Calling all TNs

thanks Agatha. At the moment it's hard for me to say if switching meds is a good or bad sign. and to some extent i can't even tell if it has shrunk or not. but i'm hoping for the best. 🤞🏼

ewu, any changes in the tumor itself? mine was more moveable after first dose but then some hard areas showed up a few days before my second dose. did your MO say anythin about what would happen to your tumor during chemo

ALhusband - that's really great news about your wife's PET scan. I hope you guys are enjoying a bit of relief in the midst of all this.

I got good news today. The results from my genetic testing came back. They didn't find any mutations in the genes they tested that would suggest that I'm at higher risk for breast or other cancers. I still haven't decided what surgery I will opt for, but I am less likely to pick BMX given this news.

Hope everyone is having a good week!

Al, - GREAT news! Thanks for update!

Shopgal, - hoping that your chemo time goes by quickly and smoothly! As for wig, - my hair did not grow in to be anything like it was pre-chemo, and my original wig looked silly to me by then, so I purchased a short wig, similar to what my hair was growing in like, but with more body and thickness. ( http://www.godivassecretwigs.com/sheila-short-wig/ ) I get many compliments and those that I confide in are amazed that it's a wig! (Mine is 'toasted brown' color)

Fighter, - always so nice to read good updates! Thanks!

Shopgal2 may i second blessings and strength to you. Please keep us posted as best you can. Anyone heard anything about our friend Annie (cocker)?

PANCREATIC IPMN

I have been diagnosed with a 8mm side branch IPMN on the head of my pancreas found two years ago when I had a CT scan before I began treatment for TN. I've read a lot and it seems to be a coincidence not related to my breast cancer. But, these things (although pretty common) can turn to cancer. Right now, it seems to be stable. Anyone have such a situation?

Shopgal2..,Hi...thanks so much for your concern. I'm fine. An IPMN is a pancreatic cyst that has the potential to become cancerous. I have the "good" kind, if there is such a thing. Needs to be monitored and hopefully stays stable. Another thing to worry about and cause stress. We all know about that‼️ How are you doing?

Just dropping by to say hi! I don't post terribly often, and have realized that I tend to only come around the boards when I'm worried about possible mets, but I'm trying to do better. You are all in my thoughts often, and I hope you are all doing well!

Hi, mkn86. You're a month ahead of me in Chemo. I hope you are doing well. Is "PH" the Philippines?

Take care.

Hi gang, I'm new to this site, of course found you by searching Triple Negative. I look forward to getting to know you.

I was diagnosed in July, Stage 2 no lymph involvement from what can be seen in the CT or MRI. I started chemo in August (AC x 4 completed, completed #4 of 12 Taxol today). I'm feeling ok but really need to stop googling.

I get my MRI results from my oncologist on Friday, but they are already on line in my chart and while the tumor has shrunk, it hasn't shrunk a lot and there's reference to 'however shoes avid arterial enhancement'. Google isn't helping me figure out what this is so I'll have to be patient and wait to ask questions on Friday. I'm concerned that my treatment plan my change and that I'm not responding as well as was hoped (this treatment is supposed to shrink the tumor (which it did by 1/3) but for 50% of women it disappears. I was obviously hoping to be one of them!

Surgery consultation is scheduled for the end of November (determine whether it's lumpectomy or mastectomy) followed by possibly more chemo and then radiation.

I'm trying really hard to live day by day and roll with it and not focus on the what ifs. Walking and some walk running (now that the AC is done!) and meditation is helping. I'm very lucky to be on leave of absence from work so I can focus on getting this behind me.

Thanks for reading

Thank you Janet! This is very encouraging. I'm not sure what was expected to be honest, so I will ask my MO on Friday about this as well as adding carboplatin.

ALHusband I did get tested and it came back negative for both BRCA 1 and 2. Thanks the the suggestion though! My sister and daughter are much relieved!

I love it, Lisa!

Shopgal, I was awake but lightly sedated during my port insertion. I had a clear plastic windows in the draping so the nurse and I could see each other. I didn’t think it was a big deal and would rather have been awake then have to deal with nausea from the anesthesia.

Cathy, hoping your pancreas remains stable.

Welcome ubeee, sorry you had to join us. Hope you continue to do well with Taxol.

LisaJ - you and your friend look so great! What a fantastic costume!!

On another thread one of our TNBC tribe posted about Androgen Receptors in TN cells. I'm only about a month out from diagnosis and I feel like I'll never catch up on research and education. It was new to me, and interesting - there's a trial going on for targeted treatment for us TNBCers with AR+ status.

I'm going to ask my oncologist tomorrow when I go in Chemo treatment #2.

I hope chemo & Neulasta don't know me out too bad this weekend. Family and friends will be in town from New Mexico, Wisconsin and Pennsylvania - I hope to keep my energy up.

Hope everyone is having a good week!

Hi, I just wanted to introduce myself. When I first joined the forum, I found it extremely slow and posting was unbelievably frustrating. Suddenly the last week or two, I'm not having any technical issues, so hopefully this will continue!

Anyhow, I was diagnosed with TNBC on Valentine's Day. I had an 8 cm tumor and was very scared. We signed me up for an investigative study through Eyespy 2 and then standard chemo. I've done 12 weeks of parp inhibitor, 8 weeks of AC and I've done 7/12 weekly Taxol w/Carboplatin every 3 weeks. Until this week, my biggest issue has been blood counts delaying treatment. I had some minor neuropathy until Sat it got much worse. At yesterday's infusion, I started icing and my MO lowered my carbo dose. Also started Gabopentin. Im hopefulthat dose reduction & icing will contain my issues. I've had a good clinical response. Haven't felt tumor in months but MRI still showed tumor after AC so we're not sure what expect. The MRI did show two masses, so we think it may have started as two tumors pressing together. Seeing the surgeon in Nov and will get another mammo & MRI. I'm told MRI could be picking up necrotic tissue so I need to wait until pathology, down the road.

I have 7 yo twins and they have been troopers but it's been hard on them and my husband.

Look forward to learning more about you ladies. Lyn

Thanks for bringing staging up karenwrite, I wondered that as well. If you become NED does the whole staging start all over again? Also, what about when your 5 year clock starts. My wife had been ER/PR+ HER2- for almost 5years now. She was NED for about 8 months of that (AL's & tamoxifen failed). Her estrogen Pos BC turned triple negative last March so she's on a different treatment regime (Xeloda and it's working). Does my wife's 5 year clock start all over again because she's now triple negative? Breast cancer studies always show 5 year survival for estrogen positive and triple negative separately.

Just asking

MikeW