Starting Radiation October 2017

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  • Teese
    Teese Member Posts: 379
    edited October 2017

    LoJo, you continue to be an inspiration to me. I cant quite wrap my head around the thought you're nearly done with rads, good grief woman!!

    Gigilala, good luck today, first one down!

    Dodgersgirl, have you continued to feel dizzy?

    Theresa


  • LoJo100
    LoJo100 Member Posts: 123
    edited October 2017

    Teese - You're too kind! I can't wrap my head around it, either. It's funny how parts of this seemed to go so slowly, and then, just like that, I was on to the next phase. During my chemo allergic reaction and hives, I thought it would never end! But, here I am, almost done with rads. I fell like during treatment I'm in a parallel universe and in a time warp!

    Have a great weekend!

  • Mandeola
    Mandeola Member Posts: 16
    edited October 2017

    hi gang.....new to this thread.....I had my simulation 9/25 then started radiation 10/16. 10 down, 20 to go. I am getting 25 chest, whole breast and axillary doses then a 5 day boost. So far so good. Saw my RO today and she said the redness should appear next week or week 4. I use cetaphil 3 times a day and have aloe vera spray in the fridge in case it starts to sting. I am doing a lot of yoga as they told me that would stretch the areabetter than anything else. No noticeable fatigue so far which is good. I am trying to stay active per the team’s recommendations. Back to work next week after a 6 month hiatus so nervous for that. I am a nurse practitioner so I work days, 16 hr night calls and 24 hr weekend shifts. Fingers crossed I can manage. Happy weekend (aka 2 day radiation break) everyone!

  • l_brain
    l_brain Member Posts: 71
    edited October 2017

    Just completed #20 of 20. Redness and fatigue that comes and goes, but went by fast. Wishing everyone a restful weekend.

  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited October 2017

    i_brain: 20 of 20 as in you are now finished or have boosts remaining?

  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited October 2017

    Teese- yes, still dizzy. My physical therapist thinks is could be sonethink messed up with crystals in ears from chemo, not rads related

    I do find myself nauseous each evening. Wating to see if that sensation goes away over the weekend. Techs tell me it isn't a SE of rads. I feel more like vomiting from 5 rads than at anytime during chemo. Sigh

    I returned to work Monday after mastectomy. I sure miss being able to take an afternoon nap.

    After 5 treatments skin doesn't look or feel any differently. Shoulders are kind of sore but I think that is from exercises I got Tuesday from PT for ROM which I have been doing.

  • pink_is_my_colour
    pink_is_my_colour Member Posts: 308
    edited October 2017

    I asked the tech today about molds. He said it’s mostly for big breasted women with pendulous breasts. They use the molds to hold the breasts in place. Since I barely have much left I don’t need one. He said they don’t use them much anymore either.

    I have a bar I need to clasp my hands onto and there are some forms that I can rest my arms on.

    Today was quite a bit shorter than yesterday and my arms made it through without any aches. The physio therapist said that your skin repairs in a couple of weeks but muscles can take up to six months to repair from the radiation. I've started my exercises to help.

    1 down, 19 to go.

  • Gigilala
    Gigilala Member Posts: 148
    edited October 2017

    2 down 28 to go

    I am super tired and dizzy

  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited October 2017

    gigilala-- are you dizzy after rads or during rads?


  • Gigilala
    Gigilala Member Posts: 148
    edited October 2017

    dodgersgirl: during and after

  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited October 2017

    Gigilala- me, too.

    Noticed today that I felt dizzy when I turned head to the side for rad treatment. I make sure to just sit for a moment after rads before getting up from the table. Then getting dressed, felt dizzy and wondered if I should sit down.

    Hoping it gets better for both of us!

  • Jenniferx
    Jenniferx Member Posts: 23
    edited October 2017

    I too started Tomo radiation (X25) on October 10th. Diagnosed stage 3 in January 2017, right mastectomy w/tissue expander and sentinel lymph node dissection in Feb, chemotherapy March-June, axillary lymph node dissection in July... Reconstruction will be post radiation. Half way through radiation, feeling some fatigue, skin sensitivity and occasional dizziness. Using Cavilon spray 2 X week for skin. Thankful for 2 days off on the weekends! Happy that my hair is growing back pretty well post chemo.... Except that it's all grey....

  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited October 2017

    Jennifex- welcome to the Oct rads group. You mentioned about having 2 days off due to the weekend. This is my first weekend "off" since starting rads. It really is great to not have to work in rads today and tomorrow. Enjoying the weekend, for sure!

    Halfway there!! That is exciting.

    Is your skin pink?


  • l_brain
    l_brain Member Posts: 71
    edited October 2017

    Dodgers girl-15 regular, 5 boosts. I am done!

  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited October 2017

    i_brain-- Congrats!!! That is so exciting.

    Enjoy your weekend.

  • DawnP64
    DawnP64 Member Posts: 25
    edited October 2017

    LoJo - I also just completed week 4 on Friday. I'll have 35 treatments, 28 + 7 boosts, so I've got 3 weeks to go. Your hot flash experience is also identical to mine - caused by chemo, intensifying with rads. I'm hoping that means there's hope that they will get a little better after rads. I'll start Tamoxifen mid-November, and I understand that hot flashes come with that too.

  • Jenniferx
    Jenniferx Member Posts: 23
    edited October 2017

    Hey! Yes, it's a relief not to have to fit in the Rads appointment for two days...

    I am feeling a little stinging and tightness around the underarm and breast but haven't really noticed any colour changes... You?

  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited October 2017

    Jenniferx-- I have the same sensation under my arm today. Stinging and sore where I envision lymph nodes were removed.

