If you are not Stage IV but have questions, you may post here
Comments
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Georgie girl
Great news! It's nice to get good news for a change & to share it with everyone. Sending Continued good thoughts & prayers. Hugs, Candy
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I had my appointments today and MO and BS are recommending a bone scan and chest CT. Possible MRI on my back depends on bone scan. So here goes the rollercoaster again.
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Hi,All of ypu my mom was diagnosed with stage 3 tnbc in 2015.Her doctors not performed any scan at the time of diagnosis only mammo.Now in june this year she had problem during passin urine and passing bowel so her doctor ordered a cat scan.Cat scan captured her lungs and showed a single 4*3mm nodule.Now doctors are not doing any type of scan.They said they will rescan it after 10 months. Is this wise.She is tnbc.I am terrified.See my profile for her diagnosis.
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Katie, b9 lung nodules are very common. So generally they just recheck it to see if it is changing. If it stays the same, it isn't a metastases. If it changes, ie grows they may want to biopsy it.
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civi recently my mom have developed a tickle in her throat from past one month and cough 2 -3 times a day.She cough one time at night.No other symptoms but she need to clear her throat often.
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Hi i have Stage IIa Breast cancer..
Now there is concern that it is now in my hip as well, I'm going for a bone scan Monday... biopsy thursday..
If it comes back that it is cancer now in the bones... that means I jump to Stage IV Breast cancer...
I don't feel like i am getting a clear answer from my MO & Breast Surgeon.... how I can jump to stage IV when my nodes were clean??
Would love your thoughts!
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Tina marie ~ I'm so sorry there's a concern about your hip. To answer your question, bc cells migrate from the breast via both the lymph system and blood system. If you have a copy of your surgical pathology, you might want to reread it and see if there's any mention of lymphovascular or vascular invasion. That might provide a possible clue.
Why are they doing a bone scan? Have you been in pain, or have you had either a PET scan or CT scan showing an area of concern?
Hopefully, your bone scan wiil be clear. Please keep us posted. Hugs & prayers that this is nothing more than a scare due to something that needs to be followed up because of your bc hx. Deanna
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Katie, I'm so sorry about your Mom. I'm not sure I totally understand your post. Did the CT scan that was done rule out any problem in her bowel area? Is she still having the problems that sent her for a scan? Was that dx'd as something specific, or was she at least referred to a gastro doc?
As far as the lung nodule -- it's not uncommon to have something like that show up on a scan. Often it's what's termed an "artifact" -- leftover damage from maybe having had pneumonia, for example. Do you know if your Mom has ever had pneumonia? I do think a wait and watch approach is logical. I'm just a bit surprised that they would wait 10 mos. for a follow. Perhaps there's a good reason for that (maybe the size is just so small that it would be hard to see a difference sooner?), but often 6 mos. is more common. Short of a possibly difficult and/or unnecessary biopsy, watching for any change is pretty standard.
Depending on why they recommended waiting 10 mos., if you or your Mom aren't comfortable with the recommendation, you can ask about doing it sooner, or she can consider getting a second opinion, ideally with an onc who specializes in TNBC. These are more common at the larger NCI-designated medical centers.
Hope this helps, and please keep us posted.
Hugs, Deanna
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Thank you Deanna.. Well here's my story...
In June I went to my regular doctor's office because I had pain in my hip and had been limping for 3 weeks at that time.. but at the same time I was taking care of my elderly mother-in-law in end stages of metastatic lung cancer so I just figured I pulled something. DO (doctors office) gave me an order for an X-ray, but i had to wait another month as my MIL was getting sicker. After she passed I had a day off in early July.. i walked into the imaging center and showed them my order for the X-ray and told them i was due for my mammogram. They saw me and discovered the breast cancer. they said the hip X-ray was fine.
So 2 months later after being in the care of my Breast Surgeon and Oncologist.. my Internist decides to call me one day to check in on me and see how i'm doing since he knew what I was going through... I told him good.. managing as well as can be expected, but that I was still limping, even tho the X-rays came back fine.. he told me to give him a half hour so he could check them out again, he'd call me back. a half hour later they wanted to see me the next day for eval, where they set me up for an mri.
