Starting Radiation August 2017

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  • illimae
    illimae Member Posts: 5,710
    edited October 2017

    Thanks Lego, we all know there aren't really right words but I do appreciate the thoughts/prayers :)

    Paula, I hope yours turns out to be something else, something better like nothing at all but if not, we're here for you.

  • MamaOz
    MamaOz Member Posts: 432
    edited October 2017

    illimae , you have a good attitude , keep strong

  • MamaOz
    MamaOz Member Posts: 432
    edited October 2017

    girlsI started Rads in August but the hurricane set me back as you know.. I finally finished today! My chest looks like burnt toast and feels like it! But I am relieved to have this step behind me, its been a long year and I am praying all these treatments have worked and I can move on to my hormonal therapy. And trying my best to stay healthy...

    Its all we can do , that and keep praying..

    Illimae , hang in there my prayers are with you

    My best to all of you

    Mamaoz


  • Legomaster225
    Legomaster225 Member Posts: 672
    edited October 2017

    Congrats MamaOz!! Glad that is over for you!

    image

  • Legomaster225
    Legomaster225 Member Posts: 672
    edited October 2017

    I finished Tuesday and breast still looks bad but it is much less painful. My loving husband said it looks like “zombie breast” all gray, red and peeling.

  • MamaOz
    MamaOz Member Posts: 432
    edited October 2017

    thanks lego! At least you have a breast!

    Mines just a flat piece of toast lo

  • Bmac16
    Bmac16 Member Posts: 36
    edited October 2017

    MamaOz and Legomaster225 I finished rads on Sept 19. Breast was totally fried and I was concerned about the scar under my arm from lymph node removal. RO told me to keep using the lotions/cream for 2 weeks and all would be good. She was right, 2 weeks to the day, everything looks great.

  • MamaOz
    MamaOz Member Posts: 432
    edited October 2017

    thanks bmac! I was just using the aloe but may add the aquaphor too as its starting to hurt mor

  • Legomaster225
    Legomaster225 Member Posts: 672
    edited October 2017

    Thanks Bmac. I do notice an improvement but it still looks pretty bad. I have been using the aquafor all along. I think it will just take time. Mama my RO told me to take ibuprofen to relieve pain and help with inflammation. I have taken a lot this week but itdoes seem to help. Not sure if that would would be something you could take.

  • MamaOz
    MamaOz Member Posts: 432
    edited October 2017

    yes lego I also take advil before bed ..

  • inccmd
    inccmd Member Posts: 69
    edited October 2017

    Just checking in and seeing how all of you are doing. There is so much going on, my response would be too long. I think about all of you often.

    From all the comments, I guess the thought I'll leave you with is: No one as a crystal ball, and friends and friendships matter tremendously.

  • Mandycat
    Mandycat Member Posts: 52
    edited October 2017

    congratulations to everyone who has finished. I fell lucky I have not had much problems. My areas turned brown instead of red. My skin is rough. Not too much pain. A little fatigue. My son was getting married at Disney World right after I finished so I had to go there. I did very well and am glad I went. Still keep applying the creams. It feels good to start the next phas

  • Legomaster225
    Legomaster225 Member Posts: 672
    edited October 2017

    Glad you’re doing well Mandycat. Congrats on the wedding! It had to be a good feeling to see your son married. I love Disney toi

  • Mandycat
    Mandycat Member Posts: 52
    edited October 2017

    Thanks Legomaster. Yes it did. I'm much happier than I was before. Not having many problems

  • MamaOz
    MamaOz Member Posts: 432
    edited October 2017

    legomaster

    I see we have similar dx, although I opted for no recon I just finished my radiation on the 6 th and feeling ok , chest still brown...

    what hormone therapy will you be doing? I started arimidex last week

    Mamaoz

  • Castigame
    Castigame Member Posts: 752
    edited October 2017

    surgery time for me again!!!

    Having b9 elbow lump removed this afternoon..

  • Legomaster225
    Legomaster225 Member Posts: 672
    edited October 2017

    Good luck Castigame .

    MamaOz, I noticed that we were very similar also. I am starting Tamoxifen tomorrow. Since I was still regular prior to chemo the doctor wants to confirm I am really in menopause and not just chemo enduced. Hormone levels show menopause now but he wants to confirm in 6 months. I will switch to an AI after that. How has the arimide been foryou so far?

  • MamaOz
    MamaOz Member Posts: 432
    edited October 2017

    Mimi good luck!! With your elbow lump!!

    Lego, so far not too bad. Ive had a few dizzy spells but that might not be related and just before I wake up Im a little crampy in my lower abdomen so maybe that's me drying up from lack of estrogen lol. Im 63 so I am definately menopausal my joints are a little stiff in morning but its only been 8 days

    Mamaoz

  • Castigame
    Castigame Member Posts: 752
    edited October 2017

    elbow surgery is done. Drain ugh is absolutely minimal ans no pain. I thought I was going to wake up from pain. 500mg tylenol at 10 pm last night nothing since then.


    Here I come hystrectomy.

  • Legomaster225
    Legomaster225 Member Posts: 672
    edited October 2017

    Glad you’re recovering well. One more thing off the list for you!!

