Starting chemo August 2017 - would love some moral support!

Ree so sorry to hear about your hospitalization. I know you will get good care now. Sending hugs.

I wish I could get the flu shot but I usually have a reaction and don’t want to risk it just yet.

The third CT was awful. I got nauseous even during the infusion. I’m still queasy but taking everything they gave me. I hope it passes soon.

Enjoy the weekend as best you can everyone. We are going to have a very wet one

Hi ladies

I'm in July and August group and I'm thinking to start a Facebook group as pink sisters 2017 so we can keep in touch after this journey. I know putting our life after this journey could be hard and we can share our good and bad time together with our family.

If you are interested send me your real name in private message and I will send you mine so we can all join together.

Pau

Thanks Paulette I appreciate only have one more to go . Thank God. I’m still feeling wiped. I’ll PM you. Will it be a private group?

Travel girl I just got a referral to an acupuncturist. I believe they can be really helpful. I just can’t have needles sticks in my surgical arm because I have very slight lymphedema. Did they do the needles in your arm?

It did not fit and they had to reorder it. They have actually not diagnosed me with LE but I am very slightly swollen with some cording. I need the sleeve because I fly long distance to visit my child in Geneva

Susan, the needles are really small, I think if you tell them to avoid that area, they will do so. Communication is the key

As an aside for anyone thinking about it -- you can't even feel the needles, I was shocked and wished I had started earlier at this point.

Let's see -- I had one in my ankle, elbow, ear, head, wrists, not sure where else, I just close my eyes and relax.

Hello PauletteK, I have 2 TCH (P got cut) infusions to go. After that, just herceptin. (Lumpectomy/lymph nodes surgery at some point at the end of the year The SE after this last one (9/28/17) are the worst they've been. Still waiting on that Birthday Cake.

Hi Paulette and sweetp6217,

I haven't posted in a long time but still jump on to read. I still have 2 TCHP to go as well. My last one is Nov 1st and then I will have a lumpectomy on Nov 28th.

So guess what happened NOW. I am still in the hospital due to the neutropenic fever but all my bloodwork is good now and I am feeling good, except my neck got swollen on the side of my port. The dr. ordered a CT Scan and I have a blood clot around the port! I haven’t seen the images so not sure exactly details. I just can’t believe my bad luck! Im going to have my port taken out. :-

Rebeckah, what an ordeal, I am so sorry you are going through this, what happens next, can you opt for a piccline? I have one, it does not bother me at all, at least so far, and they are easier to set in and get out. I am glad your fever is over. Hugs from Stockhol

Paulette, I am here, was not posting much. The back pain is a concern for sure, thank you for askungen, I will discuss it tomorrow with my oncologist. It comes and goes, especially when I roll on the foam roller and all verthebrae click back, it is gone but then it starts again and sort of ombes around the upper back, no fan at all. My both PTs recognize the symptoms of thoracic lock and we are trying to unlock it but my diagnosis is always there in my mind and I am constantly worried. They did a usual x-ray back in August that came back clean. I dunno, I am doing my exercises. The PT says my worries cause the tension in this region, that I have to relax and I wonder how would this part will be possible? I am on a mild anti-depressive already, what else can I do, I am trying to cope with this disgnosis but so far it has taken the sense of security from me for sure

Cherry

Paulette, it was not a scan, it was a usual X-ray.

Rebeckah, I hope that your port removal goes without a hitch. Sorry that it made your neck swell up. Hugs.

Leatherette, my 4th round was the very worst as far as SE. Lost 14 pounds in 7 days due to huge lack of appetite, metal taste, V depending on what I tried to eat or drink (only a few times though). Thank you Zofran. Still didn't make my appetite come back, had to force myself to snack on a few things. Even maccies didn't help like usual. Now, all but two of my fingertips are numb, by toes are coming back to life gradually, but the balls of my feet still feel numb. Also felt a bit dizzy today at work, gotta kneel rather than bend over to pick something up. Eyes could be better too. Lomotil can effect the eyes a bit, can't focus on tiny print so well. Gotta get a good magnifying glass.

Paulette: I'm feeling better today with the exception of the dizziness when I bend over. My taste buds are back, thank God. About the neuropothy, yes. Got it myself gradually and it gets worse with each round. My back and joints all the way to my toes hurt badly two and three days after the last round. First time for me. The fasting due to SE started on day 2 and went on for several days. Not really fasting if you count one or two nibbles a day. Went in for saline on Monday (a week ago) due to lack of eating and drinking. I'm finally going the other way now with eating, but have to work on drinking... with flavored water.

I'm so bad on acting on this. I actually tried ensure back when I was helping out my MIL with her big C over a year ago. She told me it tasted bad and I agreed, with the vanilla. She couldn't take the chocolate version. So I'm thinking of going with Slim Fast since it has vitamins or maybe just carnation instant breakfast since it doesn't come with that evil ingredient Phenylalanine.

I'm off to Rosati's to get some mosticolli. B-Day was last tuesday.

DodgersGirl- I try not to bend over could it be low red blood count??

Sweetp - I drunk some ensure milk yesterday with banana and yogurt, it doesn’t taste that good just sweet!!!

Ree...you are really going through the wringer. I can’t tell you how much I feel for you. Sending a big hug. I hope you are back home soon.

I second the loss of appetite and dizziness. I get nauseous even looking at food in my refrigerator. Nothing tastes good. Sweets are the worst.

My pulse which was low all my life is,now high and my BP is low. I also have bone pain today and my mastectomy nerves are firing. Really swell. . I find I just don’t like to stand up for too long. Only one more to go so I guess I’ll get through it.

Sleep well dear friends and special blessings for you gals with kids at home and those that have to work. I have no right to complain as a retired grandma

Cherry- I can nay compare my experience with AC and taxol, when I had AC I was down for good few days, then I used the good days to rebuild myself. I was strong than now. And the wbc shot I handled it well, but some people had all kind of pains. Taxol, I have one to one and half bad days the most. You have taxol already you know how it goes.