can look very much like augmented breasts. My scars are completely hidden. The Inspira implants even have small diameter implants which would probably go well with your model's body frame.
Yes, there are risks with any surgery, medication or procedure. My PS sent me 90 pages of info to read before my revision. Yikes! All went well, though, as it has with all my cancer stuff so far. I even have a severe autoimmune disease and am medically immunosuppressed. If you are relatively healthy and don't smoke, the risks are very small.
Honestly, I have a lot of doubts about the DIEP for you. My BMI is 19.5 and no one would consider me for it, nor did I want it. The fat grafting alone has made a visible difference in my legs (in a good way) but now I only have a small pad of abdominal fat to use if I need more grafting. Thin women have somewhat limited options.
Good luck with your consults and decisions.
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I just had a skin sparring mastectomy with direct implant over the pectoral muscle on the right side only. It's early but I have to say that it matches really well with the left side. The skill of both surgeons is key. I'm glad your seeing another PS for more options. Good luck!
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Fat grafting is used to soften the edges of the implants - often used after mastectomy since only skin and a tiny bit of fat are left after the breast tissue is removed. It helps to make everything look more natural. That's the plan anyway.
Implants above the muscle don't disturb the muscle, but the trade off can be that they aren't camouflaged as well, either. Fat grafting takes a small amount of fat from elsewhere (stomach, waist, thighs, etc) by liposuction, processes it, and places it under the skin of the breasts.
I think that probably most PS's recommend it. It's sometimes referred to as "stage two" of reconstruction, but I find that confusing since I think of that term in relation to exchanging TE's for implants. I would probably look better with it, but I look fine in clothes and even pretty good in a bathing suit. And I don't want to be bigger. And my BS would prefer if I waited.
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LOL When I say I'm a model..I'm actually more of a pin up model than a fashion model
I actually shoot fetish and some adult stuff (which is why my breasts are important. I'm topless a lot LOL)
So I'm curvy. I have a lot of booty..but my BMI isn't that high, I think 24. With the first PS, I brought up, can't they take fat from my behind..she was skeptical. But she's not in favor of that kind of surgery anyway because then you end up with multiple surgical sites where complications like infection could be riskier.
Thanks so much--it's good to hear everyone's experiences. It definitely helps.
I'm seeing my BS next Friday, and I have a new PS..turns out she works with a PS who IS in the right tier for me, insurance-wise, so I'd have no deductible.
I checked him out online and he has GREAT reviews. And he is with Jefferson, which is one of the best hospitals in the country.
So overall I'm feeling a lot more positive. I was a mess the last cpl days..crying nonstop.
This forum is a godsend.
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I had my exchange two weeks ago, and the implants look good. Fat grafts were done to help secure the implants, with the grafts taken through the belly button. I am a little surprised two weeks out that my abdomen still hurts as much as it does. I've been wearing a compression band around the stomach, but even taking it off for just 10 minutes starts to cause pain. For those of you who have had fat grafts, how long did it take you to heal? My appointment last week with the PS was focused on the breasts, and we never discussed the grafts. Not sure if I should be concerned about still having pain?
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I had a double nipple sparing mastectomy and don't regret it at all. I initially wanted a lumpectomy. I got second opinions and looked at the treatment paths for each procedure and changed my mind. The path I took was a better fit for my situation and every case is different.
My new boobs look almost identical to my old boobs (they actually look better because I breastfed our kids and lost volume due to that) It looks like I had augmentation. I was down for a week after the initial surgery. No downtime after the exchange except for the day of surgery and holiday weekend afterwards. I have no regrets over the decision and would do again in a heartbeat. It wasn't fun but it wasn't nearly as bad as I thought it would be.
It's a tough decision and there are pros and cons no matter which path you choose. Pick what feels right for you and your situation. Def get second opinions. I'm so thankful for my second (and third) opinions. They took me down a completely different path with a much better outcome than what was initially recommended to me (The initial surgeon I was placed with did not know how to do a nipple sparing mastectomy so it wasn't mentioned as an option. I was told I could have a lumpectomy w/ radiation or skin sparing mastectomy, and those were the 2 choices to pick from. Which is fine but I had no idea that nipple sparing mastectomy existed as an option until I got a second opinion).
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That is awesome. Yeah, I'm seeing my BS on Friday. I get a THIRD (OWWEEEE) biopsy tomorrow, this time on my left breast. I am hoping that it's nothing. If it isn't, I will get a double mastectomy. I meet with a new PS next Tuesday. In the meantime, a wonderful woman I met here in Philly who runs a nonprofit has gotten me a consultation with a different surgeon whose specialty is reconstruction. So I will have second opinions as well.
There was a part of me who wanted to rush in to surgery cuz, of course, I have this cancer in me, and I'm nervous about it spreading but at the same time. I don't want to do the wrong thing, health wise.
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Swg- I hope your biopsy went well yesterday. You might want to contact Whippetmom at the Breast Implant Sizing 101 thread. She has a greater depth of knowledge on implants and how to achieve symmetry than most of us here. Since your livelihood depends on your breasts, I agree that getting second or third opinions and insisting on seeing photos of their work is really important. Be sure to ask about scars - where the incisions will be and how far up the sides of the breast they will extend (I was surprised after my exchange that my incisions extended all the way up the sides nearly to my armpits).
I had a MX to remove my cancerous breast followed a few months later by a prophylactic MX. Even though my exchange surgery was the done at the same time, they never looked similar. If I were to do it over again I would get a BMX. I think that gives the PS better control of the end result.
Best wishes on your journey. -
Thanks, grandma3X!
I did get good news today--the left breast has a benign fibroadonema! So relieved.
I'm gonna weigh all the options soon--seeing my BS on Friday. I just really don't want to lose sensation.
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swg - that's great news!
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