  • TWills
    TWills Member Posts: 679
    edited October 2017

    I think I'm the last August kid to finish rads, lol

    I'll be done tomorrow! I had that several week break due to the expander infection/removaland then the hurricane. I feel like I'm in that movie Ground Hog Day every time I walk in to the rads office. I even tried to schedule an appt next month around my rads appt and the lady had to remind me that I'd be done by then, sheesh. Hope everyone is healing well:)



  • MamaOz
    MamaOz Member Posts: 432
    edited October 2017

    good for you twills!!🎉 I know the feeling I had a 3 weeks postponement too.. finished 10/6

  • ShockedAt48
    ShockedAt48 Member Posts: 138
    edited October 2017

    Has anyone else started Tamoxifen? I started on September 7th and so far no serious side effects. I was evacuated for 1 week due to the Napa fires but luckily our home was saved. Fire was approaching from two sides less than a mile away but it seemed to be deflecting around our subdivision. See picture below, the yellow circle is my house. There areas are geeen foilage.

    Thoughts on follow up visits, my Nurse Practitioner wants me to see her instead of my oncologist for my regular checkups. I am not sure how I feel. I want a cancer specialist doctor to tell me at each visit that I'm ok. Is an NP qualified to take over? My gut says to see an actual doctor due to the seriousness of cancer. The NP also recommends for me to have my first mammo at my 1 year anniversary instead of six months post treatment. She thinks I will be less sore. Is this a good idea


    image

  • Legomaster225
    Legomaster225 Member Posts: 672
    edited October 2017

    Whoa Shocked! That picture is scary! Glad you and your home are safe. I think I would want follow ups with the doctor as well. What does your doctor think about that? Is that standard practice in their office?

    I’m taking tamoxifen too. Just started last night though. Glad to hear your side effects are mild so far.

  • illimae
    illimae Member Posts: 5,710
    edited October 2017

    Hi shocked and Lego! I started tamoxifen about two months ago. I had some night sweats for a couple weeks, just had a popcicle and went back to bed and some joint stiffness in my fingers. The night sweats are gone and I am taking glucosomine for the joints, easily manageable so far.

    I'm sorry about the fire but glad it spared your house. I grew up in Southern California, I recall one burning in the forest near my old house, very scary.

    I find the nurses to be very competent and more involved in the patients care than docs in some cases. I would wonder if this is standard, if so, I'd be ok with it depending on the severity of the discussion covered but that's just me.

  • MamaOz
    MamaOz Member Posts: 432
    edited October 2017

    oh my that was scary!! So glad your home was ok

    I will have anafter care team to ask questions when I need too, a Np, however I will see my MO every 3 months..

  • Goofycat
    Goofycat Member Posts: 39
    edited October 2017

    Good morning! I haven't been here in awhile. I hope everyone is doing well. I just read some recent threads and thought I would give my two cents.

    Shocked at 48 - I'm glad your house was saved during the fires. That sounded so scary. On your question about NP - I would rather see a doctor than a NP unless it would be on a rotating basis and for general care and not a follow-up. I have had a few visits that weren't followed up with a NP in other areas of my health care and ended up costing more time, pain, and money. On the follow-up mammogram - a friend of mine is a RO and she said the the doctor who did the biopsy and your MO and RO should work together to get a date for the follow-up. It is usually 6 months to 1 year after diagnosis. I feel uneasy waiting for 1 year.

    I have also been prescribed with Tamoxifen. Only been on it for a week. All seems okay. I feel like have taken Dramamine - sleepy, cotton mouth, and on the verge of nausea. I take it at night. I also take Zyrtec with it. Some women take Claritin it is suppose to help with the bone pain. I was diagnosed with osteopenia from my dexascan and will probably be receiving Prolia. Has anyone been give this?

  • ShockedAt48
    ShockedAt48 Member Posts: 138
    edited October 2017

    Thanks for everyone's kind thoughts about my house. I am a little paranoid when I smell smoke now. The fires are still burning and we are getting a lot of smoke. The first night we came home I saw two hot spots on the hillside! Each night I check but haven't seen anything since Sunday

    When I first saw the NP I thought it would be nice in addition to seeing my oncologist regularly. She told me that she covered survivorship topics and wanted me to make an appointment 4-8 weeks after treatment ended. I had an existing appointment setup with my oncologist for the end of October. As soon as I set up my appointment with the NP Kaiser cancelled my appointment with my oncologist without telling me. I was upset and had them add my appointment back in for the oncologist. I have an appointment on October 27 for my first check up and will ask her. I'm afraid that she will want me to see the NP because it's probably cheaper so I'm a little afraid to ask.

  • Mimie
    Mimie Member Posts: 42
    edited October 2017

    My MO says I will have MRI’s every six months. I’m about 1 month post rads and still very fatigued and have pain in my upper chest (not in breast). Was taking Motrin and Tylenol but it was beginning to affect my kidneys so cut back to only taking Motrin before bed. I will start hormone blockers in December

  • Legomaster225
    Legomaster225 Member Posts: 672
    edited October 2017


    Twillis, did you finish? Hope so!

    Illimae. I was thinking about you today. Are you doing alright? Did you start your next radiation session? Praying it knocks everything out for you.

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