Reconstruction for Athletes

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Andi-Pants3
Andi-Pants3 Member Posts: 4
edited October 2017 in Breast Reconstruction

Hi everyone.

I am a 28 year old female who was diagnosed in February this year with breast cancer. I had a single mastectomy performed and just finished up with my 8th and final round chemo last week. I have a few months left to decide about what kind of reconstruction method I want, and I would just like to hear from others on this topic.

Which method is considered the best? I am very athletic and sporty. I enjoy fitness and compete in triathlons, long distance running & cycling, tennis, water-skiing to name a few. I do not want a procedure that will impact my sporting ability but also don't want a "quick fix" which will result in more surgery/procedures, a few short years down the line.

Please provide advice and personal experience if you have any. I am extremely nervous about the decision and need all the help I can get. Thanks a stack!

Andrea

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  • Moderators
    Moderators Member Posts: 25,912
    edited October 2017

    Dear Andi-Pants3,

    Welcome to the community. We are sorry about your cancer diagnosis but glad that you reached out here to our members. There is a blade tool bar to your left and if you use the search function and use the words in parentheses "Reconstruction and athletes" you will see posts of others across the forums who have posted on this topic. You may find some to send private messages to if the posts are not current. You also may want to check out the topic for young women. Keep us posted and let us know if you need more help. The Mods

  • IronMom3
    IronMom3 Member Posts: 26
    edited October 2017

    Hi Ande-Pants,

    I am a long distancetriathlete too!

    It is very important to me that I can still do the activities that I like after reconstruction. They are what make me, me. I have decided on a DIEP surgery. I don't have a lot of tissue, but my surgeon believes he can make me a small A. I was previously a C cup, which I felt was too large and got in the way of my activities. So I think I will be happy being smaller - really, I just want a little something so I look more normal in clothes.

  • Lula73
    Lula73 Member Posts: 1,824
    edited October 2017

    one of the natural tissue reconstruction options like DIEP or SGAP or Stacked Flap are going to be the most like your natural breast. I've heard a lot of women with implants complain about the muscle contracting around the implant and causing pain when they use their arms during exercise/lifting/etc and/or when they engage their chest muscles. Lat dorsi flap recon is probably not a good option as it utilizes your lat dorsi muscle from your back that you're going to need for your triatholons. Lat dorsi also usually involves an implant as well.

    I did DIEP and it's taken awhile for me to get back to being able to do the physical activities I did prior. I'm not 100% there but I'm mostly there. I have found that there is no predicting how long someone will take to fully recover, however From what I've read, my recovery was on the long side (but I also had other health issues cropping up too unrelated to the surgery/recon). If I had it to do over, I would go with DIEP again in a heartbeat. Don't know where you're located, but I traveled from NC to New Orleans for my DIEP to have it done by the docs at The Center for Restorative Breast Surgery.

    www.breastcenter.com

  • Runrcrb
    Runrcrb Member Posts: 577
    edited October 2017

    Andi Pants3 - sorry to welcome you to this forum. But glad you're here asking questions. I had a single mastectomy 13 months ago, having spent the first month after my diagnosis researching and talking about reconstruction options, single mastectomy vs bilateral. In the end, I couldn't come up with a good reason to remove the healthy breast. At mastectomy (tissue and nipple sparing) a tissue expander was inserted under my pectoral muscle. Then it was chemo and radiation. To this day, 13 months later, not a day goes by when I'm not aware of the expander. I feel it swimming, biking, running and pretty much every time I use my right arm in an up/down motion. I recognize that an implant can't be this uncomfortable - why would millions of women continue to have them? but for me, I've got to get that pec back in place with nothing artificial under it. My DIEP flap is in December - it'll be 9 months after end of radiation. I know that the recovery will be long and I don't expect to get back to my pre-diagnosis level of activity quickly but I do anticipate that this reconstruction will be the one that allow me to feel the most "normal" years from now as well as be as active as I want. I'm a D cup today and last summer my surgeon told me I had enough belly for one or two significantly smaller breasts. The last thing he said to me at my check in 3 months post mastectomy was "call me in the summer to schedule reconstruction and don't lose any weight." So I didn't lose any weight (hard to on aromatase inhibitors!).

  • GreenEyes81
    GreenEyes81 Member Posts: 389
    edited October 2017

    This is just the post I was looking for! Ty Runrcrb- are you have just the one side reconstructed? I am a uni and seem to have even more questions/concerns vers if I had just had them both removed. If you are having one side done, where they concerned about symmetry with one real and one fake?


  • dixiechick442
    dixiechick442 Member Posts: 9
    edited October 2017

    I'm extremely athletic and going with direct to implant at Nola as well. I didn't want the diep flap.

    I was told it should not effect my activity level. The implants will be tight at first then settle. I'm using barre3 as my recovery to help with tightness. Surgery is in a few days. I'll keep you updated on the progress.

  • macb04
    macb04 Member Posts: 1,433
    edited October 2017

    Hi Andi-Pants3, come over the Prepectoral Implant Reconstruction on: Forum: Breast Reconstruction — Is it right for you? Discuss timing and various procedures and techniques.