    No pink skin yet

    Start week 2 tomorrow.

  • Jenniferx
    Jenniferx Member Posts: 23
    edited October 2017

    @DodgersGirl Have you tried the Cavilon spray?

    It's Monday again... #14 out of 25 today... Getting there.

  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited October 2017

    jenniferx--I have not tried Cavilon spray. RO said it was ok to use Calendula, green tea, and AuquaPhor

    #6 of 28 today

    One of my stickers fell off yesterday so will need a new one today also get extra images on Mondays and see RO so today's appointment will take more time

  • Gigilala
    Gigilala Member Posts: 148
    edited October 2017

    it's Monday

    #3 of 30 today at 11

    Herceptin at 11h30

    I have a long day

  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited October 2017

    #7 of 28 today so that means I am 25% finished.

    No pink or tan skin yet but figure if it doesn't happen this week, it will happen next week.


  • SpeedyTeach
    SpeedyTeach Member Posts: 21
    edited October 2017

    #17 today out of 21. 4 more to go!! My last whole breast rad was yesterday with todays and the rest being boost. I am started to feel the emotions kick in as I reach the end of my treatment. I've also come down with a bad head cold. No fun laying on your stomach with your head twisted when you can't breathe.

    I_brain-congrats on being done!!

    DogersGirl & gigilala-i have had dizziness too on and off throughout my treatment but the first week was the worst. Hope that gets better for you both.

  • utjoy
    utjoy Member Posts: 56
    edited November 2017

    #8 today, no real issues yet concerning skin. I'm using emu oil, auquphor, last week I used green tea and Solar Recovery also. This week I haven't used the green tea yet, am brewing some now asdI really think it helps. I'm gettng the bolus every other time for now.

    My wonderful husband passed away last Thursday morning, unexpectedly...I'm continuing rads as he would be furious, as would our children, if I didn't. I'll try to post as I know how much others experiences have helped me.

    Blessings to all...we can do this. We must.

  • sweetsmilefh
    sweetsmilefh Member Posts: 14
    edited November 2017

    utjoy, so sorry to hear of your loss. What an ordeal to go through both breast cancer and the loss of your husband simultaneously. My heart goes out to you. When my first husband passed away at the age of 44, my kids were 8 and 12 respectively. At that point, I had to be the strong one in the family. Today, my daughter is married, my son is in a wonderful relationship, and I have remarried to a terrific man.

    I hope you get tons of support from your family, your friends, and all of us here. I wish you solace and healing, and hope that the rest of your radiation treatments go smoothly.

  • MCOlivia
    MCOlivia Member Posts: 27
    edited November 2017

    utjoy, so sorry for your loss. Your strength is inspiring to all of us here. Keep that up!

    Much love

  • pink_is_my_colour
    pink_is_my_colour Member Posts: 308
    edited November 2017

    utjiy, sorry to hear about your husband. Tough to deal with at this time. Stress you don’t need.

  • DodgersGirl
    DodgersGirl Member Posts: 2,382
    edited November 2017

    utjoy-- OMG, I am so sorry for your loss. Prayers to you and your family. I am at a loss as to what to say that will be helpful to you. Please lean on us and vent, share, grieve, etc as needed. We are here for you.

  • catlady72
    catlady72 Member Posts: 35
    edited November 2017

    My intro here...newby:


    I lost my mom to cancer in February of this year before being diagnosed myself in April. She had breast cancer in 2005, but had treatment for it and was almost all clear for about 5 years. In 2011 or 2012 she was diagnosed with early stage lung cancer (she was a lifetime non-smoker and didn't have much exposure to it) and battled that for another 5+ years after surgery to remove it was unsuccessful. Her passing was difficult, she went downhill quickly after being diagnosed with brain tumors in November, that were also treated with radiation. During this same time, for the last 3 years my MIL was also battling kidney cancer. We lost her in July of this year as well. So it's been a tough year for us.

    After reading things on this board since April, I'm finally going to try to be a little more active in case I need the support. So diagnosed in April, surgery May, chemo June through August and just started radiation last month. Today will be #15 out of 30 with no S/Es so far other than redness. My radio oncologist, who I see every week, seemed to indicate I can expect more pain soon so now I'm looking into ways I can minimize any S/Es that happen. Right now I've only been using Adamia lotion every morning but haven't been in the habit of putting something on right after radiation which I do each day (M-F) at 3pm after work and then go home. Today I feel like fatigue is setting in a bit, as I got plenty of sleep last night and I'm dragging a bit now.

    Good luck to everybody here going through this stuff now and I'll try to check in often to provide any support...and in case I need any myself!


  • FelineMum
    FelineMum Member Posts: 141
    edited November 2017

    The adventure continues. I did my simulation today, which mostly went well. I'm much less nervous about the breathing technique now that I've tried it. Learning I have much more lung capacity than the average person makes me less scared about the predicted lung damage. I also got my three little tattoos. Freckle sized, the tech told me. Right now, there's ink on the skin around them, so I'll see for myself after I shower. Also had my cradle made. I'll be on my back, hands over my head. My range of motion's decent, so I think I'll be okay.

    But I need to get my right side temporary expander completely deflated. It's already been deflated by 1/3rd. Still too big. Having one "foob" doesn't sound fun. I know I can wear a bra with a prothesis, but I suspect my skin will be too tender for that. As is, I'm wearing camisoles or tank tops under shirts. Sometimes, my port/drain hole still hurts and my scars get sensitive.

    I suppose I'll figure it out. If I could do bald, I can do lopsided. (wry grin)

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