Just diagnosed and terrified

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Anonymous
Anonymous Member Posts: 1,376
edited October 2017 in Just Diagnosed
Just diagnosed and terrified
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  • Theresa987
    Theresa987 Member Posts: 19
    edited October 2017

    hello, today I am diagnosed with metastatic breast cancer. So clinical appearance is L breast inflammatory carcinoma. Left axillary node positive for metastatic breast cancer. Other axillary node also positive with mets cells within the fat.. ER weakly, PR neg, Her2 equivocal pending FISH. Unfortunately can't find primary source, I have to go for MRI..to identity primary source. So another biopsy. Port being placed in a week.

    L breast dermal biopsy neg. And parenchymal biopsy neg.

    I feel terrified, docs moving fast. Thankful for that. But just weepy and scared.

    How do you stop the frightening thoughts. I have info on support groups. Just need to get my head wrapped around this




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  • CIW
    CIW Member Posts: 76
    edited October 2017

    Theresa987--I am so sorry to hear about your diagnosis. It's so scary and the anxiety of waiting for testing can be so hard. I wish I had magic advice on how to get through it, but nothing makes it easy. What helped me when I first got diagnosed, but didn't know how advanced it was was getting outside in nature, going for walks, and being around people I care about. Do you have things that help you when you're feeling anxious? Maybe journaling or some form of distraction? While it's scary and waiting is really hard, I can tell you that you will get through it even if it feels like you can't. Some days are easier and some are harder, but you will get through this yucky, unknown phase. You are not alone.

    One day at a time.

    Many good thoughts sent your way.

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  • Theresa987
    Theresa987 Member Posts: 19
    edited October 2017

    CW, thank you so much for your reply. Im 57yr old. I have a great family, all wanting to help. I just have to learn to accept the help :) and I love taking walks with the dog, that I will be doing.. Its all brand new, life is going to change for me, I just need to roll with it.

    I'm sure the next 2 weeks is going to be a little crazy. Still going to be weepy for a while I'm sure. Will try to keep the crazy thoughts out of my head. Overwhelming

    Thanks!


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  • vampeyes
    vampeyes Member Posts: 1,227
    edited October 2017

    Oh Theresa I am so sorry you have found yourself here with us. {HUGS}. Everyone keeps telling me that I need to suck it up basically and allow others to help, like you I have a hard time doing that. I have found that exercise, crafting, music help me with taking my mind off of the cancer. I have no idea how bad mine is yet, all I know is that it is Cancer and keeping my mind doing something that needs my focus really helps. Like CW said one day at a time is all we can do until we get our treatment plans.

    Cheryl

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  • Moderators
    Moderators Member Posts: 25,912
    edited October 2017

    Theresa, we're so sorry to hear about your diagnosis and all you're going through. We know there must be a lot going on in your head, it's certainly an overwhelming time! But we hope once you have all your test results and a treatment plan in place things will level off a bit, hang in there!

    We've thought that besides this forum and the wonderful responses you've got here, you may be interested in also posting in the Stage IV forum where members have a ton of advice and experience with the stage IV diagnosis, treatments, and more, which we're sure you can learn from.

    Please know that you're not alone, we are all here for you!

    The Mods


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  • Theresa987
    Theresa987 Member Posts: 19
    edited October 2017

    thank you! Yeah I'm just trying to navigate around the web site, and where I belong on it πŸ˜ƒ. Ill use the link you provided and read what's there..

    Yes it is going to be an adjustment that's for sure. thank you both!


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  • jenny550
    jenny550 Member Posts: 8
    edited October 2017

    Offering up love, hugs and prayers!!

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  • Virgo73
    Virgo73 Member Posts: 43
    edited October 2017

    Theresa987 - sorry to hear about your DX, some of us are very new to this site and, like you we’re searching for insight, advice and emotional support from other women who are actually dealing with this. Stay positive!! I am curious, did you have any symptoms from the met? Also, how did they diagnose the met

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  • beach2beach
    beach2beach Member Posts: 996
    edited October 2017

    Hi Theresa987,

    Sorry you find yourself here. Please lean on whomever you need to lean on. This is a crazy time for you. You get hit with the diagnosis then you wait. Keeping distracted while you wait for all the information to come in is tough but worth it. Even for a few seconds to have your mind focused on something else.

    Hugs to you and keeping you in my thoughts.

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  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited October 2017

    Theresa987:

    SO sorry you find yourself here. A member of the club no one wanted to belong to. Take comfort in knowing we understand and that you've found the most supportive group of people! Ask questions, no matter how minor. Someone will be able to chime in with advice or suggestions.

    I got my pre-surgical prep lists here (things no doctor, unless they have had this type of surgery and BC, would ever think to tell you), gained so much knowledge (much by reading what other doctors around the country were/are doing for those with a diagnosis similar to my own), and found a kinship. It's often a lonely place, even with family trying to help, because they don't quite get it.

    Walk that dog! (My dog and cats have been of great comfort.) Watch silly TV or romantic movies. In between the worry and angst and research. The fear gets better with a plan in place. I promise.

    Big, warm virtual HUG to you!!!

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  • Theresa987
    Theresa987 Member Posts: 19
    edited October 2017

    thank you all for your replys, support, and prayers. And I send my prayers and support right back at all of you! This all is a tremendous help thank you.

    Virgo73 no symptoms from the mets, (although every twinge or ache I think uh oh 😊) they are calling it mets because the 2 axillary lymph node biopsy came back positive. The Ca cells originate from breast.

    Now this week - breast MRI to find tumor

    Port placement

    Er neg, PR neg, just awaiting FISH Results


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