I got my results of that yesterday the Oncologist and their radiologist tell me the are seeing three areas in the hip that are under 1cm each that are very suspicious of cancer.. biopsy and full bone scan next week. It was the limping that started all this!!
I just checked my surgical pathology and it states: size of tumor, GRADE 3 AND Lymph-Vascular Invasion - Present
What does that mean?? They told me it wasn't in my lympnodes. Does any of that make sense?
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Tina, l lymph vascular invasion means that some of your cancer had gotten into your blood and lymph fluid system which circulates through out the body. You'll just have to wait until the biopsy is complete to know for sure if this is a metastases. Even if it is, there are still many treatments available for you, it is not the end of the world.
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Tina marie, I'm so sorry about your MIL and all the stress you've been through, and now this. I'm glad you're getting further imaging. One thing I would question -- because it happened to me -- is if you also have an undiagnosed fracture somewhere in your hip or femur. You might want to ask them to look closely at the MRI again, specifically for that possibility. Also, are you on Tamox or an A/I? I'm just wondering if something besides those tiny spots, which may not even be bc, is going on to cause you so much pain that you're limping.
It sounds like you have wonderful docs, especially your internist who took the time to check up on you. That's really impressive.
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dlb: I am on A/C-T regimine.. I only had 1 infusion so far (managed SE well). My next Infusion is Wednesday.
So the LVI explains how cancer could spread without the node involvement. I looked it up last night after you mentioned it.. and it all came together.
My next question is.... if it is bc... would that be a very quick progression from clean mammogram in 2/2016 to stage iv breast cancer the following year? That just blows me away.
Also thank for your kind words about my mil.. my brother in law had stage iii esophagus cancer dx in January as well. So it has been a rough year, especially for my husband. My BIL is now in remission and had the same Oncologist. Hoping he can do the same for me.
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Tina Marie, it's unlikely your chemo would cause hip pain, but if you got a Neulasta shot, that can cause horrible bone pain as it stimulates bone marrow, and the hip is a big bone, so very prone to have Neulasta caused pain.
A mammogram would not image your lung. If you had a clear CT or Pet scan prior to starting chemo, then yes, something newshowing up that fast, especially while you're on chemo, would be surprising.
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Hi all. Thinking of each of you who are going through the process of waiting and worrying. I have an update on my latest test. I had a bone scan today and picked up the report. The report did not show any hot spots except in the broken rib. In the conclusion it states:
Solitary hypermetabolic focus is noted in the lateral right rib corresponding with PET scan abnormality. The differential diagnosis would include healing benign rib fracture versus a solitary osseous mets with pathologic fracture.
The way I read this report means to me that it could be a healing rib fracture or a solitary bone mets. Can someone chime in and say how they are reading this conclusion? I see my oncologist Monday. Thanks,
Georgie
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GeorgieGirl, I take it to mean the radiologist is leaning towards a benign healing fracture. Do you recall any incident that could have caused a fractured rib -- a fall or hard bump???
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Hi DLB thanks for your response. No trauma to the area at all. Appreciate your positive response! Will be good to have my appt with oncology and move forward! As many have said here, waiting is hard!!
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waiting is brutal......
I'm at the hospital waiting for a bone scan. MO ordered a chest CT and bone scan. Waiting for the dye to take effect.
Ironically while I went to get some soup, an elderly man fell in the parking lot. It was literally in front of my car. I got out of the car to help him up and now my back is really hurting.
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Tangandchris, bless you for helping the elderly man. What a day you had. Thinking of you as you wait for test results.
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Tangandchris,what a nice thing you did for that man who fell. Sending you good thoughts as you wait for your results.
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results are back and everything looks good. MO still wants to do MRI on Tspine though. Oh and I have a nodule on my thyroid. I will have to have that sonogramed.
Thanks for the support.
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That is awesome about your results!!!! Pls. keep us posted on the rest of your testing.