    Topic: TE/Implant OVER pectoral Can exercise, comfortable &NO RIPPLES!

    I am active ( although not as active as you) and had a TE under my Pectoral muscle initially, hated that because of the miserable tightness. Long story short, I had the implant taken out and now have an implant put OVER my Pectoral muscle. That feeling of tightness is very much decreased. On the thread I listed there are some very athletic women who had implant reconstruction with the Prepectoral method and are happy with their result. Stop on by and ask for their stories.


  • Andi-Pants3
    Andi-Pants3 Member Posts: 4
    edited October 2017

    Hi IronMom3

    Please keep me updated on the results of your surgery. I am a little nervous about DIEP surgery because of losing muscle from a different place on my body. I want to train and race for many years to come without any complications. Good luck with the surgery and I hope all goes swimmingly!

  • Andi-Pants3
    Andi-Pants3 Member Posts: 4
    edited October 2017

    Hey Runrcrb


    Thank you for sharing your story with me, and for being so honest. Nothing against surgeons but I have had a few tell me that the surgery will in no way affect my performance or training. I'm still skeptical because it only makes sense that once you cut, it's never quite the same. I am very nervous about constantly having to fight against never feeling normal again once I undergo the reconstruction. I'm even considering bypassing it altogether - but I must say, I yearn just to look and feel normal again. Is the tightness that you experience extremely painful or just rather uncomfortable? Can one get accustomed to the sensation or is it a never-ending struggle? Are you able to lift weights at all, do push-ups, tricep dips and other upper body exercises at all? I'm just really nervous that I will never be able to do any of these things ever again! I love to play tennis and my serve was always my biggest weapon - now I'm scared that I'll lose that talent too. Surely we've suffered enough, right? Please keep me updated on your progess and thanks again for sharing! Mad respect xx

  • lilpea
    lilpea Member Posts: 7
    edited October 2017

    Hi, Andi-Pants3,

    I recently had a nipple-sparing BMX with immediate reconstruction and was able to have pre-pectoral tissue expanders placed. I am athletic and was very concerned about limitations after a mastectomy so I discussed it with my PS and she suggested over-the-muscle would be a good way to go based on my activity level. She did say that she wouldn't know for sure whether she could do it until she saw the skin flap left by the breast surgeon so I went into surgery hoping for pre-pectoral but knowing it could end up under-the-muscle if she couldn't make it work. The skin flap ended up being good so over-the-muscle she went.

    My recovery has been pretty quick and not too painful. I used Norco at night for about 5-6 days and used Tylenol during the day. I was told by my PS to start raising my arms above my head right away and I was stretching and moving as much as possible the day after surgery. I had a 'don't lift over 20 lbs' weight restriction so I used 10-12 lb weights at home to do light stuff during recovery and I walked every day. October 17th was the three week anniversary of my surgery and on the 18th I went to the gym. I've been able to shoulder press, tested out a couple of pull ups on Wednesday, and I'm going to try deadlifting this weekend. I do have some tightness, but continue to stretch (especially in the shower) to keep loosening it up.

    The tissue expanders have not been too bad. My PS is filling them with air instead of saline so they don't feel heavy, they just deflate a little over time and she will refill again a few weeks as the skin continues to heal. When she added air 3 weeks after surgery I had about a 36 hour period of discomfort, but Tylenol took care of that and they've been ok since then.

    Expanders will be replaced by implants at the end of November - I'm looking forward to that. I did not have radiation or chemo so I can't speak to how that would have affected my surgery and recovery. So far I'm very happy with how things are going and am hopeful for a good final result.

    These decisions are so hard to make. There is so much information to take in and consider based on what others have done and what your personal feelings are. Good luck with your research, you will find what works for you. :)

  • Lula73
    Lula73 Member Posts: 1,824
    edited October 2017

    Andi- DIEP flap (as well as SGAP flap) recon only takes fat and skin, no muscle, so no structurally weakened harvest sites post-surgery.You might be thinking of a TRAM flap, hybrid TRAM, or a lat dorsi flap where you lose muscle in addition to skin & fat which results in a weakened harvest site area.

  • FemaleAthlete
    FemaleAthlete Member Posts: 38
    edited October 2017

    I am a very active female athlete -- box, soccer, run, mountain bike, weight lifting, swimming -- to name a few. Not bragging, just wanted others to understand how athletic I am.

    So, in 2015 I had a double mastectomy with no reconstruction. My PS wants to get it started in November. BUT, he says I will be "side lined" for the first initial month. I am very anxious over this whole thing. Unlike a lot of people, I am in no rush to have this done. It bothers me somewhat, to not have what every woman has - breasts. Getting dressed in locker rooms, in front of everyone does not happen either.

    I guess I'm looking for some advice or wisdom - how did you come around to making the decision? My mom says I should do it now when I have the time.

    But to me, 30 days is a long time for me to not be able to workout. It is something I need to do - keeps me in check

    Help folks and thank you in advance for your knowledge.

    Thanks

    Donna

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