Best,
Georgie
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Confused as to how I can have multiple hard nodules to my chest but nothing shows on ultrasound? At least, that’s what the technician told me. Also had multiple views of chest X-ray. Guess I’ll get a call on results next week. I want answers as to what these nodules are
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Mom_sweetangel, have you thought taking herbal remedies such as Ginseng to help with the tiredness, these symptoms are side effects of radiation/chemo. There are other remedies out there such as Green Tea. Good luck.
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Hello Everyone, I was Dx with stage 2b in April 2016 when I went to the OC. I had a CT scan and it was clear, she proceeded with Neoadjuvant chemo April through 09/01/16. I had surgery UMX in Oct and reexcision in November. The pathology from surgery showed LVI. The OC did not discuss it with me just refer me to radiation. Does this mean I have Mets? I've been coughing lately 9 months after radiation. I read about a study that came out recently pointed that Neoadjuvant chemo induces tumor metastasis. Could the chemo cause LVI?
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Hi Houston2016, to answer your question re chemo causing LVI it's a resounding no, not possible. LVI means that your tumor had a blood supply.
As for your cough, that would more than likely be caused bu the radiation that you recieved but if it is really worrying you, my suggestion would be to ask your doc to do some tests to rule out Mets for your peace of mind.
Radiation does not mean you have Mets, it is used to 'clean up' any possible lingering stray cells in the hope to prevent you getting Mets.
Hoping this eases your mind.
Love n hugs. Chrissy
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I've really been trying to avoid asking a question, because I feel paranoid. My cancer clinic does not do scans "just because". I did have a a bone scan due to something on an MRI and it came back clean. My TN tumor was discovered during surgery, hiding behind my ER+ tumor. Starting with my last AC infusion and going into Taxol (3 coming up) my right side muscles ache. Sometimes it is the ribs and even at the space in center of rib cage. Sometimes, but rarely, it moves to my back. My logical self says it is pain caused by chemo - it i is a common SE. However, my 3am insomniac self thinks it is liver mets. Would liver mets feel like this? Thank
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Hi VL22, yes the middle of the night can make all things seem a whole lot worse than they really are. It does indeed sound more like a side effect of AC but I fully understand where and why your mind is taking you to dark places.
Liver mets can have no indicators or a whole lot of pain but I would think that it's highly unlikely that that is what's happening as you are still on full chemo. There is a possibility that your liver is having difficulty processing the chemo and that may well be why you are feeling the pain. Are you drinking a lot of water? If not try to increase your intake as that can sometimes help.
Hoping this helps a little.
Love n hugs. Chrissy
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Good morning. Just wanted to update to my previous post, check in and say hello. I saw my oncologist yesterday for my annual visit and also to review my recent Br MRI, PET/CT, and Bone Scan. She said the results were not conclusive, could not rule out mets but that a solitary bone met in her experience is not usually the way mets presents but....she couldn't say for sure that it wasn't because she has seen it before. She said I could do a biopsy but then quickly moved on to suggesting the oncology radiologist review my scan. She said she would consult with him and get back to me. I request to have an appointment with him so I could hear what his thoughts were and to also see the actual scan results. I have that appointment today. The oncologist moved me back to 6 month checks and I guess we will touch base after I meet with the radiologist oncologist. I am glad they were able to get me in today!
Best,
Georgie
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VL22, have you had your gallbladder checked? Pain from something going on with that is frequently centered, as you described, but can also be "referred" to other areas. I would maybe ask for an u/s to see of it's possibly inflamed for some reason, perhaps from chemo. The fact that your pain moves around, combined with your dx stats and, as Chrissy pointed out, that you're still doing chemo, makes me think it's something other than bone mets.
I also second Chrissy's suggestion to be sure you're drinking enough water. Chemo, as you probably know by now, can be very constipating, and surprisingly, even pain from that can happen up quite high. I've had it myself when things were stopped up.
Good luck, and please keep us posted on anything you figure out. Deanna
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Deanna and Chrissy, thanks so much for the support. I go for chemo tomorrow and will talk to the MO and request a us.
I probably do not drink enough water - I need to do a better job keeping track!
Vaness
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